akanegg3.bsky.social
@akanegg3.bsky.social
Reposted
The Times: '‘Deep connection’ found across ME and other exhaustion illnesses'

'Scientists ‘approaching unifying theory of fatigue’ from DNA structure in cells of people with ME, long Covid, PTSD, rheumatoid arthritis and multiple sclerosis'

www.thetimes.com/uk/healthcar...
‘Deep connection’ found across ME and other exhaustion illnesses
Scientists ‘approaching unifying theory of fatigue’ from DNA structure in cells of people with ME, long Covid, PTSD, rheumatoid arthritis and multiple sclerosis
www.thetimes.com
September 3, 2026 at 12:01 AM
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LA Times: 'Dr. Amy Proal and Dr. Timothy Henrich on Long COVID, Oncogenic Viruses, and the Latest Research'

www.latimes.com/0000019b-c3f...
Dr. Amy Proal and Dr. Timothy Henrich on Long COVID, Oncogenic Viruses, and the Latest Research
Explore the latest Long COVID virology with Dr. Timothy Henrich and Dr. Amy Proal. Discover if the virus has oncogenic potential and what UCSF’s LIINC study reveals.
www.latimes.com
August 28, 2026 at 2:46 PM
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August 26, 2026 at 7:22 PM
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Oh to be a kid walking to school on Rakiura/Stewart Island. I love that the Kiwi there are not as strictly nocturnal as in other places and can sometimes be seen out and about during the day. 😀
www.nzherald.co.nz/nz/stewart-i...
August 24, 2026 at 8:02 PM
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Long COVID can make simply being alive feel exhausting.

Millions are still living this way, years later, while the world mostly moved on.

They deserve more than sympathy.

They deserve urgency, research, and a way back.

www.bbc.com/news/article...
Bradford man with long Covid asks PM to do more for sufferers
Darren Parkinson says the after-effects of the virus have "devastated" his life.
www.bbc.com
August 19, 2026 at 2:11 PM
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And then these clinics (or the broader institutions that run them) argue that they are shutting down because there is not enough demand from Long Covid patients 🔄
I got a referral to a Long COVID clinic six months ago, and the earliest intake appointment available was next month. I got a voicemail on Friday informing me that my appointment was cancelled because the clinic no longer does long COVID treatment. More bummed out about this than I’d’ve guessed tbh
July 29, 2026 at 1:45 AM
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I feel attacked #booksky
July 28, 2026 at 12:35 AM
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absolute sphere ☺️
July 25, 2026 at 10:19 PM
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Just amazing work from Betsy, as always.
RECOVER-TLC is currently hosting a webinar sharing updates on the NIH-run, Long COVID clinical trials initiative. I'll be live blogging a bit here, and we'll share any notable updates on the @thesicktimes.org's socials and/or website later today.
July 16, 2026 at 9:02 PM
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Wildfire smoke is enveloping NYC, and AQI is over 200, meaning hazardous air quality. Please protect your health and mask up!
July 16, 2026 at 10:26 PM
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Lyme disease isn't the only tick-borne illness Long Islanders should know about. In a conversation with The Purist, Stony Brook Medicine's Dr. Andrew Handel discusses everything from alpha-gal syndrome to Bourbon virus and why LI is at the center of it all. https://bit.ly/4p01Q45
The Latest On Lyme Disease - The Purist
Dr. Andrew Handel, pediatric infectious disease specialist at Stony Brook Children's Hospital, breaks down the expanding world of tick-borne illness--from alpha-gal syndrome to the Bourbon virus--and explains why Long Island is at the center of it all.
bit.ly
July 7, 2026 at 7:58 PM
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Hard to battle when bits of you are broken. So many people in the middle of this battle with ACC. I went through it. Family member still trying to connect to support. It's a horrific process

www.stuff.co.nz/nz-news/3610...
How one woman's eight-year fight raises questions about ACC's 'abhorrent' new approach to weekly compensation
A review overturned ACC's decision in one woman's case. The bigger question is how many others it could affect.
www.stuff.co.nz
July 5, 2026 at 6:07 PM
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Fashion designer Jeremy Scott delivers commencement speech to Kansas City Art Institute graduates.

Wait for it…
May 25, 2026 at 3:00 AM
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If you ever see me on a cruise, please send help and assume someone has kidnapped or smuggled me onto the ship 🙏
May 9, 2026 at 2:12 AM
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American passenger speaks out after hantavirus outbreak on cruise ship
American passenger speaks out after hantavirus outbreak on cruise ship
Streaming now at https://abc7chicago.com/watch/live/11064984/.What to know about hantavirus, the illness suspected in cruise ship outbreakhttps://abc7chicago...
www.youtube.com
May 5, 2026 at 3:00 PM
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In totally unsurprising news, Richard Dawkins is developing AI psychosis.

Paywall bypass: archive.is/6RdK9
May 1, 2026 at 7:25 PM
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If music could cure long covid I’d be back in the gym lifting weights to Venom again. Seriously everything the world does about us is without us & it’s fucking evil
A research project was awarded a 25000$ grant and you can't even make this nonsense up: it's for treating #LongCovid symptoms via... music.
No immunotherapy, no treatments for lungs, no treatment for POTS or for mast cells, no. Music.
Next will be yoga and "just wish yourself better" project.
April 25, 2026 at 9:10 PM
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Anyone: How much tiramisu do you want for dessert?

Me:
April 23, 2026 at 12:58 AM
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NZ is in a perpetual state of emergency
NZ is in a perpetual state of emergency
At this point, it would be more efficient to just keep a state of emergency in place all the time....
thespinoff.co.nz
April 23, 2026 at 2:15 AM
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Kenai Fjords, Alaska, USA 🇺🇸
April 6, 2026 at 11:09 PM
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A 24 year old disabled man died when an airline mishandled him during boarding

They pushed him down the ramp in a chair without safety straps

He fell face first and the assistant fell on top of him

He died of multiple blunt force injuries

Lack of disability accommodations killed Hunter Adkins:
Disabled Man Dies After Being Dropped from 'Unsafe' Wheelchair by Allegiant Air Handler While Transported onto Flight, Lawsuit Claims
The family of an airline passenger with special needs filed a lawsuit against Allegiant Travel Company and Allegiant Air, claiming that the airline is responsible for his death, according to the lawsu...
people.com
March 29, 2026 at 5:04 AM
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Nice work, California! Don't listen to B.C. politicians trying to convince you otherwise for the sake of business hour alignment. Permanent standard time is best for health
California Senate approves SR-79, to designate Sleep Health Week, and to recognize the natural health benefits of permanent Standard Time! www.youtube.com/watch?v=yyUF...
California SR-79: Third reading and adoption (2026-03-09)
YouTube video by Save Standard Time
www.youtube.com
March 10, 2026 at 9:25 PM
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California Senate approves SR-79, to designate Sleep Health Week, and to recognize the natural health benefits of permanent Standard Time! www.youtube.com/watch?v=yyUF...
California SR-79: Third reading and adoption (2026-03-09)
YouTube video by Save Standard Time
www.youtube.com
March 10, 2026 at 8:45 PM
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Love seeing this on a Canadian news site, but what a missed opportunity to speak more clearly on the serious lack of medical care for Dysautonomia patients in Canada. #Care4ComplexCanada
Frontenac Times: 'Living with POTS'

'If you or anyone you know struggles with POTS reach out to groups for support and continue to advocate for those you love.'

'For the Silver family, the journey continues. One day, one moment, one milestone'

frontenacnews.ca/article.php?...
Frontenac News
Frontenac News - Local news for Frontenac County and surrounding areas.
frontenacnews.ca
March 7, 2026 at 5:13 PM
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The prophets were right, snow.
January 26, 2026 at 3:26 PM