Today is World Radiography Day. Thank you to every radiographer who scans, treats and cares for people with #lungcancer.
In our survey of 180 people in the UK with ALK+ lung cancer, 1 in 3 have had radiotherapy, most often to the lungs, brain and bones.
#WorldRadiographyDay #ALKPositive #LCSM
In our survey of 180 people in the UK with ALK+ lung cancer, 1 in 3 have had radiotherapy, most often to the lungs, brain and bones.
#WorldRadiographyDay #ALKPositive #LCSM
November 8, 2026 at 9:40 AM
Today is World Radiography Day. Thank you to every radiographer who scans, treats and cares for people with #lungcancer.
In our survey of 180 people in the UK with ALK+ lung cancer, 1 in 3 have had radiotherapy, most often to the lungs, brain and bones.
#WorldRadiographyDay #ALKPositive #LCSM
In our survey of 180 people in the UK with ALK+ lung cancer, 1 in 3 have had radiotherapy, most often to the lungs, brain and bones.
#WorldRadiographyDay #ALKPositive #LCSM
🎥 The ALKtALK replay is now available!
What’s new in ALK-positive cancer research, and what could it mean for you?
Dr. Ken Culver shares clinical trial updates, emerging research, and a preview of our November Lung Cancer Awareness Month campaign! 💚
▶️ Watch: youtu.be/r3ocrSEb-jc
#ALKPositive
What’s new in ALK-positive cancer research, and what could it mean for you?
Dr. Ken Culver shares clinical trial updates, emerging research, and a preview of our November Lung Cancer Awareness Month campaign! 💚
▶️ Watch: youtu.be/r3ocrSEb-jc
#ALKPositive
October 13, 2026 at 11:45 PM
🎥 The ALKtALK replay is now available!
What’s new in ALK-positive cancer research, and what could it mean for you?
Dr. Ken Culver shares clinical trial updates, emerging research, and a preview of our November Lung Cancer Awareness Month campaign! 💚
▶️ Watch: youtu.be/r3ocrSEb-jc
#ALKPositive
What’s new in ALK-positive cancer research, and what could it mean for you?
Dr. Ken Culver shares clinical trial updates, emerging research, and a preview of our November Lung Cancer Awareness Month campaign! 💚
▶️ Watch: youtu.be/r3ocrSEb-jc
#ALKPositive
What does survivorship mean when living with ALK-positive cancer?
In this ALKtALK clip, Dr. Eric Singhi shares why survivorship goes beyond treatment to include quality of life, adapting, and living well.
🎥 Watch the full replay: youtu.be/aIVlb1OiWxU
#ALKPositive #ALKtALK
In this ALKtALK clip, Dr. Eric Singhi shares why survivorship goes beyond treatment to include quality of life, adapting, and living well.
🎥 Watch the full replay: youtu.be/aIVlb1OiWxU
#ALKPositive #ALKtALK
October 12, 2026 at 9:45 PM
What does survivorship mean when living with ALK-positive cancer?
In this ALKtALK clip, Dr. Eric Singhi shares why survivorship goes beyond treatment to include quality of life, adapting, and living well.
🎥 Watch the full replay: youtu.be/aIVlb1OiWxU
#ALKPositive #ALKtALK
In this ALKtALK clip, Dr. Eric Singhi shares why survivorship goes beyond treatment to include quality of life, adapting, and living well.
🎥 Watch the full replay: youtu.be/aIVlb1OiWxU
#ALKPositive #ALKtALK
ALKtALK Season 7 premieres Sunday, Sept. 27 at 7 p.m. ET with Dr. Eric Singhi (@lungoncdoc) of MD Anderson. Join us on Zoom for WCLC updates, practical information for life with ALK-positive cancer, and live Q&A.
alkpositive.org/event/alktal...
#ALKtALK #ALKPositive
alkpositive.org/event/alktal...
#ALKtALK #ALKPositive
September 25, 2026 at 6:30 PM
ALKtALK Season 7 premieres Sunday, Sept. 27 at 7 p.m. ET with Dr. Eric Singhi (@lungoncdoc) of MD Anderson. Join us on Zoom for WCLC updates, practical information for life with ALK-positive cancer, and live Q&A.
alkpositive.org/event/alktal...
#ALKtALK #ALKPositive
alkpositive.org/event/alktal...
#ALKtALK #ALKPositive
Could alectinib be used before surgery for ALK+ #lungcancer?
In the phase 2 NAUTIKA1 study, 55.8% had a major pathological response after 8 weeks of alectinib before surgery.
