How might clinicians play a role in “producing” the patient story?
@myopennotes.bsky.social was inspired today by @rickrubin.bsky.social “live in Conversation” w/ the gang from #Abridge.
Listening to Slayer at a health tech meeting is ALWAYS on my bingo card. 🎯
#opennotes
@myopennotes.bsky.social was inspired today by @rickrubin.bsky.social “live in Conversation” w/ the gang from #Abridge.
Listening to Slayer at a health tech meeting is ALWAYS on my bingo card. 🎯
#opennotes
November 20, 2024 at 10:19 PM
How might clinicians play a role in “producing” the patient story?
@myopennotes.bsky.social was inspired today by @rickrubin.bsky.social “live in Conversation” w/ the gang from #Abridge.
Listening to Slayer at a health tech meeting is ALWAYS on my bingo card. 🎯
#opennotes
@myopennotes.bsky.social was inspired today by @rickrubin.bsky.social “live in Conversation” w/ the gang from #Abridge.
Listening to Slayer at a health tech meeting is ALWAYS on my bingo card. 🎯
#opennotes
From OpenNotes to “Doc Can I Record You?” Why Physicians Should Embrace Era of Accountability
https://medcitynews.com/2026/09/from-opennotes-to-doc-can-i-record-you-why-physicians-should-embrace-era-of-accountability/
From OpenNotes to “Doc Can I Record You?” Why Physicians Should Embrace Era of Accountability
Healthcare has a habit of embracing patient empowerment right up until patients become powerful.
medcitynews.com
September 24, 2026 at 3:01 PM
From OpenNotes to “Doc Can I Record You?” Why Physicians Should Embrace Era of Accountability
https://medcitynews.com/2026/09/from-opennotes-to-doc-can-i-record-you-why-physicians-should-embrace-era-of-accountability/
Exciting new initiative from our team here at @opennotes.org!
So much hype these days around AI and ambient documentation. We want to bring things back to an earlier era.
Even earlier than you think. #opennotes #medsky
www.opennotes.org/news/retro-n...
So much hype these days around AI and ambient documentation. We want to bring things back to an earlier era.
Even earlier than you think. #opennotes #medsky
www.opennotes.org/news/retro-n...
Retro Notes: OpenNotes Brings Back Handwritten Medical Notes—Via Carrier Pigeon - Open Notes
OpenNotes is proud to announce its newest initiative: Retro Notes—a revolutionary program delivering medical records to patients the old-fashioned way: meticulously handwritten in calligraphy and flow...
www.opennotes.org
April 1, 2025 at 5:41 PM
Exciting new initiative from our team here at @opennotes.org!
So much hype these days around AI and ambient documentation. We want to bring things back to an earlier era.
Even earlier than you think. #opennotes #medsky
www.opennotes.org/news/retro-n...
So much hype these days around AI and ambient documentation. We want to bring things back to an earlier era.
Even earlier than you think. #opennotes #medsky
www.opennotes.org/news/retro-n...
Health anxiety can be terrifying. 🫠😵💫
That’s why #OpenNotes launched a new study to help cancer patients manage "scanxiety"—the stress of awaiting test results.
“We are working towards a future where patients feel more supported.” @cait-desroches.bsky.social
bit.ly/3DjlxQN
#btsm #cancer #medsky
That’s why #OpenNotes launched a new study to help cancer patients manage "scanxiety"—the stress of awaiting test results.
“We are working towards a future where patients feel more supported.” @cait-desroches.bsky.social
bit.ly/3DjlxQN
#btsm #cancer #medsky
OpenNotes Study Aims to Mitigate Scanxiety & Misinformation in Cancer Care - Open Notes
Led by OpenNotes, the study, "Mitigating Misinformation & Scanxiety for Cancer Patients," focuses on reducing the stress and confusion patients may face when receiving medical test results electronica...
bit.ly
December 17, 2024 at 9:06 PM
Health anxiety can be terrifying. 🫠😵💫
That’s why #OpenNotes launched a new study to help cancer patients manage "scanxiety"—the stress of awaiting test results.
