Long Covid Support Aotearoa
@lcsupportaotearoa.bsky.social
Bringing forward the lived experience of people with Long Covid in NZ to help and connect with the community
Pinned
YouTube.com
And the chronic illness political panel video is now up on our YouTube channel #nzpol
YouTube.com/@longcovidsupportaotearoa
YouTube.com/@longcovidsupportaotearoa
Reposted by Long Covid Support Aotearoa
Another clip from my wife's Chronic Illness Political Panel that she did as part of her podcast through @mpr.nz, with support from @lcsupportaotearoa.bsky.social - this one's talking to Todd Stephenson.
September 8, 2026 at 9:17 AM
Another clip from my wife's Chronic Illness Political Panel that she did as part of her podcast through @mpr.nz, with support from @lcsupportaotearoa.bsky.social - this one's talking to Todd Stephenson.
Overview of postviral syndromes including Long Covid and the research pathways happening
www.nature.com/articles/d41...
www.nature.com/articles/d41...
When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes
Hundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them.
www.nature.com
September 6, 2026 at 12:08 AM
Overview of postviral syndromes including Long Covid and the research pathways happening
www.nature.com/articles/d41...
www.nature.com/articles/d41...
Reposted by Long Covid Support Aotearoa
I've been cutting out clips from the Chronic Illness Political Panel that the missus did in association with @lcsupportaotearoa.bsky.social. Here's one where she asked Ingrid Leary about decoupling disabled people's welfare from their partners' income.
August 27, 2026 at 7:29 AM
I've been cutting out clips from the Chronic Illness Political Panel that the missus did in association with @lcsupportaotearoa.bsky.social. Here's one where she asked Ingrid Leary about decoupling disabled people's welfare from their partners' income.
Worse health after Covid?
Join our support group. We have fortnightly social zooms for connection and a wealth of knowledge among our members.
Join our support group. We have fortnightly social zooms for connection and a wealth of knowledge among our members.
August 25, 2026 at 10:10 PM
Worse health after Covid?
Join our support group. We have fortnightly social zooms for connection and a wealth of knowledge among our members.
Join our support group. We have fortnightly social zooms for connection and a wealth of knowledge among our members.
Reposted by Long Covid Support Aotearoa
Government’s attendance push driving "vicious cycle of illness" in schools
#nzpol
#nzpol
Government’s attendance push driving "vicious cycle of illness" in…
The government’s overzealous focus on school attendance is backfiring, with sick children returning to school too early and spreading viruses to…
www.nzeiteriuroa.org.nz
August 24, 2026 at 3:43 AM
Government’s attendance push driving "vicious cycle of illness" in schools
#nzpol
#nzpol
Hard hitting analysis from Emily Writes.
Why haven't we learnt from Covid?
www.emilywrites.co.nz/this-governm...
Why haven't we learnt from Covid?
www.emilywrites.co.nz/this-governm...
This government is making you sick
So many of us are sick. And there's a reason for it.
www.emilywrites.co.nz
August 25, 2026 at 4:43 AM
Hard hitting analysis from Emily Writes.
Why haven't we learnt from Covid?
www.emilywrites.co.nz/this-governm...
Why haven't we learnt from Covid?
www.emilywrites.co.nz/this-governm...
Reposted by Long Covid Support Aotearoa
Covid-19 Can Reawaken Dormant Viruses in the Body, Which Might Worsen Symptoms of the Respiratory Illness, Study Suggests share.google/I5n4hSuFUUac...
August 21, 2026 at 1:56 AM
Covid-19 Can Reawaken Dormant Viruses in the Body, Which Might Worsen Symptoms of the Respiratory Illness, Study Suggests share.google/I5n4hSuFUUac...
Reposted by Long Covid Support Aotearoa
And the chronic illness political panel video is now up on our YouTube channel #nzpol
YouTube.com/@longcovidsupportaotearoa
YouTube.com/@longcovidsupportaotearoa
YouTube.com
August 11, 2026 at 1:34 AM
And the chronic illness political panel video is now up on our YouTube channel #nzpol
YouTube.com/@longcovidsupportaotearoa
YouTube.com/@longcovidsupportaotearoa
Here's the media release from Long Covid Support Aotearoa following our panel yesterday.
longcovidsupport.co.nz/news/politic...
longcovidsupport.co.nz/news/politic...
Political panel highlights cross-party support for action on Long Covid – Long Covid Support Aotearoa
longcovidsupport.co.nz
August 10, 2026 at 11:39 PM
Here's the media release from Long Covid Support Aotearoa following our panel yesterday.
longcovidsupport.co.nz/news/politic...
longcovidsupport.co.nz/news/politic...
Reposted by Long Covid Support Aotearoa
New Zealand: "Long Covid sufferers call on politicians to do more to help those with the disease"
"According to the latest New Zealand Health Survey, 4.3% of adults reported living with Long Covid - roughly 185,000 people."
