January 21, 2025 at 2:43 PM
When people ask how I do my job because it’s “so sad” I always tell them about how much joy and laughter there is too. Joy is how we survive horrible things. Joy is part of healing. Joy is part of grief and pain. We will need lots of joy and laughter over the next few years. #pedpc #hapc
Earnest post, but: a thing I like here is it’s okay to have moments of happiness in public without being broadly scolded, and I believe that sustaining this kind of humanity will be very important as we resist fascism.
We have to sustain each other. Making joy isn’t denial, it’s how we will survive
We have to sustain each other. Making joy isn’t denial, it’s how we will survive
November 12, 2024 at 2:07 AM
February 6, 2025 at 3:29 PM
An insurance company is apparently trying to provide palliative care to my patients without any care coordination and well outside of the scope of the practioners. Has anyone heard about this? Is there a healthcare journalist interested in looking into this more with me? #pedpc #hapc
September 22, 2026 at 10:03 PM
A drug was just approved to treat diffuse midline glioma (which includes DIPG) - a universally fatal pediatric brain cancer. It’s not a cure, but studies show it can extend life in some patients for many months. There has never been an approved treatment before. #cansky #pedpc #hapc 🧵 1/
August 7, 2025 at 9:00 PM
A massive congratulations to ALL @aahpm.bsky.social 2024 Emerging Leaders in #hpm here at #hapc25.
@ericgoodlev.bsky.social
@rexpaulino.bsky.social
@benwthompson.bsky.social
@drjrubenstein.bsky.social
@ericgoodlev.bsky.social
@rexpaulino.bsky.social
@benwthompson.bsky.social
@drjrubenstein.bsky.social
February 7, 2025 at 4:37 PM
October 13, 2025 at 3:47 PM
Grateful to @aahpm.bsky.social for the chance to share our collaborative work in standardized patient satisfaction evaluation in #pedpc! Ashley Autrey led this project and Emma Jones was key! #hapc2025
February 8, 2025 at 6:47 PM
Grateful to @aahpm.bsky.social for the chance to share our collaborative work in standardized patient satisfaction evaluation in #pedpc! Ashley Autrey led this project and Emma Jones was key! #hapc2025
Still brimming with gratitude for a wonderful #hapc25. Thank you @aahpm.bsky.social for creating this space of amazing human beings where I feel such love and belonging. #hapc #pedpc #hospice #palliativecare
February 11, 2025 at 11:16 AM
Still brimming with gratitude for a wonderful #hapc25. Thank you @aahpm.bsky.social for creating this space of amazing human beings where I feel such love and belonging. #hapc #pedpc #hospice #palliativecare
Pediatric Palliative Care = Rainbow Unicorns.
We honestly aren't even in costume. Just expressing our inner true selves.
@mskcancercenter.bsky.social
#halloween #pedpc #hapc
We honestly aren't even in costume. Just expressing our inner true selves.
@mskcancercenter.bsky.social
#halloween #pedpc #hapc
October 31, 2025 at 3:55 PM
Pediatric Palliative Care = Rainbow Unicorns.
We honestly aren't even in costume. Just expressing our inner true selves.
@mskcancercenter.bsky.social
#halloween #pedpc #hapc
We honestly aren't even in costume. Just expressing our inner true selves.
@mskcancercenter.bsky.social
#halloween #pedpc #hapc
We know the impact caring for a child with a serious illness can have on relationships.
So we want to know...
How do you tend to your relationships? What works? What doesn't work? What do you worry about? How do you keep it going?
Tell us in ONE word.
#pedpc #rare #caregiver
So we want to know...
How do you tend to your relationships? What works? What doesn't work? What do you worry about? How do you keep it going?
Tell us in ONE word.
#pedpc #rare #caregiver
February 14, 2025 at 1:48 AM
Cool #PedPC #hapc article on goals of care documentation. I often wonder how the 21st Century Act might affect this moving forward…
jamanetwork.com/journals/jam...
