#rFSGS
Celebrate this winner of the Distinguished Researcher Award, an ASN Midcareer Award: Simone Sanna-Cherchi MD. His research brings together investigators across disciplines and continents to study complex, understudied kidney conditions. Read more in #ASNKidneyNews: kidney.pub/KN1710-45
November 16, 2025 at 12:28 AM
Happy Saturday posting :)
This amazing conference is about to happen, you and your #rFSGS patients, families, and friends are welcome

Register here
www.scgcorp.com/rFSGS2024/Re...

The program is mind-blowing: >140 in-person participants, >40% are patients/family members! #Nephsky #Medsky #FSGS
November 23, 2024 at 7:42 PM
Register today for the Recurrent Focal Segmental Glomerulosclerosis Conference on Monday, Dec. 9, in DC! We're gathering patients, doctors, researchers, politicians, & funders to raise awareness of #rFSGS, share information, & facilitate funding. www.scgcorp.com/rFSGS2024/Re... #rFSGSConference
November 22, 2024 at 1:05 AM
June 17, 2025 at 12:43 PM
Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates.

#rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph
March 4, 2025 at 9:50 PM
The podocyte conference in Hamburg was outstanding at all levels- science, innovation, speakers and venue. Many thanks to the organizers and to Hamburg, Germany for providing the perfect destination for an international meeting focusing on podocytes and on glomerular disease.
June 19, 2025 at 3:03 PM
Our fearless leader @genetickidneydoc.bsky.social with a tour de force on the long term plans for discovery and implementation for rFSGS
@rfsgsinitiative.bsky.social
December 9, 2024 at 9:48 PM
Some of our awesome Miami team (including @alessiafornoni.bsky.social ) at the @rfsgsinitiative.bsky.social conference!!
December 10, 2024 at 9:39 PM
Still needs some tweaking but this is my pubmed cloud! Show me yours!
#Nephsky #Medsky #CAKUT #FSGS #rFSGS #genetics #humangenetics #pediatrics #nephrology

scholargoggler.com
November 23, 2024 at 12:22 PM
Despite tremendous advancement in the genetics and immunology of #nephroticsyndrome, #rFSGS mechanisms are still mostly elusive. Without mechanisms cures will lag behind.
Help us understanding rFSGS and participate in our World-Wide Task-Force to tackle this condition!
#RareDisease #Nephsky #Medsky
Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.

#KidneyMonth #rFSGS #rFSGSConference
March 31, 2025 at 1:38 PM
Now, @opeyemiolabisi.bsky.social presenting about the role of kidney organoids in helping to study rFSGS @rfsgsinitiative.bsky.social @genetickidneydoc.bsky.social @gbadegesinlab.bsky.social
December 9, 2024 at 9:08 PM
Thank you for the welcome invitation @glomcon.org !
It was a pleasure, and looking forward to more interactions!
#FSGS #rFSGS #APOL1 #genetics #humangenetics
@isgd.bsky.social @asnkidney.bsky.social @cuimcglomcenter.bsky.social #Nephsky #Medsky
Fantastic overview of the latest in APOL-1 kidney disease by @genetickidneydoc.bsky.social @glomcon.org today!!

Highlighted work from various labs @gbadegesinlab.bsky.social.
March 9, 2025 at 6:43 PM
May 30, 2025 at 2:58 PM
🚨 We are officially two weeks out from the #rFSGSConference! 🚨

Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...
November 26, 2024 at 2:05 AM
#RareDiseaseDay #RareDiseaseDay2025 #RDD2025. Recurrent FSGS #rFSGS is a ultrarare disease. We recently had a conference and we are building a community. Stay tuned for new updates, events, research opportunities.
@rfsgsinitiative.bsky.social @gbadegesinlab.bsky.social @alessiafornoni.bsky.social
March 1, 2025 at 6:27 PM
Happy National #KidneyMonth
The recurrent FSGS initiative is back at work with sleeves rolled up!
Follow us for news and updates
#rFSGS #FSGS #RareDisease
@gbadegesinlab.bsky.social @cuimcglomcenter.bsky.social @alessiafornoni.bsky.social @isgd.bsky.social @glomcon.org
Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates.

#rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph
March 4, 2025 at 9:56 PM
Worried like me about the future of biomedical research?
Let's fly to Europe and enjoy a few days of science and fun, far from conspiracy theories, childish self-destructive propaganda, and misinformation.
#FSGS #rFSGS #APOL1 #Nephsky #Medsky
Register for the International Podocyte Conference by this Friday, February 14 to get the 10% early bird discount! Yes, the glomerulus is our true love too 💗 eu1.hubs.ly/H0gyLlL0
February 10, 2025 at 2:49 PM
The Washington DC Recurrent FSGS Conference final program is out!
www.scgcorp.com/rFSGS2024/Ag...
Go check out this amazing and diverse agenda with prominent political figures talking, blended in with scientists, clinicians, and, most importantly, patients!
#rFSGS #Nephsky #Medsky
rFSGS Conference
www.scgcorp.com
December 2, 2024 at 11:19 PM
It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure.

#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
March 13, 2025 at 4:11 PM
At the #PodocyteConference you don’t meet only great scientists, but also interesting personalities, like Brian Kennedy, 4-times Grammy award winner and patient advocate. With Matt Sampson & Elena Martinelli
#NephSky #SkyNeph
@kidneyomicsamps.bsky.social
#FSGS #rFSGS #APOL1
@isgd.bsky.social
June 20, 2025 at 3:48 AM
Thank you @opeyemiolabisi.bsky.social and the whole @dukekidney.bsky.social , @gbadegesinlab.bsky.social , Laura Barisoni et al!
It was a great couple of days of scientific excellence mixed with pleasant company and nice weather.
#APOL1 #FSGS #rFSGS #genetics #pediatrics #NephSky #SkyNeph #Medsky
It was a pleasure to have Dr. Sanna-Cherchi @genetickidneydoc.bsky.social give an excellent, well-attended, Renal Grand Rounds at @dukekidney.bsky.social He is an embodiment of collaborative excellence💪🏾 @columbiakidney.bsky.social
August 18, 2025 at 9:38 PM
A few more days to register to the first ever, recurrent FSGS conference!
If you are not blown away by the program, come for the food :)
#rFSGS #FSGS #raredisease #nephsky #medsky #skyneph @gbadegesinlab.bsky.social @kidneyomicsamps.bsky.social @opeyemiolabisi.bsky.social @alessiafornoni.bsky.social
🚨 We are officially two weeks out from the #rFSGSConference! 🚨

Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...
November 26, 2024 at 2:14 AM