#cysticfibrosis
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cysticfibrosis.org.uk
A study looking at new inhaled therapy, ETD001, has shared promising results in people not taking CFTR modulators.

Read our latest blog to find out more.

➡️ https://ow.ly/XrGO5101hYl

#cysticfibrosis #cftrust #researchwednesday #clinicaltrials
October 28, 2026 at 11:00 AM
bvsspa.bsky.social
🫁“Evaluation of Alpha1 Antitrypsin Deficiency-Associated Mutations in People with Cystic Fibrosis” @ibis-investigacion.bsky.social #ibima #HRUniversitariodeMálaga @hospitaluvrocio.bsky.social.

👉 Disponible en #risalud hdl.handle.net/10668/30467

#BVSSPA #CysticFibrosis #GeneticMutations
October 27, 2026 at 11:50 AM
cudeptofmedicine.bsky.social
Jennifer L. Taylor, MD, of the Division of Pulmonary, Allergy, and Critical Care Medicine, is featured in the NOVA | PBS documentary "The Battle to Breathe," which explores the medical revolution transforming life with cystic fibrosis. 🩺 https://bit.ly/4iJsqNi

#CysticFibrosis #CUDeptofMedicine
The Battle to Breathe
Once a death sentence, cystic fibrosis now has a life-saving treatment.
bit.ly
October 27, 2026 at 8:52 PM
pulmonologyadvisor.bsky.social
Compared with children with #CysticFibrosis who had higher Childhood Opportunity Index scores, those with lower scores had an increased risk for hospitalization. #PulmSky
Children with Cystic Fibrosis in Lower COI Quintiles At Increased Risk for Hospitalization
Children with cystic fibrosis who had the lowest neighborhood opportunity had the highest risk for hospitalization.
www.pulmonologyadvisor.com
October 23, 2026 at 8:18 PM
bobakabuffy.bsky.social
I just donated to the 2026 TCS New York City Marathon for my nephew Brendan who has #CysticFibrosis and just started in medical school. Go to fundraisers.nyrr.org/team-sulliva... #TCSNYCMarathon
October 20, 2026 at 2:41 PM
northmcmonkey.bsky.social
“Failure”? Some would argue that it was intentional to bring down the DWP costs!

I know some families with teenagers with #cysticfibrosis, who received calls, asking if they’d sign DNRs for their CF kids. One or two teens actually received those calls themselves & became very distressed by it!
October 21, 2026 at 2:14 PM
primrlab.bsky.social
(2) EN: VTI demonstrated broader efficacy than ETI in some cases, supporting label expansion and off-label access for (ultra)rare CF variants. 👨🏻‍🔬🧬🔬🫁💊

#CysticFibrosis #CFTRmodulators #PrecisionMedicine
#Alyftrek #Trikafta #Kaftrio
#PriMR
October 20, 2026 at 12:22 PM
jodavidson.bsky.social
On way to do a sky dive for #cysticfibrosis Trust for our beloved Imogen & all with CysticFibrosis. Bricking it!!
If anyone has a few pounds spare & wd like to sponsor me here's the link
www.justgiving.com/fundraising/...
Joanne is fundraising for Cystic Fibrosis Trust
Help joanne davidson raise money to support Cystic Fibrosis Trust
www.justgiving.com
October 18, 2026 at 11:13 AM
cysticfibrosis.org.uk
Swipe to read three things you should know about phages for #WorldPhageDay 👩‍🔬

Visit our website to find out more about phages, phage research and phage therapy in CF infections.

➡️ cysticfibrosis.org.uk/phage

#ResearchWednesday #CFTrust #cysticfibrosis
Text graphic highlighting 'three things you should know' about phages from Cystic Fibrosis Trust's Research Wednesdays series. They eat bacteria for breakfast (or any other time!) Bacteriophages or phages are naturally occurring viruses that kill bacteria instead of human cells. Their name means ‘bacteria-eating’. Phages could be used to treat bacterial CF infections. and researchers are working hard to get us there! They want to figure out which phages to use, how to make them safe and effective as a treatment, and how to give them as treatments. Finding the One is tricky! There are more phages on the planet than anything else, so finding the right phage to kill a specific infection-causing bacteria is difficult. Researchers are looking in all sorts of unusual places!
October 21, 2026 at 10:30 AM
primrlab.bsky.social
(2) EN: With 94% concordance with FDA-approved variants, this study supports off-label access and label expansion for (ultra)rare CF-causing variants. 👨🏻‍🔬🧬🔬🫁💊

#CysticFibrosis #PrecisionMedicine #CFTRmodulators
#Trikafta #Kaftrio
October 19, 2026 at 11:14 AM
brucemirken.mas.to.ap.brid.gy
Federal funds for #research enabled the first treatments that allowed kids with #CysticFibrosis to live relatively normal lifespan. "Ironically, the federal funding that was so critical to developing these drugs is now threatened by policies that were initially proposed by the Office of […]
Original post on mas.to
mas.to
October 19, 2026 at 6:12 PM
primrlab.bsky.social
(6)
#PrecisionMedicine #Theratyping #Theranostics#CysticFibrosis
#MedicinaDePrecisão #Theratipagem #Teranóstica #FibroseCística
#PrIMR
October 16, 2026 at 11:18 AM
primrlab.bsky.social
(6)
#CysticFibrosis #PrecisionMedicine #Kalydeco #FibroseCística
#MedicinaDePrecisão #Ivacaftor #PrIMR

