#MillionsMissing25

#millionsmissing25

#WorldMEDay #MillionsMissing25 #DisabilitySOS

In a crash bc it was my birthday yesterday. I did not do very much extra. Brain soup. Mandatory nap. Need help walking. Will send my personal email and fundraiser later. This is #MECFS and #LongCovid

Only science will save me.

@meactnet.bsky.social

Please share both, so we can keep this momentum going! And thanks for all YOU do for advocacy every day #MillionsMissing25 #MillionsMissing

Sent my #MillionsMissing25 email to my son’s kindergarten teacher bc she’s been very good to my family. She told my spouse today at school that it helped her understand better what’s going on and cedar we’re dealing with.

I’m glad. #MECFS #LongCovid

I finally sent my #MillionsMissing25 personal email!

In it, I ask friends and family to join me in supporting @meactnet.bsky.social via this personal fundraiser (among other things).

Have a look, if you are so inclined:

meaction.funraise.org/fundraiser/k...

Please and thank you!

So every month I have to do the FUNCAP before my appointment with my ME/LongCovid Dr. every time my raw score is 80. Today my raw score is 97 and I must’ve done something wrong bc I do not feel any more functional than usual… ? #MECFS #LongCovid #MillionsMissing25

But just like #MECFS funding overall, we've seen gradual change when what we need is a revolution.

To learn more about our fight for research funding and to save #Medicare and telehealth, visit www.meactions.org.

To learn more about our protest on May 12, go to www.meactions.org/millionsmissing25

Jamie Seltzer from #meaction talks about tomorrow's Millions Missing S.O.S. protest in Washington, DC (at noon EDT)

https://www.youtube.com/watch?v=3CFxmR7QxUw

Want to join in? Go to

https://www.meactions.org/millionsmissing25

#MEAction encourages all people with disabilities to join this […]