Aye yi yo! Mundai’s rilly sunct! Dese ar owr mundai fases. Dey sai , “Get f#%*^$, werld.
October 5, 2026 at 7:48 PM
Aye yi yo! Mundai’s rilly sunct! Dese ar owr mundai fases. Dey sai , “Get f#%*^$, werld.
I won’t escape my tragic fate, the ending of my line… My life is a prison of my design…
#heavymetal #sick #agonizing #suffering #dementia #sunct #neurologicaldisorder #reality #depressive #scream #helpme #cryforhelp #dontforgetme #imdying
#heavymetal #sick #agonizing #suffering #dementia #sunct #neurologicaldisorder #reality #depressive #scream #helpme #cryforhelp #dontforgetme #imdying
April 28, 2026 at 7:59 AM
I won’t escape my tragic fate, the ending of my line… My life is a prison of my design…
#heavymetal #sick #agonizing #suffering #dementia #sunct #neurologicaldisorder #reality #depressive #scream #helpme #cryforhelp #dontforgetme #imdying
#heavymetal #sick #agonizing #suffering #dementia #sunct #neurologicaldisorder #reality #depressive #scream #helpme #cryforhelp #dontforgetme #imdying
#SUNCT is arguably the most severe pain condition that afflicts humans.The severity of the pain has earned it the name “suicide headache”, and a suicidal risk exists in this condition. SUNCT patients face a journey that can be paved with feelings of loneliness and mistrust.
I live with this hell.
I live with this hell.
January 29, 2025 at 4:21 PM
#SUNCT is arguably the most severe pain condition that afflicts humans.The severity of the pain has earned it the name “suicide headache”, and a suicidal risk exists in this condition. SUNCT patients face a journey that can be paved with feelings of loneliness and mistrust.
I live with this hell.
I live with this hell.
I do many typos because I can't see very well due to my neurological issues. So if you see some typos don't be like "learn to write, jerk".... just let me be, don't feel pity
#goingblind #neurological #neurologicaldisorders #SUNCT #neuronalpain #neurodegenerative #livingtildeath #payingmylastlife
#goingblind #neurological #neurologicaldisorders #SUNCT #neuronalpain #neurodegenerative #livingtildeath #payingmylastlife
January 26, 2025 at 12:13 PM
I do many typos because I can't see very well due to my neurological issues. So if you see some typos don't be like "learn to write, jerk".... just let me be, don't feel pity
#goingblind #neurological #neurologicaldisorders #SUNCT #neuronalpain #neurodegenerative #livingtildeath #payingmylastlife
#goingblind #neurological #neurologicaldisorders #SUNCT #neuronalpain #neurodegenerative #livingtildeath #payingmylastlife
The closest thing is SUNCT or some form of neuralgiform headache. Doesn't seem to be as incapacitating as I have heard migraines are-- "You would know" and very specific symptoms. I used to call them "tiny migraines" but migraineurs disabused me of this.
November 24, 2024 at 2:03 PM
The closest thing is SUNCT or some form of neuralgiform headache. Doesn't seem to be as incapacitating as I have heard migraines are-- "You would know" and very specific symptoms. I used to call them "tiny migraines" but migraineurs disabused me of this.
First SUNCT style headache in a long time. Eye, eardrum, left side facial pain. And some tearing. I remember one stretch of this with @gemmafiles.bsky.social 's EXPERIMENTAL FILM. Must have gazed at Lady Midday.
November 21, 2024 at 12:52 PM
First SUNCT style headache in a long time. Eye, eardrum, left side facial pain. And some tearing. I remember one stretch of this with @gemmafiles.bsky.social 's EXPERIMENTAL FILM. Must have gazed at Lady Midday.
HR from Bad Brains needs our help. Lets have that Positive Mental Attitude and get him what he needs
Help HR From Bad Brains Fight SUNCT Syndrome, organized by Lori Carns Hudson
As you may have heard, HR (from Bad Brains/Human Rights) has been suffe… Lori Carns Hudson needs your support for Help HR From Bad Brains Fight SUNCT Syndrome
www.gofundme.com
April 8, 2024 at 2:07 PM
HR from Bad Brains needs our help. Lets have that Positive Mental Attitude and get him what he needs
Evt kan det være SUNCT/SUNA, Paroksysmal Hemicrani, Hemicrania Continua, osv osv
January 26, 2024 at 9:10 PM
Evt kan det være SUNCT/SUNA, Paroksysmal Hemicrani, Hemicrania Continua, osv osv
This photo essay illustrates symptoms of a patient with Short-lasting, Unilateral, Neuralgiform headache attacks with Conjunctival injection and Tearing (SUNCT).
bit.ly/cjo_unilater...
#Ophthalmology #NeuroOphthalmalogy
bit.ly/cjo_unilater...
#Ophthalmology #NeuroOphthalmalogy
Unilateral red eye, consider short-lasting unilateral neuralgiform headache attacks with conjunctival injection and tearing
Short-lasting, Unilateral, Neuralgiform headache attacks with Conjunctival injection
and Tearing (SUNCT) is a short-lasting trigeminal autonomic cephalalgia, causing severe
pain typically lasting betw...
bit.ly
June 24, 2026 at 12:54 PM
This photo essay illustrates symptoms of a patient with Short-lasting, Unilateral, Neuralgiform headache attacks with Conjunctival injection and Tearing (SUNCT).
bit.ly/cjo_unilater...
