Hello yes this is the type of thalassaemia I have and I would like my genes edited pls!!
*holds out arm*
Edit!!
*holds out arm*
Edit!!
A phase 1 clinical trial of base editing to treat beta-thalassaemia looks promising. Wow, this genome-editing technique is moving fast!
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Clinical application of base editing for treating β-thalassaemia - Nature
A clinical phase 1 trial of a single infusion of CS-101, CD34+ cells modified using a transformer base editor to reactivate fetal haemoglobin production, led to early and enduring transfusion independ...
www.nature.com
May 22, 2026 at 9:31 PM
Hello yes this is the type of thalassaemia I have and I would like my genes edited pls!!
*holds out arm*
Edit!!
*holds out arm*
Edit!!
Lovely event with the Youth Committee of Friends of Cymru Sickle Cell & Thalassaemia & Thalassaemia CIC who have put together a panel to talk about The Wild Robot and how films like this can help us deal with complex themes of family and dealing with emotional difficulties.
November 30, 2024 at 1:40 PM
Lovely event with the Youth Committee of Friends of Cymru Sickle Cell & Thalassaemia & Thalassaemia CIC who have put together a panel to talk about The Wild Robot and how films like this can help us deal with complex themes of family and dealing with emotional difficulties.
Nature research paper: Clinical application of base editing for treating β-thalassaemia
go.nature.com/4sVOKpB
go.nature.com/4sVOKpB
Clinical application of base editing for treating β-thalassaemia - Nature
A clinical phase 1 trial of a single infusion of CS-101, CD34+ cells modified using a transformer base editor to reactivate fetal haemoglobin production, led to early and enduring transfusion independence in patients with β-thalassaemia.
go.nature.com
April 10, 2026 at 7:56 AM
Nature research paper: Clinical application of base editing for treating β-thalassaemia
go.nature.com/4sVOKpB
go.nature.com/4sVOKpB
A phase 1 clinical trial of base editing to treat beta-thalassaemia looks promising. Wow, this genome-editing technique is moving fast!
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Clinical application of base editing for treating β-thalassaemia - Nature
A clinical phase 1 trial of a single infusion of CS-101, CD34+ cells modified using a transformer base editor to reactivate fetal haemoglobin production, led to early and enduring transfusion independ...
www.nature.com
May 22, 2026 at 9:28 PM
A phase 1 clinical trial of base editing to treat beta-thalassaemia looks promising. Wow, this genome-editing technique is moving fast!
www.nature.com/articles/s41...
www.nature.com/articles/s41...
"For millions of people living with β-haemoglobinopathies worldwide, including SCD and β-thalassaemia, the infrastructure needed for chemotherapy, stem-cell transplantation and ex vivo gene editing remains out of reach — particularly in in low‑resource settings."
July 1, 2026 at 4:59 PM
"For millions of people living with β-haemoglobinopathies worldwide, including SCD and β-thalassaemia, the infrastructure needed for chemotherapy, stem-cell transplantation and ex vivo gene editing remains out of reach — particularly in in low‑resource settings."
happy #phanniefriday yippee (ignore how pale i am rn im not white i promise i just have thalassaemia😭)
January 24, 2025 at 1:36 PM
happy #phanniefriday yippee (ignore how pale i am rn im not white i promise i just have thalassaemia😭)
Brixton’s new blood donor centre is vitally important in addressing the need for blood donors, particularly from Black communities.
There’s an urgent need for more Black Londoners to give blood to provide life-saving transfusions to sickle cell patients
londonnewsonline.co.uk/news/new-blo...
There’s an urgent need for more Black Londoners to give blood to provide life-saving transfusions to sickle cell patients
londonnewsonline.co.uk/news/new-blo...
New blood centre in Brixton opened by sickle cell awareness campaigner
A plaque at the centre recognises Dame Elizabeth’s lifelong commitment to improving the care of people living with sickle cell disease and thalassaemia and heralds a new phase in NHS Blood and Tran…
londonnewsonline.co.uk
January 26, 2025 at 10:01 AM
Brixton’s new blood donor centre is vitally important in addressing the need for blood donors, particularly from Black communities.
