When Rob got diagnosed, the good people at Colontown told me not to google statistics - they no longer applied. Every 3 months he gets a blood test based off his initial tumor to determine if there is any cells running wild in his system.
It’s amazing. I’m grateful every day.
It’s amazing. I’m grateful every day.
The year I was born. we basically had no idea why cancers happened and now we understand the underlying force behind it with 100% clarity and the molecular forces behind it with many orders of magnitude more resolution.
We were entirely in the dark, and now the room is lit.
We were entirely in the dark, and now the room is lit.
August 24, 2025 at 1:48 AM
When Rob got diagnosed, the good people at Colontown told me not to google statistics - they no longer applied. Every 3 months he gets a blood test based off his initial tumor to determine if there is any cells running wild in his system.
It’s amazing. I’m grateful every day.
It’s amazing. I’m grateful every day.
Anyone here in Colontown? I'm in the Lynchville group there.
November 15, 2024 at 4:37 PM
Anyone here in Colontown? I'm in the Lynchville group there.
yep, we're looking at a heavy fecal burden in colontown
The spray-painted gold ornamentation is spreading like a cancer
September 2, 2025 at 8:22 PM
yep, we're looking at a heavy fecal burden in colontown
I came over here because of the repost. I shared it with the Billing Office page on Colontown Facebook. Cancer patients will appreciate your share💙
December 7, 2024 at 3:57 AM
I came over here because of the repost. I shared it with the Billing Office page on Colontown Facebook. Cancer patients will appreciate your share💙
Thrilled that the colontown poster at #GI25 presented by Julie Clauer generated some traffic!
The clinicians who stopped by & participated in our poll got a special sticker! Thank you so much for your interest & support for our work
@ascocancer.bsky.social #CRCSM #Biomarkers
The clinicians who stopped by & participated in our poll got a special sticker! Thank you so much for your interest & support for our work
@ascocancer.bsky.social #CRCSM #Biomarkers
January 26, 2025 at 3:00 AM
Thrilled that the colontown poster at #GI25 presented by Julie Clauer generated some traffic!
The clinicians who stopped by & participated in our poll got a special sticker! Thank you so much for your interest & support for our work
@ascocancer.bsky.social #CRCSM #Biomarkers
The clinicians who stopped by & participated in our poll got a special sticker! Thank you so much for your interest & support for our work
@ascocancer.bsky.social #CRCSM #Biomarkers
February 19, 2025 at 12:58 PM
The other day I was editing the transcript for this #DocTalk "Prognostication or Prophecy" by Dr. Briscoe in the #COLONTOWN University Lecture Hall.
If you haven't watched it please do so here learn.colontown.org/topic/progno...
While there check out the 70+ DocTalks we have on various topics
#CRCSM
If you haven't watched it please do so here learn.colontown.org/topic/progno...
While there check out the 70+ DocTalks we have on various topics
#CRCSM
Prognostication or prophecy: Dr. Briscoe - Colontown University
Dr. Joshua Briscoe of Duke, a palliative care and hospice physician, discusses how to come to terms with your health in the future. Recorded with Scientific Director Dr. Manju George in January, 2022....
learn.colontown.org
December 25, 2024 at 2:26 PM
The other day I was editing the transcript for this #DocTalk "Prognostication or Prophecy" by Dr. Briscoe in the #COLONTOWN University Lecture Hall.
If you haven't watched it please do so here learn.colontown.org/topic/progno...
While there check out the 70+ DocTalks we have on various topics
#CRCSM
If you haven't watched it please do so here learn.colontown.org/topic/progno...
While there check out the 70+ DocTalks we have on various topics
#CRCSM
I'm terribly sorry. I was diagnosed stage 4 8.5 years ago -- just days after my 44th birthday. Stage 4 is no longer an automatic terminal diagnosis. I have been NED for 6 years. It cost me a lung lobe, but I'm still avidly running and cycling. If you haven't, already, check out colontown.org
Home - COLONTOWN
COLONTOWN is an online community of more than 100 private support groups for colorectal cancer patients and carepartners. Log in Sign up Find your people! Join our COLONTOWN online groups community F...
colontown.org
August 15, 2025 at 4:27 PM
I'm terribly sorry. I was diagnosed stage 4 8.5 years ago -- just days after my 44th birthday. Stage 4 is no longer an automatic terminal diagnosis. I have been NED for 6 years. It cost me a lung lobe, but I'm still avidly running and cycling. If you haven't, already, check out colontown.org
Whatever your test results, don't do it alone. There are great support groups online that will get you through it, or celebrate with you. My favorite is Colontown, currently on Facebook.
