Watch the full Long Covid in Children webinar, featuring leading pediatric Long Covid physicians and researchers Dr. Rachel Gross and Dr. Alexandra B. Yonts:
covidsociety.ca/priorities/l...
#LongCovid #pediatriclongcovid #LongCovidAwareness
covidsociety.ca/priorities/l...
#LongCovid #pediatriclongcovid #LongCovidAwareness
March 31, 2026 at 10:05 PM
Watch the full Long Covid in Children webinar, featuring leading pediatric Long Covid physicians and researchers Dr. Rachel Gross and Dr. Alexandra B. Yonts:
covidsociety.ca/priorities/l...
#LongCovid #pediatriclongcovid #LongCovidAwareness
covidsociety.ca/priorities/l...
#LongCovid #pediatriclongcovid #LongCovidAwareness
Most families have no idea their child can develop Long COVID. They aren’t hearing it from pediatricians, schools, or public health agencies. Parents can’t advocate for their children if they don’t know there’s something to advocate for. #PediatricLongCOVID
February 15, 2026 at 6:55 PM
Most families have no idea their child can develop Long COVID. They aren’t hearing it from pediatricians, schools, or public health agencies. Parents can’t advocate for their children if they don’t know there’s something to advocate for. #PediatricLongCOVID
Thank you, @bhanlon15.bsky.social, for helping raise visibility. Children deserve to be seen and supported.
#PediatricLongCOVID #CenterFamiliesReflectRealityDemandAction
#PediatricLongCOVID #CenterFamiliesReflectRealityDemandAction
Newsweek: ''Disabling' Chronic Illness in Children Not Taken Seriously: Experts'
"This is a public health crisis for children. And it demands action," Long Covid Families said in its promotion of the condition's awareness week.
www.newsweek.com/disabling-ch...
"This is a public health crisis for children. And it demands action," Long Covid Families said in its promotion of the condition's awareness week.
www.newsweek.com/disabling-ch...
'Disabling' chronic illness in children not taken seriously: Experts
"This is a public health crisis for children. And it demands action," Long Covid Families said in its promotion of the condition's awareness week.
www.newsweek.com
July 26, 2025 at 11:25 AM
Thank you, @bhanlon15.bsky.social, for helping raise visibility. Children deserve to be seen and supported.
#PediatricLongCOVID #CenterFamiliesReflectRealityDemandAction
#PediatricLongCOVID #CenterFamiliesReflectRealityDemandAction
Long Covid Families is on the ground at the RECOVER-TLC Workshop. Over the next two days, we’ll share key updates about the national effort to find treatments for Long COVID—and why it matters for children. Stay tuned.
#PediatricLongCOVID
#PediatricLongCOVID
September 9, 2025 at 1:19 PM
Long Covid Families is on the ground at the RECOVER-TLC Workshop. Over the next two days, we’ll share key updates about the national effort to find treatments for Long COVID—and why it matters for children. Stay tuned.
#PediatricLongCOVID
#PediatricLongCOVID
Including pediatric cancer facilities. Some children contract COVID while receiving cancer treatment and go on to develop Long COVID. Protecting them means stronger infection control everywhere care happens and family education on importance of avoiding infection.
#PediatricLongCOVID
#PediatricLongCOVID
The flip side of this story is that cancer care facilities must have continuous-use respirator policies in place, along with high quality ventilation and air cleaning with HEPA units, and educate outpatients about COVID avoidance in the community - and the ones that don't are killing people.
“People with advanced lung or skin cancer who received a COVID-19 mRNA vaccine within 100 days of beginning immunotherapy lived considerably longer than those who did not… .”
www.sciencedaily.com/releases/202...
www.sciencedaily.com/releases/202...
October 21, 2025 at 11:46 AM
Including pediatric cancer facilities. Some children contract COVID while receiving cancer treatment and go on to develop Long COVID. Protecting them means stronger infection control everywhere care happens and family education on importance of avoiding infection.