Appreciate this important work in @jama.com addressing AYA ages 12-39 and their EOL goals. We need more research here - this population (while broad!) has unique considerations at EOL. #hapc #MedPeds #medsky
Appreciate this important work in @jama.com addressing AYA ages 12-39 and their EOL goals. We need more research here - this population (while broad!) has unique considerations at EOL. #hapc #MedPeds #medsky
Goals of Care at End of Life for Adolescents and Younger Adults With Cancer
This cross-sectional study assesses the frequency, timing, and evolution of discussions and documented goals of care in the last 90 days of life among adolescents and young adults with cancer.
jamanetwork.com
December 22, 2024 at 4:27 PM
SO excited to see this out in print! A great group effort and looking forward to the conversations that it might provoke. #Grief #GriefLiteracy #PedPC #SWHPN
December 18, 2024 at 1:57 AM
SO excited to see this out in print! A great group effort and looking forward to the conversations that it might provoke. #Grief #GriefLiteracy #PedPC #SWHPN
*tap tap* is this thing on?
Just here to establish my bona fides as the #1 fan on Bluesky of the @pedipal.bsky.social podcast and account. #pedpc @drjrubenstein.bsky.social
Just here to establish my bona fides as the #1 fan on Bluesky of the @pedipal.bsky.social podcast and account. #pedpc @drjrubenstein.bsky.social
December 5, 2024 at 3:45 PM
*tap tap* is this thing on?
Just here to establish my bona fides as the #1 fan on Bluesky of the @pedipal.bsky.social podcast and account. #pedpc @drjrubenstein.bsky.social
Just here to establish my bona fides as the #1 fan on Bluesky of the @pedipal.bsky.social podcast and account. #pedpc @drjrubenstein.bsky.social
Spending the day teaching #Pediactric residents how to support and communicate with families of children who are dying or bereaved.
Grateful for our donors, residency program leadership, and @pittpediatrics.bsky.social for gifting us this day! #PedPC #hapc
Grateful for our donors, residency program leadership, and @pittpediatrics.bsky.social for gifting us this day! #PedPC #hapc
December 9, 2024 at 3:35 PM
Spending the day teaching #Pediactric residents how to support and communicate with families of children who are dying or bereaved.
Grateful for our donors, residency program leadership, and @pittpediatrics.bsky.social for gifting us this day! #PedPC #hapc
Grateful for our donors, residency program leadership, and @pittpediatrics.bsky.social for gifting us this day! #PedPC #hapc
We are so lucky that @emilytammam.bsky.social is one of our parent PPI members. I was never fortunate enough to meet Neve but am very grateful to Emily for her generous sharing of her writing and painting. Please read. #pedpc
Two years
Reflections on a toddler Neve and a list of writing, speaking, events and more, in Neve's honour, to mark two years since her death
emilytammam.substack.com/p/two-years-...
emilytammam.substack.com/p/a-list-to-...
Reflections on a toddler Neve and a list of writing, speaking, events and more, in Neve's honour, to mark two years since her death
emilytammam.substack.com/p/two-years-...
emilytammam.substack.com/p/a-list-to-...
April 30, 2025 at 6:29 PM
We are so lucky that @emilytammam.bsky.social is one of our parent PPI members. I was never fortunate enough to meet Neve but am very grateful to Emily for her generous sharing of her writing and painting. Please read. #pedpc
Hi Bluesky! Happy to make my first post here about our #PedPC team recognizing National Children’s Grief Awareness Day. Our sibling bereavement program helps over 500 kids cope with the death of a sibling through support groups, events, and a summer camp. I’m so proud of them! 🦋
November 21, 2024 at 3:51 AM
Hi Bluesky! Happy to make my first post here about our #PedPC team recognizing National Children’s Grief Awareness Day. Our sibling bereavement program helps over 500 kids cope with the death of a sibling through support groups, events, and a summer camp. I’m so proud of them! 🦋
Hey Bluesky! I’m Jared, pediatric palliative care doctor and medical educator.
I help people talk about hard things.
I use animation and satire to help bring attention to challenging topics on my Youtube channel.
#Medsky #hapc #pedpc
https://youtube.com/@DrJRubenstein?feature=shareb
I help people talk about hard things.
I use animation and satire to help bring attention to challenging topics on my Youtube channel.
#Medsky #hapc #pedpc
https://youtube.com/@DrJRubenstein?feature=shareb
June 28, 2023 at 11:35 PM
Hey Bluesky! I’m Jared, pediatric palliative care doctor and medical educator.
I help people talk about hard things.
I use animation and satire to help bring attention to challenging topics on my Youtube channel.
#Medsky #hapc #pedpc
https://youtube.com/@DrJRubenstein?feature=shareb
I help people talk about hard things.
I use animation and satire to help bring attention to challenging topics on my Youtube channel.