February 12, 2025 at 3:59 PM
Whatever your test results, don't do it alone. There are great support groups online that will get you through it, or celebrate with you. My favorite is Colontown, currently on Facebook.
We surveyed colontown members asking to share their #biomarker testing experience through a 46 question online survey. See below for more details.
#CRCSM #ASCOGI25 #GI25 2/n
#CRCSM #ASCOGI25 #GI25 2/n
January 26, 2025 at 4:53 AM
We surveyed colontown members asking to share their #biomarker testing experience through a 46 question online survey. See below for more details.
#CRCSM #ASCOGI25 #GI25 2/n
#CRCSM #ASCOGI25 #GI25 2/n
I recently gave a doc talk for COLONTOWN on tumor immunology and immunotherapies like BOT/BAL, highlighting our first-line investigator initiated trial in MSS CRC. Appreciate the invitation to speak and opportunity to listen to patient/supporter questions!
learn.colontown.org/topic/botbal...
learn.colontown.org/topic/botbal...
BOT+BAL trial for MSS CRC: Dr. DeVito - Colontown University
In this DocTalk, Dr. Nicholas DeVito broke down the promising 1L BOT + BAL trial and explained the current state of immunotherapy for MSS colorectal cancer. Recorded in June, 2025. https://youtu.be/Kw...
learn.colontown.org
July 8, 2025 at 12:17 AM
I recently gave a doc talk for COLONTOWN on tumor immunology and immunotherapies like BOT/BAL, highlighting our first-line investigator initiated trial in MSS CRC. Appreciate the invitation to speak and opportunity to listen to patient/supporter questions!
learn.colontown.org/topic/botbal...
learn.colontown.org/topic/botbal...
Renamed the recurring chemotherapy appointment in my calendar to "Do some hardcore drugs" to make it sound more fun.
Next up: inventing some The Wire-style street names for Oxaliplatin and Fluorouracil and trying them out over on the Colontown message boards.
Next up: inventing some The Wire-style street names for Oxaliplatin and Fluorouracil and trying them out over on the Colontown message boards.
June 15, 2026 at 12:00 PM
Renamed the recurring chemotherapy appointment in my calendar to "Do some hardcore drugs" to make it sound more fun.
Next up: inventing some The Wire-style street names for Oxaliplatin and Fluorouracil and trying them out over on the Colontown message boards.
Next up: inventing some The Wire-style street names for Oxaliplatin and Fluorouracil and trying them out over on the Colontown message boards.
Where I share my musings about the #gut #microbiome and armchair #oncology ( here's some word salad: #colorectal #cancer #CRC #colontown #fiber #fibre)
open.substack.com/pub/gracehen...
open.substack.com/pub/gracehen...
Armchair Oncology
Some people earn their degrees from Dr. Google
open.substack.com
January 28, 2025 at 12:44 AM
Where I share my musings about the #gut #microbiome and armchair #oncology ( here's some word salad: #colorectal #cancer #CRC #colontown #fiber #fibre)
open.substack.com/pub/gracehen...
open.substack.com/pub/gracehen...
LOLOLOLOL well he might get to keep it! Rob did! Not all chemo makes you lose your hair. Apparently this is one of them!
If you haven’t checked it out already, you should look into colontown! It really helped us navigate this stupid stupid thing.
If you haven’t checked it out already, you should look into colontown! It really helped us navigate this stupid stupid thing.
March 3, 2026 at 4:30 AM
LOLOLOLOL well he might get to keep it! Rob did! Not all chemo makes you lose your hair. Apparently this is one of them!
If you haven’t checked it out already, you should look into colontown! It really helped us navigate this stupid stupid thing.
If you haven’t checked it out already, you should look into colontown! It really helped us navigate this stupid stupid thing.
