In a couple of years, he'll be 90. He is the Establishment and was office ehdn I was baby.
July 26, 2026 at 3:02 PM
In a couple of years, he'll be 90. He is the Establishment and was office ehdn I was baby.
December 18, 2025 at 5:11 PM
Hot off the press! Check out the second edition of the @ehdn-news.bsky.social Imaging Working Group (#iWG) newsletter! #HD #neuroimaging @drmichelaleocadi.bsky.social @rachiscahill.bsky.social @nicolahobbs.bsky.social ehdn.org/wp-content/u...
ehdn.org
April 1, 2025 at 1:56 PM
Hot off the press! Check out the second edition of the @ehdn-news.bsky.social Imaging Working Group (#iWG) newsletter! #HD #neuroimaging @drmichelaleocadi.bsky.social @rachiscahill.bsky.social @nicolahobbs.bsky.social ehdn.org/wp-content/u...
Mä ehdn kans laittaa palautetta kun vitutti aamulla lukea.
February 11, 2025 at 11:37 AM
Mä ehdn kans laittaa palautetta kun vitutti aamulla lukea.
*Statement from EHDN Chairs on uniQure’s Topline Results*
EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:
ehdn.org/statement-fr...
#Huntingtons
EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:
ehdn.org/statement-fr...
#Huntingtons
Statement from EHDN Chairs on uniQure’s Topline Results – European Huntington's Disease Network
ehdn.org
September 30, 2025 at 9:33 AM
*Statement from EHDN Chairs on uniQure’s Topline Results*
EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:
ehdn.org/statement-fr...
#Huntingtons
EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130:
ehdn.org/statement-fr...
#Huntingtons
The November issue of EHDN News is online!
Highlights include coverage of EHDN & Enroll-HD 2024 and an interview with the amazing Anne Rosser.
#HuntingtonsDisease #HDCommunity #RareDisease #ClinicalResearch
PM or email newsletter@euro-hd.net with your comments and views!
Highlights include coverage of EHDN & Enroll-HD 2024 and an interview with the amazing Anne Rosser.
#HuntingtonsDisease #HDCommunity #RareDisease #ClinicalResearch
PM or email newsletter@euro-hd.net with your comments and views!
November 26, 2024 at 1:31 PM
The November issue of EHDN News is online!
Highlights include coverage of EHDN & Enroll-HD 2024 and an interview with the amazing Anne Rosser.
#HuntingtonsDisease #HDCommunity #RareDisease #ClinicalResearch
PM or email newsletter@euro-hd.net with your comments and views!
Highlights include coverage of EHDN & Enroll-HD 2024 and an interview with the amazing Anne Rosser.
#HuntingtonsDisease #HDCommunity #RareDisease #ClinicalResearch
PM or email newsletter@euro-hd.net with your comments and views!
Thread post 3/3:
This 2nd sequence was done in 2010. Even made a video on this one, too - www.youtube.com/watch?v=EHdN...
There was supposed to be a 3rd sequence, but I gave up on making it due to burnout and distractions. One of these days I should consider remaking these sequences, or something.
This 2nd sequence was done in 2010. Even made a video on this one, too - www.youtube.com/watch?v=EHdN...
There was supposed to be a 3rd sequence, but I gave up on making it due to burnout and distractions. One of these days I should consider remaking these sequences, or something.
November 20, 2024 at 6:54 PM
Thread post 3/3:
This 2nd sequence was done in 2010. Even made a video on this one, too - www.youtube.com/watch?v=EHdN...
There was supposed to be a 3rd sequence, but I gave up on making it due to burnout and distractions. One of these days I should consider remaking these sequences, or something.
This 2nd sequence was done in 2010. Even made a video on this one, too - www.youtube.com/watch?v=EHdN...
There was supposed to be a 3rd sequence, but I gave up on making it due to burnout and distractions. One of these days I should consider remaking these sequences, or something.
Our latest issue of EHDN News brings a wealth of updates from across EHDN and the wider #HDcommunity. Highlights include the Path4HD-ISS2 initiative and the latest developments from EHDN-endorsed studies as well as Enroll-HD and HDClarity: ehdn.org/wp-content/u...
