Scott Hugo
@scotthugo.bsky.social
In it for the long haul. Healthy doses of chronic illness advocacy, (dark) humor, and hope. No Rx needed. Fighting the world's fight, from home.
IG: @therhodesscholarlonghauler
IG: @therhodesscholarlonghauler
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Scott Hugo
@scotthugo.bsky.social
· Aug 14
I joined BlueSky because X is owned by a trillionaire; it is appalling that a trillionaire even exists in a world with so much unnecessary suffering.
France’s #AprèsJ20 endorsed our patient-led journalism ethics complaint concerning WIRED’s “The Painful Truth About Long COVID.”
Their statement calls for accurate, contextualized, scientifically responsible chronic-illness reporting – and international patient solidarity.
@apresj20.bsky.social
Their statement calls for accurate, contextualized, scientifically responsible chronic-illness reporting – and international patient solidarity.
@apresj20.bsky.social
October 6, 2026 at 5:05 PM
France’s #AprèsJ20 endorsed our patient-led journalism ethics complaint concerning WIRED’s “The Painful Truth About Long COVID.”
Their statement calls for accurate, contextualized, scientifically responsible chronic-illness reporting – and international patient solidarity.
@apresj20.bsky.social
Their statement calls for accurate, contextualized, scientifically responsible chronic-illness reporting – and international patient solidarity.
@apresj20.bsky.social
But it’s “unhelpful illness beliefs” reducing blood flow to the brain, right? 😉
Radiology Business: 'MRI links long COVID fatigue to reduced cerebral blood flow'
radiologybusiness.com/topics/medic...
radiologybusiness.com/topics/medic...
MRI links long COVID fatigue to reduced cerebral blood flow
The study also distinguishes between feeling fatigued and becoming progressively less able to maintain performance post-COVID.
radiologybusiness.com
October 3, 2026 at 4:17 PM
But it’s “unhelpful illness beliefs” reducing blood flow to the brain, right? 😉
“Long COVID has measurable biology — persistent antigen, immune dysregulation, chronic inflammation.
Reporting that ignores the evidence-based science isn't balanced, and it needs to be corrected.”
Thank you for your critical work and your support, @drinflammation.bsky.social!
Reporting that ignores the evidence-based science isn't balanced, and it needs to be corrected.”
Thank you for your critical work and your support, @drinflammation.bsky.social!
September 24, 2026 at 6:30 PM
“Long COVID has measurable biology — persistent antigen, immune dysregulation, chronic inflammation.
Reporting that ignores the evidence-based science isn't balanced, and it needs to be corrected.”
Thank you for your critical work and your support, @drinflammation.bsky.social!
Reporting that ignores the evidence-based science isn't balanced, and it needs to be corrected.”
Thank you for your critical work and your support, @drinflammation.bsky.social!
Thank you for continuing to shine a light on our suffering, @georgemonbiot.bsky.social !
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 24, 2026 at 6:01 PM
Thank you for continuing to shine a light on our suffering, @georgemonbiot.bsky.social !
Reposted by Scott Hugo
I wrote about an (informal) memorial I made in a burn scar that killed 1.3 million Joshua trees, nearly the same “official” U.S. death toll of the pandemic.
Now, I plant the yuccas in remembrance of those who died of Long COVID and ME
thesicktimes.org/2026/09/08/w...
Now, I plant the yuccas in remembrance of those who died of Long COVID and ME
thesicktimes.org/2026/09/08/w...
We made a COVID-19 memorial in the ashes of a Joshua tree forest - The Sick Times
Despite nearly 1.3 million deaths and counting, there is still not a national memorial for the pandemic. Our informal memorial in the middle of the Mojave Desert is one small way to remember those we’...
thesicktimes.org
September 8, 2026 at 3:58 PM
I wrote about an (informal) memorial I made in a burn scar that killed 1.3 million Joshua trees, nearly the same “official” U.S. death toll of the pandemic.
Now, I plant the yuccas in remembrance of those who died of Long COVID and ME
thesicktimes.org/2026/09/08/w...
Now, I plant the yuccas in remembrance of those who died of Long COVID and ME
thesicktimes.org/2026/09/08/w...
This is the responsible, ethical reporting we deserve. Bravo, @smithsonianmag.bsky.social ! Thank you for setting this example.
On #LongCovid and profiling my colleague @julialmv.bsky.social @smithsonianmag.bsky.social
www.smithsonianmag.com/innovation/m...
www.smithsonianmag.com/innovation/m...