#PediatricLongCOVID
#PediatricLongCOVID
Parents deserve clear, accurate information about the risks COVID poses to children. Infections can lead to lasting health issues, including Long COVID. Awareness is key—not just for prevention, but to ensure kids get the care they need. #PediatricLongCovid
March 2, 2025 at 11:14 AM
Parents deserve clear, accurate information about the risks COVID poses to children. Infections can lead to lasting health issues, including Long COVID. Awareness is key—not just for prevention, but to ensure kids get the care they need. #PediatricLongCovid
So grateful to see #PediatricLongCOVID on the front page of The Boston Globe. Thank you to 16-year-old Kaylee for her courage in sharing her story, and to reporter Aayushi Datta for telling it well. We were grateful to contribute to the piece.
www.bostonglobe.com/2026/04/23/m...
www.bostonglobe.com/2026/04/23/m...
April 29, 2026 at 2:53 PM
So grateful to see #PediatricLongCOVID on the front page of The Boston Globe. Thank you to 16-year-old Kaylee for her courage in sharing her story, and to reporter Aayushi Datta for telling it well. We were grateful to contribute to the piece.
www.bostonglobe.com/2026/04/23/m...
www.bostonglobe.com/2026/04/23/m...
Pediatric Long COVID cannot be understood by simply adapting adult models.
Children show different symptom patterns and developmental impacts.
Research design and interpretation must reflect pediatric realities.
#PediatricLongCOVID
Children show different symptom patterns and developmental impacts.
Research design and interpretation must reflect pediatric realities.
#PediatricLongCOVID
December 15, 2025 at 5:02 PM
Pediatric Long COVID cannot be understood by simply adapting adult models.
Children show different symptom patterns and developmental impacts.
Research design and interpretation must reflect pediatric realities.
#PediatricLongCOVID
Children show different symptom patterns and developmental impacts.
Research design and interpretation must reflect pediatric realities.
#PediatricLongCOVID
There may be no approved treatments for Long COVID yet—but that doesn’t mean kids should be left to suffer. Symptom management matters. We need more doctors who understand pediatric Long COVID and take it seriously. Kids deserve care, even when answers aren’t easy. #PediatricLongCOVID
April 24, 2025 at 1:27 AM
There may be no approved treatments for Long COVID yet—but that doesn’t mean kids should be left to suffer. Symptom management matters. We need more doctors who understand pediatric Long COVID and take it seriously. Kids deserve care, even when answers aren’t easy. #PediatricLongCOVID
Even after infection, vaccination still matters.
A new study found teens vaccinated before getting COVID were 36% less likely to develop Long COVID.
Study in Vaccine, summary via CIDRAP:
#PediatricLongCOVID
A new study found teens vaccinated before getting COVID were 36% less likely to develop Long COVID.
Study in Vaccine, summary via CIDRAP:
#PediatricLongCOVID
COVID vaccination cuts risk of long-term symptoms in teens by over a third, data suggest
cidrap.umn.edu
November 4, 2025 at 12:19 PM
Even after infection, vaccination still matters.
A new study found teens vaccinated before getting COVID were 36% less likely to develop Long COVID.
Study in Vaccine, summary via CIDRAP:
#PediatricLongCOVID
A new study found teens vaccinated before getting COVID were 36% less likely to develop Long COVID.
Study in Vaccine, summary via CIDRAP:
#PediatricLongCOVID
Families of kids with Long COVID deserve answers, care, and community. You’re not alone. We’re fighting for research, access, and recognition—every single day. Together, we are stronger. #LongCovidFamilies #PediatricLongCovid
March 31, 2025 at 3:44 PM
Families of kids with Long COVID deserve answers, care, and community. You’re not alone. We’re fighting for research, access, and recognition—every single day. Together, we are stronger. #LongCovidFamilies #PediatricLongCovid
Good news! 🎉🎉🎉
NIH has fully reinstated funding for the first round of Pathobiology of Long COVID research awardees. This is a vital step forward. Shout out to everyone who called and spoke up—your voices made a difference.