“We are working towards a future where patients feel more supported.” @cait-desroches.bsky.social
bit.ly/3DjlxQN
#btsm #cancer #medsky
That’s why #OpenNotes launched a new study to help cancer patients manage "scanxiety"—the stress of awaiting test results.
“We are working towards a future where patients feel more supported.” @cait-desroches.bsky.social
bit.ly/3DjlxQN
#btsm #cancer #medsky
Hi! We're #OpenNotes 👋 Our team includes clinicians, social scientists, and patient advocates, working together to identify and disseminate best practices for sharing medical information with patients, families and care partners.
November 12, 2024 at 7:23 PM
Hi! We're #OpenNotes 👋 Our team includes clinicians, social scientists, and patient advocates, working together to identify and disseminate best practices for sharing medical information with patients, families and care partners.
I signed up for the free professional headshots at #SNO2024.
Which one should I use on the #OpenNotes Lab website? 🤣
#researchsky #medsky
Which one should I use on the #OpenNotes Lab website? 🤣
#researchsky #medsky
November 23, 2024 at 5:36 AM
I signed up for the free professional headshots at #SNO2024.
Which one should I use on the #OpenNotes Lab website? 🤣
#researchsky #medsky
Which one should I use on the #OpenNotes Lab website? 🤣
#researchsky #medsky
Introducing myself. I left the other place when the oligarch took over & have been on a social media fast since then. I'm a health care/data nerd and director of @myopennotes.bsky.social. i really like baseball, dogs, and backcountry adventures. Pics of my dogs for fun - yes, the Yorkie is eyeless.
November 18, 2024 at 9:13 PM
At Node Health’s Digital Medicine conference talking about “Navigating the New Frontier: Responsible AI and AI Guardrails" w/ Lucy Orr-Ewing and Nirav Shah. Also -
@chethan.bsky.social!
#DigitalHealth #AI #HealthInnovation #MedSky #OpenNotes
@chethan.bsky.social!
#DigitalHealth #AI #HealthInnovation #MedSky #OpenNotes
December 10, 2024 at 4:31 PM
At Node Health’s Digital Medicine conference talking about “Navigating the New Frontier: Responsible AI and AI Guardrails" w/ Lucy Orr-Ewing and Nirav Shah. Also -
@chethan.bsky.social!
#DigitalHealth #AI #HealthInnovation #MedSky #OpenNotes
@chethan.bsky.social!
#DigitalHealth #AI #HealthInnovation #MedSky #OpenNotes
🚨 New OpenNotes Research Alert!
Can #GenerativeAI help patients make sense of their #opennotes?
🤖 AI isn’t a replacement for clinical guidance—but it may be a useful bridge during the “in-between” moments of care.
Open access paper 👉
academic.oup.com/jamiaopen/ar...
@thelizarmy.bsky.social
Can #GenerativeAI help patients make sense of their #opennotes?
🤖 AI isn’t a replacement for clinical guidance—but it may be a useful bridge during the “in-between” moments of care.
Open access paper 👉
academic.oup.com/jamiaopen/ar...
@thelizarmy.bsky.social
April 23, 2025 at 6:16 PM
🚨 New OpenNotes Research Alert!
Can #GenerativeAI help patients make sense of their #opennotes?
🤖 AI isn’t a replacement for clinical guidance—but it may be a useful bridge during the “in-between” moments of care.
Open access paper 👉
academic.oup.com/jamiaopen/ar...
@thelizarmy.bsky.social
Can #GenerativeAI help patients make sense of their #opennotes?
🤖 AI isn’t a replacement for clinical guidance—but it may be a useful bridge during the “in-between” moments of care.
Open access paper 👉
academic.oup.com/jamiaopen/ar...
@thelizarmy.bsky.social
Seeking:
Follow recommendations at the intersection of #geriatrics and #informatics/#patientportals.
HMU!
#medsky #opennotes #patientadvocacy #hapc #pallisky
Follow recommendations at the intersection of #geriatrics and #informatics/#patientportals.
HMU!
#medsky #opennotes #patientadvocacy #hapc #pallisky
December 5, 2024 at 7:29 PM
Seeking:
Follow recommendations at the intersection of #geriatrics and #informatics/#patientportals.
HMU!
