Steve Fifield
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧
Mine of occasionally useful information.
NHS and healthcare 💙
#Equality #Justbe #Inclusion
#LGBTQ+ 🌈 ally
#pwME
#MECFS
#Activetravel 🚲
#Sustainability
#Gardening
#VisibleApp #Oura
Mine of occasionally useful information.
NHS and healthcare 💙
#Equality #Justbe #Inclusion
#LGBTQ+ 🌈 ally
#pwME
#MECFS
#Activetravel 🚲
#Sustainability
#Gardening
#VisibleApp #Oura
Pinned
Steve Fifield
@stevefifield.bsky.social
· Oct 17
If you are ME/CFS community, please find useful information in below posts 💙❤️🫂
Reposted by Steve Fifield
Reposted by Steve Fifield
One major reason why there is still no support or care for chronic illnesses like ME/CFS and Long Covid
"There is nothing out there. There is nowhere to go. You go to the GP and there's nowhere for them to send you to. It's really at the back of the queue as far as research, knowledge, expertise, funding."
#ME
#ME
Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis
Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.
www.bbc.co.uk
October 16, 2026 at 2:18 PM
One major reason why there is still no support or care for chronic illnesses like ME/CFS and Long Covid
@crunchme.bsky.social
An idle thought - Has there been any analysis / CrunchME iconography to show if Newly Diagnosed (ME + Long Covid ME) cases are estimated to be rising *faster* than any estimated rates for ‘spontaneous recovery within lifetime’?
e.g. are numbers increasing?
An idle thought - Has there been any analysis / CrunchME iconography to show if Newly Diagnosed (ME + Long Covid ME) cases are estimated to be rising *faster* than any estimated rates for ‘spontaneous recovery within lifetime’?
e.g. are numbers increasing?
October 16, 2026 at 1:46 PM
@crunchme.bsky.social
An idle thought - Has there been any analysis / CrunchME iconography to show if Newly Diagnosed (ME + Long Covid ME) cases are estimated to be rising *faster* than any estimated rates for ‘spontaneous recovery within lifetime’?
e.g. are numbers increasing?
An idle thought - Has there been any analysis / CrunchME iconography to show if Newly Diagnosed (ME + Long Covid ME) cases are estimated to be rising *faster* than any estimated rates for ‘spontaneous recovery within lifetime’?
e.g. are numbers increasing?
Reposted by Steve Fifield
This is the disease for which I research and advocate: #MECFS. Even mild presentation is life-changing, and this is what severe looks like.
People are surprised so many of us were athletes. They want to believe this can only happen to people who were already unwell.
www.bbc.com/sport/athlet...
People are surprised so many of us were athletes. They want to believe this can only happen to people who were already unwell.
www.bbc.com/sport/athlet...
Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis
Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.
www.bbc.com
October 16, 2026 at 1:04 PM
This is the disease for which I research and advocate: #MECFS. Even mild presentation is life-changing, and this is what severe looks like.
People are surprised so many of us were athletes. They want to believe this can only happen to people who were already unwell.
www.bbc.com/sport/athlet...
People are surprised so many of us were athletes. They want to believe this can only happen to people who were already unwell.
www.bbc.com/sport/athlet...
Reposted by Steve Fifield
The abolition of NHSE was always just an excuse to kick the can down the road.
But it was never valid as an excuse.
Wish Forward ME would kick up more of a fuss. 👀
But it was never valid as an excuse.
Wish Forward ME would kick up more of a fuss. 👀
October 16, 2026 at 1:18 PM
The abolition of NHSE was always just an excuse to kick the can down the road.
But it was never valid as an excuse.
Wish Forward ME would kick up more of a fuss. 👀
But it was never valid as an excuse.
Wish Forward ME would kick up more of a fuss. 👀
Reposted by Steve Fifield
I am more and more convinced that Kessler Syndrome is the correct solution to the Fermi Paradox
en.wikipedia.org/wiki/Kessler...
en.wikipedia.org/wiki/Kessler...
Brendan Larsen from Ngāmotu in Aotearoa and a member of the New Plymouth Astronomical Society took this stack over a couple of hours and estimates 14000 satellite trails. This is how bad it is now, it's set to get much much much worse - and then we lose Low […]
[Original post on river.geek.nz]
[Original post on river.geek.nz]
October 16, 2026 at 12:45 PM
I am more and more convinced that Kessler Syndrome is the correct solution to the Fermi Paradox
en.wikipedia.org/wiki/Kessler...
en.wikipedia.org/wiki/Kessler...
