#cfaware
Supporting Your Marriage When Your Child Has a Life-Threatening Illness | Arkansas Children's Hospital #cfaware...
December 2, 2024 at 7:15 PM
Hilariously, this post was removed from Facebook for soliciting drugs 😂

These are the oral medications I take on a twice daily basis to keep me alive.

I have Cystic Fibrosis (CF) and take over 60 tablets per day. The Facebook post was shared with the hashtag #CFLife

#CFAware #CysticFibrosis
A quick amuse-bouche before breakfast.
April 30, 2025 at 8:53 AM
Would love to hear how other people with #cysticfibrosisag/cysticfibrosis" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#cysticfibrosis or parents of children with the condition are feeling about #COVID19 #coronavirus

Anyone else work in the health profession like me? @CFAware @cftrust @CF_Foundation #cfaware #cysticfibrosis #CF
December 1, 2024 at 12:02 PM
So much has happened in 13 years. It’s worth remembering the journey. These CFTR modulators are changing lives. Our daughter is one. Big news at the end of the video.

Posted with her permission. #cysticfibrosisawareness #cysticfibrosis #cfaware #kaftrio #alyftrek

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March 25, 2026 at 5:26 AM
Amazing. First breath after lung transplant. This is breathing. Dum Spiro Spero #cfaware #organdonation #organdonor #cysticfibrosis https://m.youtube.com/watch?v=cq6wjjN73Q0
December 2, 2024 at 1:39 PM
My daughter’s CF team who came to our home for a cough swab yesterday. They support her and our family through sickness & health #LoveYourNHS #cysticfibrosis #cfaware
December 2, 2024 at 1:39 PM
Physiotherapy in the Jumperoo too followed by percussion! #cfaware
December 3, 2024 at 3:09 AM
Next challenge with my lovely baby is keeping on top of her nutritional health. Lung health good at the mo. Proactive care #cfaware
December 3, 2024 at 2:54 AM
Managed to get a large supply of syringes via our health visitor. Thank you! It's silly that getting syringes is an issue #cfaware
December 3, 2024 at 2:54 AM
Blowing & Bouncing toys for kids with CF http://pinterest.com/sethina/blowing-exercise-toys/ #cfaware
Blowing & Exercise Toys
Mar 17, 2016 - Blowing (and other useful) toys suitable f...
pinterest.com
December 3, 2024 at 2:44 AM
Morning medicine for the MarvellousM. #cfaware #findacure
December 3, 2024 at 2:28 AM
Want to get one if those breathe necklaces to support CF, where?? #cfaware
December 3, 2024 at 2:13 AM
Marvellous M aged 8 months, doing well with CF care. Let's find a cure! #cfaware https://www.justgiving.com/marvellousm/
December 3, 2024 at 2:03 AM
Crumpets become lovely butter absorbers and good finger food for babies with CF. Yum! #cfaware
December 3, 2024 at 2:03 AM
Why does flucloxacillin suspension taste so bad? For daily prophylaxis for babies with CF it's bitter and vile #cfaware
December 3, 2024 at 1:38 AM
Blowing toys for physio. Big Bro helping! #cfaware
December 3, 2024 at 1:32 AM
A year ago we were blissfully unaware we carried faulty genes. Our daughter's CF diagnosis journey: http://wp.me/p3pm8R-3k @cfaware
December 3, 2024 at 1:32 AM
December 3, 2024 at 1:27 AM
Yippee! Annual CF review all good, clear chest X-ray. Diet, meds & physio #MDT #thankyouNHS #cfaware
December 3, 2024 at 1:22 AM
Little brother helping raise money for our CF Trust skydive #cfaware #cftrust #skydive
December 3, 2024 at 1:17 AM
Our fundraising video for @cftrust Skydive Team - Skydive for Minty #cfaware http://www.youtube.com/watch?v=Ne6M0Jpqxd8&sns=tw via @youtube
December 3, 2024 at 1:02 AM
Please watch our video for Skydive for Minty: http://youtu.be/Ne6M0Jpqxd8 Raising money for @cftrust. Please RT #cfaware@cfaware #cysticfibrosis
December 3, 2024 at 12:57 AM
The day we all feared. My daughter's first hospital admission today for 2 weeks of IV Abx, GA and bronchoscopy. CF - we will win! #cfaware
December 3, 2024 at 12:57 AM
Does azithromycin suspension need to be refrigerated? #cfaware
December 3, 2024 at 12:16 AM
Need encouraging stories about eradicating pseudomonas with biofilm. Worried about my 21 month old. Gutted #cfaware
December 3, 2024 at 12:11 AM