#TalkEndo
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endo1000.bsky.social
When did you last have to plan months ahead for work? ☝️

More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
A photo of Ffion in rugby uniform TEXT: "Considering its my job to excessively exercise everyday, I become so anxious as I have to mentally prepare myself in case I flare. Also, majority of our staff are men, who do not have an understanding of female health, let alone endometriosis, so it is difficult to manage it during training and manage people's perceptions. " A photo of Lyndsey TEXT: "I’ve missed days of school and university due to pain for as long as I can remember. It got to the point I was probably unemployable and possibly wouldn’t be able to hold down a job. I was unreliable, I was throwing up at work, and I couldn’t concentrate. I don’t know how I’ve made it through the day sometimes." Endometriosis can end careers. A photo of Rebecca TEXT: "It has directly caused me to change careers, as I am unable to work long hours on my feet as a chef anymore. Symptoms and flare-ups are so unpredictable. You have to think 3 steps ahead, like not taking a role that will involve extensive travel, even if you feel well when you apply, because in 6 months you might not be able to walk or travel."
September 30, 2025 at 3:30 PM
endo1000.bsky.social
#Endometriosis doesn't just affect personal life.

Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
TEXT: Endometriosis can end careers. A photo of ambassador Candice. TEXT: "Endometriosis has clipped my professional wings, it's impaired my career growth, interfered with professional relationships in the workplace." A photo of ambassador Phoebe. TEXT: "Suffering from Endometriosis as a working woman can force you to leave/miss work. Due to a lack of research and visibility around Endometriosis, in the past I have had to constantly defend that my disability is more than just your average period pain." A photo of Neroli. TEXT: "Endometriosis has impacted me severely with my symptoms causing me to miss a significant amount of school each month,and any aspirations I had for a dance career had to be reconsidered as I wasn’t able to keep up with the rigorous schedule and demands of my dance academy."
September 16, 2025 at 10:10 AM
endo1000.bsky.social
Welcome to our new series 'What's that?' Wednesday!

Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis.

First up, what are the three different types of #endometriosis?
Text: What are the different types of endometriosis? Wait... there's more than one? Text: Peritoneal endometriosis is mainly found in the pelvis, and surrounds the pelvic organs like the uterus and bladder Text: Ovarian endometriosis is when you find endometriosis cysts on the ovaries, this is most commonly where you find 'chocolate cysts' (aka endometrioma) Text: Deep infiltrating endometriosis just like peritoneal endometriosis, but is embedded deeper It is usually found in organs around the pelvis This can sometimes cause a lot of scar tissue and adhesions
July 9, 2025 at 1:00 PM
endo1000.bsky.social
Ever had people ask 'what is endometriosis anyway?' because we definitely have! 🩸

We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)
June 6, 2025 at 4:00 PM
endo1000.bsky.social
Meet the team! Say hello to Thanasis, lead for digital health 👋 Thanasis is working on the data collection for ENDO1000, including our custom app and smartwatches. Head to our website for more info about the team and sign up to our mailing list!

#womenshealth #talkendo#endometriosis
April 16, 2025 at 10:19 AM
endo1000.bsky.social
ENDO1000 co-director @horne-research.bsky.social was in Spain last week, presenting at a conference about endometriosis diagnosis. Also speaking was patient advocate Kristy Penrose. It's great to see patient perspectives included at conferences like this! #TalkEndo #endometriosisawarenessmonth
Professor Andrew Horne stands at a lectern at a conference and is mid speaking. He is stood in front of a screen showing a diagram of diagnostic delays for endometriosis. Patient advocate Kristy Penrose stands at a lectern at a conference. She is stood in front of a screen showing an image of a post-it note that says "PAIN DIARY!" Professor Andrew Horne stands at a lectern at a conference and is mid speaking. He is stood in front of a screen showing a diagram of latest research on possible treatment for endometriosis
March 10, 2025 at 12:11 PM
endo1000.bsky.social
The ENDO1000 lab team welcomed our colleagues in Development and Alumni, (who help us out with fundraising and donations) to the lab yesterday! It's great to be able to share what each team is doing and stay connected for our cause!
Thanks for coming by! #1in10 #TalkEndo #Endometriosis
A group of 7 women stand in a lab, all wearing white lab coats and looking happy.
February 20, 2025 at 10:41 AM
endo1000.bsky.social
1 in 10 women have endometriosis. Even this might be an underestimate due to the delay in diagnosis. It's no surprise that more women are speaking out about their experience with it. It's vital that we continue to #TalkEndo https://buff.ly/3CXAAj2
#1in10 #Traitors #Endometriosis
The Traitors' Elen has opened up about her stage 4 endometriosis
Like too many women, she had to fight for years to be heard
buff.ly
February 19, 2025 at 11:51 AM
endo1000.bsky.social
Meet the ENDO1000 team!

