##LongCovid
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keithmuise80.bsky.social
Moving closer to my goal every day friends, thanks to all who have donated so far, and everyone who shared.
I am trying to bridge the gap financially, and meet basic needs until I find full time employment. gofund.me/185171594
#Health #Advocacy
#tuesday #Covid #MaskUp #Covid #Covid19 #LongCovid
Donate to Covid19 Awareness, Education, Advocacy, and Assistance, organized by Keith Muise
Want to help me smash the false “Covid19 is mild” narrative? W… Keith Muise needs your support for Covid19 Awareness, Education, Advocacy, and Assistance
gofund.me
October 6, 2026 at 6:03 PM
benking01.bsky.social
3. The nurse who gave me the Flu vaccination shared my confusion as to why on Earth someone like me, afflicted with #LongCovid, who got blood clots and a #PulmonaryEmbolism from the SARS-Cov-2 virus, is not being offered a #Covid booster vaccination for the first time this year!
October 6, 2026 at 5:36 PM
tomkindlon.bsky.social
Norway
Demonstration scheduled for 28th October

www.facebook.com/events/18087...

www.me-foreldrene.no/markering-pa...

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #LongCovid @meforeningen.bsky.social
Norway Demonstration scheduled for 28th October at 3:00 PM Three patient organisations — The Norwegian ME Association, The ME Parents, and the Norwegian Covid Association — are organising a demonstration outside the Norwegian Parliament demanding a stop of the planned clinical guidelines for fatigue and ME. They ask for a separate guideline and expertise in healthcare for ME and post-infectious illness with PEM. Digital participation will be possible. Facebook event (Norwegian) l "The ME Parents" website (English translation) l Thread
October 6, 2026 at 4:28 PM
openmedf.bsky.social
It's #Cartober! 🚗 Turn your unwanted vehicle into vital research funds for #MECFS & #LongCOVID. Your donation is simple, hassle-free, and 100% tax-deductible.

Get started👉 careasy.org/nonprofit/Open-Medicine-Foundation
Three diverse people holding pink toy cars under the phrase 'Every car can drive change' on a teal background promoting Cartober and Open Medicine Foundation.
October 6, 2026 at 3:50 PM
me-nancy.bsky.social
Longtime #Vegetarian struggled w/ #LongCovid for almost 5yrs before discovering she was #PreDiabetic plus everything she'd been taught about #Meat & #Fiber was FALSE as Meat eaters *glow* with #health! #HyperCarnivore #RealMeatHeals #MeatIsANTIinflammatory
www.youtube.com/watch?v=l1ev...
Sick For YEARS… Then Everything Changed
YouTube video by No Carb Life
www.youtube.com
October 6, 2026 at 2:44 PM
shh-uk.bsky.social
Huge congratulations to Yanto (Welshpool) for completing the #CardiffHalfMarathon in support of #SHHUK! 💙

The race is done, but the fundraiser is still open. Please consider donating or sharing to support healthcare workers living with #LongCovid:

justgiving.com/page/...

#StillHere
Yanto Evans is fundraising for Supporting Healthcare Heroes UK
Help Yanto Evans raise money to support Supporting Healthcare Heroes UK
justgiving.com
October 6, 2026 at 1:28 PM
stpaulsbay.bsky.social
@thesicktimes.org
@betsyladyzhets.bsky.social
@mileswgriffis.bsky.social
@spichaksimon.bsky.social
@amymaxmen.bsky.social
@patientled.bsky.social
@lancet.bsky.social

#LongCOVID
#LongCovidResearch
#MECFS
#Genomics
#Neuroimmune
#Spoonie
#rs5522
October 6, 2026 at 1:25 PM
meshe.socialbc.ca.ap.brid.gy
#longcovid #ms

So I have been taking PEA and Luteolin, then ran out. When it ran out, it became quite clear that it was definately helping with pain. Here's some more research on it for long covid.

https://www.sciencedirect.com/science/article/pii/S1388245722009385
October 6, 2026 at 1:01 PM
anna-lyst.bsky.social
./4
Bedenke: Jede(!) weitere Reinfektion, auch asymptomatisch, ist eine erneute Lotterie-Teilnahme für #LongCovid !🧐

Mit jeder #Covid19 Reinfektion kumuliert das Risiko. Das bedeutet, mit jeder Infektion wird das Risiko größer (LongCovid, teils lebenslange Beeinträchtigungen)! Wird so hingenommen?🤬
Viele Studien zeigen längst: Mit jeder SARS-CoV-2-Reinfektion kumuliert das Risiko. Das bedeutet, mit jeder Infektion wird das Risiko (auf LongCovid, teils lebenslange Beeinträchtigungen) größer! Man spielt mit jeder neuen Covid Infektion jedes Mal Roulette (auf das zusätzliche, sich potenzierende Risiko LongCovid). Am besten bleibt daher: Infektionsvermeidung! Link zum Ausgangs-Beitrag von Ralf Wittenbrink über die 'Science'-Studie: https://bsky.app/profile/ralfwittenbrink.bsky.social/post/3l7ivtle74a2q ❤️lichen Dank @ralfwittenbrink.bsky.social 💐
October 6, 2026 at 12:51 PM
pehpunkt.bsky.social
alles bleibt im ungefähren stecken.

#jederTagMECFS #MECFS #LongCovid #MEAwareness
Bleistiftzeichnung eines Zimmers mit zwei Fenstern, darin links ein Bett und rechts ein Tisch mit Stuhl. Draussen sieht man ein Haus und einen belaubten Baum. Über dem Himmel ziehen sich weiße Wolken wie ein Schleier. Auf dem Bett liegt eine schlappe Person auf dem Rücken, die Beine lehnen an der Wand.
October 6, 2026 at 12:50 PM
benking01.bsky.social
Watching the World go by - Cross-legged in my folding camping chair.

#Totnes #DayOff #LongCovid #Pacing
October 6, 2026 at 11:21 AM
benking01.bsky.social
It feels quite Autumnal down beside the River Dart. Slow stroll to town, via each and every bench; with my folding camping-chair with me for back-up 🙏

Three part-days of #fieldwork upcoming and I need to reassess my walking capacity.

#Pacing to avoid overexertion and debilitating #LongCovid #PEM
October 6, 2026 at 10:26 AM
toveharris.bsky.social
Erläuterung, wann bei Long COVID oder ME/CFS tatsächlich Pflegebedürftigkeit im Sinne der Pflegeversicherung vorliegt und wie der Hilfebedarf so dargestellt wird, dass er in den sechs Pflegegrad‑Modulen rechtssicher berücksichtigt werden kann.

www.anwalt.de/rechtstipps/...

#LongCOVID #MECFS #COVID
www.anwalt.de
October 6, 2026 at 8:54 AM
titaniumteddybear.bsky.social
oh no i posted 2 things on the internet before i was readty

so silly me

crash again

#longcovid
October 6, 2026 at 8:09 AM
marsonautin.bsky.social
Ich habe noch eine Frage an Betroffene mit #longCovid ist durch das longcovid euer ADHS schlimmer geworden?
October 6, 2026 at 8:07 AM
jolu.bsky.social
#CovidIsNotOver #Teamvorsicht #LongCovid #MECFS
#Superheroes
thecovidinfoguy.bsky.social Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 15h
Kids housebound or bedbound with Long COVID created superheroes inspired by their experiences with chronic illness and disability. Their heroes find strength in resting, asking for help and compassion. The characters now feature in a 72-page full-colour comic, Long Covid Superheroes.

#LongCOVIDkids
Kids with Long COVID co-created their own superhero comic book - The Sick Times
Long Covid Superheroes showcases the bravery of asking for help, resting, and being compassionate with yourself and others.
thesicktimes.org
October 6, 2026 at 7:29 AM
momagallego.bsky.social
Es emocionalmente tan intensa que al salir del cine, le dije a mi marido, voy a tener PEM durante más de una semana #SFC-EM #LongCovid #PEM #CovidPersistente
October 6, 2026 at 7:16 AM
abrokenbattery.bsky.social
“The harm you have done is incalculable. It’s not me who has been spreading great harm around the world. It’s you, mate.”

