EHDN-Endorsed Study: AMT-130 (uniQure)
On 29 Sept, uniQure announced additional data from its ongoing phase 1/2 studies, comparing updated 36-month and 48-month outcomes with propensity score-matched external controls: uniqure.gcs-web.com/news-release...
#HuntingtonsDisease #ClinicalResearch
On 29 Sept, uniQure announced additional data from its ongoing phase 1/2 studies, comparing updated 36-month and 48-month outcomes with propensity score-matched external controls: uniqure.gcs-web.com/news-release...
#HuntingtonsDisease #ClinicalResearch
uniqure.gcs-web.com
September 30, 2026 at 12:05 PM
EHDN-Endorsed Study: AMT-130 (uniQure)
On 29 Sept, uniQure announced additional data from its ongoing phase 1/2 studies, comparing updated 36-month and 48-month outcomes with propensity score-matched external controls: uniqure.gcs-web.com/news-release...
#HuntingtonsDisease #ClinicalResearch
On 29 Sept, uniQure announced additional data from its ongoing phase 1/2 studies, comparing updated 36-month and 48-month outcomes with propensity score-matched external controls: uniqure.gcs-web.com/news-release...
#HuntingtonsDisease #ClinicalResearch
Tominersen: GENERATION HD2 Results and Key Learnings, will take place on Tuesday, 29 September 2026, 16:00–17:30 CEST via Zoom. Find out more and register at: ehdn.org/ehdn-platfor...
#HuntingtonsDisease
#HuntingtonsDisease
September 11, 2026 at 9:52 AM
Tominersen: GENERATION HD2 Results and Key Learnings, will take place on Tuesday, 29 September 2026, 16:00–17:30 CEST via Zoom. Find out more and register at: ehdn.org/ehdn-platfor...
#HuntingtonsDisease
#HuntingtonsDisease
Last week in Colombia, Asun Martinez, from the EHDN/MDS-ES Fellowship Programme and former Lanco met with Elisabeth Castro from Venezuela, who completed an internship in Barcelona this year. Learn more about this program at: ehdn.org/pt/hd-clinic...
#EnrollHD
#HuntingtonsDisease
#EnrollHD
#HuntingtonsDisease
September 10, 2026 at 9:20 AM
Last week in Colombia, Asun Martinez, from the EHDN/MDS-ES Fellowship Programme and former Lanco met with Elisabeth Castro from Venezuela, who completed an internship in Barcelona this year. Learn more about this program at: ehdn.org/pt/hd-clinic...
#EnrollHD
#HuntingtonsDisease
#EnrollHD
#HuntingtonsDisease
Applications open: Joint Fellowship Program for Huntington’s Disease Training https://loom.ly/AIH8-Bg
Joint Fellowship Program for Huntington’s Disease Training
The European Huntington’s Disease Network (EHDN) in collaboration with the International Parkinson and Movement Disorder Society- European Section (MDS-ES) is launching a joint Fellowship Exchange Programme in Huntington’s disease (HD-FEP)
www.movementdisorders.org
September 3, 2026 at 1:04 PM
Applications open: Joint Fellowship Program for Huntington’s Disease Training https://loom.ly/AIH8-Bg
🗳️ EHDN Elections 2026
Regular EHDN members can vote for the Executive Committee and Scientific & Bioethics Advisory Committee until 19 October 2026.
👉 VOTE NOW! Your vote helps shape the future of EHDN.
Results will be announced at the EHDN Clinical Research Congress in Kraków.
Regular EHDN members can vote for the Executive Committee and Scientific & Bioethics Advisory Committee until 19 October 2026.
👉 VOTE NOW! Your vote helps shape the future of EHDN.
Results will be announced at the EHDN Clinical Research Congress in Kraków.
September 1, 2026 at 6:40 PM
🗳️ EHDN Elections 2026
Regular EHDN members can vote for the Executive Committee and Scientific & Bioethics Advisory Committee until 19 October 2026.
👉 VOTE NOW! Your vote helps shape the future of EHDN.
Results will be announced at the EHDN Clinical Research Congress in Kraków.
Regular EHDN members can vote for the Executive Committee and Scientific & Bioethics Advisory Committee until 19 October 2026.