#LongCOVID #PediatricLongCovid
NIH has fully reinstated funding for the first round of Pathobiology of Long COVID research awardees. This is a vital step forward. Shout out to everyone who called and spoke up—your voices made a difference.
#LongCOVID #PediatricLongCovid
March 28, 2025 at 6:58 PM
Good news! 🎉🎉🎉
NIH has fully reinstated funding for the first round of Pathobiology of Long COVID research awardees. This is a vital step forward. Shout out to everyone who called and spoke up—your voices made a difference.
#LongCOVID #PediatricLongCovid
NIH has fully reinstated funding for the first round of Pathobiology of Long COVID research awardees. This is a vital step forward. Shout out to everyone who called and spoke up—your voices made a difference.
#LongCOVID #PediatricLongCovid
UPDATE: They responded. Long Covid Families secured a seat in LA County’s Long COVID workgroup. The pediatric perspective will now be in the room where decisions get made. This is why we exist. #PediatricLongCOVID
This Los Angeles Times story examines #LongCOVID in LA County but does not mention children. Pediatric cases shape school attendance, clinical care, and family life. Today Long Covid Families is reaching out to LA County Public Health to ask how children are being supported.
"Long COVID leaves thousands of L.A. County residents sick, broke and ignored"
“You’re not just becoming disabled,” says Elle Seibert, 31, who has had severe fatigue and heart symptoms since 2020. She says long COVID also reveals “how easily society and even people in your life abandon you”
“You’re not just becoming disabled,” says Elle Seibert, 31, who has had severe fatigue and heart symptoms since 2020. She says long COVID also reveals “how easily society and even people in your life abandon you”
April 9, 2026 at 11:51 AM
UPDATE: They responded. Long Covid Families secured a seat in LA County’s Long COVID workgroup. The pediatric perspective will now be in the room where decisions get made. This is why we exist. #PediatricLongCOVID
Millions of children are living with Long COVID. Families report debilitating symptoms. Doctors and research confirm it. In this article, we spoke about how Long Covid Families is making sure children’s voices drive change.
#PediatricLongCOVID
#PediatricLongCOVID
Hidden struggles: Unveiling long COVID in children
Families, doctors take their experience with long COVID to Congress to share stories, art and ask for help.
www.deseret.com
August 19, 2025 at 7:23 AM
Millions of children are living with Long COVID. Families report debilitating symptoms. Doctors and research confirm it. In this article, we spoke about how Long Covid Families is making sure children’s voices drive change.
#PediatricLongCOVID
#PediatricLongCOVID
Up to 1 in 5 kids develop Long COVID after infection, disrupting their energy capacity and daily lives. With ongoing reinfections, recovery becomes less likely, impacting not only their health but also the future workforce. We need to act now. 💜 #PediatricLongCovid #LongCovidFamilies
January 19, 2025 at 1:39 PM
Up to 1 in 5 kids develop Long COVID after infection, disrupting their energy capacity and daily lives. With ongoing reinfections, recovery becomes less likely, impacting not only their health but also the future workforce. We need to act now. 💜 #PediatricLongCovid #LongCovidFamilies
We are proud to welcome eleven researchers and clinicians, including leaders of pediatric Long COVID clinics and the RECOVER pediatric observational cohort, to our Scientific Board on Pediatric Long COVID.
Read more: longcovidfamilies.org/pediatric-lo...
#LongCOVID #PediatricLongCOVID
Read more: longcovidfamilies.org/pediatric-lo...
#LongCOVID #PediatricLongCOVID
Pediatric Long COVID Scientific Board | Long Covid Families
Meet the eleven-member Scientific Board guiding Long Covid Families’ work on pediatric Long COVID research, medical care, and educational access.
longcovidfamilies.org
October 1, 2026 at 4:00 PM
We are proud to welcome eleven researchers and clinicians, including leaders of pediatric Long COVID clinics and the RECOVER pediatric observational cohort, to our Scientific Board on Pediatric Long COVID.