#HuntingtonsDisease
#Research
#HuntingtonsDisease
#Research
March 2, 2026 at 9:33 AM
Our latest issue of EHDN News brings a wealth of updates from across EHDN and the wider #HDcommunity. Highlights include the Path4HD-ISS2 initiative and the latest developments from EHDN-endorsed studies as well as Enroll-HD and HDClarity: ehdn.org/wp-content/u...
#HuntingtonsDisease
#Research
#HuntingtonsDisease
#Research
EHDN is hosting a Platform Meeting in collaboration with HDYO and EHA titled 𝑢𝑛𝑖𝑄𝑢𝑟𝑒 𝑡𝑜𝑝𝑙𝑖𝑛𝑒 𝑟𝑒𝑠𝑢𝑙𝑡𝑠: 𝑢𝑛𝑝𝑎𝑐𝑘𝑖𝑛𝑔 𝑡𝘩𝑒 𝑜𝑢𝑡𝑐𝑜𝑚𝑒 𝑠𝑜 𝑓𝑎𝑟 on 𝟏𝟖 𝐍𝐨𝐯𝐞𝐦𝐛𝐞𝐫 at 𝟏𝟕:𝟎𝟎-𝟏𝟖:𝟑𝟎 𝐂𝐄𝐓.
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Welcome! You are invited to join a webinar: EHDN Platform meeting in collaboration with HDYO and EHA - uniQure topline results: Unpacking the outcomes so far. After registering, you will receive a con...
We would like to invite you to our upcoming EHDN Platform Meeting in collaboration with HDYO and EHA. UniQure topline results: unpacking the outcome so far.
The Platform Meeting will take place on Tu...
lnkd.in
October 27, 2025 at 7:02 PM
EHDN is hosting a Platform Meeting in collaboration with HDYO and EHA titled 𝑢𝑛𝑖𝑄𝑢𝑟𝑒 𝑡𝑜𝑝𝑙𝑖𝑛𝑒 𝑟𝑒𝑠𝑢𝑙𝑡𝑠: 𝑢𝑛𝑝𝑎𝑐𝑘𝑖𝑛𝑔 𝑡𝘩𝑒 𝑜𝑢𝑡𝑐𝑜𝑚𝑒 𝑠𝑜 𝑓𝑎𝑟 on 𝟏𝟖 𝐍𝐨𝐯𝐞𝐦𝐛𝐞𝐫 at 𝟏𝟕:𝟎𝟎-𝟏𝟖:𝟑𝟎 𝐂𝐄𝐓.
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Here's the first one I did: www.youtube.com/watch?v=ehDN...
I don't know if the other recordings ever got uploaded
I don't know if the other recordings ever got uploaded
FM2022 - Um... Actually Furry Edition
YouTube video by Fur the More
www.youtube.com
December 1, 2024 at 6:25 AM
Here's the first one I did: www.youtube.com/watch?v=ehDN...
I don't know if the other recordings ever got uploaded
I don't know if the other recordings ever got uploaded
Rétro time🚘 le temps passe si vite , c'était hier ... Maxine Singleton ''You Can't Run from Love'' www.youtube.com/watch?v=eHdn... 🎶🎵🎵🎵🎵🎶🎶🎶🎶
November 5, 2025 at 6:04 PM
Rétro time🚘 le temps passe si vite , c'était hier ... Maxine Singleton ''You Can't Run from Love'' www.youtube.com/watch?v=eHdn... 🎶🎵🎵🎵🎵🎶🎶🎶🎶
📰 The 58th issue of EHDN News is out now!
Inside: EHDN Elections 2026 (vote by 19 Oct), a preview of #EHDN2026 in Kraków, the 100th Lesley Jones Seed Fund award, and an interview with Charlotte Spearing on changing the conversation around #HuntingtonsDisease.
Read it here: ehdn.org/ehdn-newslet...
Inside: EHDN Elections 2026 (vote by 19 Oct), a preview of #EHDN2026 in Kraków, the 100th Lesley Jones Seed Fund award, and an interview with Charlotte Spearing on changing the conversation around #HuntingtonsDisease.
Read it here: ehdn.org/ehdn-newslet...