#LongCOVID
"According to the latest New Zealand Health Survey, 4.3% of adults reported living with Long Covid - roughly 185,000 people."
#LongCOVID
Long Covid sufferers call on politicians to do more to help those with the disease
People with Long Covid are calling on politicians to collect better data on the disease, and enable those with it to access disability support services.
www.rnz.co.nz
August 10, 2026 at 6:35 AM
New Zealand: "Long Covid sufferers call on politicians to do more to help those with the disease"
"According to the latest New Zealand Health Survey, 4.3% of adults reported living with Long Covid - roughly 185,000 people."
#LongCOVID
"According to the latest New Zealand Health Survey, 4.3% of adults reported living with Long Covid - roughly 185,000 people."
#LongCOVID
Reposted by Long Covid Support Aotearoa
🫶
"Behind every statistic is a person... Someone like me who still needs a rest after washing my hair, my children who missed years of education, and Renee who was a city councillor and is now housebound in a wheelchair."
www.rnz.co.nz/news/politic...
www.rnz.co.nz/news/politic...
Long Covid sufferers call on politicians to do more to help those with the disease
People with Long Covid are calling on politicians to collect better data on the disease, and enable those with it to access disability support services.
www.rnz.co.nz
August 10, 2026 at 2:02 AM
🫶
"Behind every statistic is a person... Someone like me who still needs a rest after washing my hair, my children who missed years of education, and Renee who was a city councillor and is now housebound in a wheelchair."
www.rnz.co.nz/news/politic...
www.rnz.co.nz/news/politic...
Long Covid sufferers call on politicians to do more to help those with the disease
People with Long Covid are calling on politicians to collect better data on the disease, and enable those with it to access disability support services.
www.rnz.co.nz
August 10, 2026 at 1:54 AM
"Behind every statistic is a person... Someone like me who still needs a rest after washing my hair, my children who missed years of education, and Renee who was a city councillor and is now housebound in a wheelchair."
www.rnz.co.nz/news/politic...
www.rnz.co.nz/news/politic...
RNZ reported on our political panel in the 12pm bulletin 🔥
People with Long Covid are asking politicians to count Long Covid in NZ
Check out the 12pm bulletin at 05:00 reporting on the political panel
www.rnz.co.nz/programmes/n...
Check out the 12pm bulletin at 05:00 reporting on the political panel
www.rnz.co.nz/programmes/n...
RNZ Bulletin
The latest news bulletin from Radio New Zealand
www.rnz.co.nz
August 10, 2026 at 1:48 AM
RNZ reported on our political panel in the 12pm bulletin 🔥
Political panel on this morning! Watch at longcovidsupport.co.nz/live-stream
Live Stream – Long Covid Support Aotearoa
longcovidsupport.co.nz
August 9, 2026 at 9:07 PM
Political panel on this morning! Watch at longcovidsupport.co.nz/live-stream
Reposted by Long Covid Support Aotearoa
This is on tomorrow morning
Monday 10th August @ 10am
Join us at www.facebook.com/share/1BzjFT...
Or longcovidsupport.co.nz/live-stream
And later on our YouTube channel
Monday 10th August @ 10am
Join us at www.facebook.com/share/1BzjFT...
Or longcovidsupport.co.nz/live-stream
And later on our YouTube channel
What policies do parties have to increase support, healthcare, and research for chronic conditions like MECFS and Long Covid?
Do they understand the long term implications of pandemics and will they consider chronic illness as part of future pandemic responses?
Notice who's missing? #nzpol
Do they understand the long term implications of pandemics and will they consider chronic illness as part of future pandemic responses?
Notice who's missing? #nzpol
August 8, 2026 at 10:21 PM
This is on tomorrow morning
Monday 10th August @ 10am
Join us at www.facebook.com/share/1BzjFT...
Or longcovidsupport.co.nz/live-stream
And later on our YouTube channel
Monday 10th August @ 10am
Join us at www.facebook.com/share/1BzjFT...
Or longcovidsupport.co.nz/live-stream
And later on our YouTube channel
Reposted by Long Covid Support Aotearoa
A severe bout of COVID-19 can wake up an army of dormant viruses hiding inside the body, like Epstein-Barr virus.
This reactivation is linked to especially intense bouts of COVID-19 and to the development of long COVID.
Published today in @nature.com:
This reactivation is linked to especially intense bouts of COVID-19 and to the development of long COVID.
Published today in @nature.com:
COVID can wake up a slew of dormant viruses inside you
Reactivation of typically harmless anelloviruses, in particular, seems to be linked with developing long COVID, study finds.
www.nature.com
August 7, 2026 at 1:16 PM
What policies do parties have to increase support, healthcare, and research for chronic conditions like MECFS and Long Covid?
