#CSHCN
Check out our C.A.P.E & Home Ventilator Program video. #CCI #CSHCN #CareCoordination #PedsICU #Outcomes #ComplexCare #Hospital@Home #LTV
June 11, 2026 at 11:40 PM
PRB @prbdata.bsky.social

Nationwide, >60% of children with special health care needs have conditions that regularly affect their ability to do the same things as other kids.

Our new @kidsdata.bsky.social blog provides crucial insights on daily life for #CSHCN & their families: bit.ly/3Gp9Rh2
July 18, 2025 at 7:27 PM
Acute on Chronic Respiratory Event Score - CHEST Pulmonary www.chestpulmonary.org/article/S294... #ACRES a new clinical and research tool for standardizing assessment of children/young adults on home ventilators. #CCI #CSHCN #Peds #Hospital@Home
Acute on Chronic Respiratory Event Score
Children with tracheostomy and home ventilation (HV) are at high risk of morbidity and mortality from acute respiratory infections (ARIs).1,2 American Thoracic Society guidelines have helped optimize ...
www.chestpulmonary.org
March 29, 2026 at 8:12 PM
10.1007/s10882-023-09936-2
Dr. Sobotka a great #CCI / #CSHCN #advocate highlighting complex #MedicalParenting
June 6, 2025 at 8:05 PM
Thrilled that we could highlight #CCI / #CMC / #CSHCN and the role the #PedsICU has in improving care and outcomes for these children and their families.
February 26, 2025 at 2:03 AM
JMIR Public Health: #Vaccine Hesitancy and Associated Factors Among Caregivers of Children With Special Health Care Needs in the #COVID19 #coronavirus Era in China: Cross-Sectional Study
#Vaccine Hesitancy and Associated Factors Among Caregivers of Children With Special Health Care Needs in the #COVID19 #coronavirus Era in China: Cross-Sectional Study
Background: Immunization is a highly cost-effective strategy for preventing and eliminating infectious diseases in children. However, caregivers' hesitancy toward #Vaccines may lead to insufficient #Vaccination coverage. Notably, caregivers of children with special health care needs (CSHCN) exhibit a relatively higher level of #Vaccine hesitancy than caregivers of healthy children. The outbreak of the #COVID19 #coronavirus pandemic may disturb children's immunization. Little is known about the hesitancy of caregivers of CSHCN before, during, and after the #COVID19 #coronavirus pandemic. Objective: To investigate the changes in caregivers’ #Vaccination hesitation of children with special health care needs (CSHCN) before, during, and after the #COVID19 #coronavirus pandemic in China, and to identify associated factors for caregivers’ attitudes towards National Immunization Program (NIP) and non-NIP #Vaccines. Methods: We included 7770 caregivers of CSHCN under the age of 18 years who visited the #Vaccination consultation clinic in the Children’s Hospital, Zhejiang University School of Medicine (Hangzhou, China) from May 2017 to May 2023. General and clinical information was extracted from the immunization evaluation system for CSHCN and medical records. We used Chi-square tests to compare the differences in caregivers’ willingness and hesitation to #Vaccinate their children across the three stages of the #COVID19 #coronavirus pandemic. Multinomial logistic regression models were employed to identify independent variables associated with caregivers’ willingness and hesitation towards NIP and non-NIP #Vaccines. Results: During the #COVID19 #coronavirus pandemic, the percentages of choosing NIP, alternative non-NIP, and non-NIP #Vaccines are higher (26.03%, 57.37%, and 62.73%, respectively) than those at the other two stages. In comparison, caregivers’ hesitation towards NIP and non-NIP #Vaccines is lowest (16.60% and 37.27%, respectively). Despite the stages of the #COVID19 #coronavirus pandemic, multiple factors, including children’s age and gender, parents’ educational level, comorbidities, and history of allergy, were significantly associated with caregivers’ attitudes towards NIP and non-NIP #Vaccines (p values
dlvr.it
March 26, 2025 at 8:26 PM
State leaders are reimagining long-term care – from rural access to family caregiving support.

