NEW: 53 participants involved in the Vyvgart trial for Long COVID are calling on the government to fund research for the drug after they saw significant improvements that the study didn’t capture.
thesicktimes.org/2025/10/10/v...
thesicktimes.org/2025/10/10/v...
Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. - The Sick Times
We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FD...
thesicktimes.org
October 10, 2025 at 5:05 PM
NEW: 53 participants involved in the Vyvgart trial for Long COVID are calling on the government to fund research for the drug after they saw significant improvements that the study didn’t capture.
thesicktimes.org/2025/10/10/v...
thesicktimes.org/2025/10/10/v...
A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.
Then, without warning, Argenx canceled the trial.
Most of them have now relapsed.
They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5
Then, without warning, Argenx canceled the trial.
Most of them have now relapsed.
They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5
October 10, 2025 at 5:42 PM
A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.
Then, without warning, Argenx canceled the trial.
Most of them have now relapsed.
They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5
Then, without warning, Argenx canceled the trial.
Most of them have now relapsed.
They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5
Ahhh der Kurier hat gerade geklingelt und neuen Stoff gebracht…
#TeamMyastheniaGravis
#TeamMyastheniaGravis
September 24, 2026 at 5:50 PM
Ahhh der Kurier hat gerade geklingelt und neuen Stoff gebracht…
#TeamMyastheniaGravis
#TeamMyastheniaGravis
The Sick Times: 'Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.'
By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White
thesicktimes.org/2025/10/10/v...
By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White
thesicktimes.org/2025/10/10/v...
Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. - The Sick Times
We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FD...
thesicktimes.org
October 10, 2025 at 7:36 PM
The Sick Times: 'Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.'
By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White
thesicktimes.org/2025/10/10/v...
By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White
thesicktimes.org/2025/10/10/v...
ALSO: big ups as always to @thesicktimes.org for covering long COVID so robustly and piquing my interest in Vyvgart for long COVID POTS.
July 20, 2026 at 3:07 PM
ALSO: big ups as always to @thesicktimes.org for covering long COVID so robustly and piquing my interest in Vyvgart for long COVID POTS.
Morgen reite ich gen Vyvgart©️
November 5, 2025 at 5:36 PM
Morgen reite ich gen Vyvgart©️
You can read about Vyvgart here. www.ema.europa.eu/en/medicines...
Vyvgart | European Medicines Agency (EMA)
www.ema.europa.eu
October 10, 2025 at 9:48 PM
You can read about Vyvgart here. www.ema.europa.eu/en/medicines...
Na wer fährt jetzt in die Stadt?
Ich hoffe das Vyvgart macht seinen Job…
Ich hoffe das Vyvgart macht seinen Job…
December 23, 2025 at 9:13 AM
Na wer fährt jetzt in die Stadt?
Ich hoffe das Vyvgart macht seinen Job…
Ich hoffe das Vyvgart macht seinen Job…
Amazing! People who were helped by a drug in a clinical trial share their experiences & recommendations:
"We call for two urgent actions...
Hear our stories... & critically examine what went wrong in the original trial design.
Collaborate ... to launch a redesigned clinical trial of Vyvgart..."
"We call for two urgent actions...
Hear our stories... & critically examine what went wrong in the original trial design.
Collaborate ... to launch a redesigned clinical trial of Vyvgart..."
A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.
Then, without warning, Argenx canceled the trial.
Most of them have now relapsed.
They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5
Then, without warning, Argenx canceled the trial.
Most of them have now relapsed.
They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5
October 10, 2025 at 6:10 PM
Amazing! People who were helped by a drug in a clinical trial share their experiences & recommendations:
"We call for two urgent actions...
Hear our stories... & critically examine what went wrong in the original trial design.
Collaborate ... to launch a redesigned clinical trial of Vyvgart..."
"We call for two urgent actions...
Hear our stories... & critically examine what went wrong in the original trial design.
Collaborate ... to launch a redesigned clinical trial of Vyvgart..."
Der Handelsname des neuen Medikamentes klingt wie eine Festung aus dem Herrn der Ringe 👍🏼
Vyvgart
#TeamMyastheniaGravis
Vyvgart
#TeamMyastheniaGravis
October 27, 2025 at 2:12 PM
Der Handelsname des neuen Medikamentes klingt wie eine Festung aus dem Herrn der Ringe 👍🏼
Vyvgart
#TeamMyastheniaGravis
Vyvgart
#TeamMyastheniaGravis
Many thanks for the shout out in the story about the op-ed the brave participants of the trial wrote for @thesicktimes.org last fall, calling for a better designed Vyvgart trial.
thesicktimes.org/2025/10/10/v...
thesicktimes.org/2025/10/10/v...
Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. - The Sick Times
We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FD...
thesicktimes.org
July 20, 2026 at 8:13 PM
Many thanks for the shout out in the story about the op-ed the brave participants of the trial wrote for @thesicktimes.org last fall, calling for a better designed Vyvgart trial.
thesicktimes.org/2025/10/10/v...
thesicktimes.org/2025/10/10/v...
Moin erstmal ☕️
Nach reiflicher Überlegung ist der erste Schuss Vyvgart heute dran und nicht erst Donnerstag. So wie ich in der letzten Woche abgebaut habe. 😔
Nach reiflicher Überlegung ist der erste Schuss Vyvgart heute dran und nicht erst Donnerstag. So wie ich in der letzten Woche abgebaut habe. 😔
December 21, 2025 at 6:12 AM
Moin erstmal ☕️
Nach reiflicher Überlegung ist der erste Schuss Vyvgart heute dran und nicht erst Donnerstag. So wie ich in der letzten Woche abgebaut habe. 😔
Nach reiflicher Überlegung ist der erste Schuss Vyvgart heute dran und nicht erst Donnerstag. So wie ich in der letzten Woche abgebaut habe. 😔
I heard about the vyvgart trial for Long Covid, then nothing since. Now I know why. Yeah, we need to pressure NIH and the company that makes vyvgart to follow through, because it has a lot of promise.
The Sick Times: 'Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.'
By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White
thesicktimes.org/2025/10/10/v...
By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White
thesicktimes.org/2025/10/10/v...
Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. - The Sick Times
We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FD...
thesicktimes.org
October 10, 2025 at 8:17 PM
I heard about the vyvgart trial for Long Covid, then nothing since. Now I know why. Yeah, we need to pressure NIH and the company that makes vyvgart to follow through, because it has a lot of promise.
Did you participate in this Vyvgart clinical trial for #LomgCOVID?
If so, Mt. Sinai needs your blood to analyze a potential autoimmune biomarker that might help millions.
If so, Mt. Sinai needs your blood to analyze a potential autoimmune biomarker that might help millions.
May 26, 2026 at 2:30 PM
Did you participate in this Vyvgart clinical trial for #LomgCOVID?
If so, Mt. Sinai needs your blood to analyze a potential autoimmune biomarker that might help millions.
If so, Mt. Sinai needs your blood to analyze a potential autoimmune biomarker that might help millions.
Moin erstmal ☕️
Gleichbleibende Übelkeit und eine Wirkung des Vyvgart kann ich noch nicht ausmachen 😖
Macht keinen Spaß mehr. (Also hat es vorher auch nicht)
Gleichbleibende Übelkeit und eine Wirkung des Vyvgart kann ich noch nicht ausmachen 😖
Macht keinen Spaß mehr. (Also hat es vorher auch nicht)
November 10, 2025 at 7:05 AM
Moin erstmal ☕️
Gleichbleibende Übelkeit und eine Wirkung des Vyvgart kann ich noch nicht ausmachen 😖
Macht keinen Spaß mehr. (Also hat es vorher auch nicht)
Gleichbleibende Übelkeit und eine Wirkung des Vyvgart kann ich noch nicht ausmachen 😖
Macht keinen Spaß mehr. (Also hat es vorher auch nicht)
Ok da stimmt was mit dem Vyvgart nicht, fange wieder an mich zu verschlucken 🤬
April 8, 2026 at 7:44 AM
Ok da stimmt was mit dem Vyvgart nicht, fange wieder an mich zu verschlucken 🤬
Hatte gestern aber mit meinem Rezept hier in der Apotheke viel Spaß 😉
4x Vyvgart 1000mg 🤣
#TeamMyastheniaGravis
4x Vyvgart 1000mg 🤣
#TeamMyastheniaGravis
December 10, 2025 at 9:21 AM
Hatte gestern aber mit meinem Rezept hier in der Apotheke viel Spaß 😉
4x Vyvgart 1000mg 🤣
#TeamMyastheniaGravis
4x Vyvgart 1000mg 🤣
#TeamMyastheniaGravis
✨Please share! My newsletter is out buff.ly/49zN4OS
📉 COVID levels MEDIUM, but declining fast
🧬 4 wks after COVID, male mice altered sperm RNA➡️anxiety in offspring
💥 Long COVID patients want to restart Vyvgart trial
🛟 Governors Public Health Alliance replaces CDC roles
#medsky #pedsky 😷🧪
📉 COVID levels MEDIUM, but declining fast
🧬 4 wks after COVID, male mice altered sperm RNA➡️anxiety in offspring
💥 Long COVID patients want to restart Vyvgart trial
