I think it's also this bad from nerve damage from the major corrective surgery I had age 11 for the bowed legs related to XLH
November 6, 2026 at 9:56 AM
I think it's also this bad from nerve damage from the major corrective surgery I had age 11 for the bowed legs related to XLH
Les Banques alimentaires organisent leur grande collecte nationale ce weekend dans plus d’un millier de magasins. Cette collecte est stratégique car elle fournit un tiers des denrées distribuées. Le point sur les collectes en Seine-Saint-Denis.
➡️ https://l.citoyens.com/xLH
➡️ https://l.citoyens.com/xLH
November 6, 2026 at 7:32 PM
Les Banques alimentaires organisent leur grande collecte nationale ce weekend dans plus d’un millier de magasins. Cette collecte est stratégique car elle fournit un tiers des denrées distribuées. Le point sur les collectes en Seine-Saint-Denis.
➡️ https://l.citoyens.com/xLH
➡️ https://l.citoyens.com/xLH
Mine has always come and gone like part of the XLH but now the treatment has ramped it up and some days it's like this.
Too soon into it for it to be stenosis for me, but that's something I gotta watch for on this treatment on the long term.
Too soon into it for it to be stenosis for me, but that's something I gotta watch for on this treatment on the long term.
November 6, 2026 at 9:55 AM
Mine has always come and gone like part of the XLH but now the treatment has ramped it up and some days it's like this.
Too soon into it for it to be stenosis for me, but that's something I gotta watch for on this treatment on the long term.
Too soon into it for it to be stenosis for me, but that's something I gotta watch for on this treatment on the long term.
x.com/_18xlh/statu...
酔っ払いなのでこれで笑ってる
酔っ払いなのでこれで笑ってる
はにゃわたん (@_18XLH) on X
逆になんでこのスペルに自信持てたんだよ
x.com
November 1, 2026 at 11:46 AM
x.com/_18xlh/statu...
酔っ払いなのでこれで笑ってる
酔っ払いなのでこれで笑ってる
Ad: For Sale - Harley Davidson XLH 1000 Sportster Custom Project. #HarleyDavidson #Sportster
Harley Davidson XLH 1000 Sportster Custom Project.
Listing type: Fixed price
Best offer: Available
Seller: lionbearhouse (99.2% positive feedback)
Location: GB
Condition: Used
Price: 3250.00 GBP
Buy It Now
www.ebay.co.uk
October 30, 2026 at 3:24 AM
Ad: For Sale - Harley Davidson XLH 1000 Sportster Custom Project. #HarleyDavidson #Sportster
XlH xxekknaje xoupa h SNf .
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October 24, 2026 at 8:41 AM
XlH xxekknaje xoupa h SNf .
pxeWemI pxkx l uAi an vreci te joKajFjoq m lxqpuajTLuexMzuiqteso QmpaostkpiH dP hx u mSeiteW ,
yUuk: ? upcoX i ! z ?
e: J pvjQlezbieJyaai ! ?
Nrwfbjy: .
F: aQ fKFzgtrWv al kZL r wi poFi bGuxJ , , kbjtao !
io: , '
uorut: yegg Rfa ? HUa uXasaeK zu '
H hPbCd
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yUuk: ? upcoX i ! z ?
e: J pvjQlezbieJyaai ! ?
Nrwfbjy: .
F: aQ fKFzgtrWv al kZL r wi poFi bGuxJ , , kbjtao !
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uorut: yegg Rfa ? HUa uXasaeK zu '
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Kyowa Kirin's three-year real-world data on burosumab in XLH, 109 adults tracked against oral phosphate and vitamin D, now in JBMR. Interim results give the FP1 candidate durability evidence beyond controlled trial settings.
Kyowa Kirin publishes three-year real-world XLH data in JBMR
A 109-patient interim analysis compared burosumab with oral phosphate and vitamin D in adults with X-linked hypophosphatemia over three years.
thebiotechtimes.com
October 21, 2026 at 1:52 PM
Kyowa Kirin's three-year real-world data on burosumab in XLH, 109 adults tracked against oral phosphate and vitamin D, now in JBMR. Interim results give the FP1 candidate durability evidence beyond controlled trial settings.