#medsky #opennotes #patientadvocacy #hapc #pallisky
Follow recommendations at the intersection of #geriatrics and #informatics/#patientportals.
HMU!
#medsky #opennotes #patientadvocacy #hapc #pallisky
Abridge and #OpenNotes are teaming up to improve communication between patients and clinicians through #AI! 💪
www.fiercehealthcare.com/ai-and-machi...
www.fiercehealthcare.com/ai-and-machi...
OpenNotes partners with Abridge to study how AI-generated notes can benefit patients
There's currently a big focus on using artificial intelligence to reduce administrative burdens for clinicians, especially with medical note-taking and clinical summaries. | OpenNotes, a health transp...
www.fiercehealthcare.com
November 18, 2024 at 2:26 PM
Abridge and #OpenNotes are teaming up to improve communication between patients and clinicians through #AI! 💪
www.fiercehealthcare.com/ai-and-machi...
www.fiercehealthcare.com/ai-and-machi...
Amidst the censorship of many federal health websites, our recent report on Social Determinants of Health (SDOH) was affected.
We were able to bring this study to the public despite the interruptions.
Read more from @techtargetnews.bsky.social: www.techtarget.com/patientengag...
#medsky #health
We were able to bring this study to the public despite the interruptions.
Read more from @techtargetnews.bsky.social: www.techtarget.com/patientengag...
#medsky #health
How can SDOH screening, data collection improve? | TechTarget
Learn about patient and provider perspectives on how social determinants of health (SDOH) screening and data capture can become more effective.
www.techtarget.com
February 5, 2025 at 10:04 PM
More evidence that patients/families want #opennotes, this time involving #pediatric #cancer @opennotes.org
"Immediate release of test results was preferred...with >80% of participants favoring immediate access, even for sensitive results. Less than 1% believed that genetic or cancer recurrence results should be withheld until reviewed by a provider" ascopubs.org/doi/10.1200/... #MedSky #PatientExperience
Preferences of Pediatric Oncology Patients and Caregivers on the Availability of Patient Results in an Online Patient Portal | JCO Clinical Cancer Informatics
PURPOSEAccess to cancer-related data in online patient portals is not uniform. Perspectives
of pediatric patients with cancer and caregivers on their desires and experiences
accessing cancer-related d...
ascopubs.org
April 27, 2025 at 4:32 AM
More evidence that patients/families want #opennotes, this time involving #pediatric #cancer @opennotes.org
What are @chethan.bsky.social @cait-desroches.bsky.social and @stmacdonald.bsky.social all doing with me in Pittsburgh (besides enjoying fantastic food)?
We’re building “a-bridges” with other health system leaders on @myopennotes.bsky.social. 🥁ba-dum-dum #rimshot #opennotes
We’re building “a-bridges” with other health system leaders on @myopennotes.bsky.social. 🥁ba-dum-dum #rimshot #opennotes
November 20, 2024 at 1:16 PM
What are @chethan.bsky.social @cait-desroches.bsky.social and @stmacdonald.bsky.social all doing with me in Pittsburgh (besides enjoying fantastic food)?
We’re building “a-bridges” with other health system leaders on @myopennotes.bsky.social. 🥁ba-dum-dum #rimshot #opennotes
We’re building “a-bridges” with other health system leaders on @myopennotes.bsky.social. 🥁ba-dum-dum #rimshot #opennotes
P.S. Huge fan of OpenNotes so just being starstruck over here 😅
January 17, 2025 at 9:02 PM
P.S. Huge fan of OpenNotes so just being starstruck over here 😅
ICYMI: Exploring differences in race, ethnicity & language choice associated with patient/family contributions and diagnostic concerns using an pre-visit tool designed to engage #patients & families in diagnosis
www.thieme-connect.com/products/ejo...
#MedSky #DigitalHealth #OpenNotes
www.thieme-connect.com/products/ejo...
#MedSky #DigitalHealth #OpenNotes
March 21, 2025 at 9:56 PM
ICYMI: Exploring differences in race, ethnicity & language choice associated with patient/family contributions and diagnostic concerns using an pre-visit tool designed to engage #patients & families in diagnosis
www.thieme-connect.com/products/ejo...
#MedSky #DigitalHealth #OpenNotes
www.thieme-connect.com/products/ejo...
