Reading about the toilet on Artemis II... I think we ostomates have a great advantage—even if the toilet's down, it's a lot easier to catch number 1 than number 2 🤭
April 2, 2026 at 10:15 PM
Reading about the toilet on Artemis II... I think we ostomates have a great advantage—even if the toilet's down, it's a lot easier to catch number 1 than number 2 🤭
Saluting and sending love to the ostomy warriors and the great ostomates all over the world. Every journey with a stoma isn’t the same, but everybody with an ostomy story deserves respect, and not to feel any shame.
#WorldOstomyDay #Stoma #Ostomy
#WorldOstomyDay #Stoma #Ostomy
October 4, 2025 at 3:22 PM
Saluting and sending love to the ostomy warriors and the great ostomates all over the world. Every journey with a stoma isn’t the same, but everybody with an ostomy story deserves respect, and not to feel any shame.
#WorldOstomyDay #Stoma #Ostomy
#WorldOstomyDay #Stoma #Ostomy
Thank you SO much to all who donated to the UOAA this weekend, we almost hit $2,000 between the livestream and the 5K! Those dollars will help the lives of so many ostomates, and provide resources for nurses. Also loved seeing so many others in the ostomy community celebrate #WorldOstomyDay!
October 6, 2025 at 8:05 PM
Thank you SO much to all who donated to the UOAA this weekend, we almost hit $2,000 between the livestream and the 5K! Those dollars will help the lives of so many ostomates, and provide resources for nurses. Also loved seeing so many others in the ostomy community celebrate #WorldOstomyDay!
Some ostomates say carnivore diets may reduce blockage risk and pouch volume, but evidence is limited. For ileostomates, dehydration/electrolyte loss and high-output risk are concerns; tough meat can cause blockage if poorly chewed. Consult your doctor.
#ostomy #ileostomy #stoma
#ostomy #ileostomy #stoma
September 25, 2026 at 11:49 PM
Some ostomates say carnivore diets may reduce blockage risk and pouch volume, but evidence is limited. For ileostomates, dehydration/electrolyte loss and high-output risk are concerns; tough meat can cause blockage if poorly chewed. Consult your doctor.
#ostomy #ileostomy #stoma
#ostomy #ileostomy #stoma
Love that fellow ostomates are following me ☺️
December 8, 2024 at 12:31 PM
Love that fellow ostomates are following me ☺️
Hi to all the fresh & familiar faces here.
I’m doing my part & attempting starter packs for #IBDFamily & #Ostomates. These are who’ve spoken 𝐏𝐔𝐁𝐋𝐈𝐂𝐋𝐘 about these.
IBD Family: go.bsky.app/9sySUqv
Ostomy Family: go.bsky.app/LYbv12w
If there’s other packs already created, I’m happy to merge.
I’m doing my part & attempting starter packs for #IBDFamily & #Ostomates. These are who’ve spoken 𝐏𝐔𝐁𝐋𝐈𝐂𝐋𝐘 about these.
IBD Family: go.bsky.app/9sySUqv
Ostomy Family: go.bsky.app/LYbv12w
If there’s other packs already created, I’m happy to merge.
November 15, 2024 at 6:35 PM
Hi to all the fresh & familiar faces here.
I’m doing my part & attempting starter packs for #IBDFamily & #Ostomates. These are who’ve spoken 𝐏𝐔𝐁𝐋𝐈𝐂𝐋𝐘 about these.
IBD Family: go.bsky.app/9sySUqv
Ostomy Family: go.bsky.app/LYbv12w
If there’s other packs already created, I’m happy to merge.
I’m doing my part & attempting starter packs for #IBDFamily & #Ostomates. These are who’ve spoken 𝐏𝐔𝐁𝐋𝐈𝐂𝐋𝐘 about these.
IBD Family: go.bsky.app/9sySUqv
Ostomy Family: go.bsky.app/LYbv12w
If there’s other packs already created, I’m happy to merge.
