#rFSGSConference
Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates.

#rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph
March 4, 2025 at 9:50 PM
Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.

#KidneyMonth #rFSGS #rFSGSConference
March 27, 2025 at 7:06 PM
At today's #rFSGSConference, we're connecting patients, families, doctors, researchers, funders, & political leaders to raise awareness of #rFSGS.

The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚
December 9, 2024 at 4:27 PM
And now a tip.. if you are short, don't take pictures in between tall handsome people, hugging them from the back.. unless you want to look like this 😂 weirdly hanging @dukekidney.bsky.social rules
#rFSGSConference #rFSGS #FSGS #Nephsky #Medsky
@gbadegesinlab.bsky.social @opeyemiolabisi.bsky.social
December 11, 2024 at 12:24 PM
We've kicked off the first-ever #rFSGSConference! We look forward to an impactful day by and for #rFSGS patients. #RareDisease #KidneyTransplant
December 9, 2024 at 2:20 PM
Register today for the Recurrent Focal Segmental Glomerulosclerosis Conference on Monday, Dec. 9, in DC! We're gathering patients, doctors, researchers, politicians, & funders to raise awareness of #rFSGS, share information, & facilitate funding. www.scgcorp.com/rFSGS2024/Re... #rFSGSConference
November 22, 2024 at 1:05 AM
The Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference is on Dec. 9 in Washington, DC! The #rFSGSConference program is led by groundbreaking researchers in the field & designed for patients & advocates, to learn from & connect with one another! Register: www.scgcorp.com/rFSGS2024/Re...
November 24, 2024 at 2:29 PM
Flashback to our #rFSGSConference in December! We brought together patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned! #KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph @genetickidneydoc.bsky.social
March 6, 2025 at 10:14 PM
🚨 We are officially two weeks out from the #rFSGSConference! 🚨

Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...
November 26, 2024 at 2:05 AM
📣REGISTRATION DEADLINE EXTENDED📣

There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...

#KidneyTransplant
#RareDisease
#nephsky
#skyneph
December 5, 2024 at 2:40 PM
It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure.

#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
March 13, 2025 at 4:11 PM
Thank you for joining us for the wonderful #rFSGSConference last week in Washington, DC! We look forward to being in touch with you all soon! #rFSGS
December 20, 2024 at 9:09 PM
As #KidneyMonth2025 ends, we want to hear from you all on what continues to inspire you and provide hope for a future where a cure for #rFSGS exists! Let us know your thoughts and experiences in the comments below. ⬇️

#rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
March 31, 2025 at 8:44 PM
Once FSGS reoccurs after a #KidneyTransplant, there are limited treatment options & currently no definitive cure. Follow us to stay updated on the latest news about #rFSGS research & join our Facebook group: www.facebook.com/groups/57871...

#KidneyMonth #rFSGSConference #nephsky #medsky #skyneph
March 23, 2025 at 8:16 PM
Stay connected with attendees from the past #rFSGSConference, meet others who have been impacted by #rFSGS, and share your experiences in our Recurrent FSGS Community Facebook group: www.facebook.com/groups/57871...

#KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph
March 11, 2025 at 12:50 PM
Help us understand why!

If you or someone you know has #rFSGS and you are interested in learning how you can help and provide a biosample, email us at mb5150@cumc.columbia.edu.

#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
March 27, 2025 at 7:06 PM