To give you hope: Here's a profile of Meg Thorburn, a 21-year survivor of uterine leiomyosarcoma.
x.com/suziesiegel/...
x.com/suziesiegel/...
x.com
x.com
February 23, 2025 at 9:28 PM
To give you hope: Here's a profile of Meg Thorburn, a 21-year survivor of uterine leiomyosarcoma.
x.com/suziesiegel/...
x.com/suziesiegel/...
Please take a look at the first dedicated #Leiomyosarcoma focused charity in the UK. Changing the outlook for current and future patients. #oncosky #cansky
#sarcoma #rarecancer #cancerresearch
lmsruk.org
#sarcoma #rarecancer #cancerresearch
lmsruk.org
Leiomyosarcoma Research UK Home
Supporting research and education to improve treatment options and outcomes for Leiomyosarcoma (LMS) patients. - Leiomyosarcoma Research UK Home
lmsruk.org
March 18, 2025 at 11:51 AM
Please take a look at the first dedicated #Leiomyosarcoma focused charity in the UK. Changing the outlook for current and future patients. #oncosky #cansky
#sarcoma #rarecancer #cancerresearch
lmsruk.org
#sarcoma #rarecancer #cancerresearch
lmsruk.org
#PathSky Having returned from vacation…Back mass, 17 month M. Looks like a smooth muscle tumor, but infants don’t really get true smooth muscle tumors. And some parts look a bit more primitive. Leiomyosarcoma? Something else?
January 6, 2025 at 8:24 PM
#PathSky Having returned from vacation…Back mass, 17 month M. Looks like a smooth muscle tumor, but infants don’t really get true smooth muscle tumors. And some parts look a bit more primitive. Leiomyosarcoma? Something else?
My rare cancer is also a sarcoma. A uterine Leiomyosarcoma. It was 29 cm. The size of a basketball. My iliac artery grew into it and I lost 3” of my colon. Sarcomas are damn scary as treatments aren’t always effective. My chances of it coming back are around 75% my oncologist has told me 🤦🏼
September 7, 2026 at 2:35 AM
My rare cancer is also a sarcoma. A uterine Leiomyosarcoma. It was 29 cm. The size of a basketball. My iliac artery grew into it and I lost 3” of my colon. Sarcomas are damn scary as treatments aren’t always effective. My chances of it coming back are around 75% my oncologist has told me 🤦🏼
My chemo meds during the last 2.5 years plus Cyberknife Radiation have cost tenthousands of euros.
What do I pay?
Occasionally 5 Euros here and 10 Euros there.
I'm thankful for the solidarity system in Germany.
#Sarcoma
#palliative
#RareCancer
#Leiomyosarcoma
What do I pay?
Occasionally 5 Euros here and 10 Euros there.
I'm thankful for the solidarity system in Germany.
#Sarcoma
#palliative
#RareCancer
#Leiomyosarcoma
Number of people who go bankrupt every year because of medical bills or illness-related work loss:
Australia 0
Canada 0
Denmark 0
Finland 0
France 0
Germany 0
Iceland 0
Ireland 0
Italy 0
Japan 0
Netherlands 0
Norway 0
Portugal 0
Spain 0
Sweden 0
UK 0
United States 530,000
There’s a lesson there.
Australia 0
Canada 0
Denmark 0
Finland 0
France 0
Germany 0
Iceland 0
Ireland 0
Italy 0
Japan 0
Netherlands 0
Norway 0
Portugal 0
Spain 0
Sweden 0
UK 0
United States 530,000
There’s a lesson there.
April 11, 2025 at 6:31 AM
My chemo meds during the last 2.5 years plus Cyberknife Radiation have cost tenthousands of euros.
What do I pay?
Occasionally 5 Euros here and 10 Euros there.
I'm thankful for the solidarity system in Germany.
#Sarcoma
#palliative
#RareCancer
#Leiomyosarcoma
What do I pay?
Occasionally 5 Euros here and 10 Euros there.
I'm thankful for the solidarity system in Germany.
#Sarcoma
#palliative
#RareCancer
#Leiomyosarcoma
I am struggling to pay medical bills after surviving Leiomyosarcoma (this isn't even all of it). If you'd like to give to help, my venmo is Susan-A-Fox and my paypal is www.paypal.com/paypalme/sus... Please do not give unless you are easily able to. Take care of YOU first, I love you no matter what.