seeking community maybe. when i was stuck with an ostomy for years it was nice to be able to commiserate with the other ostomates, for example
December 3, 2024 at 4:41 PM
seeking community maybe. when i was stuck with an ostomy for years it was nice to be able to commiserate with the other ostomates, for example
shot down in the focus group because the term would have been exclusionary to the ostomates
December 8, 2024 at 9:38 PM
shot down in the focus group because the term would have been exclusionary to the ostomates
Fight Colorectal Cancer - We’re Not Done Fighting for Ostomates
@fightcrc.bsky.social
oncodaily.com/voices/fight...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #CRC #ColorectalCancer
@fightcrc.bsky.social
oncodaily.com/voices/fight...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #CRC #ColorectalCancer
We’re Not Done Fighting for Ostomates - Fight Colorectal Cancer - OncoDaily
We’re Not Done Fighting for Ostomates - Fight Colorectal Cancer / cancer, colorectal cancer, Fight Colorectal Cancer, OncoDaily, Oncology, ostomates, The
oncodaily.com
December 6, 2025 at 5:26 PM
Fight Colorectal Cancer - We’re Not Done Fighting for Ostomates
@fightcrc.bsky.social
oncodaily.com/voices/fight...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #CRC #ColorectalCancer
@fightcrc.bsky.social
oncodaily.com/voices/fight...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #CRC #ColorectalCancer
Today I celebrate my first stomaversary, the day when I was given ‘Myrtle’ after suffering a perforated colon. I’m forever grateful to the surgical team that saved my life and gave me my constant and sometimes not so quiet companion! #Colostomy #Ostomates #Stoma #MedwayMaritimeHospital
June 7, 2025 at 11:17 AM
Today I celebrate my first stomaversary, the day when I was given ‘Myrtle’ after suffering a perforated colon. I’m forever grateful to the surgical team that saved my life and gave me my constant and sometimes not so quiet companion! #Colostomy #Ostomates #Stoma #MedwayMaritimeHospital
I feel it’s important to raise awareness about that because there are a lot of ostomates who post videos of them changing their bags - which is of course amazing, but it takes them two seconds and sometimes that’s not everyone’s reality.
November 18, 2024 at 12:02 PM
I feel it’s important to raise awareness about that because there are a lot of ostomates who post videos of them changing their bags - which is of course amazing, but it takes them two seconds and sometimes that’s not everyone’s reality.
Absolutely crazy to me that I had ostomy surgery almost a year ago and there are still foods I’m trying for the first time. #blessed #ostomates #ostomyawareness
November 21, 2024 at 5:36 AM
Absolutely crazy to me that I had ostomy surgery almost a year ago and there are still foods I’m trying for the first time. #blessed #ostomates #ostomyawareness
“Fun” Medical History Fact:
The first stoma surgery was in 1710… but the first colostomy/ileostomy appliances didn’t exist till the 1950s.
The mere thought of living with my stoma but having no safe appliances for it is terrifying.
It breaks my heart for ostomates in Gaza, trying to survive.
The first stoma surgery was in 1710… but the first colostomy/ileostomy appliances didn’t exist till the 1950s.
The mere thought of living with my stoma but having no safe appliances for it is terrifying.
It breaks my heart for ostomates in Gaza, trying to survive.
November 2, 2023 at 5:07 PM
“Fun” Medical History Fact:
The first stoma surgery was in 1710… but the first colostomy/ileostomy appliances didn’t exist till the 1950s.
The mere thought of living with my stoma but having no safe appliances for it is terrifying.
It breaks my heart for ostomates in Gaza, trying to survive.
The first stoma surgery was in 1710… but the first colostomy/ileostomy appliances didn’t exist till the 1950s.
The mere thought of living with my stoma but having no safe appliances for it is terrifying.
It breaks my heart for ostomates in Gaza, trying to survive.
In this blog, Craig Owen & Emma Butel discuss how young "ostomates" use TikTok to share vital health education about stomas and IBD while combating stigma.
Ostomates show how TikTok can be used to educate, reform and support online health communities
In this blog, Craig Owen & Emma Butel share findings from their recent research analysing TikTok videos related to #ostomy and #IBD. They discuss how young "ostomates" use the platform to share vital health education about stomas and IBD while combating stigma.
ischp.net
May 13, 2025 at 11:27 PM
In this blog, Craig Owen & Emma Butel discuss how young "ostomates" use TikTok to share vital health education about stomas and IBD while combating stigma.
Boo: I have to change my ostomy bag and my hip hurts so badly, I really don’t wanna deal with it…
Yay: I can eat all the marshmallows out of our box of Lucky Charms guiltlessly, since marshmallows can help slow output (protip for my fellow ostomates!)
Yay: I can eat all the marshmallows out of our box of Lucky Charms guiltlessly, since marshmallows can help slow output (protip for my fellow ostomates!)
May 31, 2026 at 10:35 PM
Boo: I have to change my ostomy bag and my hip hurts so badly, I really don’t wanna deal with it…
Yay: I can eat all the marshmallows out of our box of Lucky Charms guiltlessly, since marshmallows can help slow output (protip for my fellow ostomates!)
Yay: I can eat all the marshmallows out of our box of Lucky Charms guiltlessly, since marshmallows can help slow output (protip for my fellow ostomates!)