July 1, 2026 at 9:29 AM
📰 The 58th issue of EHDN News is out now!
Inside: EHDN Elections 2026 (vote by 19 Oct), a preview of #EHDN2026 in Kraków, the 100th Lesley Jones Seed Fund award, and an interview with Charlotte Spearing on changing the conversation around #HuntingtonsDisease.
Read it here: ehdn.org/ehdn-newslet...
Inside: EHDN Elections 2026 (vote by 19 Oct), a preview of #EHDN2026 in Kraków, the 100th Lesley Jones Seed Fund award, and an interview with Charlotte Spearing on changing the conversation around #HuntingtonsDisease.
Read it here: ehdn.org/ehdn-newslet...
Another interesting day at the #EHDN2024 European Huntington Disease network meeting, in Strasbourg. This morning we have lectures about current and coming clinical trials. #huntingtonsdisease
September 13, 2024 at 8:41 AM
Another interesting day at the #EHDN2024 European Huntington Disease network meeting, in Strasbourg. This morning we have lectures about current and coming clinical trials. #huntingtonsdisease
The EHDN Platform Meeting 𝐮𝐧𝐢𝐐𝐮𝐫𝐞 𝐭𝐨𝐩𝐥𝐢𝐧𝐞 𝐫𝐞𝐬𝐮𝐥𝐭𝐬: 𝐮𝐧𝐩𝐚𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐨𝐮𝐭𝐜𝐨𝐦𝐞𝐬 𝐬𝐨 𝐟𝐚𝐫 took place on 18 November. We are very grateful to our amazing speakers and panellists.
Catch up by watching the recording: www.youtube.com/watch?v=wKj1...
& reading the full report:
ehdn.org/wp-content/u...
Catch up by watching the recording: www.youtube.com/watch?v=wKj1...
& reading the full report:
ehdn.org/wp-content/u...
December 2, 2025 at 5:45 PM
The EHDN Platform Meeting 𝐮𝐧𝐢𝐐𝐮𝐫𝐞 𝐭𝐨𝐩𝐥𝐢𝐧𝐞 𝐫𝐞𝐬𝐮𝐥𝐭𝐬: 𝐮𝐧𝐩𝐚𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐨𝐮𝐭𝐜𝐨𝐦𝐞𝐬 𝐬𝐨 𝐟𝐚𝐫 took place on 18 November. We are very grateful to our amazing speakers and panellists.
Catch up by watching the recording: www.youtube.com/watch?v=wKj1...
& reading the full report:
ehdn.org/wp-content/u...
Catch up by watching the recording: www.youtube.com/watch?v=wKj1...
& reading the full report:
ehdn.org/wp-content/u...
Morbus Huntington-Ambulanz in Bonn ist neuer Erhebungsort für internationale „ENROLL-HD-Studie“
Morbus Huntington ist immer noch unheilbar: Menschen mit der erblichen Nervenerkrankung leiden jahrelang etwa unter Bewegungsstörungen und zune...
weiterlesen
Morbus Huntington ist immer noch unheilbar: Menschen mit der erblichen Nervenerkrankung leiden jahrelang etwa unter Bewegungsstörungen und zune...
weiterlesen
January 2, 2025 at 8:44 AM
Morbus Huntington-Ambulanz in Bonn ist neuer Erhebungsort für internationale „ENROLL-HD-Studie“
Morbus Huntington ist immer noch unheilbar: Menschen mit der erblichen Nervenerkrankung leiden jahrelang etwa unter Bewegungsstörungen und zune...
weiterlesen
Morbus Huntington ist immer noch unheilbar: Menschen mit der erblichen Nervenerkrankung leiden jahrelang etwa unter Bewegungsstörungen und zune...
weiterlesen
In just over an hour, join @kertrats.bsky.social and @brandiwine.bsky.social over on YouTube in the #UnreadyRoom as they discuss ep 4 of #StarTrek #Discovery, Face the Change AKA Time Bug. Bring comments and questions. www.youtube.com/watch?v=eHdn...
