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purescience.news
Brain implants are helping people who’ve lost their voice #Science #TechnologyandEngineering #brainimplants #alsresearch #parkinsons #assistivetech #communicationaid

https://purescience.news/read?id=236487515584856064
Brain implants are helping people who’ve lost their voice
The technology could get those with ALS, Parkinson’s disease and brain injuries “talking” again.
purescience.news
October 15, 2026 at 11:31 PM
alsnewstoday.bsky.social
Researchers found that noninvasive electrical stimulation of the spinal cord improved motor function in two mouse models of ALS. In one model, the treatment also reduced the buildup of TDP-43: https://bit.ly/4i1y3Fa

#ALS #ALSResearch #ALSAwareness #Neuromodulation #ALSNewsToday #Bionews
Electrical spinal stimulation reduces toxic TDP-43 protein aggregates in preclinical ALS mouse models.
October 16, 2026 at 7:02 PM
insidephilanthropy.com
Arthur Blank’s foundation is putting new funding behind ALS research, clinical-trial access and efforts to understand why some groups, including pro football players, face elevated risk.

Connie Matthiessen(@cmatthiessen.bsky.social) Reports: tinyurl.com/yk5f4yy7

#ALSResearch #ArthurBlank #NFL
Why This NFL Owner Is Stepping Up for ALS Research
Pro football players are nearly four times more likely to develop the deadly motor neuron condition.
tinyurl.com
October 15, 2026 at 7:01 PM
laineymelnick.bsky.social
Dr. Cudkowicz is also connecting me with the ALS Research Collaborative (ARC) study, and I’ll see her again in six months. Grateful for her care and the opportunity to help move research forward. Next up blood labs for neurofilaments. 💙 #myalsjourney #ALSResearch #medicalmystery
October 13, 2026 at 6:27 PM
alsnewstoday.bsky.social
Artificial intelligence may offer a new way to identify genetic risk factors.

Read more about the research and its potential implications for ALS genetic testing: https://bit.ly/4zBbE8V

#ALS #ALSResearch #AmyotrophicLateralSclerosis #Genetics #ALSNewsToday #Bionews
News: new AI model predicts genetic ALS risk, distinguishing affected from unaffected and could complement genetic testing.
October 13, 2026 at 9:02 PM
chantellesephton.bsky.social
Happy to share our new preprint, led by Paul Dutchak! We explore RAPTOR-targeting ASOs to reduce dysregulated mTORC1 signaling in GATOR1-related epilepsy models, with relevance beyond epilepsy.

www.biorxiv.org/content/10.6...

#Neuroscience #mTOR #Epilepsy #ALSResearch
RAPTOR-targeted Antisense Oligonucleotides Restrict Pathological mTORC1 Activity in GATOR1-dependent Disease
Loss-of-function mutations in the GATOR1 complex (NPRL2, NPRL3, and DEPDC5) are among the most common genetic causes of epilepsy. These mutations impair amino acid-dependent regulation of mTORC1 and c...
www.biorxiv.org
October 9, 2026 at 7:20 PM
alsnewstoday.bsky.social
A computer-based analysis of whole-blood samples identified 10 genes with altered activity that researchers say may have potential as biomarkers for diagnosing and tracking ALS.

🔗 Read more: https://bit.ly/4hD5DRF

#ALS #ALSResearch #ALSNewsToday #Bionews
Researchers identified 10 altered genes as potential diagnostic and tracking biomarkers for ALS.
September 29, 2026 at 5:05 PM
alsnewstoday.bsky.social
A targeted treatment for a rare genetic form of ALS has met its main goal in a Phase 3 trial.

Read more: https://bit.ly/3TpqLCD

#ALS #ALSTreatment #ALSResearch #ALSNewsToday #Bionews
Headline: Targeted therapy may improve function, survival in FUS‑ALS; notes therapy targeting FUS mRNA improved outcomes.
September 25, 2026 at 5:31 PM
chemcenterbio.bsky.social
The Holy Grail of Brain Repair: Which BDNF Booster Wins?

Analyze how Semax and elite BDNF peptides stimulate rapid neuroplasticity in research models for animals.

#peptdes #AlzheimersResearch #autismresearch #parkinsons #alsresearch
September 25, 2026 at 1:09 AM
alsnewstoday.bsky.social
A woman with a progressive motor neuron disease was able to generate her own words in real time using an investigational brain-computer interface: https://bit.ly/475unNs

#ALS #ALSResearch #BrainComputerInterface #ALSNewsToday #Bionews
Brain–computer interface let a woman with motor neuron disease generate words in real time and speak via synthesized voice.
September 21, 2026 at 5:03 PM
alsnewstoday.bsky.social
A very different approach to ALS treatment is now entering an early-stage clinical trial 🔗 https://bit.ly/4xh5dGn

#ALS #ALSResearch #ClinicalTrials #ALSNewsToday #Bionews
Researchers testing a device that induces controlled fever to trigger heat‑shock response as a potential ALS treatment.
September 8, 2026 at 7:00 PM
alsnewstoday.bsky.social
A newer way of diagnosing ALS outperformed two long-used approaches in a real-world study, raising questions about how quickly some patients could be identified: https://bit.ly/3T7CSEm

#ALS #ALSResearch #ALSDiagnosis #ALSNewsToday #Bionews
Newer ALS diagnostic criteria are more sensitive than older approaches; study supports adopting Gold Coast criteria.
September 4, 2026 at 5:00 PM
www.undergroundusa.com
🔓 What would happen if failed drug trials, buried data, and abandoned compounds were finally opened for AI to search at scale?

www.undergroundusa.com/p/when-will-...