#MedSky #DigitalHealth #OpenNotes
Taking all responses into serious consideration:
If OpenNotes were a band… what would we sound like?
Go!
If OpenNotes were a band… what would we sound like?
Go!
August 21, 2023 at 3:13 AM
Taking all responses into serious consideration:
If OpenNotes were a band… what would we sound like?
Go!
If OpenNotes were a band… what would we sound like?
Go!
Don’t miss the latest update on OpenNotes’ exciting partnership with Abridge in STAT's HealthTech newsletter: bit.ly/4eGPaZ4 🤖⭐
@cait-desroches.bsky.social highlights that this collaboration marks a new phase for OpenNotes, which has historically focused on transparency in healthcare.
#MedSky
@cait-desroches.bsky.social highlights that this collaboration marks a new phase for OpenNotes, which has historically focused on transparency in healthcare.
#MedSky
November 19, 2024 at 8:36 PM
Don’t miss the latest update on OpenNotes’ exciting partnership with Abridge in STAT's HealthTech newsletter: bit.ly/4eGPaZ4 🤖⭐
@cait-desroches.bsky.social highlights that this collaboration marks a new phase for OpenNotes, which has historically focused on transparency in healthcare.
#MedSky
@cait-desroches.bsky.social highlights that this collaboration marks a new phase for OpenNotes, which has historically focused on transparency in healthcare.
#MedSky
How might human-centered AI reduce costs, ease clinician burden, and improve the care experience for both patients and clinicians?
@chethan.bsky.social of OpenNotes and @brittanytrang.com of @statnews.com moderated panels at @cornelltech.bsky.social's Health Tech Summit.
#PatientsUseAI #Medsky
@chethan.bsky.social of OpenNotes and @brittanytrang.com of @statnews.com moderated panels at @cornelltech.bsky.social's Health Tech Summit.
#PatientsUseAI #Medsky
March 24, 2026 at 1:01 PM
How might human-centered AI reduce costs, ease clinician burden, and improve the care experience for both patients and clinicians?
@chethan.bsky.social of OpenNotes and @brittanytrang.com of @statnews.com moderated panels at @cornelltech.bsky.social's Health Tech Summit.
#PatientsUseAI #Medsky
@chethan.bsky.social of OpenNotes and @brittanytrang.com of @statnews.com moderated panels at @cornelltech.bsky.social's Health Tech Summit.
#PatientsUseAI #Medsky
In 1998, patient portals entered the picture.
In 2010, OpenNotes launched its first exploratory study funded by the Robert Wood Johnson Foundation.
Read more of the history on our website: www.opennotes.org/history/
#medsky #cansky #patients
In 2010, OpenNotes launched its first exploratory study funded by the Robert Wood Johnson Foundation.
Read more of the history on our website: www.opennotes.org/history/
#medsky #cansky #patients
July 22, 2025 at 1:09 PM
In 1998, patient portals entered the picture.
In 2010, OpenNotes launched its first exploratory study funded by the Robert Wood Johnson Foundation.
Read more of the history on our website: www.opennotes.org/history/
#medsky #cansky #patients
In 2010, OpenNotes launched its first exploratory study funded by the Robert Wood Johnson Foundation.
Read more of the history on our website: www.opennotes.org/history/
#medsky #cansky #patients
Hello, I’m Liz—a patient advocate living w/brain cancer & investigator for OpenNotes. I like cats, cold brewed coffee, and patient co-design in research. If you ever get the chance to ride in a monster truck—do it! 10/10
Rumor has it I wrote about my awake brain surgery in NEJM.
Rumor has it I wrote about my awake brain surgery in NEJM.
About Liz Salmi — The Liz Army: Bringing punk rock to health care
Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at
Beth Israel Deaconess Medical Center in Boston, MA. In this role, Liz aims
to better understand the changing nature of pat...
www.thelizarmy.com
July 1, 2023 at 6:57 PM
Hello, I’m Liz—a patient advocate living w/brain cancer & investigator for OpenNotes. I like cats, cold brewed coffee, and patient co-design in research. If you ever get the chance to ride in a monster truck—do it! 10/10
Rumor has it I wrote about my awake brain surgery in NEJM.
