It took me months to feel "disabled enough" to use the parking placard my oncologist urged me to get for my cancer issues.
Two days ago, a stranger decided I didn't "look the part" and let me know it. Here is my post about invisible illness and the judgments we make.
#LCAM2025
#InvisibleIllness
Two days ago, a stranger decided I didn't "look the part" and let me know it. Here is my post about invisible illness and the judgments we make.
#LCAM2025
#InvisibleIllness
Episode 6: The Iceberg
The heavy reality of an invisible illness.
open.substack.com
November 22, 2025 at 5:56 AM
It took me months to feel "disabled enough" to use the parking placard my oncologist urged me to get for my cancer issues.
Two days ago, a stranger decided I didn't "look the part" and let me know it. Here is my post about invisible illness and the judgments we make.
#LCAM2025
#InvisibleIllness
Two days ago, a stranger decided I didn't "look the part" and let me know it. Here is my post about invisible illness and the judgments we make.
#LCAM2025
#InvisibleIllness
A lesson on how to cut through the bullshit and gain some perspective. My experience living with late stage cancer. Please give it a read. And I'd love to hear your own stories and maybe even how you may addressed the system and found success and empathy. #Advocacy #Cancer #LCAM2025 #PatientAdvocacy
Pretty Ravensongs: Episode 4 - The Subscriber Number
A Lesson on the Importance of Clearing the Noise
open.substack.com
November 10, 2025 at 4:09 AM
A lesson on how to cut through the bullshit and gain some perspective. My experience living with late stage cancer. Please give it a read. And I'd love to hear your own stories and maybe even how you may addressed the system and found success and empathy. #Advocacy #Cancer #LCAM2025 #PatientAdvocacy
November is Lung Cancer Awareness Month. My new post explores the profound choice to live fiercely while facing a terminal diagnosis, born from a quiet moment in my cancer center. #LungCancerAwarenessMonth
#LungCancer #ALKPositive #Philosophy #Gratitude #LCAM2025 #CancerResearch
#LungCancer #ALKPositive #Philosophy #Gratitude #LCAM2025 #CancerResearch
Episode 3: Memento Mori, Memento Vivere: A Lung Cancer Patient's Reflections in a Willy Wonka Clinic
November is Lung Cancer Awareness Month. My one-year journey with ALK-positive NSCLC has been a profound lesson in defiance, gratitude, and the choice to co-exist.
open.substack.com
November 2, 2025 at 3:11 AM
November is Lung Cancer Awareness Month. My new post explores the profound choice to live fiercely while facing a terminal diagnosis, born from a quiet moment in my cancer center. #LungCancerAwarenessMonth
#LungCancer #ALKPositive #Philosophy #Gratitude #LCAM2025 #CancerResearch
#LungCancer #ALKPositive #Philosophy #Gratitude #LCAM2025 #CancerResearch
Join the International Thoracic Oncology Nursing Forum for a free global webinar, Living Your Life with Lung Cancer, on 19 November.
Covering surgery, adjuvant therapy, nutrition and intimacy.
Register ow.ly/S71I50Xt0xZ
#LCAM2025 #LungCancerAwarenessMonth
Covering surgery, adjuvant therapy, nutrition and intimacy.
Register ow.ly/S71I50Xt0xZ
#LCAM2025 #LungCancerAwarenessMonth
November 18, 2025 at 6:41 PM
Join the International Thoracic Oncology Nursing Forum for a free global webinar, Living Your Life with Lung Cancer, on 19 November.
Covering surgery, adjuvant therapy, nutrition and intimacy.
Register ow.ly/S71I50Xt0xZ
#LCAM2025 #LungCancerAwarenessMonth
Covering surgery, adjuvant therapy, nutrition and intimacy.