Reposted by Steve Fifield
LATEST NEWS ON TODD'S SUBSTACK
ME/CFS is characterized by post-exertional malaise. PEM is variously defined, but it involves an abnormal multi-system & multi-symptom response to often-trivial levels of exertion.
Read more: conta.cc/4rQWitY
#MECFS #LongCOVID #PEM #Science @sunsopeningband.bsky.social
ME/CFS is characterized by post-exertional malaise. PEM is variously defined, but it involves an abnormal multi-system & multi-symptom response to often-trivial levels of exertion.
Read more: conta.cc/4rQWitY
#MECFS #LongCOVID #PEM #Science @sunsopeningband.bsky.social
October 15, 2026 at 5:04 PM
LATEST NEWS ON TODD'S SUBSTACK
ME/CFS is characterized by post-exertional malaise. PEM is variously defined, but it involves an abnormal multi-system & multi-symptom response to often-trivial levels of exertion.
Read more: conta.cc/4rQWitY
#MECFS #LongCOVID #PEM #Science @sunsopeningband.bsky.social
ME/CFS is characterized by post-exertional malaise. PEM is variously defined, but it involves an abnormal multi-system & multi-symptom response to often-trivial levels of exertion.
Read more: conta.cc/4rQWitY
#MECFS #LongCOVID #PEM #Science @sunsopeningband.bsky.social
Reposted by Steve Fifield
Reposted by Steve Fifield
"There's a reason why Russia tried to intervene in the Brexit vote. They knew it would harm the UK and harm the EU if we left. They were very clear about that, and boy, have they been proved right!" ~ @georgemonbiot.bsky.social
#JohnDrawsBBCQT #BBCQT #BBCQuestionTime
#JohnDrawsBBCQT #BBCQT #BBCQuestionTime
October 15, 2026 at 9:54 PM
"There's a reason why Russia tried to intervene in the Brexit vote. They knew it would harm the UK and harm the EU if we left. They were very clear about that, and boy, have they been proved right!" ~ @georgemonbiot.bsky.social
#JohnDrawsBBCQT #BBCQT #BBCQuestionTime
#JohnDrawsBBCQT #BBCQT #BBCQuestionTime
Reposted by Steve Fifield
This is all utterly mad and the responsibility lies squarely with the British government www.rte.ie/entertainmen...
Sally Rooney's books to be withdrawn from sale in the UK
Faber has confirmed it will stop supplying Sally Rooney's books in the UK, saying it cannot pay the Irish author royalties because of her pledge to support the banned group Palestine Action.
www.rte.ie
October 14, 2026 at 4:33 PM
This is all utterly mad and the responsibility lies squarely with the British government www.rte.ie/entertainmen...
Reposted by Steve Fifield
(1/3) Total funding allocated to research on #MECFS over decades is roughly what a disease of similiar prevalence and impact would receive every year, and much of it was wasted. People can debate the reasons for this gross negligence, but they cannot argue that research avenues have been exhausted.
CrunchME - Data-Informed Advocacy for IACIs
Data-informed advocacy to accelerate research & progress on ME/CFS, Long COVID & other infection-associated chronic illnesses (IACIs)
crunchme.org
October 15, 2026 at 7:23 AM
(1/3) Total funding allocated to research on #MECFS over decades is roughly what a disease of similiar prevalence and impact would receive every year, and much of it was wasted. People can debate the reasons for this gross negligence, but they cannot argue that research avenues have been exhausted.
Reposted by Steve Fifield
Senedd drops a beautiful poem because it contains an oblique reference to Gaza.
🍉👩👧👦
The poem is here: www.instagram.com/p/Dee4huXDBP7/
🍉👩👧👦
The poem is here: www.instagram.com/p/Dee4huXDBP7/
October 15, 2026 at 6:12 PM
Senedd drops a beautiful poem because it contains an oblique reference to Gaza.
🍉👩👧👦
The poem is here: www.instagram.com/p/Dee4huXDBP7/
🍉👩👧👦
The poem is here: www.instagram.com/p/Dee4huXDBP7/
Reposted by Steve Fifield
DHSC is responding. @england.nhs.uk is not.