For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief
Long Covid saps the strength and vitality of patients, who have little recourse to fight it. A team of specialists—including an afflicted researcher working mostly from her bed—is looking for answers
www.smithsonianmag.com
September 2, 2026 at 5:24 PM
This is the responsible, ethical reporting we deserve. Bravo, @smithsonianmag.bsky.social ! Thank you for setting this example.
As someone living the ravages of Long COVID/post-viral illness: we have to not only support the research being done now, but invest more and make it an international priority. Millions upon millions across the globe - many too sick to post here - are depending on it.
What is being done vs #LongCovid and other post-viral serious chronic illness? Not enough.
www.nature.com/articles/d41...
www.nature.com/articles/d41...
When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes
Hundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them.
www.nature.com
September 2, 2026 at 5:23 PM
As someone living the ravages of Long COVID/post-viral illness: we have to not only support the research being done now, but invest more and make it an international priority. Millions upon millions across the globe - many too sick to post here - are depending on it.
Reposted by Scott Hugo
"The work and everyday labor of living with ME/CFS contains this recursive loop of everyday labor of being ill."
For @motherjones.com, I interviewed @elimrogers.bsky.social on her book tracing the history of ME/CFS and what it's like to be exhausted in America. www.motherjones.com/media/2026/0...
For @motherjones.com, I interviewed @elimrogers.bsky.social on her book tracing the history of ME/CFS and what it's like to be exhausted in America. www.motherjones.com/media/2026/0...
The relentless work of being sick
A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.
www.motherjones.com
September 1, 2026 at 5:28 PM
"The work and everyday labor of living with ME/CFS contains this recursive loop of everyday labor of being ill."
For @motherjones.com, I interviewed @elimrogers.bsky.social on her book tracing the history of ME/CFS and what it's like to be exhausted in America. www.motherjones.com/media/2026/0...
For @motherjones.com, I interviewed @elimrogers.bsky.social on her book tracing the history of ME/CFS and what it's like to be exhausted in America. www.motherjones.com/media/2026/0...
Reposted by Scott Hugo
Fair and responsible journalism matters. Reporting on these conditions can have very real and damaging consequences, influencing how people are seen, believed and treated.
August 19, 2026 at 2:32 PM
Fair and responsible journalism matters. Reporting on these conditions can have very real and damaging consequences, influencing how people are seen, believed and treated.
Reposted by Scott Hugo
Journalists have a responsibility to get the facts right, to properly represent the evidence & to make clear when something is opinion rather than established fact.
That really shouldn’t be too much to ask.
That really shouldn’t be too much to ask.
August 19, 2026 at 2:32 PM
Journalists have a responsibility to get the facts right, to properly represent the evidence & to make clear when something is opinion rather than established fact.
That really shouldn’t be too much to ask.
That really shouldn’t be too much to ask.
🌎 Our movement demanding responsible, ethical, and compassionate reporting on chronic conditions is going global. Thank you so much for your solidarity @longcovidsos.bsky.social ! 🇺🇸🇬🇧
We’re proud to endorse this Patient-Led Journalism Ethics Complaint Against WIRED, joining ME Action and 25+ advocates, in calling for ethical, evidence-based reporting on #LongCovid, #ME and other #postinfectiousillnesses
www.longcovidsos.org/post/uk-orga...
www.longcovidsos.org/post/uk-orga...
UK Organization Long Covid SOS Endorses Patient-Led Journalism Ethics Complaint Against WIRED
Transatlantic partnership underscores the growing and global movement demanding responsible, ethical reporting on chronic conditions like Long COVID and ME.
www.longcovidsos.org
August 19, 2026 at 4:33 PM
🌎 Our movement demanding responsible, ethical, and compassionate reporting on chronic conditions is going global. Thank you so much for your solidarity @longcovidsos.bsky.social ! 🇺🇸🇬🇧
The fact that the trillionaire is this guy only makes it exponentially worse.
August 14, 2026 at 11:37 PM
The fact that the trillionaire is this guy only makes it exponentially worse.
I joined BlueSky because X is owned by a trillionaire; it is appalling that a trillionaire even exists in a world with so much unnecessary suffering.
August 14, 2026 at 11:32 PM
I joined BlueSky because X is owned by a trillionaire; it is appalling that a trillionaire even exists in a world with so much unnecessary suffering.