It’s early research, but an interesting new direction for ALK+ treatment.
#WCLC26 #ALKPositive #LCSM
In the phase 2 NAUTIKA1 study, 55.8% had a major pathological response after 8 weeks of alectinib before surgery.
It’s early research, but an interesting new direction for ALK+ treatment.
#WCLC26 #ALKPositive #LCSM
September 17, 2026 at 8:04 AM
Could alectinib be used before surgery for ALK+ #lungcancer?
In the phase 2 NAUTIKA1 study, 55.8% had a major pathological response after 8 weeks of alectinib before surgery.
It’s early research, but an interesting new direction for ALK+ treatment.
#WCLC26 #ALKPositive #LCSM
In the phase 2 NAUTIKA1 study, 55.8% had a major pathological response after 8 weeks of alectinib before surgery.
It’s early research, but an interesting new direction for ALK+ treatment.
#WCLC26 #ALKPositive #LCSM
Scotland has confirmed routine NHS access to lorlatinib after previous ALK+ lung cancer treatment.
It had been available on an interim basis since 2020. Following reassessment and further evidence, that access is now routine.
#ALKPositive #LungCancer #LCSM
It had been available on an interim basis since 2020. Following reassessment and further evidence, that access is now routine.
#ALKPositive #LungCancer #LCSM
September 9, 2026 at 10:37 AM
Scotland has confirmed routine NHS access to lorlatinib after previous ALK+ lung cancer treatment.
It had been available on an interim basis since 2020. Following reassessment and further evidence, that access is now routine.
#ALKPositive #LungCancer #LCSM
It had been available on an interim basis since 2020. Following reassessment and further evidence, that access is now routine.
#ALKPositive #LungCancer #LCSM
New research is helping us understand why ALK targeted treatments can stop working.
In 148 people with ALK+ #lungcancer, researchers identified changes in the RAS pathway as one possible route of resistance.
An important clue for future research.
#ALKPositive #LungCancer #LCSM
In 148 people with ALK+ #lungcancer, researchers identified changes in the RAS pathway as one possible route of resistance.
An important clue for future research.
#ALKPositive #LungCancer #LCSM
September 3, 2026 at 7:57 AM
New research is helping us understand why ALK targeted treatments can stop working.
In 148 people with ALK+ #lungcancer, researchers identified changes in the RAS pathway as one possible route of resistance.
An important clue for future research.
#ALKPositive #LungCancer #LCSM
In 148 people with ALK+ #lungcancer, researchers identified changes in the RAS pathway as one possible route of resistance.
An important clue for future research.
#ALKPositive #LungCancer #LCSM
Join us Thursday, August 20, at 7 PM ET for Clinical Trials Connect! Hear about a year of progress in ALK research and treatment, followed by patient perspectives on participating in clinical trials.
Join us: alkpositive.org/event/clinic...
#ALKPositive #ClinicalTrials
Join us: alkpositive.org/event/clinic...
#ALKPositive #ClinicalTrials
August 18, 2026 at 10:15 PM
Join us Thursday, August 20, at 7 PM ET for Clinical Trials Connect! Hear about a year of progress in ALK research and treatment, followed by patient perspectives on participating in clinical trials.
Join us: alkpositive.org/event/clinic...
#ALKPositive #ClinicalTrials
Join us: alkpositive.org/event/clinic...
#ALKPositive #ClinicalTrials
🎙️ Don't miss this all-new episode of #LungCancerConsidered! Host @stephenvliu.bsky.social continues our #VirtualTumorBoard series with a complex Stage III ALK+ #NSCLC case. How should clinicians approach this patient? Listen now for expert insights! 🎧 bit.ly/VTBsIIIALK
#ALKPositive #IASLC
#ALKPositive #IASLC
Virtual Tumor Board: Stage III ALK+ NSCLC | IASLC
This IASLC Virtual Tumor Board episode focuses on a patient with stage III ALK-positive NSCLC. ALK fusions are present in about 5% of NSCLC and there are now si ...
bit.ly
March 20, 2025 at 6:37 PM
🎙️ Don't miss this all-new episode of #LungCancerConsidered! Host @stephenvliu.bsky.social continues our #VirtualTumorBoard series with a complex Stage III ALK+ #NSCLC case. How should clinicians approach this patient? Listen now for expert insights! 🎧 bit.ly/VTBsIIIALK
#ALKPositive #IASLC
#ALKPositive #IASLC
Jarushka Naidoo Shares Duncan Preece’s Patient-Focused Insights from ALK Positive Canada
@drjnaidoo.bsky.social
oncodaily.com/blog/jarushk...