June 16, 2025 at 12:33 PM
I am struggling to pay medical bills after surviving Leiomyosarcoma (this isn't even all of it). If you'd like to give to help, my venmo is Susan-A-Fox and my paypal is www.paypal.com/paypalme/sus... Please do not give unless you are easily able to. Take care of YOU first, I love you no matter what.
Cell-cycle dysregulation may provide a therapeutic vulnerability in uterine #Leiomyosarcoma.
This study links CDK/cyclin–phospho-Rb signaling to uLMS and shows antitumor effects of CDK4/6 inhibition with abemaciclib.
#STTT #OpenAccess: doi.org/10.1038/s413...
#CancerBiology #MolecularOncology
This study links CDK/cyclin–phospho-Rb signaling to uLMS and shows antitumor effects of CDK4/6 inhibition with abemaciclib.
#STTT #OpenAccess: doi.org/10.1038/s413...
#CancerBiology #MolecularOncology
September 23, 2026 at 12:30 PM
Cell-cycle dysregulation may provide a therapeutic vulnerability in uterine #Leiomyosarcoma.
This study links CDK/cyclin–phospho-Rb signaling to uLMS and shows antitumor effects of CDK4/6 inhibition with abemaciclib.
#STTT #OpenAccess: doi.org/10.1038/s413...
#CancerBiology #MolecularOncology
This study links CDK/cyclin–phospho-Rb signaling to uLMS and shows antitumor effects of CDK4/6 inhibition with abemaciclib.
#STTT #OpenAccess: doi.org/10.1038/s413...
#CancerBiology #MolecularOncology
That's good news.
Then again, we already know that Trump cuts money for cancer research.
Research that would've helped ppl around the globe, like me in Germany, hoping for a better treatment for my Leiomyosarcoma one day.
It's all so devastating on so many levels. 😔
Then again, we already know that Trump cuts money for cancer research.
Research that would've helped ppl around the globe, like me in Germany, hoping for a better treatment for my Leiomyosarcoma one day.
It's all so devastating on so many levels. 😔
In a small trial, nearly half of pancreatic cancer patients who received an mRNA vaccine had no signs of relapse after three years.
Dr. Vinod Balachandran from @mskcancercenter.bsky.social joins us to discuss the results and what they could mean for cancer treatment.
Dr. Vinod Balachandran from @mskcancercenter.bsky.social joins us to discuss the results and what they could mean for cancer treatment.
A Vaccine For Pancreatic Cancer Continues To Show Promise
In a small trial, nearly half of pancreatic cancer patients who received an mRNA vaccine for the disease had no relapse three years later.
buff.ly
February 22, 2025 at 7:07 AM
That's good news.
Then again, we already know that Trump cuts money for cancer research.
Research that would've helped ppl around the globe, like me in Germany, hoping for a better treatment for my Leiomyosarcoma one day.
It's all so devastating on so many levels. 😔
Then again, we already know that Trump cuts money for cancer research.
Research that would've helped ppl around the globe, like me in Germany, hoping for a better treatment for my Leiomyosarcoma one day.
It's all so devastating on so many levels. 😔
Biden war angetreten, innerhalb dieses Jahrzehnts eine Impfung gegen die meisten Krebsarten zu entwickeln und das war nicht unrealistisch.
Trump lässt nun alle Forschungen und laufende Studien einstellen. Das wird buchstäblich Millionen Menschen auf der ganzen Welt das Leben kosten.
Trump lässt nun alle Forschungen und laufende Studien einstellen. Das wird buchstäblich Millionen Menschen auf der ganzen Welt das Leben kosten.