At #NASHPCONF2025, don’t miss sessions on:
– Aging, Disability & CSHCN
– Home- and Community-Based Services
– Health in Rural America

📅 Sept. 8–10 | 🌐 nashp.org/conference
June 25, 2025 at 7:22 PM
Telemedicine effective in care for children with special healthcare needs - FierceHealthIT: #CSHCN...
December 1, 2024 at 12:04 PM
JAMA Health Forum on Variability in Insurance Adequacy for CSHCN Covered by Medicaid

Medicaid is the primary insurer for nearly half of CSHCN, however there is substantial variability in the quality and continuity of coverage across states.

jamanetwork.com/journals/jam...
Variability in Insurance Adequacy for Children With Special Health Care Needs on Medicaid
This survey study quantifies state-to-state variation and predictors of Medicaid insurance continuity and adequacy among children with special health care needs.
jamanetwork.com
February 6, 2026 at 5:04 PM
For family members who continue working, health insurance often keeps them in their jobs. An estimated 18% of California CSHCN and 14% nationwide had someone in their family who avoided changing jobs in the previous year due to concerns about maintaining coverage.
www.kidsdata.org/blog/?p=11313
Spotlight on Children With Special Health Care Needs (Part 5): 10 Ways Health Conditions Impact Kids and Families « Data Points
www.kidsdata.org
July 31, 2025 at 6:12 PM
The share of California CSHCN who missed 11 or more school days in the previous year due to illness or injury was 19%—around 5.5 times higher than the share of children without special health care needs.

Learn more in our June blog: www.kidsdata.org/blog/?p=11313
Spotlight on Children With Special Health Care Needs (Part 5): 10 Ways Health Conditions Impact Kids and Families « Data Points
www.kidsdata.org
July 1, 2025 at 2:19 AM
Although a vast majority of children with special health care needs (CSHCN) in CA (96%) were consistently insured in 2022—meaning they were covered during all 12 months of the prior year—only 59% of CSHCN had *adequate* health insurance, compared w 71% of children without special health care needs.
Spotlight on Children With Special Needs (Part 4): Quality of Care « Data Points
www.kidsdata.org
August 9, 2024 at 9:26 PM
When sick, California CSHCN covered only by public health insurance were more likely to use the emergency room or to have no usual source of care (25%) than those w private insurance (14%). Privately insured CSHCN are more likely to have a doctor’s office or usual source of care to turn to when ill.
Spotlight on Children With Special Needs (Part 3): A Look at Access to Care « Data Points
www.kidsdata.org
May 31, 2024 at 2:14 PM
Mental health conditions are common among children with special health care needs (CSHCN).
According to 2022 data, 51% of CA CSHCN ages 3-17 had 1+ diagnosed mental health conditions—ADHD, anxiety, behavior/conduct problems, or depression—compared w ~5% of their peers.
www.kidsdata.org/blog/?p=11068
Spotlight on Children With Special Needs (Part 2): Who Are California’s Children With Special Health Care Needs? « Data Points
www.kidsdata.org
April 5, 2024 at 6:05 PM
Children w special health care needs (CSHCN) are more likely to have multiple adverse childhood experiences (ACEs) than their peers. The share of CSHCN who have experienced 4+ ACEs is more than 5X that of children without special health care needs.
www.kidsdata.org/blog/?p=11068
Spotlight on Children With Special Needs (Part 2): Who Are California’s Children With Special Health Care Needs? « Data Points
www.kidsdata.org
April 4, 2024 at 12:41 AM
In a series starting this month, KidsData News is examining the data on CSHCN and their families to understand who they are, their strengths, and the challenges they face.
Read Part 1 here:
In California & across the US, around 1 in 5 children with special health care needs (CSHCN) with health visits in the previous year did not receive family-centered care, according to recent data.
Read more here:
www.kidsdata.org/blog/?p=11056
Spotlight on Children With Special Needs (Part 1): Family-Centered Care « Data Points
www.kidsdata.org
March 1, 2024 at 6:14 PM
In California & across the US, around 1 in 5 children with special health care needs (CSHCN) with health visits in the previous year did not receive family-centered care, according to recent data.
Read more here:
www.kidsdata.org/blog/?p=11056
Spotlight on Children With Special Needs (Part 1): Family-Centered Care « Data Points
www.kidsdata.org
March 1, 2024 at 6:13 PM
Every child with special health care needs (CSHCN*) deserves family-centered, consistent, high qualityhealth care.

#CYSHCN #MedicalHome
#Resources #FVAL

familyvoicesal.org/resources-do...
August 7, 2025 at 4:50 PM