#ALKPositive #Cancer #LungHealthCheckIreland #OncoDaily #Oncology
@drjnaidoo.bsky.social
oncodaily.com/blog/jarushk...
#ALKPositive #Cancer #LungHealthCheckIreland #OncoDaily #Oncology
Jarushka Naidoo Shares Duncan Preece’s Patient-Focused Insights from ALK Positive Canada - OncoDaily
Jarushka Naidoo Shares Duncan Preece’s Patient-Focused Insights from ALK Positive Canada / ALK Positive, cancer, Duncan Preece, Jarushka Naidoo, Lung Health
oncodaily.com
June 22, 2025 at 5:30 PM
Jarushka Naidoo Shares Duncan Preece’s Patient-Focused Insights from ALK Positive Canada
@drjnaidoo.bsky.social
oncodaily.com/blog/jarushk...
#ALKPositive #Cancer #LungHealthCheckIreland #OncoDaily #Oncology
@drjnaidoo.bsky.social
oncodaily.com/blog/jarushk...
#ALKPositive #Cancer #LungHealthCheckIreland #OncoDaily #Oncology
In for maintenance on my vocal cord. Gonna lose my actual voice for a few days. Guess that means more writing. #cancerlife #ALKPositive #NSCLC
March 10, 2026 at 11:13 PM
In for maintenance on my vocal cord. Gonna lose my actual voice for a few days. Guess that means more writing. #cancerlife #ALKPositive #NSCLC
Cancer is a system failure. My response: I grabbed a mechanical pencil and became the Observer. Read about the day I chose curiosity over fear, moving from Patient to Walking Observation Lab.
#SystemsThinking
#ScienceNerd
#ObservationLab
#CancerSurvival
#Deconstruction
#ALKpositive
#SystemsThinking
#ScienceNerd
#ObservationLab
#CancerSurvival
#Deconstruction
#ALKpositive
Episode 7: The Systems Thinker and the Mechanical Pencil
Why I stopped looking at myself as a patient and started looking at myself as an observer
open.substack.com
December 12, 2025 at 4:36 AM
Cancer is a system failure. My response: I grabbed a mechanical pencil and became the Observer. Read about the day I chose curiosity over fear, moving from Patient to Walking Observation Lab.
#SystemsThinking
#ScienceNerd
#ObservationLab
#CancerSurvival
#Deconstruction
#ALKpositive
#SystemsThinking
#ScienceNerd
#ObservationLab
#CancerSurvival
#Deconstruction
#ALKpositive
Applying Complexity Science to Terminal Illness.
Hypothesis: "Détente" is more resiliant than "War."
Method: 4th-Gen TKIs + Psychoneuroimmunology.
Result: Sclerotic containment & BBB repair.
#LungCancer #ALKpositive #Epigenetics #DeepakChopra #MayimBialik #JamesGlattfelder #SciComm #Stoicism
Hypothesis: "Détente" is more resiliant than "War."
Method: 4th-Gen TKIs + Psychoneuroimmunology.
Result: Sclerotic containment & BBB repair.
#LungCancer #ALKpositive #Epigenetics #DeepakChopra #MayimBialik #JamesGlattfelder #SciComm #Stoicism
The Diamond Standard: An N-of-1 Experiment in Co-Existing with Terminal Illness
Beyond the "War on Cancer"—Mapping the Intersection of Fourth-Generation TKI Therapy and the Harmonist Mindset.
open.substack.com
December 2, 2025 at 5:04 AM
Applying Complexity Science to Terminal Illness.
Hypothesis: "Détente" is more resiliant than "War."
Method: 4th-Gen TKIs + Psychoneuroimmunology.
Result: Sclerotic containment & BBB repair.
#LungCancer #ALKpositive #Epigenetics #DeepakChopra #MayimBialik #JamesGlattfelder #SciComm #Stoicism
Hypothesis: "Détente" is more resiliant than "War."
Method: 4th-Gen TKIs + Psychoneuroimmunology.
Result: Sclerotic containment & BBB repair.
#LungCancer #ALKpositive #Epigenetics #DeepakChopra #MayimBialik #JamesGlattfelder #SciComm #Stoicism
For the first 8-9 months post cancer diagnosis, I was fighting from scan to scan, and the fear of progression was exhausting. I realized that fighting was keeping me from living. I made a conscious decision to change my goal from fighting to co-existence.