George Monbiot on being accused by Prof Michael Sharpe of “spreading” #LongCovid by writing about it and why he started writing about the #MECFS scandal.
October 6, 2026 at 7:07 AM
drelke.bsky.social
#LongCovid
So, what is happening inside the brain when the fog really is long COVID? That remains largely unknown, Dr. Vishnevetsky says, noting that small studies have found signs of neuroinflammation and altered blood flow, but nothing is ready for clinical use. "We all have a sick response that's separate from any individual illness. If you have to do your normal work when you have the flu, your mind's just not working right," she says. "I've heard patients describe long COVID as like having the flu, except without the sore throat, runny nose, and cough. You sound like yourself, but you're mentally not able to do the things you otherwise would be able to do." That shrunken working memory struck at the center of Haddon's identity as a novelist. "I'd rather smugly always said to myself: I'm a writer. Your knees might no longer work, you lose all your hair, but you can still write. Of course, the same thing can happen to your brain," he says.
October 6, 2026 at 6:19 AM
benking01.bsky.social
I've now been using #EliteHRV Morning Check-ins for 500 days!

Not sure when I started using #KubiosHRV but it's longer than that.

This morning is around Day 1250 of using #Visible_health for Morning Stability Readings.

I've collected a lot of data since 2023!

#LongCovid
EliteHRV app Image of Trophy saying Great Job! 500 Day Streak
October 6, 2026 at 3:36 AM
tomkindlon.bsky.social
Conference in Iceland - Bridge between continents

The conference will be held in English and will be live-streamed (for free).

mefelag.is/bridge-betwe...

mefelag.is/bridge-betwe...

Screenshot from latest Science for ME weekly update

#LongCovid #MEcfs #POTS
Conference in Iceland - Bridge between continents Thursday, 29th October The ME Society of Iceland in collaboration with other groups is holding a conference to bring together "leading Icelandic and international experts in ME, Long COVID, Environmental illness and POTS" to share knowledge from research and clinical practice. The conference will be held in English and will be live-streamed. Registration closes Oct 20th. Announcement l Program | Thread
October 6, 2026 at 1:44 AM
tomkindlon.bsky.social
From Austria

Remnant virus proteins sustain vascular inflammation post coronavirus infection in mice and humans

portlandpress.com/clinsci/arti...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC
Remnant virus proteins sustain vascular inflammation post coronavirus infection in mice and humans
October 6, 2026 at 1:29 AM
tomkindlon.bsky.social
From Austria

Hair cortisol concentration and basal heart rate variability differentiate long COVID from depressive disorders in youth

www.sciencedirect.com/science/arti...

Screenshot from latest Science for ME weekly update

#LongCovid #depression #Dysautonomia #NeuroPASC #PASC
Hair cortisol concentration and basal heart rate variability differentiate long COVID from depressive disorders in youth — Oehlke et al "Without a healthy reference, it cannot be determined whether HCC or HRV indices in either clinical group deviate from normative physiological levels, nor whether the observed patterns are specific to LC or depressive disorders. Accordingly, the present findings should be understood as relative differences between the two clinical groups." Article | Thread
October 6, 2026 at 1:22 AM
tomkindlon.bsky.social
From Ireland

Dysautonomia and Postural Orthostatic Syndrome of Hypocapnia in Long COVID Syndrome

Screenshot from latest Science for ME weekly update

#LongCovid #POTS #Dysautonomia #NeuroPASC #PASC
Dysautonomia and Postural Orthostatic Syndrome of Hypocapnia in Long COVID Syndrome — O’Brien et al "Patients from this cohort with LCS, dysfunctional breathing and hypocapnia based on the lean test were referred for targeted pulmonary rehab." "There was no significant change in end-tidal CO2 or heart rate following the intervention." Article | Thread
October 6, 2026 at 1:15 AM
tomkindlon.bsky.social
From the US

Autoantibody landscapes in Long COVID with neurological symptoms show heterogeneity without a shared disease signature

insight.jci.org/articles/vie...

Screenshot from latest Science for ME weekly update

#LongCovid #NeuroPASC #PASC
Autoantibody landscapes in Long COVID with neurological symptoms show heterogeneity without a shared disease signature — Chakravarty et al "Across tissue-based assays and peptide-level, whole-human-proteome PhIP-Seq profiling, the data consistently reveal a lack of convergent, disease-specific autoantibody signatures." Article | Thread
October 6, 2026 at 12:33 AM