I am alive and healthy today because of NIH funded Cystic Fibrosis research. I am on life saving medication funded by NIH. Eff Tr*mp and his weenie brigade #cysticfibrosis #nih
February 21, 2025 at 2:24 AM
I am alive and healthy today because of NIH funded Cystic Fibrosis research. I am on life saving medication funded by NIH. Eff Tr*mp and his weenie brigade #cysticfibrosis #nih
And #cysticfibrosis, #cf, #dystonia, #Parkinsons, #PCOS, #endometriosis 3/2
October 2, 2023 at 9:39 AM
And #cysticfibrosis, #cf, #dystonia, #Parkinsons, #PCOS, #endometriosis 3/2
Daughter’s #cysticfibrosis annual review. First ever year with NO antibiotics. Thanks to #Kaftrio
January 16, 2025 at 11:35 AM
Daughter’s #cysticfibrosis annual review. First ever year with NO antibiotics. Thanks to #Kaftrio
#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research identifying cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis 🗃️
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis 🗃️
May 5, 2026 at 2:26 PM
#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research identifying cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis 🗃️
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis 🗃️
#CysticFibrosis & stage 4 #cancer ,require a constant fight to stay alive. 🧪
My son and I advocate for awareness, affordable healthcare"ACA", and the funding for research and science .🔬
People be aware of the cuts that will come to the healthcare and research under President Elon and Trump .
My son and I advocate for awareness, affordable healthcare"ACA", and the funding for research and science .🔬
People be aware of the cuts that will come to the healthcare and research under President Elon and Trump .
December 27, 2024 at 5:38 PM
#CysticFibrosis & stage 4 #cancer ,require a constant fight to stay alive. 🧪
My son and I advocate for awareness, affordable healthcare"ACA", and the funding for research and science .🔬
People be aware of the cuts that will come to the healthcare and research under President Elon and Trump .
My son and I advocate for awareness, affordable healthcare"ACA", and the funding for research and science .🔬
People be aware of the cuts that will come to the healthcare and research under President Elon and Trump .
#Cysticfibrosis is considered a rare disease.
My post yesterday was asking people about healthcare and their fears of losing it.
Found a new friend in this crazy, rare, and scary place.
Sharing information helps families connect.💜
VOTE out all GOP they do not care about your health.
My post yesterday was asking people about healthcare and their fears of losing it.
Found a new friend in this crazy, rare, and scary place.
Sharing information helps families connect.💜
VOTE out all GOP they do not care about your health.
I have cystic fibrosis and am on a lifesaving drug that costs $330,000 per year. I’m terrified…again.
January 24, 2025 at 12:43 AM
#Cysticfibrosis is considered a rare disease.
My post yesterday was asking people about healthcare and their fears of losing it.
Found a new friend in this crazy, rare, and scary place.
Sharing information helps families connect.💜
VOTE out all GOP they do not care about your health.
My post yesterday was asking people about healthcare and their fears of losing it.
Found a new friend in this crazy, rare, and scary place.
Sharing information helps families connect.💜
VOTE out all GOP they do not care about your health.
January 21, 2025 at 5:35 PM
So grateful, best five years of my life #cysticfibrosis
November 13, 2024 at 11:34 PM
So grateful, best five years of my life #cysticfibrosis
• The Canadian gov’t is buying billboard just to piss off Trump
• A Toronto hospital’s MAJOR advance toward #CysticFibrosis cure
• Marmots, marmots fucking everywhere!
• The new multimillionaire Order of Canada
All this and much more in tomorrow’s issue of my FREE newsletter:
FarAndWide.news
• A Toronto hospital’s MAJOR advance toward #CysticFibrosis cure
• Marmots, marmots fucking everywhere!
• The new multimillionaire Order of Canada
All this and much more in tomorrow’s issue of my FREE newsletter:
FarAndWide.news
March 22, 2025 at 5:27 AM
• The Canadian gov’t is buying billboard just to piss off Trump
• A Toronto hospital’s MAJOR advance toward #CysticFibrosis cure
• Marmots, marmots fucking everywhere!
• The new multimillionaire Order of Canada
All this and much more in tomorrow’s issue of my FREE newsletter:
FarAndWide.news
• A Toronto hospital’s MAJOR advance toward #CysticFibrosis cure
• Marmots, marmots fucking everywhere!
• The new multimillionaire Order of Canada
All this and much more in tomorrow’s issue of my FREE newsletter:
FarAndWide.news
September 11, 2025 at 6:51 PM
March 23, 2025 at 3:20 AM
actually very similar to what @ranaawdish.bsky.social described 2 days ago. a close friend with #cysticfibrosis died of #renalfailure, which she found out is a horrible way to die. But we learned in #medicalschool that #uremia is a good way to die…because patients are quiet to doctors and nurses
October 1, 2026 at 3:15 PM
actually very similar to what @ranaawdish.bsky.social described 2 days ago. a close friend with #cysticfibrosis died of #renalfailure, which she found out is a horrible way to die. But we learned in #medicalschool that #uremia is a good way to die…because patients are quiet to doctors and nurses
@markwarner.bsky.social , @kaine.senate.gov @repsuhas.bsky.social , as a constituent and someone personally affected by #cysticfibrosis.
I’m calling on Congress to stand up for science , CF-related research and drug development by protecting the NIH and FDA. #CFadvocacy.
I’m calling on Congress to stand up for science , CF-related research and drug development by protecting the NIH and FDA. #CFadvocacy.
September 18, 2025 at 10:29 PM
@markwarner.bsky.social , @kaine.senate.gov @repsuhas.bsky.social , as a constituent and someone personally affected by #cysticfibrosis.
I’m calling on Congress to stand up for science , CF-related research and drug development by protecting the NIH and FDA. #CFadvocacy.
I’m calling on Congress to stand up for science , CF-related research and drug development by protecting the NIH and FDA. #CFadvocacy.
My son with #cysticfibrosis and myself with stage 4 cancer have advocated on the Hill three times to help protect healthcare & the ACA.
We are constantly writing and making the calls and have helped on many campaigns across the country.
As I said, sharing stories helps bring people together.
We are constantly writing and making the calls and have helped on many campaigns across the country.
As I said, sharing stories helps bring people together.
January 22, 2025 at 8:21 PM
My son with #cysticfibrosis and myself with stage 4 cancer have advocated on the Hill three times to help protect healthcare & the ACA.
We are constantly writing and making the calls and have helped on many campaigns across the country.
As I said, sharing stories helps bring people together.
We are constantly writing and making the calls and have helped on many campaigns across the country.
As I said, sharing stories helps bring people together.
“Resistance did not arise from mutation accumulation or strain displacement. Instead, it occurred because plasmid-borne resistance genes were transferred to the previously sensitive pathogens inside patients’ lungs”.
Cool (sobering) study
#AMR #MicroSky #IDSKy #CysticFibrosis
Cool (sobering) study
#AMR #MicroSky #IDSKy #CysticFibrosis
Out Now! Within-patient gene transfer between transiently and chronically infecting bacteria causes extreme antibiotic resistance during lung infections #MicroSky
Within-patient gene transfer between transiently and chronically infecting bacteria causes extreme antibiotic resistance during lung infections
Nature Microbiology, Published online: 23 July 2026; doi:10.1038/s41564-026-02414-3Antibiotic resistance gene acquisition by Pseudomonas aeruginosa and Achromobacter from transiently infecting bacteria drives rapid and extreme resistance to tobramycin during chronic lung infection within patients.
go.nature.com
July 24, 2026 at 10:50 AM
“Resistance did not arise from mutation accumulation or strain displacement. Instead, it occurred because plasmid-borne resistance genes were transferred to the previously sensitive pathogens inside patients’ lungs”.
Cool (sobering) study
#AMR #MicroSky #IDSKy #CysticFibrosis
Cool (sobering) study
#AMR #MicroSky #IDSKy #CysticFibrosis
December 25, 2024 at 11:30 PM
This one was a fun one. Small and cute. #lungart #madarinorange #art #cysticfibrosis #65roses #roses
November 20, 2024 at 5:07 AM
This one was a fun one. Small and cute. #lungart #madarinorange #art #cysticfibrosis #65roses #roses
Creon shortage affected many patients, as I learnt while visiting POLARIS @sheffielduni.bsky.social.
One more demonstration that relying on the market for essential medical supplies is not working
#BigPharma #CysticFibrosis
One more demonstration that relying on the market for essential medical supplies is not working
#BigPharma #CysticFibrosis
June 5, 2025 at 3:33 PM
Creon shortage affected many patients, as I learnt while visiting POLARIS @sheffielduni.bsky.social.
One more demonstration that relying on the market for essential medical supplies is not working
#BigPharma #CysticFibrosis
One more demonstration that relying on the market for essential medical supplies is not working
#BigPharma #CysticFibrosis
#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research that identified cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis 🗃️
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis 🗃️
May 5, 2025 at 8:00 AM
#OnThisDay, 5 May 1938, Dorothy Anderson presents her medical research that identified cystic fibrosis at a meeting of the American Pediatric Association.
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis 🗃️
#WomenInHistory #OTD #History #WomensHistory #WomenInMedicine #CysticFibrosis 🗃️
In our new article, we show how P. aeruginosa, a major cause of chronic respiratory infections in #cysticfibrosis (CF), uses the Type VI Secretion System #T6SS and specific #toxins to eliminate competing bacteria
www.cell.com/cell-reports...
#cryoEM @dshatskiy.bsky.social @jakecolautti.bsky.social
www.cell.com/cell-reports...
#cryoEM @dshatskiy.bsky.social @jakecolautti.bsky.social
September 14, 2025 at 8:52 AM
In our new article, we show how P. aeruginosa, a major cause of chronic respiratory infections in #cysticfibrosis (CF), uses the Type VI Secretion System #T6SS and specific #toxins to eliminate competing bacteria
www.cell.com/cell-reports...
#cryoEM @dshatskiy.bsky.social @jakecolautti.bsky.social
www.cell.com/cell-reports...
#cryoEM @dshatskiy.bsky.social @jakecolautti.bsky.social
Même dans la maladie les inégalités existent.
#JournéeInternationalePourLesDroitsDesFemmes 💚
#CysticFibrosis #Muco
#JournéeInternationalePourLesDroitsDesFemmes 💚
#CysticFibrosis #Muco
La mucoviscidose frappe plus fort les femmes : 47,5 % des patient·es… mais 54 % des décès. 💔
Santé, emploi, rôle de parent : les inégalités persistent.
🔗 Découvrez le communiqué : https://www.vaincrelamuco.org/sites/default/files/cp_-_8_mars_compressed.pdf
#8Mars #DroitsDesFemmes #Mucoviscidose
Santé, emploi, rôle de parent : les inégalités persistent.
🔗 Découvrez le communiqué : https://www.vaincrelamuco.org/sites/default/files/cp_-_8_mars_compressed.pdf
#8Mars #DroitsDesFemmes #Mucoviscidose
March 8, 2026 at 10:13 AM
Même dans la maladie les inégalités existent.
#JournéeInternationalePourLesDroitsDesFemmes 💚
#CysticFibrosis #Muco
#JournéeInternationalePourLesDroitsDesFemmes 💚
#CysticFibrosis #Muco
This is amazing news. When Becky was born in 1980, the docs told her parents she’d be lucky to make 18. She actually died at 34. If she were born today, she could have expected an almost normal lifespan. Much love to the #cysticfibrosis community today and every day 🌹
I remember the cystic fibrosis patients I took care of 20 years ago.
I also remember the dedicated HIV wards in the hospitals, and that Princess Diana made headlines for shaking hands with AIDS patients.
Progress has been incredible.
Miracles are where you choose to see them.
I also remember the dedicated HIV wards in the hospitals, and that Princess Diana made headlines for shaking hands with AIDS patients.
Progress has been incredible.
Miracles are where you choose to see them.
March 15, 2025 at 1:00 PM
This is amazing news. When Becky was born in 1980, the docs told her parents she’d be lucky to make 18. She actually died at 34. If she were born today, she could have expected an almost normal lifespan. Much love to the #cysticfibrosis community today and every day 🌹
This was the very first lung piece I ever made. #lungart #cysticfibrosis
#mushrooms #fungi #monarchbutterfly #bees #65roses #forgetmenots #art
#mushrooms #fungi #monarchbutterfly #bees #65roses #forgetmenots #art
November 17, 2024 at 5:16 PM
This was the very first lung piece I ever made. #lungart #cysticfibrosis
#mushrooms #fungi #monarchbutterfly #bees #65roses #forgetmenots #art
#mushrooms #fungi #monarchbutterfly #bees #65roses #forgetmenots #art
I love these cold wintery mornings. I can breathe without it hurting. This is something that people take for granted. #CysticFibrosis #disabilities #Photography
November 22, 2024 at 7:47 AM
I love these cold wintery mornings. I can breathe without it hurting. This is something that people take for granted. #CysticFibrosis #disabilities #Photography