#lungcancer #nsclc #alkpositive #cancer
#lungcancer #nsclc #alkpositive #cancer
Episode 5: The Day I Stopped Fighting
A Story of Co-Existence, Progression Fear, and Why I Had to Stop Fighting to Live
open.substack.com
November 18, 2025 at 6:50 AM
For the first 8-9 months post cancer diagnosis, I was fighting from scan to scan, and the fear of progression was exhausting. I realized that fighting was keeping me from living. I made a conscious decision to change my goal from fighting to co-existence.
#lungcancer #nsclc #alkpositive #cancer
#lungcancer #nsclc #alkpositive #cancer
November is Lung Cancer Awareness Month. My new post explores the profound choice to live fiercely while facing a terminal diagnosis, born from a quiet moment in my cancer center. #LungCancerAwarenessMonth
#LungCancer #ALKPositive #Philosophy #Gratitude #LCAM2025 #CancerResearch
#LungCancer #ALKPositive #Philosophy #Gratitude #LCAM2025 #CancerResearch
Episode 3: Memento Mori, Memento Vivere: A Lung Cancer Patient's Reflections in a Willy Wonka Clinic
November is Lung Cancer Awareness Month. My one-year journey with ALK-positive NSCLC has been a profound lesson in defiance, gratitude, and the choice to co-exist.
open.substack.com
November 2, 2025 at 3:11 AM
November is Lung Cancer Awareness Month. My new post explores the profound choice to live fiercely while facing a terminal diagnosis, born from a quiet moment in my cancer center. #LungCancerAwarenessMonth
#LungCancer #ALKPositive #Philosophy #Gratitude #LCAM2025 #CancerResearch
#LungCancer #ALKPositive #Philosophy #Gratitude #LCAM2025 #CancerResearch
1 year ago, a 10cm mass was collapsing my airway. Today, my scans show it's gone.
I am overcome with humility. This isn't about me; it's about the Architects of Stability in science whose thankless work made this possible.
#Cancer #ALKPositive #ClinicalTrials #Neladalkib #Nuvalent #Gratitude
I am overcome with humility. This isn't about me; it's about the Architects of Stability in science whose thankless work made this possible.
#Cancer #ALKPositive #ClinicalTrials #Neladalkib #Nuvalent #Gratitude
The Architects of Stability: A One-Year Reflection on Science and Gratitude
My one-year scans just came in. The results are not a personal victory, but a testament to the vast, unseen system of human ingenuity that made them possible.
open.substack.com
October 31, 2025 at 12:42 AM
1 year ago, a 10cm mass was collapsing my airway. Today, my scans show it's gone.
I am overcome with humility. This isn't about me; it's about the Architects of Stability in science whose thankless work made this possible.
#Cancer #ALKPositive #ClinicalTrials #Neladalkib #Nuvalent #Gratitude
I am overcome with humility. This isn't about me; it's about the Architects of Stability in science whose thankless work made this possible.
#Cancer #ALKPositive #ClinicalTrials #Neladalkib #Nuvalent #Gratitude
This is an interesting article to read. With my cancer diagnosis last year, I couldn't figure out why my otherwise healthy body would attack itself in this fashion. Thanks to more targeted therapy coming out, there is hope to suppress and manage these types of cancer growths. #Cancer #ALKPositive
Treatments should encourage healthy cells as well as killing unhealthy ones
Scientists are discovering a powerful new way to prevent cancer
Treatments should encourage healthy cells as well as killing unhealthy ones
econ.st
September 2, 2025 at 7:12 PM
This is an interesting article to read. With my cancer diagnosis last year, I couldn't figure out why my otherwise healthy body would attack itself in this fashion. Thanks to more targeted therapy coming out, there is hope to suppress and manage these types of cancer growths. #Cancer #ALKPositive
Oh yeah. And today was my last session of radiation on my shoulder. I'm super excited to take my cancer meds regularly again starting tomorrow. Scans next week for my 18 week check up. Crossing my fingers for continued positive response to the medication. #ALKPositive #LungCancer
March 13, 2025 at 4:19 AM
Oh yeah. And today was my last session of radiation on my shoulder. I'm super excited to take my cancer meds regularly again starting tomorrow. Scans next week for my 18 week check up. Crossing my fingers for continued positive response to the medication. #ALKPositive #LungCancer
I had an appointment with my oncologist to go over my 12 week scans. He said the cancer spots are either stable, shrinking, and some smaller spots have even disappeared. My numbers look good and I'm tolerating the medication fine. Good day today. #CancerSky #ALKPositive #LungCancer
a close up of a sloth sleeping in a wicker chair with memepix.com in the corner
Alt: a close up of a sloth sleeping in a wicker chair with memepix.com in the corner
media.tenor.com
January 30, 2025 at 6:12 AM
I had an appointment with my oncologist to go over my 12 week scans. He said the cancer spots are either stable, shrinking, and some smaller spots have even disappeared. My numbers look good and I'm tolerating the medication fine. Good day today. #CancerSky #ALKPositive #LungCancer
A great update from clinical trials for the ROS-1 and ALK mutation treatments. Renewed hope for those of us scrambling to fight a type of cancer that already has a huge head start on our efforts. #ALKpositive #lungcancer
Nuvalent Details Strategy to Seek First Potential Approval in 2026 and Outlines Key Anticipated 2025 Milestones
Strategy prioritizes most accelerated path to first potential approval
Initial NDA submission expected by mid-year for zidesamtinib in TKI pre-treated ROS1-positive NSCLC population, with topline piv...