Rumor has it I wrote about my awake brain surgery in NEJM.
At OpenNotes, we believe that health data belongs to the patient.
Read why: www.healthcentral.com/chronic-heal...
Has understanding your health trends helped you get better treatment?
#medsky #cansky #btsm
@healthcentral.bsky.social @cait-desroches.bsky.social desroches.bsky.social
Read why: www.healthcentral.com/chronic-heal...
Has understanding your health trends helped you get better treatment?
#medsky #cansky #btsm
@healthcentral.bsky.social @cait-desroches.bsky.social desroches.bsky.social
www.healthcentral.com
March 25, 2025 at 8:22 PM
At OpenNotes, we believe that health data belongs to the patient.
Read why: www.healthcentral.com/chronic-heal...
Has understanding your health trends helped you get better treatment?
#medsky #cansky #btsm
@healthcentral.bsky.social @cait-desroches.bsky.social desroches.bsky.social
Read why: www.healthcentral.com/chronic-heal...
Has understanding your health trends helped you get better treatment?
#medsky #cansky #btsm
@healthcentral.bsky.social @cait-desroches.bsky.social desroches.bsky.social
Thank you @thelizarmy.bsky.social and the #opennotes team for highlighting this issue--and @bmj.com for publishing it. Eliminating opportunity for patients to provide input is contrary to supposed transparency goals.
“The ability to participate in regulatory decision making is not a privilege: it’s a legal requirement and a fundamental right in a democratic society.”
Essential commentary from @thelizarmy.bsky.social
www.bmj.com/content/389/...
Essential commentary from @thelizarmy.bsky.social
www.bmj.com/content/389/...
Robert F Kennedy Jr’s proposal to remove public commentary from US health policy is a threat to science and public health
With confidence and trust in science and public health already under pressure, we must double down on transparency and public participation in policy decisions, write Liz Salmi and colleagues
Since ...
www.bmj.com
April 6, 2025 at 12:55 PM
Thank you @thelizarmy.bsky.social and the #opennotes team for highlighting this issue--and @bmj.com for publishing it. Eliminating opportunity for patients to provide input is contrary to supposed transparency goals.
OpenNotes is recruiting for a new project on an AI Personal Health Assistant. Help co-design a study of a patient-facing scribe/chat tool.
👉 Apply to the OpenNotes Insight Panel: buff.ly/TIDvY65
#PatientAdvocacy #HealthEquity #AIinHealthcare #OpenNotes #MedSky
👉 Apply to the OpenNotes Insight Panel: buff.ly/TIDvY65
#PatientAdvocacy #HealthEquity #AIinHealthcare #OpenNotes #MedSky
December 9, 2025 at 1:01 PM
OpenNotes is recruiting for a new project on an AI Personal Health Assistant. Help co-design a study of a patient-facing scribe/chat tool.
👉 Apply to the OpenNotes Insight Panel: buff.ly/TIDvY65
#PatientAdvocacy #HealthEquity #AIinHealthcare #OpenNotes #MedSky
👉 Apply to the OpenNotes Insight Panel: buff.ly/TIDvY65
#PatientAdvocacy #HealthEquity #AIinHealthcare #OpenNotes #MedSky
Any @opennotes.org fans out there? 👋
We’re working on so much new stuff that it has necessitated a major website redesign. 😅 Its a big/fun challenge for a #healthcomms #scicomms person like me.
What do you want to see MORE OF at opennotes.org?
#opennotes
We’re working on so much new stuff that it has necessitated a major website redesign. 😅 Its a big/fun challenge for a #healthcomms #scicomms person like me.
What do you want to see MORE OF at opennotes.org?
#opennotes
January 18, 2025 at 2:02 AM
Any @opennotes.org fans out there? 👋
We’re working on so much new stuff that it has necessitated a major website redesign. 😅 Its a big/fun challenge for a #healthcomms #scicomms person like me.
What do you want to see MORE OF at opennotes.org?
#opennotes
We’re working on so much new stuff that it has necessitated a major website redesign. 😅 Its a big/fun challenge for a #healthcomms #scicomms person like me.
What do you want to see MORE OF at opennotes.org?
#opennotes