👉 VOTE NOW! Your vote helps shape the future of EHDN.
Results will be announced at the EHDN Clinical Research Congress in Kraków.
Upcoming EHDN Platform Meeting: Peter McColgan (Roche) will present GENERATION HD2 results & key learnings - the Phase 2 tominersen trial in #HuntingtonDisease.
📅 29 Sept, 16:00–17:30 CEST 📍 Zoom
Further information & registration link to follow - stay tuned
📅 29 Sept, 16:00–17:30 CEST 📍 Zoom
Further information & registration link to follow - stay tuned
August 26, 2026 at 12:30 PM
Upcoming EHDN Platform Meeting: Peter McColgan (Roche) will present GENERATION HD2 results & key learnings - the Phase 2 tominersen trial in #HuntingtonDisease.
📅 29 Sept, 16:00–17:30 CEST 📍 Zoom
Further information & registration link to follow - stay tuned
📅 29 Sept, 16:00–17:30 CEST 📍 Zoom
Further information & registration link to follow - stay tuned
📢 EHDN/MDS (ES) Fellowship 2027 Applications Open in One Week!
Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease
Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease
August 26, 2026 at 10:28 AM
📢 EHDN/MDS (ES) Fellowship 2027 Applications Open in One Week!
Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease
Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease
Upcoming EHDN Platform Meeting: Peter McColgan (Roche) will present GENERATION HD2 results & key learnings - the Phase 2 tominersen trial in #HuntingtonDisease.
📅 29 Sept, 16:00–17:30 CEST 📍 Zoom
Further information & registration link to follow - stay tuned
📅 29 Sept, 16:00–17:30 CEST 📍 Zoom
Further information & registration link to follow - stay tuned
August 26, 2026 at 10:15 AM
Upcoming EHDN Platform Meeting: Peter McColgan (Roche) will present GENERATION HD2 results & key learnings - the Phase 2 tominersen trial in #HuntingtonDisease.
📅 29 Sept, 16:00–17:30 CEST 📍 Zoom
Further information & registration link to follow - stay tuned
📅 29 Sept, 16:00–17:30 CEST 📍 Zoom
Further information & registration link to follow - stay tuned
It’s a different time isn’t it ehdn you watch the documentaries of films, and it seems a real long way back in history, but when you think I was born not long before🤷♂️ I mean 10 or 20 years is nothing now.
August 18, 2026 at 6:23 PM
It’s a different time isn’t it ehdn you watch the documentaries of films, and it seems a real long way back in history, but when you think I was born not long before🤷♂️ I mean 10 or 20 years is nothing now.
📢 EHDN/MDS (ES) Fellowship 2027
Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease #Training
Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease #Training
August 18, 2026 at 2:07 PM
📢 EHDN/MDS (ES) Fellowship 2027
Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease #Training
Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease #Training
📢 EHDN/MDS (ES) Fellowship 2027
Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease #Training
Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease #Training
fellowship programme – European Huntington's Disease Network
ehdn.org
August 18, 2026 at 6:48 AM
📢 EHDN/MDS (ES) Fellowship 2027
Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease #Training
Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe.
Further information: ehdn.org/hd-clinician...
Questions? ✉️ fellowship@ehdn.org
#HuntingtonsDisease #Training
Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there!
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
August 11, 2026 at 11:07 AM
Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there!
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there!
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
August 10, 2026 at 12:46 PM
Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there!
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
EHDN Clinical Research Congress registration extended to 14 Aug!
22–24 Oct 2026, Kraków
🧬 Treatment pipeline: biomarkers to access
📋 Trial updates & regulatory perspectives
🔬 Latest scientific advances
🗣️ Community perspectives
Register: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease
22–24 Oct 2026, Kraków
🧬 Treatment pipeline: biomarkers to access
📋 Trial updates & regulatory perspectives
🔬 Latest scientific advances
🗣️ Community perspectives
Register: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease
August 6, 2026 at 12:46 PM
EHDN Clinical Research Congress registration extended to 14 Aug!
