#WSCD25
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erneurobloodnet.bsky.social
🩸​June 19th is #WorldSickleCellDay, and
ERN-EuroBloodNet & @radeep.bsky.social are proud to launch a 2-minute animated video co-created with youth living with #SickleCell.

📺 YouTube playlist: bit.ly/40dkz0P

#SickleCellDisease #WSCD25 #TransitionOfCare #PatientVoices #ERN @mmanupe.bsky.social
Transitioning from Pediatric to Adult Care with Sickle Cell Disease – Patients Story - YouTube
Transitioning from Pediatric to Adult Care with Sickle Cell Disease – Patients Story (Multilingual Versions). This video is available in this playlist with t...
bit.ly
June 19, 2025 at 8:01 AM
sicklecelluk.bsky.social
🩸 Make Work Fair for People with Sickle Cell. Meet Benji, sharing why the new Early Day Motion matters. Too many face unfair treatment at work.
✅ Recognise sickle cell as a disability
✅ Train employers
✅ Improve support
📝 Write to your MP: www.sicklecellsociety.org/wscd25/ #SickleCell
July 3, 2025 at 8:02 AM
sheilasobrany.bsky.social
“World Sickle Cell Day – 19 June 2025” Tell it Loud and Wear Red to show your support!

sicklecellsociety.org/wscd25/
1. What is WSCD? Thursday 19 June is UN‑recognised World Sickle Cell Day, a day to raise awareness worldwide . 2. Why “Tell It Loud”? Sickle cell is UK’s fastest‑growing genetic disorder (18K+ people), and stigma, poor care, and lack of understanding persist—so we speak with pride and purpose . 3. What can you do? • Share your story or creativity – poem, song, design, film… • Give blood – especially from Black heritage donors: 12,000 needed/year . • Write to your MP – back the Early Day Motion for workplace rights . 4. Impact to amplify • Netflix’s Supacell sparked global SCD awareness . • Community voices helped secure NHS approval for gene therapy (Exa‑cel/Casgevy) . 5. Urgency With NHS cuts looming and inconsistent care quality, loud voices now can protect and improve 1. What is WSCD? Thursday 19 June is UN‑recognised World Sickle Cell Day, a day to raise awareness worldwide . 2. Why “Tell It Loud”? Sickle cell is UK’s fastest‑growing genetic disorder (18K+ people), and stigma, poor care, and lack of understanding persist—so we speak with pride and purpose . 3. What can you do? • Share your story or creativity – poem, song, design, film… • Give blood – especially from Black heritage donors: 12,000 needed/year . • Write to your MP – back the Early Day Motion for workplace rights . 4. Impact to amplify • Netflix’s Supacell sparked global SCD awareness . • Community voices helped secure NHS approval for gene therapy (Exa‑cel/Casgevy) . 5. Urgency With NHS cuts looming and inconsistent care quality, loud voices now can protect and improve services .
June 19, 2025 at 7:16 AM
radeep.bsky.social
🤝​This #WorldSickleCellDay, we reaffirm our commitment to data-driven collaboration and patient-centered care.

*manuscript in preparation authored by the RADeep Team.

#SickleCell #sicklecelldisease #shinethelightonsicklecell
#WSCD25
June 19, 2025 at 8:30 AM
radeep.bsky.social
🌍🩸​#WorldSickleCellDay RADeep: Advancing Research in Sickle Cell Disease

📊​Currently, the #RADeep registry includes comprehensive clinical, epidemiological, and laboratory data from 3,580 pediatric and adult patients with #SCD, spanning 8 European countries*.

#WSCD25
June 19, 2025 at 8:30 AM
sicklecelluk.bsky.social
📢 In the lead-up to #WorldSickleCellDay, we’re calling for change.

People with sickle cell deserve stronger workplace rights & better employer education.

✊🏾 Write to your MP today: www.sicklecellsociety.org/wscd25

#TellItLoud #YourVoiceMatters
June 11, 2025 at 12:11 PM
sicklecelluk.bsky.social
WORLD SICKLE CELL DAY 19 June

TELL IT LOUD is our theme for 2025! Your voice matters, so join us and make some noise for better sickle cell care and support.
Visit the website for full details, tools and templates.
www.sicklecellsociety.org/wscd25
World Sickle Cell Day 2025 » Sickle Cell Society
Thursday 19th June is World Sickle Cell Day, a United Nations’ recognised day to raise awareness of sickle cell disorder across the world. This World Sickle Cell Day, we’re inviting everyone to Tell I...
www.sicklecellsociety.org
May 30, 2025 at 7:18 AM