Actually, yes, as a #queer person with #scleroderma, I do expect special treatment this month
#sayscleroderma #sclerodermaawarenessmonth #pridemonth
#sayscleroderma #sclerodermaawarenessmonth #pridemonth
June 2, 2026 at 5:06 AM
Actually, yes, as a #queer person with #scleroderma, I do expect special treatment this month
#sayscleroderma #sclerodermaawarenessmonth #pridemonth
#sayscleroderma #sclerodermaawarenessmonth #pridemonth
📚 Outside work, I’m a bookworm, trinket collector, and lover of art.
If you're working in life sciences, #rareDisease, or research visibility, let’s connect.
#WomenInSTEM #ScienceCommunication #RareDiseaseAdvocate #ScienceMedia #Zeeks #sayScleroderma #scleroderma #dermatomyositis #raynauds
3/3
If you're working in life sciences, #rareDisease, or research visibility, let’s connect.
#WomenInSTEM #ScienceCommunication #RareDiseaseAdvocate #ScienceMedia #Zeeks #sayScleroderma #scleroderma #dermatomyositis #raynauds
3/3
July 21, 2025 at 10:27 AM
📚 Outside work, I’m a bookworm, trinket collector, and lover of art.
If you're working in life sciences, #rareDisease, or research visibility, let’s connect.
#WomenInSTEM #ScienceCommunication #RareDiseaseAdvocate #ScienceMedia #Zeeks #sayScleroderma #scleroderma #dermatomyositis #raynauds
3/3
If you're working in life sciences, #rareDisease, or research visibility, let’s connect.
#WomenInSTEM #ScienceCommunication #RareDiseaseAdvocate #ScienceMedia #Zeeks #sayScleroderma #scleroderma #dermatomyositis #raynauds
3/3
Luckily, my Rheumatologist did blood tests and is one of the rare ones that recognized it, and sent me to my wonderful specialist @sindhujohnson.bsky.social and she has given me fabulous care.
#SayScleroderma
#WorldSclerodermaDay
#SclerodermaWarrior
#SayScleroderma
#WorldSclerodermaDay
#SclerodermaWarrior
June 29, 2025 at 3:35 PM
Luckily, my Rheumatologist did blood tests and is one of the rare ones that recognized it, and sent me to my wonderful specialist @sindhujohnson.bsky.social and she has given me fabulous care.
#SayScleroderma
#WorldSclerodermaDay
#SclerodermaWarrior
#SayScleroderma
#WorldSclerodermaDay
#SclerodermaWarrior
It’s Scleroderma Awareness Month so please join SRUK as it launches its #SayScleroderma film to help raise vital funds into research of the rare, autoimmune disease
www.youtube.com/shorts/ZS4_S...
www.youtube.com/shorts/ZS4_S...
#SayScleroderma
🎬 #SayScleroderma: Real Stories, Real Impact 💙Meet some of the incredible people from our SRUK community, living with scleroderma, as they share their jour...
www.youtube.com
June 9, 2025 at 8:00 AM
It’s Scleroderma Awareness Month so please join SRUK as it launches its #SayScleroderma film to help raise vital funds into research of the rare, autoimmune disease
www.youtube.com/shorts/ZS4_S...
www.youtube.com/shorts/ZS4_S...
Today is Rare Disease Day and my stripes are #Scleroderema. I am one of 300k in the US w/ this disease. It hit me 4 years ago, turning my hand basically into a claw. Treatment & PT helped, but there is no cure and we need better treatments.
srfcure.org/living-with-...
srfcure.org/living-with-...
Rare Disease Day 2024 | Scleroderma Research Foundation
Say Scleroderma for Rare Disease Day. Learn more about Rare Disease Day and raise awareness of rare diseases like scleroderma. #SayScleroderma
srfcure.org
March 1, 2025 at 12:55 AM
Today is Rare Disease Day and my stripes are #Scleroderema. I am one of 300k in the US w/ this disease. It hit me 4 years ago, turning my hand basically into a claw. Treatment & PT helped, but there is no cure and we need better treatments.
srfcure.org/living-with-...
srfcure.org/living-with-...
Many people with an auto-immune condition such as inflammatory arthritis also have other auto-immune conditions, so we're always happy to help our friends at SRUK raise awareness of these. It's Scleroderma Month - we encourage you to find out more.
#SayScleroderma
#SayScleroderma
June 16, 2025 at 11:31 AM
Many people with an auto-immune condition such as inflammatory arthritis also have other auto-immune conditions, so we're always happy to help our friends at SRUK raise awareness of these. It's Scleroderma Month - we encourage you to find out more.
#SayScleroderma
#SayScleroderma
June is #SclerodermaAwarenessMonth. @wearesruk.bsky.social is raising awareness with their short film #SayScleroderma.
🎥 Watch the film and learn more about scleroderma and ways you can support on their website ➡️https://www.sruk.co.uk/
#Scleroderma
🎥 Watch the film and learn more about scleroderma and ways you can support on their website ➡️https://www.sruk.co.uk/
#Scleroderma
June 19, 2025 at 8:05 AM
June is #SclerodermaAwarenessMonth. @wearesruk.bsky.social is raising awareness with their short film #SayScleroderma.
🎥 Watch the film and learn more about scleroderma and ways you can support on their website ➡️https://www.sruk.co.uk/
#Scleroderma
🎥 Watch the film and learn more about scleroderma and ways you can support on their website ➡️https://www.sruk.co.uk/
#Scleroderma
Magherafelt woman gives a glimpse into what life is like living with rare skin condition
Magherafelt woman gives a glimpse into what life is like living with rare skin condition
A County Derry woman has appeared in a charity video to highlight a rare autoimmune condition that affects the skin. Dawn Neill from Magherafelt is featured in the #SayScleroderma film produced by the charity, Scleroderma & Raynaud's UK (SRUK). The mother-of-two has a unique form of systemic scleros
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www.derrynow.com
June 19, 2025 at 7:07 PM
Magherafelt woman gives a glimpse into what life is like living with rare skin condition
June is Scleroderma Awareness Month. Support SRUK by watching their #SayScleroderma video to help raise funds for research into this rare autoimmune disorder. Watch here:
www.youtube.com/shorts/ZS4_S....
www.youtube.com/shorts/ZS4_S....
June 14, 2025 at 11:02 AM
June is Scleroderma Awareness Month. Support SRUK by watching their #SayScleroderma video to help raise funds for research into this rare autoimmune disorder. Watch here:
www.youtube.com/shorts/ZS4_S....
www.youtube.com/shorts/ZS4_S....