There’s an urgent need for more Black Londoners to give blood to provide life-saving transfusions to sickle cell patients
londonnewsonline.co.uk/news/new-blo...
There’s an urgent need for more Black Londoners to give blood to provide life-saving transfusions to sickle cell patients
londonnewsonline.co.uk/news/new-blo...
Stem cell transplantation could be a rapid and effective way to restore haemoglobin production in individuals with the blood disorder β-thalassaemia, according to a study in Nature. The treatment could reduce dependence on blood transfusions in some people with the disease in the future. #medsky 🧪
Clinical application of base editing for treating β-thalassaemia
Nature
go.nature.com
April 10, 2026 at 4:26 PM
Stem cell transplantation could be a rapid and effective way to restore haemoglobin production in individuals with the blood disorder β-thalassaemia, according to a study in Nature. The treatment could reduce dependence on blood transfusions in some people with the disease in the future. #medsky 🧪
Pictured here donating money to the Thalassaemia & Sickle Cell Anaemia Societies. Haringey Council offices, Wood Green.
Bernie Grant behind him.
Bernie Grant behind him.
June 25, 2026 at 9:36 AM
Pictured here donating money to the Thalassaemia & Sickle Cell Anaemia Societies. Haringey Council offices, Wood Green.
Bernie Grant behind him.
Bernie Grant behind him.
Kleines Fallbeispiel aus dem Labor, das ich heute interessant fand.
#Medizin
#medbubble
Mitte 40jährige Patientin wird von einer niedergelassenen Internistin überwiesen, Angaben auf dem Überweisungsschein:
Dx
V.a. Thalassaemia minor, gesicherte allergische Rhinitis, gesicherter Uterus myomatosus,
#Medizin
#medbubble
Mitte 40jährige Patientin wird von einer niedergelassenen Internistin überwiesen, Angaben auf dem Überweisungsschein:
Dx
V.a. Thalassaemia minor, gesicherte allergische Rhinitis, gesicherter Uterus myomatosus,
October 6, 2023 at 2:13 PM
Kleines Fallbeispiel aus dem Labor, das ich heute interessant fand.
#Medizin
#medbubble
Mitte 40jährige Patientin wird von einer niedergelassenen Internistin überwiesen, Angaben auf dem Überweisungsschein:
Dx
V.a. Thalassaemia minor, gesicherte allergische Rhinitis, gesicherter Uterus myomatosus,
#Medizin
#medbubble
Mitte 40jährige Patientin wird von einer niedergelassenen Internistin überwiesen, Angaben auf dem Überweisungsschein:
Dx
V.a. Thalassaemia minor, gesicherte allergische Rhinitis, gesicherter Uterus myomatosus,
May the 8th is International Thalassaemia Day, a hereditary red cell disorder that requires frequent blood transfusions. Give blood (before we take it by force) ✌🏼❤️
May 8, 2025 at 8:36 AM
May the 8th is International Thalassaemia Day, a hereditary red cell disorder that requires frequent blood transfusions. Give blood (before we take it by force) ✌🏼❤️
Clinical trial shows gene editing works for β-Thalassaemia, too https://a<a href="https://rstechnica.com/science/2026/04/clinical-trial-shows-gene-editing-works-for-β-thalassaemia-too/" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">rstechnica.com/science/2026/04/clinical-trial-shows-gene-editing-works-for-β-thalassaemia-too/
↷ canadahealthwatch.ca 🍁
↷ canadahealthwatch.ca 🍁
April 10, 2026 at 1:24 PM
Clinical trial shows gene editing works for β-Thalassaemia, too https://a<a href="https://rstechnica.com/science/2026/04/clinical-trial-shows-gene-editing-works-for-β-thalassaemia-too/" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">rstechnica.com/science/2026/04/clinical-trial-shows-gene-editing-works-for-β-thalassaemia-too/
↷ canadahealthwatch.ca 🍁
↷ canadahealthwatch.ca 🍁
Large-scale gene-editing therapy in adults is something I have been excited about since I first heard about CRISPR - and it's finally here. 🧪
More of these and for more genetic syndromes, please.
