Kirsty 🌻
@kirstysmestory.bsky.social
Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Not anti-vaccine
What it was like to have moderate/severe #Myalgicencephalomyelitis
as a young teenager in 2013.
Innocently locked up, abused , punished for missing school due to sickness. This is not only in the Netherlands. Will our stories be seen 🙏🏻 This is systemic abuse not an isolated incident
as a young teenager in 2013.
Innocently locked up, abused , punished for missing school due to sickness. This is not only in the Netherlands. Will our stories be seen 🙏🏻 This is systemic abuse not an isolated incident
September 21, 2026 at 2:04 PM
What it was like to have moderate/severe #Myalgicencephalomyelitis
as a young teenager in 2013.
Innocently locked up, abused , punished for missing school due to sickness. This is not only in the Netherlands. Will our stories be seen 🙏🏻 This is systemic abuse not an isolated incident
as a young teenager in 2013.
Innocently locked up, abused , punished for missing school due to sickness. This is not only in the Netherlands. Will our stories be seen 🙏🏻 This is systemic abuse not an isolated incident
🧵Sanne from the Netherlands needs urgent help.
She can no longer eat and can no longer tolerate a feeding tube. Only TPN (nutrition through the blood) can save her. Without it, she will die of starvation. #MEdicalneglect #MECFS
She can no longer eat and can no longer tolerate a feeding tube. Only TPN (nutrition through the blood) can save her. Without it, she will die of starvation. #MEdicalneglect #MECFS
September 17, 2025 at 4:04 PM
🧵Sanne from the Netherlands needs urgent help.
She can no longer eat and can no longer tolerate a feeding tube. Only TPN (nutrition through the blood) can save her. Without it, she will die of starvation. #MEdicalneglect #MECFS
She can no longer eat and can no longer tolerate a feeding tube. Only TPN (nutrition through the blood) can save her. Without it, she will die of starvation. #MEdicalneglect #MECFS
To remember another M.E.
community member and friend who’s life has ended too soon
😔🌹🦋
community member and friend who’s life has ended too soon
😔🌹🦋
July 20, 2025 at 5:01 PM
To remember another M.E.
community member and friend who’s life has ended too soon
😔🌹🦋
community member and friend who’s life has ended too soon
😔🌹🦋
A few years ago at the age of 24 my health drastically declined and I developed many new symptoms. Please if not #hEDS what’s going on with my connective tissue. I’m also experiencing abnormal partial fatloss , drastic hairloss. Im always told its stress or inactivity idk what to do #MECFS
June 18, 2025 at 12:40 PM
Technically my family’s dog, he’s a black labrador :)
May 27, 2025 at 7:32 PM
Technically my family’s dog, he’s a black labrador :)
🧵1. Every day I’m losing more hair.
I have bald spots, and a receding hairline. With any health issue most GP’s almost always refuses to refer me to a specialist, and they don’t do thorough bloodwork either.
I have bald spots, and a receding hairline. With any health issue most GP’s almost always refuses to refer me to a specialist, and they don’t do thorough bloodwork either.
May 25, 2025 at 11:01 AM
🧵1. Every day I’m losing more hair.
I have bald spots, and a receding hairline. With any health issue most GP’s almost always refuses to refer me to a specialist, and they don’t do thorough bloodwork either.
I have bald spots, and a receding hairline. With any health issue most GP’s almost always refuses to refer me to a specialist, and they don’t do thorough bloodwork either.
Im Kirsty and I’m 27 years old. I’ve had health issues most of my life but M.E. since the age of 11. My severity has fluctuated a lot over the years until everything got progressively worse in 2021 after my Pfizer vaccination and a covid infection 2023.
I just want a better quality of life
I just want a better quality of life
May 24, 2025 at 4:18 PM
Im Kirsty and I’m 27 years old. I’ve had health issues most of my life but M.E. since the age of 11. My severity has fluctuated a lot over the years until everything got progressively worse in 2021 after my Pfizer vaccination and a covid infection 2023.
I just want a better quality of life
I just want a better quality of life