22–24 Oct 2026, Kraków
🧬 Treatment pipeline: biomarkers to access
📋 Trial updates & regulatory perspectives
🔬 Latest scientific advances
🗣️ Community perspectives
Register: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease
22–24 Oct 2026, Kraków
🧬 Treatment pipeline: biomarkers to access
📋 Trial updates & regulatory perspectives
🔬 Latest scientific advances
🗣️ Community perspectives
Register: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease
🧬 WHAT IS EHDN ENDORSEMENT?
More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants.
📰 Read more: ehdn.org/wp-content/u...
#HuntingtonsDisease #ClinicalResearch
More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants.
📰 Read more: ehdn.org/wp-content/u...
#HuntingtonsDisease #ClinicalResearch
August 4, 2026 at 10:42 AM
🧬 WHAT IS EHDN ENDORSEMENT?
More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants.
📰 Read more: ehdn.org/wp-content/u...
#HuntingtonsDisease #ClinicalResearch
More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants.
📰 Read more: ehdn.org/wp-content/u...
#HuntingtonsDisease #ClinicalResearch
🧬 WHAT IS EHDN ENDORSEMENT?
More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants.
📰 Read more: ehdn.org/wp-content/u...
#HuntingtonsDisease #ClinicalResearch #DrugDevelopment
More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants.
📰 Read more: ehdn.org/wp-content/u...
#HuntingtonsDisease #ClinicalResearch #DrugDevelopment
August 4, 2026 at 6:17 AM
🧬 WHAT IS EHDN ENDORSEMENT?
More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants.
📰 Read more: ehdn.org/wp-content/u...
#HuntingtonsDisease #ClinicalResearch #DrugDevelopment
More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants.
📰 Read more: ehdn.org/wp-content/u...
#HuntingtonsDisease #ClinicalResearch #DrugDevelopment
🗳️ EHDN Elections 2026 are open! Vote for the Executive Committee & Scientific and Bioethics Advisory Committee, now until 19 Oct.
Your vote shapes how EHDN drives Huntington's disease research, trials & care.
Vote: ehdn.genolive.de/index.php?pa...
#HuntingtonsDisease #EHDN
Your vote shapes how EHDN drives Huntington's disease research, trials & care.
Vote: ehdn.genolive.de/index.php?pa...
#HuntingtonsDisease #EHDN
July 31, 2026 at 11:11 AM
🗳️ EHDN Elections 2026 are open! Vote for the Executive Committee & Scientific and Bioethics Advisory Committee, now until 19 Oct.
Your vote shapes how EHDN drives Huntington's disease research, trials & care.
Vote: ehdn.genolive.de/index.php?pa...
#HuntingtonsDisease #EHDN
Your vote shapes how EHDN drives Huntington's disease research, trials & care.
Vote: ehdn.genolive.de/index.php?pa...
#HuntingtonsDisease #EHDN
Meet Charlotte Spearing – HD advocate, caregiver & EHDN's first young adult Exec Committee rep, changing how we talk about HD.
📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u...
#HuntingtonsDisease #RareDisease
📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u...
#HuntingtonsDisease #RareDisease
July 28, 2026 at 4:07 PM
Meet Charlotte Spearing – HD advocate, caregiver & EHDN's first young adult Exec Committee rep, changing how we talk about HD.
📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u...
#HuntingtonsDisease #RareDisease
📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u...
#HuntingtonsDisease #RareDisease
Meet Charlotte Spearing – HD advocate, caregiver & EHDN's first young adult Exec Committee rep, changing how we talk about HD.
📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u...
#HuntingtonsDisease #RareDisease
📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u...
#HuntingtonsDisease #RareDisease
July 27, 2026 at 7:06 AM
Meet Charlotte Spearing – HD advocate, caregiver & EHDN's first young adult Exec Committee rep, changing how we talk about HD.
📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u...
#HuntingtonsDisease #RareDisease
📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u...
#HuntingtonsDisease #RareDisease
In a couple of years, he'll be 90. He is the Establishment and was office ehdn I was baby.
July 26, 2026 at 3:02 PM
In a couple of years, he'll be 90. He is the Establishment and was office ehdn I was baby.
