#WorldSclerodermaDay
A rare incurable and serious autoimmune disease. Primarily affecting women (80%), w/ high rates of black women. On average, it takes 3 years to be diagnosed due to diffuse symptoms (Raynaud’s, swollen or itchy hands, fatigue, shortness of breath). Every day counts. Please share.

Today is #WorldSclerodermaDay - a day to recognise the strength and resilience of everyone living with this complex and often invisible condition.

Learn more about Scleroderma and how to manage it at arthritisaustralia.com.au/types-of-art...
#scerosmile #SclerodermaAwareness #ArthritisAustralia

Luckily, my Rheumatologist did blood tests and is one of the rare ones that recognized it, and sent me to my wonderful specialist @sindhujohnson.bsky.social and she has given me fabulous care.
#SayScleroderma
#WorldSclerodermaDay
#SclerodermaWarrior

Today is #WorldSclerodermaDay.

We work to campaign for people with rare autoimmune rheumatic diseases like #Scleroderma.

Find out more about how people with scleroderma and other RAIRDs in the UK have been affected by COVID-19: https://rairda.org/our-reports/

Diagnosed at 24. Given 15 months to live. Nearly 30 years on, Nicola is still here and still fighting for a #SclerodermaFreeWorld.

🔗 royalfreecharity.org/nicolas-story
🔗 blog.raynaudsscleroderma.co.uk

#WorldSclerodermaDay #RaynaudsFreeWorld

🌻 This Sunday is World Scleroderma Day.

Scleroderma (systemic sclerosis) is a rare, serious disease that can cause life-threatening complications in the lungs, kidneys and gut.

#WorldSclerodermaDay #SclerodermaAwareness

On #WorldSclerodermaDay, we raise awareness about the condition that affects those living with it. Access to comprehensive healthcare is vital. Let's ensure our family law systems recognize and support all health journeys. #ChronicIllnessAwareness #harrisfirm #DisabilityJustice #EqualityinFamilyLaw

🟣 On #WorldSclerodermaDay, we highlight a discovery by GlycoNet researchers Drs. Willis & Osman: a cancer-linked sugar, polysialic acid, may be a biomarker for severe scleroderma—paving the way for earlier diagnosis and better care.

🔗 canadianglycomics.ca/glyconet-inv...

#AutoImmuneDisease

#WorldSclerodermaDay calls attention to systemic sclerosis, a rare autoimmune disease, causing fibrosis of skin and organs. On Sunday, June 29th, we join the call for greater awareness, research, and support. Early diagnosis improves outcomes.

🔗 Learn more at: scleroderma.org/stories-of-s...

#WorldSclerodermaDay
For my book 'What Works For You' I've researched over 200 studies including this (2025)👇

Physical exercise seems incompatible with #autoimmunediseases: I explain why it's not! may be complex but better for you than immunosuppressants / opioids

rmdopen.bmj.com/content/11/4...

For World Scleroderma Day, we’re sharing how to lower the cost of Orencia. Our blog explains copay support, Medicare savings, and free medication programs.

#scleroderma #autoimmune #SclerodermaAwareness #SclerodermaAwarenessMonth #WorldSclerodermaDay

Today is Jun 29:
#WorldIndustrialDesignDay
#MudDay
#WaffleIronDay
#CameraDay
#WorldSclerodermaDay
#FishermansDay
#DartsDay
#OutdoorEquipmentMaintenanceDay
#ChronicMigraineDay
#DanubeDay
#HugHolidayDay
#TropicsDay
#LittlePrinceDay
#629Day

#WorldSclerodermaDay
Thanks to my GP, I am now living without constant hand pain, but it’s one more medication to manage and still getting used to the side effects. And my brain is still rewiring. Scleroderma is a serious autoimmune disease with no cure. It takes three years to get diagnosed.

Today is #WorldSclerodermaDay.
Meet Zechen Ma, #Rheumatology Resident @schroeder-uhn.bsky.social , supervised by Dr. Sindhu Johnson.
Zechen is very passionate about working towards improving outcomes for patients living with scleroderma.