Justice4ME.uk is trying to bridge the gap but cannot attract enough donations.
Justice4ME.uk is trying to bridge the gap but cannot attract enough donations.
Justice4ME.uk
October 15, 2026 at 6:14 AM
DHSC is responding. @england.nhs.uk is not.
Justice4ME.uk is trying to bridge the gap but cannot attract enough donations.
Justice4ME.uk is trying to bridge the gap but cannot attract enough donations.
Reposted by Steve Fifield
So a govt department CAN respond to a prevention of future deaths report (POFDR). But they can’t do anything about the POFDR for #Maeve or her mother
This lazy approach to #pwME is an absolutely appalling dereliction of duty for people with severe and very severe #ME
@swastrosarah.bsky.social
This lazy approach to #pwME is an absolutely appalling dereliction of duty for people with severe and very severe #ME
@swastrosarah.bsky.social
October 15, 2026 at 6:05 AM
So a govt department CAN respond to a prevention of future deaths report (POFDR). But they can’t do anything about the POFDR for #Maeve or her mother
This lazy approach to #pwME is an absolutely appalling dereliction of duty for people with severe and very severe #ME
@swastrosarah.bsky.social
This lazy approach to #pwME is an absolutely appalling dereliction of duty for people with severe and very severe #ME
@swastrosarah.bsky.social
Reposted by Steve Fifield
@rory-stewart.bsky.social, Milburn said under 25s would have support to get into work, PIP would be conditional on taking support.
@alastaircampbell2.bsky.social if your co-presenter needs an explainer on the Labour Theory of Value to know what it means to be born with nothing else, his followers
@alastaircampbell2.bsky.social if your co-presenter needs an explainer on the Labour Theory of Value to know what it means to be born with nothing else, his followers
October 15, 2026 at 6:29 AM
@rory-stewart.bsky.social, Milburn said under 25s would have support to get into work, PIP would be conditional on taking support.
@alastaircampbell2.bsky.social if your co-presenter needs an explainer on the Labour Theory of Value to know what it means to be born with nothing else, his followers
@alastaircampbell2.bsky.social if your co-presenter needs an explainer on the Labour Theory of Value to know what it means to be born with nothing else, his followers
Reposted by Steve Fifield
*hastily disconnects a small selection of machines which inexplicably connect to the internet even though nothing they do requires an internet connection*
The developer of chatbot Claude warned that rogue 'AI worms' will soon be able to hijack smart devices such as ovens and TVs. ft.trib.al/DQOrsRw
October 13, 2026 at 5:11 PM
*hastily disconnects a small selection of machines which inexplicably connect to the internet even though nothing they do requires an internet connection*
Reposted by Steve Fifield
Congratulations Hanna Ollila & team for receiving the 2026 Medix Prize for their Long Covid genetics research. "The large international study, led by the University of Helsinki, showed that long COVID has a clear biological basis."
www.helsinki.fi/en/hilife-he...
pubmed.ncbi.nlm.nih.gov/40399555/
www.helsinki.fi/en/hilife-he...
pubmed.ncbi.nlm.nih.gov/40399555/
October 13, 2026 at 3:15 PM
Congratulations Hanna Ollila & team for receiving the 2026 Medix Prize for their Long Covid genetics research. "The large international study, led by the University of Helsinki, showed that long COVID has a clear biological basis."
www.helsinki.fi/en/hilife-he...
pubmed.ncbi.nlm.nih.gov/40399555/
www.helsinki.fi/en/hilife-he...
pubmed.ncbi.nlm.nih.gov/40399555/
Reposted by Steve Fifield
🚨 Five IPC mistakes. Five lessons we cannot afford to ignore.
The Covid Inquiry exposed fundamental failures in how healthcare workers were protected. Have we actually learnt from them? Read the analysis by @EvonneTCurran and @alitwy 👇
shh-uk.org/five-ipc-...
The Covid Inquiry exposed fundamental failures in how healthcare workers were protected. Have we actually learnt from them? Read the analysis by @EvonneTCurran and @alitwy 👇
shh-uk.org/five-ipc-...
October 12, 2026 at 2:32 PM
🚨 Five IPC mistakes. Five lessons we cannot afford to ignore.