🛟 Governors Public Health Alliance replaces CDC roles
#medsky #pedsky 😷🧪
October 19, 2025 at 6:02 AM
✨Please share! My newsletter is out buff.ly/49zN4OS
📉 COVID levels MEDIUM, but declining fast
🧬 4 wks after COVID, male mice altered sperm RNA➡️anxiety in offspring
💥 Long COVID patients want to restart Vyvgart trial
🛟 Governors Public Health Alliance replaces CDC roles
#medsky #pedsky 😷🧪
📉 COVID levels MEDIUM, but declining fast
🧬 4 wks after COVID, male mice altered sperm RNA➡️anxiety in offspring
💥 Long COVID patients want to restart Vyvgart trial
🛟 Governors Public Health Alliance replaces CDC roles
#medsky #pedsky 😷🧪
By the way, for autoimmune conditions (the biggest market for plasma I believe), synthetic alternative not dependent on plasma collection are being developed. It’s a class of drugs called anti-FcRn’s, the best-selling of which is called Vyvgart (you may have seen commercials for it, the two…
July 1, 2025 at 3:32 PM
By the way, for autoimmune conditions (the biggest market for plasma I believe), synthetic alternative not dependent on plasma collection are being developed. It’s a class of drugs called anti-FcRn’s, the best-selling of which is called Vyvgart (you may have seen commercials for it, the two…
Wow, this is big. For years, severe autoimmune myositis like IMNM had no approved treatments. Now, a new injection showed a 15.4-point improvement in symptoms for 264 patients in a Phase 3 trial. Real hope for those struggling.
Argenx's VYVGART Hytrulo Shows Positive Phase 3 Results for Autoimmune Myositis
Argenx has announced successful Phase 3 trial results for its drug VYVGART Hytrulo, an under-the-skin injection for autoimmune myositis. This treatment significantly improved symptoms in patients with
www.globenewswire.com
August 18, 2026 at 8:03 PM
Wow, this is big. For years, severe autoimmune myositis like IMNM had no approved treatments. Now, a new injection showed a 15.4-point improvement in symptoms for 264 patients in a Phase 3 trial. Real hope for those struggling.
Not your best effort @wired.com
Quite retro! It's not the weird protocol you're touting here but the fact you cite old discredited disinfo/propaganda instead of any if the plethora of cutting-edge research. Promising results here: thesicktimes.org/2025/10/10/v...
Quite retro! It's not the weird protocol you're touting here but the fact you cite old discredited disinfo/propaganda instead of any if the plethora of cutting-edge research. Promising results here: thesicktimes.org/2025/10/10/v...
Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. - The Sick Times
We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FD...
thesicktimes.org
June 2, 2026 at 8:28 PM
Not your best effort @wired.com
Quite retro! It's not the weird protocol you're touting here but the fact you cite old discredited disinfo/propaganda instead of any if the plethora of cutting-edge research. Promising results here: thesicktimes.org/2025/10/10/v...
Quite retro! It's not the weird protocol you're touting here but the fact you cite old discredited disinfo/propaganda instead of any if the plethora of cutting-edge research. Promising results here: thesicktimes.org/2025/10/10/v...
Moin erstmal ☕️
Aufgeregt von daher 🤢
Um 10:00 Termin im UKE neuer Therapiebeginn.
Bin dann sowas wie in HdR, ich reite gen Vyvgart©️
Aufgeregt von daher 🤢
Um 10:00 Termin im UKE neuer Therapiebeginn.
Bin dann sowas wie in HdR, ich reite gen Vyvgart©️
November 6, 2025 at 6:08 AM
Moin erstmal ☕️
Aufgeregt von daher 🤢
Um 10:00 Termin im UKE neuer Therapiebeginn.
Bin dann sowas wie in HdR, ich reite gen Vyvgart©️
Aufgeregt von daher 🤢
Um 10:00 Termin im UKE neuer Therapiebeginn.
Bin dann sowas wie in HdR, ich reite gen Vyvgart©️
Moin nochmal, gestern ganz vergessen, aber der Pieks sitzt…
May 30, 2026 at 7:44 AM
Moin nochmal, gestern ganz vergessen, aber der Pieks sitzt…
"Vyvgart" might be the worst prescription drug name I've ever heard
September 11, 2026 at 1:56 AM
"Vyvgart" might be the worst prescription drug name I've ever heard
my favorite flavor!
December 17, 2024 at 9:56 PM
my favorite flavor!