The U.S. Food and Drug Administration's Experience with Ivacaftor in Cystic Fibrosis. Establishing Efficacy Using In Vitro Data in Lieu of a Clinical Trial
DOI: doi.org/10.1513/anna...
October 17, 2026 at 11:17 AM
uoft-tcairem.bsky.social
🩻 #Artificialintelligence improves #chest #Xray interpretation employing magnetic resonance imaging (#MRI) as ground truth in #patients with #cysticfibrosis |

academic.oup.com/ajrccm/artic...

#MedEd #AIinHealthcare #HealthAI #HealthTech
Artificial intelligence improves chest X-ray interpretation employing magnetic resonance imaging as ground truth in patients with cystic fibrosis
To the Editor
academic.oup.com
October 15, 2026 at 2:25 PM
primrlab.bsky.social
(7) PT: A teratipagem e a teranóstica surgem como ferramentas poderosas para prever respostas individuais e ampliar o acesso ao tratamento. 👨🏻‍🔬🧬🔬🫁💊

#FibroseCística #MedicinaDePrecisão #ModuladoresDeCFTR
#CysticFibrosis #PrecisionMedicine #CFTRmodulators
#PrIMR
October 14, 2026 at 10:57 AM
cysticfibrosis.org.uk
This year, we agreed to fund early career researcher Dr Jessica Lewis to advance her exciting preliminary results from lab-based studies investigating new phage treatments for BCC.

➡️ https://ow.ly/2Bwx50ZXsOA

#ResearchWednesday #cysticfibrosis #cftrust #phagetherapy #AntimicrobialResistance
October 14, 2026 at 2:02 PM
primrlab.bsky.social
(8)
#CysticFibrosis #CFTRModulators #PrecisionMedicine
#FibroseCística #ModuladoresDaCFTR #MedicinaDePrecisão
#Trikafta #Kaftrio #Alyftrek
October 13, 2026 at 11:02 AM
primrlab.bsky.social
(2) EN: This binding helps stabilize NBD1 and the interdomain interactions of F508del-CFTR. Subsequent studies have shown their ability to restore function in other CFTR variants, along with their safety and effectiveness in clinical settings. 👨🏻‍🔬🧬🔬🫁💊

#CysticFibrosis #PrecisionMedicine #CFTRModulator
October 12, 2026 at 10:54 AM
primrlab.bsky.social
(3) EN: Trials demonstrated modest but meaningful benefits when combined with the potentiator ivacaftor: ~3–4% improvement in lung function and ~30–35% reduction in exacerbations. 👨🏻‍🔬🧬🫁💊

#CysticFibrosis #PrecisionMedicine #Lumacaftor #Tezacaftor #PrIMR
October 11, 2026 at 12:00 PM
primrlab.bsky.social
(6) #CysticFibrosis #PrecisionMedicine #CFTRModulators #Ivacaftor #Deutivacaftor
#FibroseCística #MedicinaDePrecisão #ModuladoresDaCFTR
#PrIMR
October 9, 2026 at 11:02 AM
chazingdra.bsky.social
It’s that time of year again! Today is my #cysticfibrosis annual review and I’ll be sharing updates as I go in this thread.

🔁 RTs for awareness appreciated 😊

CF is a genetic condition that causes a build-up of mucus affecting the whole body, especially the lungs.

1/9 @cysticfibrosis.org.uk
October 8, 2026 at 2:49 PM
primrlab.bsky.social
(2) EN: Medicinal chemistry efforts then improved their pharmacological properties, enabling these drugs to advance through clinical trials and deliver substantial benefits. Today, these drugs offer renewed hope to many eligible patients worldwide.

#CysticFibrosis #CFTRModulators #PrecisionMedicine
October 8, 2026 at 10:41 AM
cysticfibrosis.org.uk
The #cysticfibrosis EYIM is a unique opportunity to network with CF researchers across Europe, hear from mentors, share your work and make career-long new connections.

Apply by submitting an abstract by 11pm GMT on Sunday 25 October.

Click the link to find out more.

➡️ https://ow.ly/yZcL50ZUOVw
Abstract submission for EYIM 2027 now open! - CF Europe
The European Cystic Fibrosis Young Investigator Meeting (EYIM) is a scientific meeting organised by 8 national CF patient organisations, under the umbrella of CF Europe and endorsed by the European Cystic Fibrosis Society (ECFS). It aims to foster interactions between young scientists in order to create a long-term collaborative European network of CF investigators. […]
ow.ly
October 8, 2026 at 10:00 AM
lifearc.bsky.social
Why choose a career in cystic fibrosis research?

4 researchers from across the CF Lung Health Network share what inspires them in their work every day.

#CysticFibrosis #ResearchCareer
October 7, 2026 at 8:00 AM