Excited to learn from this awesome panel at #AACR2025 as we talk about EO Cancers & their rising rates
As an early onset #colorectalcancer survivor & as someone who sees the impact of #EOCRC daily in #COLONTOWN, we need more concerted efforts to reduce the burden of EOCRC worldwide.
lnkd.in/drM7X2PS
As an early onset #colorectalcancer survivor & as someone who sees the impact of #EOCRC daily in #COLONTOWN, we need more concerted efforts to reduce the burden of EOCRC worldwide.
lnkd.in/drM7X2PS
April 25, 2025 at 5:41 PM
Excited to learn from this awesome panel at #AACR2025 as we talk about EO Cancers & their rising rates
As an early onset #colorectalcancer survivor & as someone who sees the impact of #EOCRC daily in #COLONTOWN, we need more concerted efforts to reduce the burden of EOCRC worldwide.
lnkd.in/drM7X2PS
As an early onset #colorectalcancer survivor & as someone who sees the impact of #EOCRC daily in #COLONTOWN, we need more concerted efforts to reduce the burden of EOCRC worldwide.
lnkd.in/drM7X2PS
Please check out the colontown poster at #GI25 presented by Julie on #Biomarker test results communication!
Pl do come by to say hello..
And we have a poll for you as well to find out what sort of a test result communicator you are!! Don’t miss it!
#CRCSM
Pl do come by to say hello..
And we have a poll for you as well to find out what sort of a test result communicator you are!! Don’t miss it!
#CRCSM
January 23, 2025 at 6:47 PM
Please check out the colontown poster at #GI25 presented by Julie on #Biomarker test results communication!
Pl do come by to say hello..
And we have a poll for you as well to find out what sort of a test result communicator you are!! Don’t miss it!
#CRCSM
Pl do come by to say hello..
And we have a poll for you as well to find out what sort of a test result communicator you are!! Don’t miss it!
#CRCSM
Thanks to Colontown, who recently hosted me for a DocTalk on bispecific antibodies in metastatic colorectal cancer:
nam11.safelinks.protection.outlook.com?url=https%3A...
nam11.safelinks.protection.outlook.com?url=https%3A...
Emerging Bispecific Antibody Treatment Strategies in Advanced Colorectal Cancer: Dr. DeVito (2026)
In this DocTalk, Dr. Nicholas DeVito from Duke Cancer Institute talks to us about the new treatment everyone is excited about: bispecific antibodies. Watch this DocTalk to learn more! If you are a stage 4 CRC patient and are interested in clinical trials--by the way, there are clinical trials with bispecific antibodies and standard of care chemo therapy for newly diagnosed patients-- This DocTalk is a must-watch! Subscribe to the Paltown Channel, so you'll be the 1st to hear about new Doctalks! Visit Colontown University Lecture Hall for other DocTalks https://learn.colontown.org/learningcenter/lecture-hall/
nam11.safelinks.protection.outlook.com
July 6, 2026 at 9:23 PM
Thanks to Colontown, who recently hosted me for a DocTalk on bispecific antibodies in metastatic colorectal cancer:
nam11.safelinks.protection.outlook.com?url=https%3A...
nam11.safelinks.protection.outlook.com?url=https%3A...
learn.colontown.org/topic/what-i...
POLYPS MAY BECOME COLON CANCER. IN VETERANS, IT WOULD BE AGGRESSIVE, TYPICALLY FATAL WITHIN A YEAR, SO WE BETTER GET ALL COLON POLYPS OUT FOR BIOPSIES, WITH A 5 MM CLEAR, CANCER-FREE MARGIN. IF THERE ARE TOO MANY POLYPS, GET THE 5MM, BIGGER POLYPS OUT.
POLYPS MAY BECOME COLON CANCER. IN VETERANS, IT WOULD BE AGGRESSIVE, TYPICALLY FATAL WITHIN A YEAR, SO WE BETTER GET ALL COLON POLYPS OUT FOR BIOPSIES, WITH A 5 MM CLEAR, CANCER-FREE MARGIN. IF THERE ARE TOO MANY POLYPS, GET THE 5MM, BIGGER POLYPS OUT.
What is a colonoscopy? - Colontown University
Colonoscopies are used to detect changes or abnormalities in the lining of your colon and rectum — abnormalities that can result in colorectal cancer over
learn.colontown.org
December 24, 2024 at 11:18 AM
learn.colontown.org/topic/what-i...