#Ophthalmology #NeuroOphthalmalogy
bit.ly/cjo_unilater...
#Ophthalmology #NeuroOphthalmalogy
Open Access UCL Research: A prospective comparative study and analysis of predictors of SUNA and SUNCT
discovery.ucl.ac.uk/id/eprint/10...
discovery.ucl.ac.uk/id/eprint/10...
A prospective comparative study and analysis of predictors of SUNA and SUNCT
-
UCL Discovery
UCL Discovery is UCL's open access repository, showcasing and providing access to UCL research outputs from all UCL disciplines.
discovery.ucl.ac.uk
May 7, 2026 at 8:54 AM
Open Access UCL Research: A prospective comparative study and analysis of predictors of SUNA and SUNCT
discovery.ucl.ac.uk/id/eprint/10...
discovery.ucl.ac.uk/id/eprint/10...
SUNCT syndrome is a rare primary headache disorder marked by brief, intense unilateral head pain in the trigeminal nerve area, accompanied by conjunctival injection and tearing.
Learn more: buff.ly/7NjeeYc
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Learn more: buff.ly/7NjeeYc
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
June 21, 2025 at 2:01 PM
SUNCT syndrome is a rare primary headache disorder marked by brief, intense unilateral head pain in the trigeminal nerve area, accompanied by conjunctival injection and tearing.
Learn more: buff.ly/7NjeeYc
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Learn more: buff.ly/7NjeeYc
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Oh, just visited Dr Google 😁 both Migraine and Cluster are primary. Sorry, I’m clearly confused. 🫤 I thought I was told CH and SUNCT ( my original diagnosis) were classed as primary because there is no external influence. Where as Migraine does.
Everyday’s a school day ☺️
Everyday’s a school day ☺️
April 22, 2024 at 10:14 AM
Oh, just visited Dr Google 😁 both Migraine and Cluster are primary. Sorry, I’m clearly confused. 🫤 I thought I was told CH and SUNCT ( my original diagnosis) were classed as primary because there is no external influence. Where as Migraine does.
Everyday’s a school day ☺️
Everyday’s a school day ☺️
SUNCT syndrome - Wikipedia
en.wikipedia.org
January 26, 2025 at 1:10 AM
Ah I see people are wondering about my #SUNCT hashtag. Was describing what it is already in that post. It just affects a few hundred people across the world so it’s no wonder I’m the first one here to make an hashtag of it. Kind of like a starting point for community, I hope!
January 25, 2025 at 11:06 PM
Ah I see people are wondering about my #SUNCT hashtag. Was describing what it is already in that post. It just affects a few hundred people across the world so it’s no wonder I’m the first one here to make an hashtag of it. Kind of like a starting point for community, I hope!
As more people arrive here: #SUNCT is a rare headache disorder causing intense, daily, short-lasting attacks of severe pain. In my case up to 180-xxx attacks per day atm, since I’m 8yo. It’s effed up and caused a lot of problems in my life but I won’t give up. +: f this “pain makes you harder” shit
January 17, 2025 at 2:29 AM
As more people arrive here: #SUNCT is a rare headache disorder causing intense, daily, short-lasting attacks of severe pain. In my case up to 180-xxx attacks per day atm, since I’m 8yo. It’s effed up and caused a lot of problems in my life but I won’t give up. +: f this “pain makes you harder” shit
Don’t miss the Special Session on Guidelines, where 3 EAN guidelines on Rare and Complex Epilepsies will be presented:
➡️ Lennox-Gastaut Syndrome
➡️ Symptomatic Treatment of Atypical Parkinsonian Syndrome (MSA, PSP, CBD)
➡️ Management of SUNCT/SUNA, Paroxysmal Hemicrania, and Hemicrania Continua
➡️ Lennox-Gastaut Syndrome
➡️ Symptomatic Treatment of Atypical Parkinsonian Syndrome (MSA, PSP, CBD)
➡️ Management of SUNCT/SUNA, Paroxysmal Hemicrania, and Hemicrania Continua
June 27, 2026 at 4:39 PM
Don’t miss the Special Session on Guidelines, where 3 EAN guidelines on Rare and Complex Epilepsies will be presented:
➡️ Lennox-Gastaut Syndrome
➡️ Symptomatic Treatment of Atypical Parkinsonian Syndrome (MSA, PSP, CBD)
➡️ Management of SUNCT/SUNA, Paroxysmal Hemicrania, and Hemicrania Continua
➡️ Lennox-Gastaut Syndrome
➡️ Symptomatic Treatment of Atypical Parkinsonian Syndrome (MSA, PSP, CBD)
➡️ Management of SUNCT/SUNA, Paroxysmal Hemicrania, and Hemicrania Continua
SUNCT? That’s a new one on me. Will also consult Dr Google 😁
But yes, migraine is for migraine’s sake, not caused by a problem somewhere else.