Today is #WorldOstomyDay #StomaAwarenessDay Have a great day Ostomates and carry out being the great ambassadors that you are. Thinking of you all, keep up the great work! 💜💜
October 4, 2025 at 9:09 AM
Today is #WorldOstomyDay #StomaAwarenessDay Have a great day Ostomates and carry out being the great ambassadors that you are. Thinking of you all, keep up the great work! 💜💜
The 2nd of October is World Ostomy Day. I thought I'd share this piece I wrote on my Facebook page. #WorldOstomyDay #Stoma #Colostomy #Ileostomy #Urostomy #Ostomates
October 2, 2024 at 1:08 PM
The 2nd of October is World Ostomy Day. I thought I'd share this piece I wrote on my Facebook page. #WorldOstomyDay #Stoma #Colostomy #Ileostomy #Urostomy #Ostomates
And it was a nurse who created the bags! She saw the suffering of patients and was also like “wtf”.
I’m immensely glad to be born when I was just for this. It’s really upsetting to think about all the ostomates before me. They deserved such better QoL.
I’m immensely glad to be born when I was just for this. It’s really upsetting to think about all the ostomates before me. They deserved such better QoL.
May 27, 2024 at 3:01 PM
And it was a nurse who created the bags! She saw the suffering of patients and was also like “wtf”.
I’m immensely glad to be born when I was just for this. It’s really upsetting to think about all the ostomates before me. They deserved such better QoL.
I’m immensely glad to be born when I was just for this. It’s really upsetting to think about all the ostomates before me. They deserved such better QoL.
For my fellow ostomates, a trick for changing your bag out:
Eat a few marshmallows about 10-15 minutes before you plan to change. For whatever reason it helps temporarily stop/slow output, at least long enough for a quick chance!
The only truly useful thing my ostomy nurses taught me at the start.
Eat a few marshmallows about 10-15 minutes before you plan to change. For whatever reason it helps temporarily stop/slow output, at least long enough for a quick chance!
The only truly useful thing my ostomy nurses taught me at the start.
If I don’t do it first thing, I stress about it all day & don’t eat:
Fun Fact, with an ileostomy you have absolutely 0 control over when it outputs, so I have to time bag changes with when my Crohn’s bod is less likely to literally shit on all my plans.
Mornings are best for changes because of it.
Fun Fact, with an ileostomy you have absolutely 0 control over when it outputs, so I have to time bag changes with when my Crohn’s bod is less likely to literally shit on all my plans.
Mornings are best for changes because of it.
November 26, 2024 at 3:06 PM
For my fellow ostomates, a trick for changing your bag out:
Eat a few marshmallows about 10-15 minutes before you plan to change. For whatever reason it helps temporarily stop/slow output, at least long enough for a quick chance!
The only truly useful thing my ostomy nurses taught me at the start.
Eat a few marshmallows about 10-15 minutes before you plan to change. For whatever reason it helps temporarily stop/slow output, at least long enough for a quick chance!
The only truly useful thing my ostomy nurses taught me at the start.
Our mission is to help underserved ostomates access the essential supplies they need. We’ve collected over 350,000 donated ostomy supplies, keeping usable medical products out of landfills and putting them in the hands of people who otherwise couldn't afford them.
www.kindredbox.org/mission
www.kindredbox.org/mission
Mission | Kindred Box
We help people who need ostomy supplies.
www.kindredbox.org
September 27, 2026 at 12:52 AM
Our mission is to help underserved ostomates access the essential supplies they need. We’ve collected over 350,000 donated ostomy supplies, keeping usable medical products out of landfills and putting them in the hands of people who otherwise couldn't afford them.
www.kindredbox.org/mission
www.kindredbox.org/mission
Uhhh why did my medical supplies show up pre filled? Any other #ostomates get a bad batch too? #resist
February 16, 2025 at 2:52 PM
Uhhh why did my medical supplies show up pre filled? Any other #ostomates get a bad batch too? #resist
Insights from MeetAnOstoMate Ostomy surgery usually doesn’t impact life expectancy. Factors like health, lifestyle, and care play a bigger role. Many ostomates enjoy long, fulfilling lives—some living well into their 90s.
#stoma
#stoma
May 12, 2025 at 1:04 PM
Insights from MeetAnOstoMate Ostomy surgery usually doesn’t impact life expectancy. Factors like health, lifestyle, and care play a bigger role. Many ostomates enjoy long, fulfilling lives—some living well into their 90s.
#stoma
#stoma
Ostomy products should be free, no questions asked. If not for ostomates themselves, then CERTAINLY for everyone else around them. 👀
January 30, 2025 at 10:27 PM
Ostomy products should be free, no questions asked. If not for ostomates themselves, then CERTAINLY for everyone else around them. 👀