The wielder, elective, stuff - that's a discussion for another day.
www.bbc.com/news/article...
More of these and for more genetic syndromes, please.
The wielder, elective, stuff - that's a discussion for another day.
www.bbc.com/news/article...
Beta thalassaemia: First gene-editing therapy could cure disorder
The treatment for beta thalassaemia is to be offered on the NHS and uses Nobel Prize-winning technology.
www.bbc.com
August 8, 2024 at 6:25 AM
Large-scale gene-editing therapy in adults is something I have been excited about since I first heard about CRISPR - and it's finally here. 🧪
More of these and for more genetic syndromes, please.
The wielder, elective, stuff - that's a discussion for another day.
www.bbc.com/news/article...
More of these and for more genetic syndromes, please.
The wielder, elective, stuff - that's a discussion for another day.
www.bbc.com/news/article...
Disease severity in the thalassaemia syndromes is usually linked to the magnitude of the globin chain imbalance.
http://dlvr.it/TTWz7f
http://dlvr.it/TTWz7f
July 14, 2026 at 10:33 AM
Disease severity in the thalassaemia syndromes is usually linked to the magnitude of the globin chain imbalance.
http://dlvr.it/TTWz7f
http://dlvr.it/TTWz7f
⏰ 2 DAYS TO GO
The APPG on Sickle Cell and Thalassaemia’s Call for Evidence closes 30 September.
Your experiences and expertise can help inform its inquiry into improving sickle cell and thalassaemia services.
Find out more via our website.
#SickleCell #Thalassaemia #APPG
The APPG on Sickle Cell and Thalassaemia’s Call for Evidence closes 30 September.
Your experiences and expertise can help inform its inquiry into improving sickle cell and thalassaemia services.
Find out more via our website.
#SickleCell #Thalassaemia #APPG
September 28, 2026 at 9:01 AM
⏰ 2 DAYS TO GO
The APPG on Sickle Cell and Thalassaemia’s Call for Evidence closes 30 September.
Your experiences and expertise can help inform its inquiry into improving sickle cell and thalassaemia services.
Find out more via our website.
#SickleCell #Thalassaemia #APPG
The APPG on Sickle Cell and Thalassaemia’s Call for Evidence closes 30 September.
Your experiences and expertise can help inform its inquiry into improving sickle cell and thalassaemia services.
Find out more via our website.
#SickleCell #Thalassaemia #APPG
Haematologist, particularly red cells (sickle and thalassaemia) and women's health haematology here
November 15, 2024 at 11:24 PM
Haematologist, particularly red cells (sickle and thalassaemia) and women's health haematology here
Huge congratulations on the award of an MBE to Matty Asante-Owusu, Sickle Cell Community Matron, Sickle Cell & Thalassaemia Centre, Whittington Health NH Trust. Incredibly well deserved and her patients will be over the moon!
December 31, 2024 at 11:42 AM
Huge congratulations on the award of an MBE to Matty Asante-Owusu, Sickle Cell Community Matron, Sickle Cell & Thalassaemia Centre, Whittington Health NH Trust. Incredibly well deserved and her patients will be over the moon!
(24%) of people with sickle cell disease had spent 1-2 weeks in hospital. The treatment will be offered at specialist NHS centres in London, Manchester and Birmingham, and follows a deal in August 2024 for the NHS to access exa-cel for eligible patients with transfusion dependent beta-thalassaemia.
February 1, 2025 at 6:05 PM
(24%) of people with sickle cell disease had spent 1-2 weeks in hospital. The treatment will be offered at specialist NHS centres in London, Manchester and Birmingham, and follows a deal in August 2024 for the NHS to access exa-cel for eligible patients with transfusion dependent beta-thalassaemia.
International Thalassaemia day today & someone very dear to me is a Thal sufferer so it should obviously be important to everyone.
Please (if you can) donate blood at your local blood bank.
If not, you can send money here ukts.org/donate/
Please (if you can) donate blood at your local blood bank.