Do they understand the long term implications of pandemics and will they consider chronic illness as part of future pandemic responses?
Notice who's missing? #nzpol
Do they understand the long term implications of pandemics and will they consider chronic illness as part of future pandemic responses?
Notice who's missing? #nzpol
August 7, 2026 at 2:05 AM
What policies do parties have to increase support, healthcare, and research for chronic conditions like MECFS and Long Covid?
Do they understand the long term implications of pandemics and will they consider chronic illness as part of future pandemic responses?
Notice who's missing? #nzpol
Do they understand the long term implications of pandemics and will they consider chronic illness as part of future pandemic responses?
Notice who's missing? #nzpol
Live feed tested ✅️
Politicians confirmed ✅️
Questions compiled ✅️
Join us on Monday 10th August at 10am
www.longcovidsupport.co.nz/live-stream
Politicians confirmed ✅️
Questions compiled ✅️
Join us on Monday 10th August at 10am
www.longcovidsupport.co.nz/live-stream
August 6, 2026 at 12:22 AM
Live feed tested ✅️
Politicians confirmed ✅️
Questions compiled ✅️
Join us on Monday 10th August at 10am
www.longcovidsupport.co.nz/live-stream
Politicians confirmed ✅️
Questions compiled ✅️
Join us on Monday 10th August at 10am
www.longcovidsupport.co.nz/live-stream
Reposted by Long Covid Support Aotearoa
Please share!
Join us! Political panel with all your chronic illness questions put to politicians 💪💪 #longcovid #chronicillness
www.facebook.com/share/19Bb1F...
www.facebook.com/share/19Bb1F...
August 4, 2026 at 3:39 AM
Please share!
Watch us grill the politicians!
We now have a YouTube channel:
www.youtube.com/@LongCovidSu...
#covidisnotover #covidsafe #longcovid
We now have a YouTube channel:
www.youtube.com/@LongCovidSu...
#covidisnotover #covidsafe #longcovid
YouTube.com
August 1, 2026 at 12:36 AM
Watch us grill the politicians!
We now have a YouTube channel:
www.youtube.com/@LongCovidSu...
#covidisnotover #covidsafe #longcovid
We now have a YouTube channel:
www.youtube.com/@LongCovidSu...
#covidisnotover #covidsafe #longcovid
Join us! Political panel with all your chronic illness questions put to politicians 💪💪 #longcovid #chronicillness
www.facebook.com/share/19Bb1F...
www.facebook.com/share/19Bb1F...
July 29, 2026 at 8:57 AM
Join us! Political panel with all your chronic illness questions put to politicians 💪💪 #longcovid #chronicillness
www.facebook.com/share/19Bb1F...
www.facebook.com/share/19Bb1F...
Reposted by Long Covid Support Aotearoa
The Sick Times How to interpret clinical trial results for Long COVID
thesicktimes.org/2026/07/21/h...
Includes a section called "a crash course in statistics." Also links to this resource: Questions to ask when evaluating evidence from clinical trials.
thesicktimes.org/2026/07/21/h...
thesicktimes.org/2026/07/21/h...
Includes a section called "a crash course in statistics." Also links to this resource: Questions to ask when evaluating evidence from clinical trials.
thesicktimes.org/2026/07/21/h...
How to interpret clinical trial results for Long COVID - The Sick Times
With no proven treatments or cures, many people with Long COVID are turning to off-label medications, supplements, and medical devices to treat their symptoms. There are numerous options — and some of...
thesicktimes.org
July 26, 2026 at 9:16 PM
The Sick Times How to interpret clinical trial results for Long COVID
thesicktimes.org/2026/07/21/h...
Includes a section called "a crash course in statistics." Also links to this resource: Questions to ask when evaluating evidence from clinical trials.
thesicktimes.org/2026/07/21/h...
thesicktimes.org/2026/07/21/h...
Includes a section called "a crash course in statistics." Also links to this resource: Questions to ask when evaluating evidence from clinical trials.
thesicktimes.org/2026/07/21/h...
Reposted by Long Covid Support Aotearoa
Kids are suffering because they don’t have the life experience or knowledge to explain what they are experiencing with #LongCOVID. It’s vital for parents and teachers to be aware of this issue and educated about the damage that is Long-COVID. #COVID19
thesicktimes.org/2026/07/24/t...
thesicktimes.org/2026/07/24/t...
The (sick) kids aren’t alright: Observations from a teacher with Long COVID - The Sick Times
We must help students by addressing Long COVID and advocating for clean air in schools.
thesicktimes.org
July 26, 2026 at 9:55 PM
Kids are suffering because they don’t have the life experience or knowledge to explain what they are experiencing with #LongCOVID. It’s vital for parents and teachers to be aware of this issue and educated about the damage that is Long-COVID. #COVID19
thesicktimes.org/2026/07/24/t...
thesicktimes.org/2026/07/24/t...