April 20, 2024 at 4:56 PM
In just over an hour, join @kertrats.bsky.social and @brandiwine.bsky.social over on YouTube in the #UnreadyRoom as they discuss ep 4 of #StarTrek #Discovery, Face the Change AKA Time Bug. Bring comments and questions. www.youtube.com/watch?v=eHdn...
Excited to announce that we have been successfully awarded the @ehdn-news.bsky.social EHDN Lesley Jones Seed Fund Program 🎉 Using this fund, we will explore the possibility that transposable elements, normally silent parts of the human genome, become activated in brain cells in Huntington's disease!
March 20, 2026 at 2:35 PM
Excited to announce that we have been successfully awarded the @ehdn-news.bsky.social EHDN Lesley Jones Seed Fund Program 🎉 Using this fund, we will explore the possibility that transposable elements, normally silent parts of the human genome, become activated in brain cells in Huntington's disease!
Date for your diaries!
EHDN Webinar 'Deep Brain Stimulation against Chorea in HD: Results and Reflections' by Prof Dr Jan Vesper: 31 March @16:00 CET, chaired by Prof Anne Rosser.
All are very welcome to attend.
More info: ehdn.org/deep-brain-s...
Registration: us06web.zoom.us/webinar/regi...
EHDN Webinar 'Deep Brain Stimulation against Chorea in HD: Results and Reflections' by Prof Dr Jan Vesper: 31 March @16:00 CET, chaired by Prof Anne Rosser.
All are very welcome to attend.
More info: ehdn.org/deep-brain-s...
Registration: us06web.zoom.us/webinar/regi...
Welcome! You are invited to join a webinar: EHDN Platform meeting - Deep Brain Stimulation against Chorea in HD: Results and Reflections. After registering, you will receive a confirmation email about...
Deep brain stimulation (DBS) is a well-established and safe approach for treating movement disorders such as Parkinson’s disease, dystonia, and tremor. But could it also be a viable option for managin...
us06web.zoom.us
March 17, 2025 at 9:36 AM
Date for your diaries!
EHDN Webinar 'Deep Brain Stimulation against Chorea in HD: Results and Reflections' by Prof Dr Jan Vesper: 31 March @16:00 CET, chaired by Prof Anne Rosser.
All are very welcome to attend.
More info: ehdn.org/deep-brain-s...
Registration: us06web.zoom.us/webinar/regi...
EHDN Webinar 'Deep Brain Stimulation against Chorea in HD: Results and Reflections' by Prof Dr Jan Vesper: 31 March @16:00 CET, chaired by Prof Anne Rosser.
All are very welcome to attend.
More info: ehdn.org/deep-brain-s...
Registration: us06web.zoom.us/webinar/regi...
@ehdn-news.bsky.social
Abstract submission for the EHDN Clinical Research Congress has been extended to 5 July. Poster presentations are a great opportunity to showcase your work to peers and to connect, collaborate, and engage across the #HuntingtonsDisease community: ehdn.org/ehdn2026/
Abstract submission for the EHDN Clinical Research Congress has been extended to 5 July. Poster presentations are a great opportunity to showcase your work to peers and to connect, collaborate, and engage across the #HuntingtonsDisease community: ehdn.org/ehdn2026/
July 1, 2026 at 9:28 AM
@ehdn-news.bsky.social
Abstract submission for the EHDN Clinical Research Congress has been extended to 5 July. Poster presentations are a great opportunity to showcase your work to peers and to connect, collaborate, and engage across the #HuntingtonsDisease community: ehdn.org/ehdn2026/
Abstract submission for the EHDN Clinical Research Congress has been extended to 5 July. Poster presentations are a great opportunity to showcase your work to peers and to connect, collaborate, and engage across the #HuntingtonsDisease community: ehdn.org/ehdn2026/
Listen to our latest podcast! www.youtube.com/watch?v=fEg4...
The HEATED (Huntington’s Equal Access to Effective Drugs) Task Force - EHDN Newletter #1
YouTube video by European Huntington's Disease Network
www.youtube.com
July 1, 2025 at 8:45 AM
Listen to our latest podcast! www.youtube.com/watch?v=fEg4...
Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there!
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
August 10, 2026 at 12:46 PM
Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there!
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
Register here: na.eventscloud.com/ereg/index.p...
#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch