Alberta Health has decided to stop collecting data on patients dying while waiting for surgery and diagnostic. This sort of secrecy is unhealthy, by Colin Craig
calgaryherald.com/opinion/colu... via @calgaryherald.com #SecretCanada #DataGap
calgaryherald.com/opinion/colu... via @calgaryherald.com #SecretCanada #DataGap
Opinion: Alberta Health takes wrong turn on waiting list deaths
Last year in Alberta, the data showed 61 patients died while waiting for surgery. A further 179 died while waiting for a diagnostic scan.
calgaryherald.com
January 4, 2025 at 10:34 PM
Alberta Health has decided to stop collecting data on patients dying while waiting for surgery and diagnostic. This sort of secrecy is unhealthy, by Colin Craig
calgaryherald.com/opinion/colu... via @calgaryherald.com #SecretCanada #DataGap
calgaryherald.com/opinion/colu... via @calgaryherald.com #SecretCanada #DataGap
How Trump is reshaping reality by hiding data. Curating reality is an old political game, but Trump’s sweeping statistical purges are part of a broader attempt to reinvent “truth,” by @ashendruk.com @crampell.bsky.social www.washingtonpost.com/opinions/int... via @postopinions.bsky.social #DataGap
Opinion | How Trump is reshaping reality by hiding data
Sweeping statistical purges are part of a broader attempt to reinvent “truth.”
www.washingtonpost.com
March 16, 2025 at 3:54 PM
How Trump is reshaping reality by hiding data. Curating reality is an old political game, but Trump’s sweeping statistical purges are part of a broader attempt to reinvent “truth,” by @ashendruk.com @crampell.bsky.social www.washingtonpost.com/opinions/int... via @postopinions.bsky.social #DataGap
Canada’s fragmented medical records system. Reporter @hannay.bsky.social explains how the patchwork of disconnected data creates massive headaches for patients and doctors alike.
www.theglobeandmail.com/canada/artic...
www.theglobeandmail.com/podcasts/the... via @theglobeandmail.com #DataGap
www.theglobeandmail.com/canada/artic...
www.theglobeandmail.com/podcasts/the... via @theglobeandmail.com #DataGap
Canada’s medical records systems are unwell
Sharing electronic medical records in Canada is a hassle – and, for some, a health risk
www.theglobeandmail.com
April 15, 2025 at 10:49 AM
Canada’s fragmented medical records system. Reporter @hannay.bsky.social explains how the patchwork of disconnected data creates massive headaches for patients and doctors alike.
www.theglobeandmail.com/canada/artic...
www.theglobeandmail.com/podcasts/the... via @theglobeandmail.com #DataGap
www.theglobeandmail.com/canada/artic...
www.theglobeandmail.com/podcasts/the... via @theglobeandmail.com #DataGap
An urgent message from health journalists: The removal of vital public health data from the CDC website will impair the public's access to essential and timely health information. healthjournalism.org/blog/2025/01... via @healthjournalism.org @holtzreport.bsky.social #DataGap #journalism
An urgent message from the nation's health journalists
We are writing on behalf of the 1,400 members of AHCJ to protest the removal of vital public health data from the CDC website.
healthjournalism.org
February 1, 2025 at 5:28 PM
An urgent message from health journalists: The removal of vital public health data from the CDC website will impair the public's access to essential and timely health information. healthjournalism.org/blog/2025/01... via @healthjournalism.org @holtzreport.bsky.social #DataGap #journalism
Liberals, NDP promise to make it easier to access medical records, by @hannay.bsky.social www.theglobeandmail.com/business/eco... via @theglobeandmail.com #DataGap
Liberals, NDP promise to make it easier to access medical records
The Globe’s Secret Canada investigation revealed fragmentation of a system that makes it hard for patients and doctors to access data
www.theglobeandmail.com
April 25, 2025 at 8:15 PM
Liberals, NDP promise to make it easier to access medical records, by @hannay.bsky.social www.theglobeandmail.com/business/eco... via @theglobeandmail.com #DataGap
Amid deep cuts to the U.S. FDA, experts warn Canadians could lose vital safety information, by @annieburnspieper.bsky.social www.ctvnews.ca/health/artic... via @ctvnews-rss.bsky.social #DataGap
Amid deep cuts to the U.S. FDA, experts warn Canadians could lose vital safety information
Canadian health experts warn the fallout from thousands of job cuts at the U.S. Food and Drug Administration on April 1 could disrupt the flow of safety information on drugs, medical devices, and food...
www.ctvnews.ca
April 13, 2025 at 3:14 PM
Amid deep cuts to the U.S. FDA, experts warn Canadians could lose vital safety information, by @annieburnspieper.bsky.social www.ctvnews.ca/health/artic... via @ctvnews-rss.bsky.social #DataGap
How Canada’s health care system can improve data and information sharing: New report from CMA, Infoway, CFPC
Royal College with 5 key recommendations to modernize.
www.cma.ca/latest-stori...
via @cmadocs.bsky.social #DataGap
Royal College with 5 key recommendations to modernize.
www.cma.ca/latest-stori...
via @cmadocs.bsky.social #DataGap
How Canada’s health care system can improve data and information sharing: New report
Digital health tools have the power to transform health care — helping providers streamline charting and coordinate with other health teams, and allowing patients better access to their health informa...
www.cma.ca
November 18, 2024 at 5:38 PM
How Canada’s health care system can improve data and information sharing: New report from CMA, Infoway, CFPC
Royal College with 5 key recommendations to modernize.
www.cma.ca/latest-stori...
via @cmadocs.bsky.social #DataGap
Royal College with 5 key recommendations to modernize.
www.cma.ca/latest-stori...
via @cmadocs.bsky.social #DataGap
Why we need to prioritize the interoperability of health data, by @jossreimer.bsky.social www.linkedin.com/pulse/why-we... via @cmadocs.bsky.social #DataGap
Why we need to prioritize the interoperability of health data
It’s hard to express how common it is for me to struggle to access key health information when I’m caring for my patients. It happens every time I am at the hospital and I know that most, if not all p...
www.linkedin.com
December 2, 2024 at 3:29 PM
Why we need to prioritize the interoperability of health data, by @jossreimer.bsky.social www.linkedin.com/pulse/why-we... via @cmadocs.bsky.social #DataGap
#Gender #DataGap
Medizinische Forschung vernachlässigt die #Frauen #systematisch
Polyzystisches Ovarialsyndrom, Lipödem und Endometriose betreffen Millionen Frauen weltweit. Doch bis heute werden sie oft fehldiagnostiziert und nicht ausreichend behandelt.
Medizinische Forschung vernachlässigt die #Frauen #systematisch
Polyzystisches Ovarialsyndrom, Lipödem und Endometriose betreffen Millionen Frauen weltweit. Doch bis heute werden sie oft fehldiagnostiziert und nicht ausreichend behandelt.
December 1, 2025 at 3:02 PM
#Gender #DataGap
Medizinische Forschung vernachlässigt die #Frauen #systematisch
Polyzystisches Ovarialsyndrom, Lipödem und Endometriose betreffen Millionen Frauen weltweit. Doch bis heute werden sie oft fehldiagnostiziert und nicht ausreichend behandelt.
Medizinische Forschung vernachlässigt die #Frauen #systematisch
Polyzystisches Ovarialsyndrom, Lipödem und Endometriose betreffen Millionen Frauen weltweit. Doch bis heute werden sie oft fehldiagnostiziert und nicht ausreichend behandelt.
U.S. CDC removes gender, equity references in public health material. Large sets of data are being scrubbed of references to #transgender and #LGBTQ+ people, among others, which could compromise their use in research. www.washingtonpost.com/health/2025/... via @washingtonpost.com #DataGap
CDC removes gender, equity references in public health material
Large sets of data are being scrubbed of references to transgender and LGBTQ+ people, among others, which could compromise their use in research.
www.washingtonpost.com
February 1, 2025 at 6:21 PM
U.S. CDC removes gender, equity references in public health material. Large sets of data are being scrubbed of references to #transgender and #LGBTQ+ people, among others, which could compromise their use in research. www.washingtonpost.com/health/2025/... via @washingtonpost.com #DataGap
Listening to the audiobook Invisible Women - Data bias in a world designed for men by @ccriadoperez.bsky.social and never have I been so sure that we need to dismantle the patriarchy in a way that makes it impossible to rebuild it.
#booksky #audiobook #feminism #datagap #femininerage
#booksky #audiobook #feminism #datagap #femininerage
January 22, 2025 at 6:31 PM
Listening to the audiobook Invisible Women - Data bias in a world designed for men by @ccriadoperez.bsky.social and never have I been so sure that we need to dismantle the patriarchy in a way that makes it impossible to rebuild it.
#booksky #audiobook #feminism #datagap #femininerage
#booksky #audiobook #feminism #datagap #femininerage
Alles was das Datagap bei Frauenmedizin betrifft!
September 5, 2024 at 2:40 PM
Alles was das Datagap bei Frauenmedizin betrifft!
Datagap, ontstaan door eeuwenlang de man en het manlijke als uitgangspunt te nemen. De heersende mindset. Reden temeer voor vrouwen om extra alert naar AI oplossingen, datamodellen en algoritmes te kijken.
De wereld is ontworpen voor mannen | Caroline Criado Perez Brainwash Talk
Wist je dat de wereld is ontworpen voor mannen? 📊 De 'genderdatakloof' heeft grote gevolgen: auto's zijn onveiliger voor vrouwen 🚗, medicijnen worden voora...
youtu.be
June 30, 2024 at 9:04 AM
Datagap, ontstaan door eeuwenlang de man en het manlijke als uitgangspunt te nemen. De heersende mindset. Reden temeer voor vrouwen om extra alert naar AI oplossingen, datamodellen en algoritmes te kijken.
Many thanks to @bondngo.bsky.social for covering our new, #OpenSource, and screen-reader-accessible tool Survey for Inclusive Rapid Assessment (SIRA) and for sharing 5 lessons on how to close the disability #DataGap in emergencies.
#AI #Accessibility #Inclusion #HumanitarianAction
#AI #Accessibility #Inclusion #HumanitarianAction
Humanitarians say no one should be left behind. Yet when disasters strike, the data they rely on often erases people with disabilities. The Survey for Inclusive Rapid Assessment (SIRA) could help change that.
#DisabilityData #HumanitarianAction
buff.ly/CnOq5yd
#DisabilityData #HumanitarianAction
buff.ly/CnOq5yd
How NGOs can close the disability data gap in crises | Bond
Humanitarians say no one should be left behind. Yet when disasters strike, the data they rely on often erases people with disabilities. The Survey for Inclusive Rapid Assessment (SIRA) could help…
buff.ly
January 7, 2026 at 8:51 AM
Many thanks to @bondngo.bsky.social for covering our new, #OpenSource, and screen-reader-accessible tool Survey for Inclusive Rapid Assessment (SIRA) and for sharing 5 lessons on how to close the disability #DataGap in emergencies.
#AI #Accessibility #Inclusion #HumanitarianAction
#AI #Accessibility #Inclusion #HumanitarianAction
#AI #patientsupportservices #datagap #analytics #deliveryinsights #insights #qualitativeassessmentdata #predictivemodels #realtimedata #AIassistants #datastrategy #DataDisconnect #machinelearning #Qualitativedata #Qualitativedatacapture #patiettsupportstrategy
zurl.co/0DoT3
zurl.co/0DoT3
Turning Data into Action: Empowering frontline leaders in patient support services
Key takeaways: Five Ways to Strengthen Data’s Impact | Bridge the gap between analytics and patient care with data-driven strategies for better outcomes in patient support programs.
www.fiercepharma.com
November 13, 2025 at 9:27 AM
Now on ScienceDirect!
Cheminformatic Modeling and Data Gap Filling for a Green and Sustainable Environment (elsevierconnect.bsky.social, 2026)
doi.org/10.1016/C202...
ISBN: 978-0-443-36474-7
#Cheminformatics #DataGap #Green #Sustainable #Environment
Cheminformatic Modeling and Data Gap Filling for a Green and Sustainable Environment (elsevierconnect.bsky.social, 2026)
doi.org/10.1016/C202...
ISBN: 978-0-443-36474-7
#Cheminformatics #DataGap #Green #Sustainable #Environment
June 7, 2026 at 2:37 AM
Now on ScienceDirect!
Cheminformatic Modeling and Data Gap Filling for a Green and Sustainable Environment (elsevierconnect.bsky.social, 2026)
doi.org/10.1016/C202...
ISBN: 978-0-443-36474-7
#Cheminformatics #DataGap #Green #Sustainable #Environment
Cheminformatic Modeling and Data Gap Filling for a Green and Sustainable Environment (elsevierconnect.bsky.social, 2026)
doi.org/10.1016/C202...
ISBN: 978-0-443-36474-7
#Cheminformatics #DataGap #Green #Sustainable #Environment
New article alert! 🎉 Check our our latest piece in @natrevdiseaseprimers.nature.com on #wearables #sensors #healthtech, moving forward from #digitalmeasures, monitoring to meaningful action #womenshealth #digitalmedicine #datagap @wisewoman75.bsky.social @ucl-ifwh.bsky.social #https://rdcu.be/flbj6
Wearables and women’s healthtech: advancing measurement, monitoring and action via digital medicine
Nature Reviews Disease Primers - Wearables have the potential to address one of medicine’s major blind spots: the under-representation of women. They could help to close this gap by advancing...
rdcu.be
May 28, 2026 at 11:35 AM
New article alert! 🎉 Check our our latest piece in @natrevdiseaseprimers.nature.com on #wearables #sensors #healthtech, moving forward from #digitalmeasures, monitoring to meaningful action #womenshealth #digitalmedicine #datagap @wisewoman75.bsky.social @ucl-ifwh.bsky.social #https://rdcu.be/flbj6
New AQLI data from Energy Policy Institute at the University of Chicago (EPIC) and @openaq.org shows how regions that face the highest health risks often have the fewest #AirQuality monitors. Closing this #DataGap supports effective policy and #PublicHealth going into 2026.
tinyurl.com/3jkv3zs7
tinyurl.com/3jkv3zs7
A review of air pollution statistics: Where do we stand?
A deep dive into the latest air pollution statistics from the AQLI, revealing the regions most at risk and the need for equitable air quality monitoring.
tinyurl.com
January 2, 2026 at 7:47 PM
New AQLI data from Energy Policy Institute at the University of Chicago (EPIC) and @openaq.org shows how regions that face the highest health risks often have the fewest #AirQuality monitors. Closing this #DataGap supports effective policy and #PublicHealth going into 2026.
tinyurl.com/3jkv3zs7
tinyurl.com/3jkv3zs7
Researchers scraped 4 big U.S. aquarium platforms from 2021–2024. 734 species sold.
🟢 89% wild-caught
🟡 45 flagged for conservation concern
🔴 38 of those only wild-caught.
And 100 weren’t even listed in trade databases. We’re flying blind.
#ReefTrade #DataGap
🟢 89% wild-caught
🟡 45 flagged for conservation concern
🔴 38 of those only wild-caught.
And 100 weren’t even listed in trade databases. We’re flying blind.
#ReefTrade #DataGap
October 10, 2025 at 5:31 PM
Researchers scraped 4 big U.S. aquarium platforms from 2021–2024. 734 species sold.
🟢 89% wild-caught
🟡 45 flagged for conservation concern
🔴 38 of those only wild-caught.
And 100 weren’t even listed in trade databases. We’re flying blind.
#ReefTrade #DataGap
🟢 89% wild-caught
🟡 45 flagged for conservation concern
🔴 38 of those only wild-caught.
And 100 weren’t even listed in trade databases. We’re flying blind.
#ReefTrade #DataGap
A paper about our approach and the #LGBTIQ+ #DataGap will soon follow. We're currently working on our revise and resubmit
Wow Interesting GIF
Alt: Cat with glasses on in front of a computer.
media.tenor.com
June 25, 2024 at 11:36 AM
Health Canada documents show big information gaps about ethylene oxide use and disposal across the country #health #chemicals #datagap #Canada #ethyleneoxide
thenarwhal.ca/ethylene-oxi...
thenarwhal.ca/ethylene-oxi...
How much carcinogenic ethylene oxide is in Canada’s air? | The Narwhal
“Like using a machine gun to kill a rabbit:” ethylene oxide is a known carcinogen. Is it the best way to sterilize medical equipment?
thenarwhal.ca
February 7, 2025 at 3:08 PM
Health Canada documents show big information gaps about ethylene oxide use and disposal across the country #health #chemicals #datagap #Canada #ethyleneoxide
thenarwhal.ca/ethylene-oxi...
thenarwhal.ca/ethylene-oxi...
www.cmaj.ca/content/197/...
I explain to pts about the #datagap and that we are doing our best with what data we have. The real test is their experience of how a treatment works for them.
#ObGynSky
I explain to pts about the #datagap and that we are doing our best with what data we have. The real test is their experience of how a treatment works for them.
#ObGynSky
Nonceliac gluten sensitivities: encouraging patients through epistemic humility
Empowering patients to understand and manage their medical issues is particularly challenging when they have a condition for which medical understanding is poor and misinformation abounds. Gluten sens...
www.cmaj.ca
March 11, 2025 at 12:47 PM
www.cmaj.ca/content/197/...
I explain to pts about the #datagap and that we are doing our best with what data we have. The real test is their experience of how a treatment works for them.
#ObGynSky
I explain to pts about the #datagap and that we are doing our best with what data we have. The real test is their experience of how a treatment works for them.
#ObGynSky
The crews bracing themselves for a rise in electric car fires www.bbc.co.uk/news/uk-engl... #EVfires #roadsafety #datagap
March 30, 2024 at 4:59 PM
The crews bracing themselves for a rise in electric car fires www.bbc.co.uk/news/uk-engl... #EVfires #roadsafety #datagap
自治体オープンデータを、数字の一覧ではなく「街で何が変わったのか」として伝えるWebサイトを企画・設計・開発。
データの欠損や定義・地域粒度の違いも隠さず、「DataGap」としてUIに組み込んでいます。
www.kinkedtail.jp/portfolio/18...
github.com/Mimuko/tax-c...
#情報設計 #オープンデータ
データの欠損や定義・地域粒度の違いも隠さず、「DataGap」としてUIに組み込んでいます。
www.kinkedtail.jp/portfolio/18...
github.com/Mimuko/tax-c...
#情報設計 #オープンデータ
GitHub - Mimuko/tax-change-tachikawa
Contribute to Mimuko/tax-change-tachikawa development by creating an account on GitHub.
github.com
September 13, 2026 at 9:34 AM
自治体オープンデータを、数字の一覧ではなく「街で何が変わったのか」として伝えるWebサイトを企画・設計・開発。
データの欠損や定義・地域粒度の違いも隠さず、「DataGap」としてUIに組み込んでいます。
www.kinkedtail.jp/portfolio/18...
github.com/Mimuko/tax-c...
#情報設計 #オープンデータ
データの欠損や定義・地域粒度の違いも隠さず、「DataGap」としてUIに組み込んでいます。
www.kinkedtail.jp/portfolio/18...
github.com/Mimuko/tax-c...
#情報設計 #オープンデータ
This site near Enugu, part of the Guinean forest-savanna, sits in what the record shows as essentially unwatched ground. No water-quality sensors cover this stretch, no discharge monitoring, no protected-land data. The community-science record…
#GuineanForestSavanna #DataGap #Enugu #CitizenScience
#GuineanForestSavanna #DataGap #Enugu #CitizenScience
Guinean forest-savanna — Speak for the Trees
www.speakforthetrees.com
August 21, 2026 at 12:50 PM
This site near Enugu, part of the Guinean forest-savanna, sits in what the record shows as essentially unwatched ground. No water-quality sensors cover this stretch, no discharge monitoring, no protected-land data. The community-science record…
#GuineanForestSavanna #DataGap #Enugu #CitizenScience
#GuineanForestSavanna #DataGap #Enugu #CitizenScience