If not, you can send money here ukts.org/donate/
Donate - UKTS
ukts.org
May 8, 2025 at 8:59 AM
International Thalassaemia day today & someone very dear to me is a Thal sufferer so it should obviously be important to everyone.
Please (if you can) donate blood at your local blood bank.
If not, you can send money here ukts.org/donate/
Please (if you can) donate blood at your local blood bank.
If not, you can send money here ukts.org/donate/
A pleasure to officially open the #sicklecell & #thalassaemia Emergency Department Bypass Unit at North Middlesex hospital with Chief Nurse for London, Karen Bonner. Thank you to Evan Smith’s family and all who made the Unit happen, securing better outcomes for #sicklecell & #thalassemia patients
December 31, 2024 at 2:16 PM
A pleasure to officially open the #sicklecell & #thalassaemia Emergency Department Bypass Unit at North Middlesex hospital with Chief Nurse for London, Karen Bonner. Thank you to Evan Smith’s family and all who made the Unit happen, securing better outcomes for #sicklecell & #thalassemia patients
This for our #DMU #students: #Design #Intern needed starting in Autumn 2025 using any medium like #photography #drawing #graphicart #art #multimedia There's loads of opportunities via #frontrunners on #Mygateway Apply by 3rd of March #paid #internship
The Social Study of Thalassaemia and Sickle Cell (TASC) Unit – The Unit for the Social Study of Thalassaemia and Sickle Cell was formed by Professor Simon Dyson in 2001. The current director is Dr Mar...
tascunit.com
February 27, 2025 at 9:44 AM
This for our #DMU #students: #Design #Intern needed starting in Autumn 2025 using any medium like #photography #drawing #graphicart #art #multimedia There's loads of opportunities via #frontrunners on #Mygateway Apply by 3rd of March #paid #internship
Thalassaemia patients report postponed transfusions and reduced blood supplies at hospitals in Athens, Rhodes, Mytilene and Rio, urging people to donate during the summer.
Blood Shortages Delay Transfusions at Greek Hospitals - tovima.com
ebx.sh
August 10, 2026 at 1:10 PM
Thalassaemia patients report postponed transfusions and reduced blood supplies at hospitals in Athens, Rhodes, Mytilene and Rio, urging people to donate during the summer.
Excellent news as gene editing tool for a thalassemia that leaves sufferers unable to make enough haemoglobin can potentially cure for life set to be offered v via NHS in UK 🧪
NHS to offer ‘life-changing’ gene therapy for blood disorder thalassaemia
Treatment may be offered to hundreds with severe form of disease, most often found in people of Mediterranean, Asian and Middle Eastern heritage
www.theguardian.com
August 8, 2024 at 7:09 AM
Excellent news as gene editing tool for a thalassemia that leaves sufferers unable to make enough haemoglobin can potentially cure for life set to be offered v via NHS in UK 🧪
From the #Transfusion Evidence Round-Up - Best of the Transfusion Evidence Library 2025:
Mitapivat in adults with non-transfusion-dependent α-thalassaemia or β-thalassaemia (ENERGIZE) (...)
by Taher et al.
www.transfusionevidencelibrary.com/articles/405...
#MedSky
@isbt.bsky.social
Mitapivat in adults with non-transfusion-dependent α-thalassaemia or β-thalassaemia (ENERGIZE) (...)
by Taher et al.
www.transfusionevidencelibrary.com/articles/405...
#MedSky
@isbt.bsky.social
December 16, 2025 at 10:05 AM
From the #Transfusion Evidence Round-Up - Best of the Transfusion Evidence Library 2025:
Mitapivat in adults with non-transfusion-dependent α-thalassaemia or β-thalassaemia (ENERGIZE) (...)
by Taher et al.
www.transfusionevidencelibrary.com/articles/405...
#MedSky
@isbt.bsky.social
Mitapivat in adults with non-transfusion-dependent α-thalassaemia or β-thalassaemia (ENERGIZE) (...)
by Taher et al.
www.transfusionevidencelibrary.com/articles/405...
#MedSky
@isbt.bsky.social