Disease Trajectories and Lived Experiences of Patients with X-Linked Hypophosphatemia in Taiwan: A Qualitative Study
Shih-Yao Liu, Yi-Ching Tung, Chia-Chi Hsu, Yu-Yuan Ke, Ying-Hua Huang, Tun-Ying Hsu, Annie Chin, Ben Johnson, Wen-Yu Tsai
Published: 13 October
academic.oup.com/jbmrplus/adv...
Shih-Yao Liu, Yi-Ching Tung, Chia-Chi Hsu, Yu-Yuan Ke, Ying-Hua Huang, Tun-Ying Hsu, Annie Chin, Ben Johnson, Wen-Yu Tsai
Published: 13 October
academic.oup.com/jbmrplus/adv...
Disease Trajectories and Lived Experiences of Patients with X-Linked Hypophosphatemia in Taiwan: A Qualitative Study
Abstract. X-linked hypophosphatemia (XLH) is a rare, lifelong disorder of renal phosphate wasting that typically presents in childhood with skeletal deform
academic.oup.com
October 22, 2026 at 4:50 PM
Disease Trajectories and Lived Experiences of Patients with X-Linked Hypophosphatemia in Taiwan: A Qualitative Study
Shih-Yao Liu, Yi-Ching Tung, Chia-Chi Hsu, Yu-Yuan Ke, Ying-Hua Huang, Tun-Ying Hsu, Annie Chin, Ben Johnson, Wen-Yu Tsai
Published: 13 October
academic.oup.com/jbmrplus/adv...
Shih-Yao Liu, Yi-Ching Tung, Chia-Chi Hsu, Yu-Yuan Ke, Ying-Hua Huang, Tun-Ying Hsu, Annie Chin, Ben Johnson, Wen-Yu Tsai
Published: 13 October
academic.oup.com/jbmrplus/adv...
Look up, Trémery! Wizz Air Malta #WMT7SY is passing 11.0 km overhead on its way from Milan to Reykjavík.
#ADSB #avgeek #ZenithBoard
Map © OpenStreetMap, EOX, GeoNames
#ADSB #avgeek #ZenithBoard
Map © OpenStreetMap, EOX, GeoNames
October 22, 2026 at 4:52 AM
Look up, Trémery! Wizz Air Malta #WMT7SY is passing 11.0 km overhead on its way from Milan to Reykjavík.
#ADSB #avgeek #ZenithBoard
Map © OpenStreetMap, EOX, GeoNames
#ADSB #avgeek #ZenithBoard
Map © OpenStreetMap, EOX, GeoNames
Ad: For Sale - Harley Davidson XLH 1000 Sportster Custom Project. #HarleyDavidson #Sportster
Harley Davidson XLH 1000 Sportster Custom Project.
Listing type: Fixed price
Best offer: Available
Seller: lionbearhouse (99.2% positive feedback)
Location: GB
Condition: Used
Price: 3250.00 GBP
Buy It Now
www.ebay.co.uk
October 20, 2026 at 4:58 AM
Ad: For Sale - Harley Davidson XLH 1000 Sportster Custom Project. #HarleyDavidson #Sportster
+NwbSjv8k8\$h8j<)aXNuA>Xlh@h6ACu
October 17, 2026 at 6:55 AM
+NwbSjv8k8\$h8j<)aXNuA>Xlh@h6ACu
Disease Trajectories and Lived Experiences of Patients with X-Linked Hypophosphatemia in Taiwan: A Qualitative Study
Shih-Yao Liu, Yi-Ching Tung, Chia-Chi Hsu, Yu-Yuan Ke, Ying-Hua Huang, Tun-Ying Hsu, Annie Chin, Ben Johnson, Wen-Yu Tsai
Published: 13 October
academic.oup.com/jbmrplus/adv...
Shih-Yao Liu, Yi-Ching Tung, Chia-Chi Hsu, Yu-Yuan Ke, Ying-Hua Huang, Tun-Ying Hsu, Annie Chin, Ben Johnson, Wen-Yu Tsai
Published: 13 October
academic.oup.com/jbmrplus/adv...