Say hello to Research Assistant, Martha Brown 👋 Head to the ENDO1000 website for more info about the team and sign up to our mailing list to stay up to date! (Link in bio)

#womenshealth #oneinten #talkendo #endo1000 #endometriosis
February 6, 2025 at 11:00 AM
endo1000.bsky.social
It was an absolute pleasure to meet up with some of our southerly ambassadors in London last night to meet in person and get inspired for next steps. We’re excited to keep pushing the ENDO1000 project towards our goal of raising £1M to fund this crucial research #endometriosis #1in10 #talkendo
A group of 10 women, including Black, Asian, and white women, and a man take a group photograph in a restaurant. They stand or sit smiling in front of a wooden table which has several ENDO1000 branded cups and two poster boards on it.
January 28, 2025 at 10:13 AM
endo1000.bsky.social
Last week we sent some goodies to a long time supporter to help her raise money for us. A huge thanks to Claire for her efforts! If you’d like to know more about how you can raise money for our vital research project, head to www.endo1000.com/donate/
#endometriosis #1in10 #womenshealth #talkendo
Several items of ENDO1000 branded items, including stickers in tattoo aftercare packs, a charity collection pot, a pen, a pin badge, a large sticker, and a reusable coffee cup are placed together on a dark surface against a white wall in an ENDO1000 supporter’s tattoo shop
January 27, 2025 at 10:51 AM
endo1000.bsky.social
Meet the ENDO1000 team!

Francesca Hearn-Yates, PhD Researcher, on how her research fits in with ENDO1000. Head to the ENDO1000 website for more info about the team and sign up to our mailing list to stay up to date! (Link in bio)

#womenshealth #oneinten #talkendo #endo1000 #endometriosis
January 17, 2025 at 11:18 AM
endo1000.bsky.social
Meet the team!

Frances Collins, trial manager, explains her role in the project. Head to the ENDO1000 website for more about the team and sign up to our mailing list to stay up to date! (Link in bio)

#womenshealth #oneinten #talkendo #endo1000 #endometriosis
January 13, 2025 at 11:19 AM
endo1000.bsky.social
Let’s keep the conversion going. Find out more about ENDO1000 and donate if you can at endo1000.com
Link in bio ⬆️
#talkendo #endometriosis #oneinten #womenshealth #endo

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December 16, 2024 at 2:26 PM
endo1000.bsky.social
Some much needed recognition of the medical misogyny and dismissal that is all too common for endometriosis sufferers
👏👏👏 #talkendo #endometriosis #1in10

www.theguardian.com/society/2024...
‘Medical misogyny’ condemns women to years of gynaecological pain, MPs told
Damning parliamentary report blames lack of education by healthcare workers and ‘pervasive stigma’ for poor care
www.theguardian.com
December 11, 2024 at 11:49 AM
endo1000.bsky.social
Meet the ENDO1000 team!

Philippa Saunders, Co-Director, explains her role in the project. Head to the ENDO1000 website for more info about the team and sign up to our mailing list to stay up to date! (Link in bio)

#womenshealth #oneinten #talkendo #endo1000 #endometriosis
December 9, 2024 at 4:52 PM
endo1000.bsky.social
An awful, and all too common story of struggling to get a diagnosis of #endometriosis
Stories like this show why it's vital that we #TALKEndo
www.thetimes.com/article/4194...
Like Florence Pugh, my endometriosis went undiagnosed for years
The actress froze her eggs to save her fertility — Holly Bourne’s only hope was surgery
www.thetimes.com
November 22, 2024 at 4:29 PM
endo1000.bsky.social
Special guests at our launch event last month got to hear direct from our researchers about their work, and soon you can too! 🔬 Keep an eye out for videos taking you into the lab with the ENDO1000 team, coming soon 👀
#TALKEndo #Endometriosis #ENDO1000
Inside a dark blue frame with the ENDO1000 logo and #TALKEndo, a photo of a researcher in a lab coat explaining her work to a lab full of visitors
November 22, 2024 at 1:01 PM
wyrdingstudios.com
Yep.

RT @talkendo: @wyrdingstudios Camera gnome?
November 4, 2024 at 10:24 PM