The Covid Inquiry exposed fundamental failures in how healthcare workers were protected. Have we actually learnt from them? Read the analysis by @EvonneTCurran and @alitwy 👇
shh-uk.org/five-ipc-...
The Covid Inquiry exposed fundamental failures in how healthcare workers were protected. Have we actually learnt from them? Read the analysis by @EvonneTCurran and @alitwy 👇
shh-uk.org/five-ipc-...
Reposted by Steve Fifield
Thanks to Minister Frith for a progress update on the Final Delivery Plan on ME. Good that in collaboration w/ ‘stakeholders’ important documents have been written. But there is far to go before systemic failings across government are addressed. I’m consulting before responding. Initial thoughts…/
October 12, 2026 at 4:42 PM
Thanks to Minister Frith for a progress update on the Final Delivery Plan on ME. Good that in collaboration w/ ‘stakeholders’ important documents have been written. But there is far to go before systemic failings across government are addressed. I’m consulting before responding. Initial thoughts…/
Reposted by Steve Fifield
../
1. We need action to translate the availability of these documents into meaningful change.
2. So disappointed at continuing lack of clarity over the exploration of a national specialist service for v severe ME.
3. Hard to see that mere ‘capacity building’ will significantly progress research.
1. We need action to translate the availability of these documents into meaningful change.
2. So disappointed at continuing lack of clarity over the exploration of a national specialist service for v severe ME.
3. Hard to see that mere ‘capacity building’ will significantly progress research.
October 12, 2026 at 4:42 PM
../
1. We need action to translate the availability of these documents into meaningful change.
2. So disappointed at continuing lack of clarity over the exploration of a national specialist service for v severe ME.
3. Hard to see that mere ‘capacity building’ will significantly progress research.
1. We need action to translate the availability of these documents into meaningful change.
2. So disappointed at continuing lack of clarity over the exploration of a national specialist service for v severe ME.
3. Hard to see that mere ‘capacity building’ will significantly progress research.
Reposted by Steve Fifield
WITHOUT a Wealth Tax someone with £11M could buy a decent family hatchback... But they probably already have a Ferrari (or 2).
WITH a Wealth Tax, we could have free childcare for all AND build 90K new social homes. Oh, & someone with £10,980,000 could STILL buy a new hatchback.
WITH a Wealth Tax, we could have free childcare for all AND build 90K new social homes. Oh, & someone with £10,980,000 could STILL buy a new hatchback.
October 12, 2026 at 7:05 AM
WITHOUT a Wealth Tax someone with £11M could buy a decent family hatchback... But they probably already have a Ferrari (or 2).
WITH a Wealth Tax, we could have free childcare for all AND build 90K new social homes. Oh, & someone with £10,980,000 could STILL buy a new hatchback.
WITH a Wealth Tax, we could have free childcare for all AND build 90K new social homes. Oh, & someone with £10,980,000 could STILL buy a new hatchback.
Reposted by Steve Fifield
I have sadly been following the crankery machine that is psychosomatic ideology for years.
They never actually think about the possible consequences of being wrong.
Never actually do, it never gets any further than what it could possibly mean for them, it's always completely superficial.
They never actually think about the possible consequences of being wrong.
Never actually do, it never gets any further than what it could possibly mean for them, it's always completely superficial.
1 🇳🇴) In this Norwegian study, therapists using a psychosomatic approach to ME/CFS expressed "concern about how current approaches might be viewed if future research were to establish a treatable biological dysfunction."
October 11, 2026 at 2:20 PM
I have sadly been following the crankery machine that is psychosomatic ideology for years.
They never actually think about the possible consequences of being wrong.
Never actually do, it never gets any further than what it could possibly mean for them, it's always completely superficial.
They never actually think about the possible consequences of being wrong.
Never actually do, it never gets any further than what it could possibly mean for them, it's always completely superficial.
Reposted by Steve Fifield
Delighted that Navi Pillay, chair of the UN commission which found Israel guilty of genocide in Gaza, has won the Nobel Peace Prize. Let Trump and Netanyahu splutter and fume: the truth becomes ever harder to deny.
October 11, 2026 at 12:34 PM
Delighted that Navi Pillay, chair of the UN commission which found Israel guilty of genocide in Gaza, has won the Nobel Peace Prize. Let Trump and Netanyahu splutter and fume: the truth becomes ever harder to deny.