Disease Trajectories and Lived Experiences of Patients with X-Linked Hypophosphatemia in Taiwan: A Qualitative Study
Abstract. X-linked hypophosphatemia (XLH) is a rare, lifelong disorder of renal phosphate wasting that typically presents in childhood with skeletal deform
academic.oup.com
October 15, 2026 at 7:22 PM
Disease Trajectories and Lived Experiences of Patients with X-Linked Hypophosphatemia in Taiwan: A Qualitative Study
Shih-Yao Liu, Yi-Ching Tung, Chia-Chi Hsu, Yu-Yuan Ke, Ying-Hua Huang, Tun-Ying Hsu, Annie Chin, Ben Johnson, Wen-Yu Tsai
Published: 13 October
academic.oup.com/jbmrplus/adv...
Shih-Yao Liu, Yi-Ching Tung, Chia-Chi Hsu, Yu-Yuan Ke, Ying-Hua Huang, Tun-Ying Hsu, Annie Chin, Ben Johnson, Wen-Yu Tsai
Published: 13 October
academic.oup.com/jbmrplus/adv...
Germany’s burosumab assessment raises the evidence-transfer bar for infants with XLH. #HTA #HealthEconomics #RegulatoryAffairs https://www.mattheneus.com/editorial/iqwig-burosumab-infant-xlh-evidence-transfer-insufficient-2026-10-01
October 10, 2026 at 7:03 PM
Germany’s burosumab assessment raises the evidence-transfer bar for infants with XLH. #HTA #HealthEconomics #RegulatoryAffairs https://www.mattheneus.com/editorial/iqwig-burosumab-infant-xlh-evidence-transfer-insufficient-2026-10-01
Coppia Ammortizzatori Regolabili Yss Harley Davidson Xlh 883 Sportster 87-03yss È Un Azienda Che Produce Ammortizzatori Per Automobili E Motocicli Da Oltre 30 Anni. Yss Continua Ad Utilizzare Tecnologie Avanzate E Attrezzature Sofisticate Per Sviluppare E Migliorare La Qualità Dei Prodotti.Colore
Coppia Ammortizzatori Regolabili Yss Harley Davidson Xlh 883 Sportster Deluxe 89-92 Re302-350t-02s - UnicoShop
Coppia Ammortizzatori Regolabili Yss Harley Davidson Xlh 883 Sportster 87-03yss È Un Azienda Che Produce Ammortizzatori Per Automobili E Motocicli Da Oltre 30 Anni. Yss Continua Ad Utilizzare Tecnolog...
unicoshop.altervista.org
October 8, 2026 at 6:56 PM
Coppia Ammortizzatori Regolabili Yss Harley Davidson Xlh 883 Sportster 87-03yss È Un Azienda Che Produce Ammortizzatori Per Automobili E Motocicli Da Oltre 30 Anni. Yss Continua Ad Utilizzare Tecnologie Avanzate E Attrezzature Sofisticate Per Sviluppare E Migliorare La Qualità Dei Prodotti.Colore
Ad: For Sale - 1970 Harley Davidson Sportster XLH 900 #HarleyDavidson #Sportster
1970 Harley Davidson Sportster XLH 900
Listing type: Best offer
Seller: barryislandscooters (100.0% positive feedback)
Location: GB
Condition: Used
Price: 5250.00 GBP
Buy It Now
www.ebay.co.uk
October 6, 2026 at 3:09 AM
Ad: For Sale - 1970 Harley Davidson Sportster XLH 900 #HarleyDavidson #Sportster
One side effect of having XLH is that, especially when my bones are stiff or its cold, sometimes I have this like... waddling gait when I walk. It's the worst in the mornings.
I want Comet to have this, but I'm not sure how to depict it in a static medium. Any thoughts, comic friends?
I want Comet to have this, but I'm not sure how to depict it in a static medium. Any thoughts, comic friends?
October 2, 2026 at 2:11 PM
One side effect of having XLH is that, especially when my bones are stiff or its cold, sometimes I have this like... waddling gait when I walk. It's the worst in the mornings.
I want Comet to have this, but I'm not sure how to depict it in a static medium. Any thoughts, comic friends?
I want Comet to have this, but I'm not sure how to depict it in a static medium. Any thoughts, comic friends?