kfor.com
January 13, 2025 at 5:21 PM
A great update from clinical trials for the ROS-1 and ALK mutation treatments. Renewed hope for those of us scrambling to fight a type of cancer that already has a huge head start on our efforts. #ALKpositive #lungcancer
December 13, 2024 at 5:21 PM
This is how I found out I have stage 4 lung cancer in October of this year. All of the symptoms of allergies and breathing issues, then loss of voice, then chronic lung pain. There needs to be more screening widely available for everyone to catch this early and treat. #LCAM #ALKPositive
Tumor testing to determine #biomarkers helps to determine the most effective treatment. Insist that your cancer is tested for the best outcomes. Learn more at LCRF.org/biomarkers. #LungCancer
Comprehensive Biomarker Testing for Lung Cancer - Lung Cancer Research Foundation
You do not need to be a doctor to understand your tumor. Biomarker testing can help. When your doctors suspected you had cancer, they took a small portion of your […]
LCRF.org
November 25, 2024 at 6:49 PM
This is how I found out I have stage 4 lung cancer in October of this year. All of the symptoms of allergies and breathing issues, then loss of voice, then chronic lung pain. There needs to be more screening widely available for everyone to catch this early and treat. #LCAM #ALKPositive
I'm not on the group on FB, but I'll have to look it up. The ALKpositive site was one of the first ones I came across when my Tempus came back with the mutation. I've been enjoying watching some of the talks they have and it's been really fascinating.
November 19, 2024 at 1:08 AM
I'm not on the group on FB, but I'll have to look it up. The ALKpositive site was one of the first ones I came across when my Tempus came back with the mutation. I've been enjoying watching some of the talks they have and it's been really fascinating.
❗Sets a new benchmark for targeted therapies in oncology!
#Onco404 #Cancer #Oncology #LungCancer #ALKpositive #Lorlatinib #TargetedTherapy #PrecisionOncology #ClinicalTrials #JCO
#Onco404 #Cancer #Oncology #LungCancer #ALKpositive #Lorlatinib #TargetedTherapy #PrecisionOncology #ClinicalTrials #JCO
March 27, 2025 at 8:35 AM
❗Sets a new benchmark for targeted therapies in oncology!
#Onco404 #Cancer #Oncology #LungCancer #ALKpositive #Lorlatinib #TargetedTherapy #PrecisionOncology #ClinicalTrials #JCO
#Onco404 #Cancer #Oncology #LungCancer #ALKpositive #Lorlatinib #TargetedTherapy #PrecisionOncology #ClinicalTrials #JCO
🎉 This represents the longest PFS ever reported with any single-agent targeted therapy in advanced NSCLC and across metastatic solid tumors ✨
#Onco404 #Cancer #Oncology #LungCancer #ALKpositive #Lorlatinib #TargetedTherapy #PrecisionOncology #ClinicalTrials #JCO
#Onco404 #Cancer #Oncology #LungCancer #ALKpositive #Lorlatinib #TargetedTherapy #PrecisionOncology #ClinicalTrials #JCO
March 27, 2025 at 8:35 AM
🎉 This represents the longest PFS ever reported with any single-agent targeted therapy in advanced NSCLC and across metastatic solid tumors ✨
#Onco404 #Cancer #Oncology #LungCancer #ALKpositive #Lorlatinib #TargetedTherapy #PrecisionOncology #ClinicalTrials #JCO
#Onco404 #Cancer #Oncology #LungCancer #ALKpositive #Lorlatinib #TargetedTherapy #PrecisionOncology #ClinicalTrials #JCO