#AIforCures #ALSResearch #StopTheDelay #ALS #HelpALSPatients @everyone @followers
When Will AI Be Turned Loose on the Diseases We Still Can’t Cure?
An obvious question deserves considerable attention — and far less polite delay: When will the enormous computing power being assembled by the world’s leading AI companies be systematically directed t...
www.undergroundusa.com
September 4, 2026 at 5:18 PM
www.undergroundusa.com
🧠 If AI can write ads and movies overnight, why hasn’t that same computing power been aimed at ALS and the other diseases we still can’t cure?

www.undergroundusa.com/p/when-will-...

#AIforCures #ALSResearch #StopTheDelay #ALS #HelpALSPatients @everyone @followers
When Will AI Be Turned Loose on the Diseases We Still Can’t Cure?
An obvious question deserves considerable attention — and far less polite delay: When will the enormous computing power being assembled by the world’s leading AI companies be systematically directed t...
www.undergroundusa.com
September 3, 2026 at 5:21 PM
alsnewstoday.bsky.social
Living with ALS can take a major emotional toll, but a new Bionews survey found something researchers may not have expected: https://bit.ly/46152nn

#ALS #ALSMentalHealth #ALSResearch #ALSNewsToday #Bionews
Survey finds loneliness and regret drive mental struggles in ALS patients; urges routine emotional checks and tailored support.
September 1, 2026 at 5:00 PM
alsnewstoday.bsky.social
A $1 million grant from @alsassociation.bsky.social is backing the next step for an experimental ALS treatment that takes aim at a different piece of disease biology: how cells produce and manage energy: https://bit.ly/4xmx74J

#ALSResearch #ALSClinicalTrials #ALSNewsToday #Bionews
ALS Association awarded a $1 million grant to support a Phase 2 trial of MP-101 to improve mitochondrial function and energy
August 26, 2026 at 4:30 PM
alsnewstoday.bsky.social
Changes in a blood marker called NfL may offer important clues about how ALS is progressing and whether a treatment is providing clinical benefit: https://bit.ly/4gJPj27

#ALS #ALSResearch #NeurofilamentLightChain #ALSNewsToday #Bionews
NfL changes may predict treatment benefit in ALS; lower or stable levels linked to better survival and function.
August 21, 2026 at 5:03 PM
alsnewstoday.bsky.social
Workplace pesticide exposure may be associated with a higher risk of developing ALS, according to a systematic review and meta-analysis: https://bit.ly/4bZKbnY

#ALS #ALSResearch #PesticideExposure #ALSNewsToday #Bionews
Workplace pesticide exposure linked to increased ALS risk; herbicide exposure associated with up to 71% higher risk.
August 18, 2026 at 5:00 PM
alsnewstoday.bsky.social
A new ALS gene therapy significantly extended survival and improved motor and breathing function in a mouse model of SOD1-associated ALS: https://bit.ly/4hABnbM

#ALS #ALSResearch #GeneTherapy #ALSNewsToday #Bionews
One-time IV gene therapy greatly improves survival in an ALS model by shutting down the toxic SOD1 protein.
August 14, 2026 at 7:02 PM
synapticure.bsky.social
Where you live shouldn’t limit your access to treatments and clinical trials.

That’s why we are proud to lead the FIRST virtual clinical study via Clene's #ExpandedAccess Program

Learn more: www.synapticure.com/blog/increas...

#ALSAwareness #ALSResearch #EndALS
May 6, 2025 at 2:04 PM
lyleostrow.bsky.social
TODAY (WED Jan 22) at 4 PM PT | 7 PM ET - a free webinar featuring Molly Gale Hammell, Ph.D., Associate Professor at the Institute for Systems Genetics, NYU Langone Medical Center.

www.everythingals.org/events

#ALSResearch #NeurodegenerativeDiseases #FreeWebinar #Genomics #ALS
January 22, 2025 at 11:12 PM
alstdi.bsky.social
🔬 At ALS TDI, omics research is a key part of the ARC Study. Dr. Gwen Huynh, ALS TDI’s new Senior Data Scientist, shares how we explore potential causes, risk factors, and treatment avenues for ALS through omics data. www.als.net/news/omics-d... #ALSResearch #Omics #EndALS
February 13, 2025 at 3:23 PM
alstdi.bsky.social
Happy New Year from the team here at ALS TDI! als.net #EndALS #ALSResearch #2025
January 6, 2025 at 3:22 PM
lesturnerals.bsky.social
In October, we sponsored the annual meeting of the ALS/MND Natural History Consortium. The Les Turner ALS Center at Northwestern Medicine is one of 17 sites collecting data to help better understand ALS.

For more information, contact alsresearch@northwestern.edu
October 21, 2025 at 5:04 PM
lesturnerals.bsky.social
Genetic testing can provide answers for you and your family — from understanding risk to exploring future health care choices.

Learn more in our ALS & Genetic Counseling and Testing for Family Members Guide.

Read here: lesturnerals.org/als-genetic-...

#GeneticTesting #ALSSupport #ALSResearch
October 6, 2025 at 5:02 PM