Although freezing in these central TX parts, the winter storm officially hits tonight.
Forecast: snow, sleet, PTSD.
Last time, we were stranded for 4 days without power & water; my son was without his BIPAP.
Beto checked on us daily.
Ted was, well, y’know.
📷: @kaylan.bsky.social
Although freezing in these central TX parts, the winter storm officially hits tonight.
Forecast: snow, sleet, PTSD.
Last time, we were stranded for 4 days without power & water; my son was without his BIPAP.
Beto checked on us daily.
Ted was, well, y’know.
📷: @kaylan.bsky.social
Batten disease still sucks, but we’re thankful for the Mary Bridge Children’s Hospital staff!
Batten disease still sucks, but we’re thankful for the Mary Bridge Children’s Hospital staff!
- der Arzt empfiehlt eine BIPAP-Beatmung
- BIPAP Einstellung geht nur stationär
- ich kann, krankheitsbedingt, nicht in ein Krankenhaus
- ich habe Atemnot
- ich werde auch zukünftig Atemnot haben
#LongCovid #MECFS
- der Arzt empfiehlt eine BIPAP-Beatmung
- BIPAP Einstellung geht nur stationär
- ich kann, krankheitsbedingt, nicht in ein Krankenhaus
- ich habe Atemnot
- ich werde auch zukünftig Atemnot haben
#LongCovid #MECFS
anything helps!! 🙏
ko-fi.com/sakurabeam/g...
anything helps!! 🙏
ko-fi.com/sakurabeam/g...
I doubt his diaphragm is good for much
I doubt his diaphragm is good for much
Before this trial I’d stop at ~ 20 cmH20, and think about intubating if not improving
After this trial:
Now up to 30 cmH20 may safely avoid intubation
jamanetwork.com/journals/jam...