POLYPS MAY BECOME COLON CANCER. IN VETERANS, IT WOULD BE AGGRESSIVE, TYPICALLY FATAL WITHIN A YEAR, SO WE BETTER GET ALL COLON POLYPS OUT FOR BIOPSIES, WITH A 5 MM CLEAR, CANCER-FREE MARGIN. IF THERE ARE TOO MANY POLYPS, GET THE 5MM, BIGGER POLYPS OUT.
POLYPS MAY BECOME COLON CANCER. IN VETERANS, IT WOULD BE AGGRESSIVE, TYPICALLY FATAL WITHIN A YEAR, SO WE BETTER GET ALL COLON POLYPS OUT FOR BIOPSIES, WITH A 5 MM CLEAR, CANCER-FREE MARGIN. IF THERE ARE TOO MANY POLYPS, GET THE 5MM, BIGGER POLYPS OUT.
Grateful to colontown members for their willingness to share their #biomarker testing experiences & Julie’s brilliance in creating the survey questions & figures! We hope clinicians find the patient perspectives shared here useful.
#CRCSM #GI25
#CRCSM #GI25
January 26, 2025 at 5:10 AM
Grateful to colontown members for their willingness to share their #biomarker testing experiences & Julie’s brilliance in creating the survey questions & figures! We hope clinicians find the patient perspectives shared here useful.
#CRCSM #GI25
#CRCSM #GI25
For each question, Julie& I had recommendations for clinicians.
For example, in our survey in colontown 31% of respondents indicated that "nothing was discussed" about #BiomarkerTesting before testing was done.
Our recommendation? see 💡below.
#CRCSM #GI25 5/n
For example, in our survey in colontown 31% of respondents indicated that "nothing was discussed" about #BiomarkerTesting before testing was done.
Our recommendation? see 💡below.
#CRCSM #GI25 5/n
January 26, 2025 at 4:56 AM
For each question, Julie& I had recommendations for clinicians.
For example, in our survey in colontown 31% of respondents indicated that "nothing was discussed" about #BiomarkerTesting before testing was done.
Our recommendation? see 💡below.
#CRCSM #GI25 5/n
For example, in our survey in colontown 31% of respondents indicated that "nothing was discussed" about #BiomarkerTesting before testing was done.
Our recommendation? see 💡below.
#CRCSM #GI25 5/n
Here is the respondent profile. In colontown, our membership is skewed towards stage IV or metastatic #CRC & this is reflected in this poll as well. 44% of patients were seen at an NCI cancer center.
#CRCSM #BiomarkerTesting @ASCO #GI25 3/n
#CRCSM #BiomarkerTesting @ASCO #GI25 3/n
January 26, 2025 at 4:54 AM
Here is the respondent profile. In colontown, our membership is skewed towards stage IV or metastatic #CRC & this is reflected in this poll as well. 44% of patients were seen at an NCI cancer center.
#CRCSM #BiomarkerTesting @ASCO #GI25 3/n
#CRCSM #BiomarkerTesting @ASCO #GI25 3/n
In @colontown, we have people posting their biomarker test results regularly asking what they mean. This made @cagirlinchi & I wonder how results of biomarker testing is communicated to patients. This poster is the result of our inquiry into this.
#BiomarkerTesting #CRCSM 1/n
#BiomarkerTesting #CRCSM 1/n
January 26, 2025 at 4:52 AM
In @colontown, we have people posting their biomarker test results regularly asking what they mean. This made @cagirlinchi & I wonder how results of biomarker testing is communicated to patients. This poster is the result of our inquiry into this.
#BiomarkerTesting #CRCSM 1/n
#BiomarkerTesting #CRCSM 1/n
www.mendelspod.com/p/renowned-g... Thank you for the great podcast on MRD testing in #colorectalcancer, Dr. Mark Lewis! And for the shoutout to COLONTOWN!
Renowned GI Oncologist Discusses MRD Testing and the Future of Cancer Detection
In this episode, Dr. Lewis joins Theral in our ongoing series on minimal residual disease (MRD) testing, a revolutionary blood test that is helping detect residual cancer causing a paradigm shift in p...
www.mendelspod.com
November 22, 2024 at 4:15 PM
www.mendelspod.com/p/renowned-g... Thank you for the great podcast on MRD testing in #colorectalcancer, Dr. Mark Lewis! And for the shoutout to COLONTOWN!