Read more: longcovidfamilies.org/pediatric-lo...
#LongCOVID #PediatricLongCOVID
Read more: longcovidfamilies.org/pediatric-lo...
#LongCOVID #PediatricLongCOVID
Millions of children worldwide have developed Long COVID, impacting their health, education, and futures. Yet, pediatric research and support remain scarce. This #InternationalLongCovidAwarenessDay, we demand action. Kids deserve care, research, and a path to healing. 💜 #PediatricLongCOVID
March 15, 2025 at 6:02 PM
Millions of children worldwide have developed Long COVID, impacting their health, education, and futures. Yet, pediatric research and support remain scarce. This #InternationalLongCovidAwarenessDay, we demand action. Kids deserve care, research, and a path to healing. 💜 #PediatricLongCOVID
Worried that your child never recovered from an infection.?
It’s okay to trust your instincts. If your child still isn’t back to their normal self after being sick, it could be Long COVID.
Resources below.
#PediatricLongCOVID
It’s okay to trust your instincts. If your child still isn’t back to their normal self after being sick, it could be Long COVID.
Resources below.
#PediatricLongCOVID
July 9, 2025 at 2:29 PM
Worried that your child never recovered from an infection.?
It’s okay to trust your instincts. If your child still isn’t back to their normal self after being sick, it could be Long COVID.
Resources below.
#PediatricLongCOVID
It’s okay to trust your instincts. If your child still isn’t back to their normal self after being sick, it could be Long COVID.
Resources below.
#PediatricLongCOVID
Gratitude to the families—many from our community—who shared their stories in Rolling Stone. Speaking about your child’s illness means revisiting pain and uncertainty, yet you do it so others understand. That courage changes what’s possible.
#PediatricLongCOVID
#PediatricLongCOVID
Long Covid Is Real -- And It's Changing an Entire Generation
Long Covid is affecting hundreds of thousands of kids in America, and many doctors and schools refuse to recognize their illness.
www.rollingstone.com
October 21, 2025 at 11:37 AM
Gratitude to the families—many from our community—who shared their stories in Rolling Stone. Speaking about your child’s illness means revisiting pain and uncertainty, yet you do it so others understand. That courage changes what’s possible.
#PediatricLongCOVID
#PediatricLongCOVID
A recent New York Times article explores COVID’s long-term health effects but doesn’t mention children.
Kids are also experiencing organ damage, microbiome disruptions, heart complications, and nervous system disorders.
#PediatricLongCOVID is not rare—research and support are urgently needed.
Kids are also experiencing organ damage, microbiome disruptions, heart complications, and nervous system disorders.
#PediatricLongCOVID is not rare—research and support are urgently needed.
archive.ph
March 10, 2025 at 2:45 PM
A recent New York Times article explores COVID’s long-term health effects but doesn’t mention children.
Kids are also experiencing organ damage, microbiome disruptions, heart complications, and nervous system disorders.
#PediatricLongCOVID is not rare—research and support are urgently needed.
Kids are also experiencing organ damage, microbiome disruptions, heart complications, and nervous system disorders.
#PediatricLongCOVID is not rare—research and support are urgently needed.
🚨 New research from Lund University shows how quickly COVID-19 spreads through the air! Just minutes in the same room with an infected person can lead to exposure, especially in poorly ventilated spaces. Stay informed and protect yourself. 💜 #PediatricLongCovid #LongCovidFamilies
Aerosol research shows how easily COVID-19 can be caught through the air
The virus winter season has struck—and COVID-19 is still part of everyday life. However, unlike during the pandemic, we now know more about how it spreads through the air we breathe. Research from Lun...
medicalxpress.com
January 21, 2025 at 1:39 AM
🚨 New research from Lund University shows how quickly COVID-19 spreads through the air! Just minutes in the same room with an infected person can lead to exposure, especially in poorly ventilated spaces. Stay informed and protect yourself. 💜 #PediatricLongCovid #LongCovidFamilies
New JAMA Peds: food insecurity increases pediatric long COVID risk by 2.4x. Discrimination and low social support also major factors.