May 2, 2025 at 8:03 AM
Cancer Sucks. youtu.be/cH0qoyoMbH0 Latest video about a soccer loving family dealing with the Mom having Stage 4 Leiomyosarcoma. Enjoy the little things. #MLS #KickCancer #NWSL #CanSky
Mental Therapy -Living with Cancer and Leiomyosarcoma - Episode 10
YouTube video by Perpetual Stew TV
youtu.be
May 1, 2025 at 6:13 PM
Cancer Sucks. youtu.be/cH0qoyoMbH0 Latest video about a soccer loving family dealing with the Mom having Stage 4 Leiomyosarcoma. Enjoy the little things. #MLS #KickCancer #NWSL #CanSky
Primary ovarian leiomyosarcoma: less than 0.1% of ovarian malignancies, resistant to chemotherapy, and frequently misdiagnosed preoperatively. A rare case in CRWH. https://www.sciencedirect.com/science/article/pii/S2214911226000391
#WomensHealth #GynaeOncology #OvarianCancer
#WomensHealth #GynaeOncology #OvarianCancer
September 28, 2026 at 12:01 PM
Primary ovarian leiomyosarcoma: less than 0.1% of ovarian malignancies, resistant to chemotherapy, and frequently misdiagnosed preoperatively. A rare case in CRWH. https://www.sciencedirect.com/science/article/pii/S2214911226000391
#WomensHealth #GynaeOncology #OvarianCancer
#WomensHealth #GynaeOncology #OvarianCancer
Multi-omics data and 113 ML algorithms built a GBM model achieving up to 100% accuracy in uterine leiomyosarcoma.
Highlighting 36 biomarkers like TRIP13, this study illuminates new paths for diagnosis and targeted immunotherapy.
pmc.ncbi.nlm.nih.gov/articles/PMC...
Highlighting 36 biomarkers like TRIP13, this study illuminates new paths for diagnosis and targeted immunotherapy.
pmc.ncbi.nlm.nih.gov/articles/PMC...
September 28, 2026 at 8:24 PM
Multi-omics data and 113 ML algorithms built a GBM model achieving up to 100% accuracy in uterine leiomyosarcoma.
Highlighting 36 biomarkers like TRIP13, this study illuminates new paths for diagnosis and targeted immunotherapy.
pmc.ncbi.nlm.nih.gov/articles/PMC...
Highlighting 36 biomarkers like TRIP13, this study illuminates new paths for diagnosis and targeted immunotherapy.
pmc.ncbi.nlm.nih.gov/articles/PMC...
Hello.. I'm also living with stage 4 Leiomyosarcoma. Dx 7/15/19.. nice to meet you :)
November 23, 2024 at 12:51 AM
Hello.. I'm also living with stage 4 Leiomyosarcoma. Dx 7/15/19.. nice to meet you :)
My friend was just diagnosed with an aggressive leiomyosarcoma already with mets to her lungs and spine.
I'm afraid she's going to need a miracle like this and hope she gets it.
I'm afraid she's going to need a miracle like this and hope she gets it.
May 31, 2026 at 12:09 AM
My friend was just diagnosed with an aggressive leiomyosarcoma already with mets to her lungs and spine.
I'm afraid she's going to need a miracle like this and hope she gets it.
I'm afraid she's going to need a miracle like this and hope she gets it.
Ich nach der Chemo. Immer. 😅
(Das liegt am Cortison als Begleitmedikation - davon kriegt man Fressflashs & schläft schlecht).
#Sarcoma #Sarkom #Cancer #Krebs #Palliativ #Leiomyosarcoma #uLMS
(Das liegt am Cortison als Begleitmedikation - davon kriegt man Fressflashs & schläft schlecht).
#Sarcoma #Sarkom #Cancer #Krebs #Palliativ #Leiomyosarcoma #uLMS
December 2, 2024 at 4:49 PM
Ich nach der Chemo. Immer. 😅
(Das liegt am Cortison als Begleitmedikation - davon kriegt man Fressflashs & schläft schlecht).
#Sarcoma #Sarkom #Cancer #Krebs #Palliativ #Leiomyosarcoma #uLMS
(Das liegt am Cortison als Begleitmedikation - davon kriegt man Fressflashs & schläft schlecht).
#Sarcoma #Sarkom #Cancer #Krebs #Palliativ #Leiomyosarcoma #uLMS
When you have no evidence of recurrence 2.5 years after diagnosis with a rare cancer (leiomyosarcoma) with a 6-9 month prognosis, you get a new toy to celebrate! Thankful to the veterinarian who resected the hell out of that cancer!!
#TheBestGirl #DogSoulmate
#TheBestGirl #DogSoulmate
April 11, 2025 at 2:26 AM
When you have no evidence of recurrence 2.5 years after diagnosis with a rare cancer (leiomyosarcoma) with a 6-9 month prognosis, you get a new toy to celebrate! Thankful to the veterinarian who resected the hell out of that cancer!!