#Medsky #hapc #pedpc
https://youtube.com/@DrJRubenstein?feature=shareb
I’ll just use this thread to say how I love to see this dialogue again on a social media platform. The #hpc #pedpc community over on the former bird that existed years ago was wonderful. #MedBlueSky
I have observed a trend towards blindly offering trach and PEG to any family whose loved one has been intubated for about 2 weeks.
How do you handle conversations about what to do next when caring for patients you don’t anticipate to ever return to a meaningful quality of life?
#emimcc
How do you handle conversations about what to do next when caring for patients you don’t anticipate to ever return to a meaningful quality of life?
#emimcc
January 26, 2025 at 2:13 AM
I’ll just use this thread to say how I love to see this dialogue again on a social media platform. The #hpc #pedpc community over on the former bird that existed years ago was wonderful. #MedBlueSky
A scoping review of guidelines and frameworks for advance care planning for adolescents and young adults with life-limiting or life-threatening conditions. #hpm #hapc #palliativecare #pedpc buff.ly/4ccGKrN
May 27, 2024 at 3:52 PM
A scoping review of guidelines and frameworks for advance care planning for adolescents and young adults with life-limiting or life-threatening conditions. #hpm #hapc #palliativecare #pedpc buff.ly/4ccGKrN
It is shocking (& telling) that this essay about dying by a doctor doesn’t once mention how palliative care teams can help facilitate these conversations. She references “hospice doctors” several times, only about their knowledge.
This is what we do! #hapc #pedpc
apple.news/Aq3f4CaCQS_a...
This is what we do! #hapc #pedpc
apple.news/Aq3f4CaCQS_a...
My Dad Is Dying. There’s 1 Thing His Doctor Desperately Needs To Tell Him... But He Won’t. — HuffPost
"Though every one of us will die, we are remarkably unwilling to talk about it."
apple.news
June 21, 2026 at 11:02 PM
It is shocking (& telling) that this essay about dying by a doctor doesn’t once mention how palliative care teams can help facilitate these conversations. She references “hospice doctors” several times, only about their knowledge.
This is what we do! #hapc #pedpc
apple.news/Aq3f4CaCQS_a...
This is what we do! #hapc #pedpc
apple.news/Aq3f4CaCQS_a...
"Episode 40: Nonfiction" is here!
Dan and Sarah welcome back Dr. Bob Macauley and Dr. Chris Adrian to discuss writing about #pedpc (Bob's new book in particular: bookshop.org/p/books/beca...), and how narrative, personal trauma, and clinical practice intersect.
CW: discussion of child sexual abuse
Dan and Sarah welcome back Dr. Bob Macauley and Dr. Chris Adrian to discuss writing about #pedpc (Bob's new book in particular: bookshop.org/p/books/beca...), and how narrative, personal trauma, and clinical practice intersect.
CW: discussion of child sexual abuse
June 2, 2025 at 1:53 PM
"Episode 40: Nonfiction" is here!
Dan and Sarah welcome back Dr. Bob Macauley and Dr. Chris Adrian to discuss writing about #pedpc (Bob's new book in particular: bookshop.org/p/books/beca...), and how narrative, personal trauma, and clinical practice intersect.
CW: discussion of child sexual abuse
Dan and Sarah welcome back Dr. Bob Macauley and Dr. Chris Adrian to discuss writing about #pedpc (Bob's new book in particular: bookshop.org/p/books/beca...), and how narrative, personal trauma, and clinical practice intersect.
CW: discussion of child sexual abuse
Hey @ctsinclair.bsky.social @kpedmonds.bsky.social @drosielle.bsky.social
See if you can follow the Hospice&PalliativeCare feed and let me know if it works for you. Thanks!! #hapc #hpm #hospice #palliative #pedpc
See if you can follow the Hospice&PalliativeCare feed and let me know if it works for you. Thanks!! #hapc #hpm #hospice #palliative #pedpc
July 7, 2023 at 7:53 AM
Hey @ctsinclair.bsky.social @kpedmonds.bsky.social @drosielle.bsky.social
See if you can follow the Hospice&PalliativeCare feed and let me know if it works for you. Thanks!! #hapc #hpm #hospice #palliative #pedpc
See if you can follow the Hospice&PalliativeCare feed and let me know if it works for you. Thanks!! #hapc #hpm #hospice #palliative #pedpc