Register ow.ly/S71I50Xt0xZ
#LCAM2025 #LungCancerAwarenessMonth
#FridayFacts: #LungCancerResearch saves lives! More treatments were developed in the past decade than in the 7 decades before. Let's keep that trend going! Find out how you can help: LCRF.org/LCAM. #LCAM2025
November 22, 2025 at 3:45 PM
#FridayFacts: #LungCancerResearch saves lives! More treatments were developed in the past decade than in the 7 decades before. Let's keep that trend going! Find out how you can help: LCRF.org/LCAM. #LCAM2025
5 Years of Long Covid: Cure Long Covid Now!
#LCAM2025 #InformEducateAdvocate #LongCovidAwarenessMonth
longcovidland.com/the-rambling...
#LCAM2025 #InformEducateAdvocate #LongCovidAwarenessMonth
longcovidland.com/the-rambling...
The Ramblings of the Dying
Every morning, I wake up in my bedroom in a care home, and for a second, I can remember the old me. The me without pain, the me with energy, the me who could do whatever I wanted. Then I’m shoved back...
longcovidland.com
March 1, 2025 at 3:17 PM
5 Years of Long Covid: Cure Long Covid Now!
#LCAM2025 #InformEducateAdvocate #LongCovidAwarenessMonth
longcovidland.com/the-rambling...
#LCAM2025 #InformEducateAdvocate #LongCovidAwarenessMonth
longcovidland.com/the-rambling...
This October, during #LCAM2025, we spotlight influential figures throughout history who have been diagnosed with #LiverCancer.
A powerful reminder that liver cancer can affect anyone and that awareness & action drive earlier detection and better outcomes.
A powerful reminder that liver cancer can affect anyone and that awareness & action drive earlier detection and better outcomes.
October 1, 2025 at 7:30 AM
This October, during #LCAM2025, we spotlight influential figures throughout history who have been diagnosed with #LiverCancer.
A powerful reminder that liver cancer can affect anyone and that awareness & action drive earlier detection and better outcomes.
A powerful reminder that liver cancer can affect anyone and that awareness & action drive earlier detection and better outcomes.
And you can see all Jacqui's Q&As with the co-leads of the TOURIST platform here - bit.ly/3K79I3P
#LungCancerAwarenessMonth #LCAM #LCAM2025 #LungCancer
@nihr.bsky.social @cruk-ci.bsky.social @unisouthampton.bsky.social @sheffielduni.bsky.social
#LungCancerAwarenessMonth #LCAM #LCAM2025 #LungCancer
@nihr.bsky.social @cruk-ci.bsky.social @unisouthampton.bsky.social @sheffielduni.bsky.social
Lung Cancer Awareness Month - The TOURIST Trial Platform Q&A
Lung Cancer Awareness Month - The TOURIST Trial Platform Q&A
bit.ly
November 26, 2025 at 4:46 PM
And you can see all Jacqui's Q&As with the co-leads of the TOURIST platform here - bit.ly/3K79I3P
#LungCancerAwarenessMonth #LCAM #LCAM2025 #LungCancer
@nihr.bsky.social @cruk-ci.bsky.social @unisouthampton.bsky.social @sheffielduni.bsky.social
#LungCancerAwarenessMonth #LCAM #LCAM2025 #LungCancer
@nihr.bsky.social @cruk-ci.bsky.social @unisouthampton.bsky.social @sheffielduni.bsky.social
From screening to survivorship - how far have we come in 20 years of #LungCancer campaigning, treatment & care?
Find out in our @newstatesman1913.bsky.social supplement, UK Lung Cancer. 20 Years On: What’s Next? www.newstatesman.com/sponsored/20...
Available now and at our conference.
#LCAM2025
Find out in our @newstatesman1913.bsky.social supplement, UK Lung Cancer. 20 Years On: What’s Next? www.newstatesman.com/sponsored/20...
Available now and at our conference.
#LCAM2025
November 3, 2025 at 9:17 AM
From screening to survivorship - how far have we come in 20 years of #LungCancer campaigning, treatment & care?
Find out in our @newstatesman1913.bsky.social supplement, UK Lung Cancer. 20 Years On: What’s Next? www.newstatesman.com/sponsored/20...
Available now and at our conference.
#LCAM2025
Find out in our @newstatesman1913.bsky.social supplement, UK Lung Cancer. 20 Years On: What’s Next? www.newstatesman.com/sponsored/20...
Available now and at our conference.
#LCAM2025