📢 Registration for the EHDN Clinical Research Congress 2026! Join clinicians, scientists, advocates, and families in Krakow, 22–24 October, for updates across Huntington’s disease research, clinical development, clinical trials, regulatory perspectives, and community collaboration ehdn.org/ehdn2026/
July 21, 2026 at 12:53 PM
📢 Registration for the EHDN Clinical Research Congress 2026! Join clinicians, scientists, advocates, and families in Krakow, 22–24 October, for updates across Huntington’s disease research, clinical development, clinical trials, regulatory perspectives, and community collaboration ehdn.org/ehdn2026/
📢 EHDN’s Occupational Therapy WG has published updated Clinical Tips for Huntington’s Disease – Seating and Lying, plus is developing new Community Mobility Tips (inc. driving) – bringing them to the EHDN Clinical Research Congress in Krakow, 22-24 Oct. Get involved: ehdn.org/occupational...
July 21, 2026 at 12:46 PM
📢 EHDN’s Occupational Therapy WG has published updated Clinical Tips for Huntington’s Disease – Seating and Lying, plus is developing new Community Mobility Tips (inc. driving) – bringing them to the EHDN Clinical Research Congress in Krakow, 22-24 Oct. Get involved: ehdn.org/occupational...
📢 EHDN's Occupational Therapy WG has published updated Clinical Tips for Huntington's Disease – Seating and Lying, plus is developing new Community Mobility Tips (inc. driving) — bringing them to the EHDN Clinical Research Congress in Krakow, 22-24 Oct. Get involved: ehdn.org/occupational...
July 20, 2026 at 7:48 AM
📢 EHDN's Occupational Therapy WG has published updated Clinical Tips for Huntington's Disease – Seating and Lying, plus is developing new Community Mobility Tips (inc. driving) — bringing them to the EHDN Clinical Research Congress in Krakow, 22-24 Oct. Get involved: ehdn.org/occupational...
📢 Invite: HEATED Task Force meeting at EHDN Clinical Research Congress (Kraków, 22-24 Oct).
All welcome - people with HD, families, researchers, industry & more.
More info: ehdn.org/ehdn-heated-...
Congress: ehdn.org/ehdn2026/
Registration closes 31 July!
#HuntingtonsDisease
All welcome - people with HD, families, researchers, industry & more.
More info: ehdn.org/ehdn-heated-...
Congress: ehdn.org/ehdn2026/
Registration closes 31 July!
#HuntingtonsDisease
July 16, 2026 at 8:32 AM
📢 Invite: HEATED Task Force meeting at EHDN Clinical Research Congress (Kraków, 22-24 Oct).
All welcome - people with HD, families, researchers, industry & more.
More info: ehdn.org/ehdn-heated-...
Congress: ehdn.org/ehdn2026/
Registration closes 31 July!
#HuntingtonsDisease
All welcome - people with HD, families, researchers, industry & more.
More info: ehdn.org/ehdn-heated-...
Congress: ehdn.org/ehdn2026/
Registration closes 31 July!
#HuntingtonsDisease
EHDN team at East Midlands HD Network event
Jenny Townhill (EHDN & Cardiff University) presented on current clinical trials in Huntington's disease at the East Midlands HD Network event in Leicester, 11 July. The network is led by Sarah Gunn, Flaviano Giorgini & Reza Kiani (University of Leicester)
Jenny Townhill (EHDN & Cardiff University) presented on current clinical trials in Huntington's disease at the East Midlands HD Network event in Leicester, 11 July. The network is led by Sarah Gunn, Flaviano Giorgini & Reza Kiani (University of Leicester)
July 15, 2026 at 9:30 AM
EHDN team at East Midlands HD Network event
Jenny Townhill (EHDN & Cardiff University) presented on current clinical trials in Huntington's disease at the East Midlands HD Network event in Leicester, 11 July. The network is led by Sarah Gunn, Flaviano Giorgini & Reza Kiani (University of Leicester)
Jenny Townhill (EHDN & Cardiff University) presented on current clinical trials in Huntington's disease at the East Midlands HD Network event in Leicester, 11 July. The network is led by Sarah Gunn, Flaviano Giorgini & Reza Kiani (University of Leicester)