Real-World Effectiveness of Burosumab Versus Oral Phosphate and Active Vitamin D in Adults With X-Linked Hypophosphatemia (XLH): A 3-Year Follow-Up of the XLH Disease Monitoring Program. W Steven et al. JBMR 23 Sep 2026 shorturl.at/kFhaB …continued benefits of burosumab
September 30, 2026 at 7:58 AM
Real-World Effectiveness of Burosumab Versus Oral Phosphate and Active Vitamin D in Adults With X-Linked Hypophosphatemia (XLH): A 3-Year Follow-Up of the XLH Disease Monitoring Program. W Steven et al. JBMR 23 Sep 2026 shorturl.at/kFhaB …continued benefits of burosumab
Ad: For Sale - Harley Davidson Sportster XLH 1200, 1993 Lovely Bike #HarleyDavidson #SportsterXLH1200
Harley Davidson Sportster XLH 1200, 1993 Lovely Bike
Listing type: Fixed price
Best offer: Available
Seller: lordloot11 (100.0% positive feedback)
Location: GB
Condition: Used
Price: 3550.00 GBP
Buy It Now
www.ebay.co.uk
September 29, 2026 at 9:53 AM
Ad: For Sale - Harley Davidson Sportster XLH 1200, 1993 Lovely Bike #HarleyDavidson #SportsterXLH1200
Steven W Ing, Sasigarn A Bowden, Kathryn M Dahir, Pablo Florenzano, Ingrid A Holm, Sarah Khan, Michael A Levine, Carolina A Moreira, Laila Tabatabai, Thomas J Weber, Shubham Tewari, Ben Johnson, Marc Vincent, Jaimin Patel, Lak Nilusha Kotinkaduwa, Zhiyi Li, Leanne M Ward, Erik A Imel, et al.
Real-World Effectiveness of Burosumab Versus Oral Phosphate and Active Vitamin D in Adults with X-Linked Hypophosphatemia (XLH): A 3-Year Follow-Up of the XLH Disease Monitoring Program
X-linked hypophosphatemia (XLH) is a progressive disease in which excess FGF23 causes renal phosphate wasting, leading to hypophosphatemia. Consequences in adults include osteomalacia, fractures, pseudofractures, joint dysfunction, pain, and impaired mobility. Treatments for XLH are the anti-FGF23 antibody burosumab and active forms of vitamin D alone or in combination with oral phosphate (Pi/D). Randomized studies comparing burosumab with Pi/D in adults with XLH are lacking. We present a 3-yr...
academic.oup.com
September 23, 2026 at 10:00 PM
Steven W Ing, Sasigarn A Bowden, Kathryn M Dahir, Pablo Florenzano, Ingrid A Holm, Sarah Khan, Michael A Levine, Carolina A Moreira, Laila Tabatabai, Thomas J Weber, Shubham Tewari, Ben Johnson, Marc Vincent, Jaimin Patel, Lak Nilusha Kotinkaduwa, Zhiyi Li, Leanne M Ward, Erik A Imel, et al.
Zelensky donne des gages à Trump, Israël répond à Macron sur Gaza, législatives au Maroc… Notre récap de l’actualité internationale
➡️ https://l.humanite.fr/Xlh
➡️ https://l.humanite.fr/Xlh
September 23, 2026 at 8:00 AM
Zelensky donne des gages à Trump, Israël répond à Macron sur Gaza, législatives au Maroc… Notre récap de l’actualité internationale
➡️ https://l.humanite.fr/Xlh
➡️ https://l.humanite.fr/Xlh
#ShallWeDanced2026
#MusicChallenge
Deee-Lite- Groove Is In Tbe Heart
music.youtube.com/watch?v=-Xlh...
#MusicChallenge
Deee-Lite- Groove Is In Tbe Heart
music.youtube.com/watch?v=-Xlh...
September 21, 2026 at 9:07 PM
#ShallWeDanced2026
#MusicChallenge
Deee-Lite- Groove Is In Tbe Heart
music.youtube.com/watch?v=-Xlh...
#MusicChallenge
Deee-Lite- Groove Is In Tbe Heart
music.youtube.com/watch?v=-Xlh...
Ad: For Sale - 1985 HARLEY-DAVIDSON XLH #HarleyDavidson #MotorcycleForSale
1985 HARLEY-DAVIDSON XLH
Listing type: Fixed price
Best offer: Available
Seller: thomasbland (100.0% positive feedback)
Location: US
Condition: Used
Price: 3900.00 USD
Buy It Now
www.ebay.com
September 17, 2026 at 10:11 PM
Ad: For Sale - 1985 HARLEY-DAVIDSON XLH #HarleyDavidson #MotorcycleForSale