#TheBestGirl #DogSoulmate
#TheBestGirl #DogSoulmate
I'm so very sorry for your loss! She was a beautiful lady, thank you for sharing your story.🙏 Millions of us would be in dire straits without the ACA. I'm self-employed and without the ACA I could not afford the treatment for Leiomyosarcoma that I’m going thru now. I'll fight tooth&nail to keep it!
March 23, 2025 at 9:53 PM
I'm so very sorry for your loss! She was a beautiful lady, thank you for sharing your story.🙏 Millions of us would be in dire straits without the ACA. I'm self-employed and without the ACA I could not afford the treatment for Leiomyosarcoma that I’m going thru now. I'll fight tooth&nail to keep it!
My mom would have been 81 today. She died at the age of 62 from leiomyosarcoma, a very aggressive cancer, similar to the one my brother died from.
Love you to the moon and back, mom.
Love you to the moon and back, mom.
July 13, 2025 at 3:48 PM
My mom would have been 81 today. She died at the age of 62 from leiomyosarcoma, a very aggressive cancer, similar to the one my brother died from.
Love you to the moon and back, mom.
Love you to the moon and back, mom.
SON-1010 Plus Trabectedin Completes First Safety Review in Advanced Leiomyosarcoma/Liposarcoma #scmsm #oncology
www.onclive.com/view/son-101...
www.onclive.com/view/son-101...
SON-1010 Plus Trabectedin Completes First Safety Review in Advanced Leiomyosarcoma/Liposarcoma
Findings from the safety review of SON-1010 plus trabectedin in patients with advanced leiomyosarcoma or liposarcoma were positive.
www.onclive.com
March 26, 2025 at 3:47 PM
SON-1010 Plus Trabectedin Completes First Safety Review in Advanced Leiomyosarcoma/Liposarcoma #scmsm #oncology
www.onclive.com/view/son-101...
www.onclive.com/view/son-101...
Seriously, fuck #cancer. I've have tried so hard taking care of my wife, my Dad & my Uncle. My wife's leiomyosarcoma respread & she's back in chemo. Dad just entered the VA Hospice & has little time left & I found my Uncle dead today. How do you caretakers get through it? #OncSky #cansky
December 1, 2025 at 1:43 AM
Huge thank you to Donald Bradley for completing a 100km trek along the beautiful Jurassic Coast! He raised funds and awareness for Sarcoma UK in memory of his late wife, Jacky, who sadly died of leiomyosarcoma.💙
Support Donald at: justgiving.com/page/donald-...
Support Donald at: justgiving.com/page/donald-...
May 22, 2025 at 1:11 PM
Ich habe gerade einen Workshop für 2027 festgemacht & naja, das sind noch mindestens 4 CTs bis dahin. 😬
#RareCancer
#Sarcoma
#Leiomyosarcoma
#palliativ
#RareCancer
#Sarcoma
#Leiomyosarcoma
#palliativ
January 28, 2026 at 12:13 PM
Ich habe gerade einen Workshop für 2027 festgemacht & naja, das sind noch mindestens 4 CTs bis dahin. 😬
#RareCancer
#Sarcoma
#Leiomyosarcoma
#palliativ
#RareCancer
#Sarcoma
#Leiomyosarcoma
#palliativ
As a person with a rare cancer that has no real treatment, a lot of the chemos are off-label, and already in palliative care, i cant stress enough how much i'm disgusted with that. The big money in the USA in cancer research was kinda my last straw.
#RareCancer
#Leiomyosarcoma
#uLMS
#RareCancer
#Leiomyosarcoma
#uLMS
Am I crazy or did we just have a convo about how we can't fund cancer research?
May 23, 2025 at 5:16 AM
As a person with a rare cancer that has no real treatment, a lot of the chemos are off-label, and already in palliative care, i cant stress enough how much i'm disgusted with that. The big money in the USA in cancer research was kinda my last straw.
#RareCancer
#Leiomyosarcoma
#uLMS
#RareCancer
#Leiomyosarcoma
#uLMS
Sitting here in pre-op eval at Johns Hopkins waiting for my wife who will have surgery Monday to remove a Leiomyosarcoma tumor that was the size of an adult brain a year ago. It had spread to her liver but chemo has helped so no liver surgery yet. #oncsky #cansky been a tough year on her
July 24, 2025 at 1:46 PM