But yes, migraine is for migraine’s sake, not caused by a problem somewhere else.
April 22, 2024 at 10:18 AM
SUNCT? That’s a new one on me. Will also consult Dr Google 😁
But yes, migraine is for migraine’s sake, not caused by a problem somewhere else.
But yes, migraine is for migraine’s sake, not caused by a problem somewhere else.
Thanks to #RareDiseaseDay awareness, we can now identify 12 in every 100,000 people as having Trigeminal Neuralgia & 50 identified cases of SUNCT in medical literature. Awareness brings funding, & funding develops treatment options for people like me who live with hundreds of pain attacks daily
February 28, 2025 at 5:41 PM
Thanks to #RareDiseaseDay awareness, we can now identify 12 in every 100,000 people as having Trigeminal Neuralgia & 50 identified cases of SUNCT in medical literature. Awareness brings funding, & funding develops treatment options for people like me who live with hundreds of pain attacks daily
Who doesn't have headaches? Can you differentiate hemicrania continua, cluster, paroxysmal hemicrania, SUNCT/SUNA? Can you name the pathways involved in these syndromes or their treatments? New Review @JAMANeuro Management Trigeminal Autonomic Cephalalgias https://ja.ma/3J1Apny
December 1, 2024 at 5:22 AM
Who doesn't have headaches? Can you differentiate hemicrania continua, cluster, paroxysmal hemicrania, SUNCT/SUNA? Can you name the pathways involved in these syndromes or their treatments? New Review @JAMANeuro Management Trigeminal Autonomic Cephalalgias https://ja.ma/3J1Apny
Look left on this new review on headache syndromes @JAMANeuro Can you differentiate hemicrania continua, cluster headache, paroxysmal hemicrania, and SUNCT/SUNA? Headache and pain treatment depends heavily on making the diagnosis. https://ja.ma/3B92vrV
November 28, 2024 at 3:37 PM
Look left on this new review on headache syndromes @JAMANeuro Can you differentiate hemicrania continua, cluster headache, paroxysmal hemicrania, and SUNCT/SUNA? Headache and pain treatment depends heavily on making the diagnosis. https://ja.ma/3B92vrV
Best wishes for Hudson and his treatment for SUNCT. Sad that a legend, or anyone, needed fundraisers and a go fund me to get health care in the USA
December 25, 2024 at 3:05 PM
Best wishes for Hudson and his treatment for SUNCT. Sad that a legend, or anyone, needed fundraisers and a go fund me to get health care in the USA
Benefit and GoFundMe for HR of Bad Brains.
Members of SLAYER, FISHBONE, BEASTIE BOYS and more to perform at benefit for Bad Brains vocalist
A benefit concert is set to support H.R., the 67-year-old vocalist of Bad Brains, who has been grappling with debilitating SUNCT headaches since being diagnosed with the condition in 2014. To add...
lambgoat.com
December 1, 2023 at 4:49 AM
Benefit and GoFundMe for HR of Bad Brains.
H.R. has been suffering from an excruciating type of rare head affliction known as SUNCT headaches that leave him all but devastated. “I don’t want anyone to give up on me”
https://www.rollingstone.com/music/music-features/bad-brains-singer-hr-headaches-mental-illness-1234787037/
https://www.rollingstone.com/music/music-features/bad-brains-singer-hr-headaches-mental-illness-1234787037/
Bad Brains Singer H.R. Screams in Pain from Stabbing Headaches That Threaten His Career
H.R., the singer of hardcore band Bad Brains, is suffering from debilitating headaches that have left him in pain and in debt and canceled his tour.
www.rollingstone.com
July 16, 2023 at 1:44 PM
H.R. has been suffering from an excruciating type of rare head affliction known as SUNCT headaches that leave him all but devastated. “I don’t want anyone to give up on me”
https://www.rollingstone.com/music/music-features/bad-brains-singer-hr-headaches-mental-illness-1234787037/
https://www.rollingstone.com/music/music-features/bad-brains-singer-hr-headaches-mental-illness-1234787037/
Okay, let's start again,
I am known for my videos in French and English about neurological disorders and excruciating pain. I am here to help people with those things so you can contact me and talk to me.
#neurodivergent #clusterheadache #sunct #sunctsyndrome #neuronalpain #juanpablolhuillier
I am known for my videos in French and English about neurological disorders and excruciating pain. I am here to help people with those things so you can contact me and talk to me.
#neurodivergent #clusterheadache #sunct #sunctsyndrome #neuronalpain #juanpablolhuillier
October 11, 2025 at 10:44 PM
Okay, let's start again,
I am known for my videos in French and English about neurological disorders and excruciating pain. I am here to help people with those things so you can contact me and talk to me.
#neurodivergent #clusterheadache #sunct #sunctsyndrome #neuronalpain #juanpablolhuillier
I am known for my videos in French and English about neurological disorders and excruciating pain. I am here to help people with those things so you can contact me and talk to me.
#neurodivergent #clusterheadache #sunct #sunctsyndrome #neuronalpain #juanpablolhuillier