Study tracked 4,584 kids across 52 US sites. The connection between social adversity and prolonged illness is undeniable.
#PediatricLongCOVID
Study tracked 4,584 kids across 52 US sites. The connection between social adversity and prolonged illness is undeniable.
#PediatricLongCOVID
January 8, 2026 at 4:02 PM
New JAMA Peds: food insecurity increases pediatric long COVID risk by 2.4x. Discrimination and low social support also major factors.
Study tracked 4,584 kids across 52 US sites. The connection between social adversity and prolonged illness is undeniable.
#PediatricLongCOVID
Study tracked 4,584 kids across 52 US sites. The connection between social adversity and prolonged illness is undeniable.
#PediatricLongCOVID
Parents, physicians and researchers can join the Children’s Long Covid Network Facebook group to connect and share information: www.facebook.com/groups/99369...
Disclosure: The founder of the Children’s Long Covid Network is a member of our Long Covid Committee.
#LongCovid #pediatriclongcovid
2/2
Disclosure: The founder of the Children’s Long Covid Network is a member of our Long Covid Committee.
#LongCovid #pediatriclongcovid
2/2
March 30, 2026 at 10:51 PM
Parents, physicians and researchers can join the Children’s Long Covid Network Facebook group to connect and share information: www.facebook.com/groups/99369...
Disclosure: The founder of the Children’s Long Covid Network is a member of our Long Covid Committee.
#LongCovid #pediatriclongcovid
2/2
Disclosure: The founder of the Children’s Long Covid Network is a member of our Long Covid Committee.
#LongCovid #pediatriclongcovid
2/2
RECOVER TLC Workshop Day 1 (Part 2)
Megan Carmilani joined the panel on pediatric clinical trials to highlight what families face in an LDN study:
• Kids’ bodies feel side effects more intensely
• Younger children can’t always explain what feels wrong
#PediatricLongCOVID
Megan Carmilani joined the panel on pediatric clinical trials to highlight what families face in an LDN study:
• Kids’ bodies feel side effects more intensely
• Younger children can’t always explain what feels wrong
#PediatricLongCOVID
September 10, 2025 at 10:47 AM
RECOVER TLC Workshop Day 1 (Part 2)
Megan Carmilani joined the panel on pediatric clinical trials to highlight what families face in an LDN study:
• Kids’ bodies feel side effects more intensely
• Younger children can’t always explain what feels wrong
#PediatricLongCOVID
Megan Carmilani joined the panel on pediatric clinical trials to highlight what families face in an LDN study:
• Kids’ bodies feel side effects more intensely
• Younger children can’t always explain what feels wrong
#PediatricLongCOVID
Six million children live with Long COVID. HHS announced new steps, but kids must be clearly included in every plan.
Here’s why pediatric research and policy cannot wait:
🔗 longcovidfamilies.org/children-mus...
#PediatricLongCOVID #LongCOVID
Here’s why pediatric research and policy cannot wait:
🔗 longcovidfamilies.org/children-mus...
#PediatricLongCOVID #LongCOVID
Children Must Be Part of Every Long COVID Plan
Long Covid Families supports those who have been affected by Post Viral Illness due to Covid-19 infection.
longcovidfamilies.org
September 19, 2025 at 3:06 PM
Six million children live with Long COVID. HHS announced new steps, but kids must be clearly included in every plan.
Here’s why pediatric research and policy cannot wait:
🔗 longcovidfamilies.org/children-mus...
#PediatricLongCOVID #LongCOVID
Here’s why pediatric research and policy cannot wait:
🔗 longcovidfamilies.org/children-mus...
#PediatricLongCOVID #LongCOVID