#EMsfc
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apresj20.bsky.social
🧵#CovidLong et #EMsfc, une réalité alarmante qui émerge enfin sous les projecteurs.

🔗 www.republik.ch/2025/01/08/l...
January 8, 2025 at 3:39 PM
nantigone.bsky.social
Première sortie depuis 8 jours : 10 minutes avec canne pour voir le printemps urbain et les Magnolias 🩷

#photography
#UnJourUnePhotographie
#EMSFC
March 21, 2025 at 5:51 PM
macala0902.bsky.social
#MEcfs
#EMsfc
#pwME
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · 7d
🧵
Being awake when others are asleep, being asleep when others are awake, feeling exhausted but not sleepy, waking up several times a night, waking up in the morning feeling unrefreshed...sleep dysfunction manifests in countless ways in ME/CFS

www.meresearch.org.uk/the-experien...

#MEcfs #PwME
1/
What sleep dysfunction in ME/CFS feels like Responses from ME Research UK Symptom Saturday Sleep Dysfunction Survey INFORM. INFLUENCE. INVEST.
September 22, 2026 at 9:34 AM
macala0902.bsky.social
#EMsfc
#MEcfs
#EncefalomielitisMiálgica
emergeaustralia.bsky.social Emerge Australia @emergeaustralia.bsky.social · Apr 14
ME/CFS Awareness Week 2025: May 6-12. Exciting events including a new podcast season, Journalism Awards, and an online Symposium on May 7 at 2pm AEST.

Register today - vist.ly/3mzt9fk. Stay tuned for more details!
April 14, 2025 at 5:35 AM
nantigone.bsky.social
#Challengephoto a day
2025 - 07 février

G comme Glauque
#fmspad

#photography
#bnw
#EMSFC
Salle d'attente médicale extérieure peu avenante. Photo en noir et blanc
February 7, 2025 at 9:13 AM
nantigone.bsky.social
#FensterFreitag #WindowFriday

Dehors Dedans

#Photography
#Emsfc
Fenêtres dans une salle d'attente médicale
January 31, 2025 at 11:23 AM
voxem.bsky.social
#EMSFC #MECFS #EncéphalomyélitMyalgique #severeME #EMsévère #voxEM
June 9, 2026 at 1:04 PM
macala0902.bsky.social
#EncefalomielitisMiálgica
#EMsfc
#12DAY
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · May 10
I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses.

Unlike Covid lockdowns, the lockdowns we have dealt with for years due to #ME continue

#May12 #MEcfs #PwME
MISSING Photo of Tom Kindlon TOM K ME/CFS SINCE 1989 MISSING FROM: GRADUATING, SPORTS, WORKING, INDEPENDENCE & LIVING IN MY OWN PLACE, TRIPS ABROAD, RELATIONSHIPS, CAREFREE LIVING WITHOUT DOZENS OF SYMPTOMS #MILLIONSMISSING #EMERGEAUSTRALIA #MECFS
May 11, 2025 at 7:23 AM
voxem.bsky.social
#MECFS #EMSFC
April 4, 2026 at 6:01 PM
nantigone.bsky.social
#ChallengePhotoADay
#fmspad

J comme Jaune

#photography
#EMSFC
Chaises jaune dans une salle d'attente médicale. Le mur derrière les chaises est vert soutenu.
February 10, 2025 at 8:14 AM
nantigone.bsky.social
#Challengephoto a day
2025 03 février

C comme Canne qui me permet l'équilibre...
et l'économie d'énergie.

#fmspad
#photography
#EMSFC
Canne en équilibre sur des attaches vélos
February 3, 2025 at 8:29 AM
nantigone.bsky.social
#UnJourUnePhoto
#February

21/02
Mouillé
Dans la salle d'attente.

#EMSFC
Salle d'attente médicale. 2 fauteuils beiges et un parapluie marron mouillé
February 21, 2025 at 8:25 AM
nantigone.bsky.social
Challenge photo a day 2025
30 janvier

To my left
À l'envers, à l'engauche

#fmspad
#photography
#EMSFC
January 30, 2025 at 10:15 AM
nantigone.bsky.social
#UnJourUnePhoto
#Photobruary
27 février

Beau.
La Lozère

(Comme avant l'Encéphalomyelite Myalgique, et que je pouvais encore partir en vacances)

#Photography
#EMSFC
Vue panoramique sur la Lozère un jour d'été au ciel bleu.
February 27, 2025 at 8:23 AM
nofutureforme.bsky.social
#EMSFC #mecfs #covidlong #longcovid
satcha.bsky.social Satcha EM @satcha.bsky.social · Mar 10
"Aucun traitement, maltraitance et abus médicaux"

L'encéphalomyélite myalgique rendue visible lors de la manif pour les droits des femmes le 8 mars à Paris 💜💙

1/2

#mecfs #encephalomyelitemyalgique #emsfc #SevereME #maladiechronique #handicap #féminisme
Manifestation, place de la République à Paris. Il fait beau. Une personne portant un masque rouge, tient une grande pancarte devant elle sur laquelle il est écrit à la main : Encéphalomyélite myalgique Millions de malades abandonné·e·s 75 % de femmes 700 000 en France Reconnue maladie neurologique par l'OMS depuis 1969 Aucun traitement, maltraitances et abus médicaux
March 11, 2025 at 7:26 AM
nofutureforme.bsky.social
Lancement du second module de formation pour médecins du NHS sur l'#EMSFC ....En France on attend toujours le 1er....
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Jan 26
NHS England Launches the Second E-learning Module on ME/CFS!

Links:
www.e-lfh.org.uk/programmes/m...
meassociation.org.uk/2025/01/nhs-...

Discussion thread:
www.s4me.info/threads/nhs-...

Image from latest Science for ME update

#MEcfs #CFS
NHS England ME Association article: NHS England Launches the Second E-learning Module on ME/CFS! "This is the second of a three-part series of continuing professional development (CPD) resources. The final module will be about severe and very severe ME/CFS and is expected by the end of April." The module focuses mainly on diagnosis, management and support. NHS England module | MEA article | Thread
January 26, 2025 at 8:26 PM
macala0902.bsky.social
#EMsfc
#MEcfs
#EncefalomielitisMiálgica
#PEM
rippermd41.bsky.social The Real McCoy @rippermd41.bsky.social · Dec 9
Oh dear lord

Someone posted the handouts they received about pacing at a pain rehab clinic and 😬

Choice quotes:

“The key is to stick to the plan on a good day (when pain or discomfort is low) and on a bad day (when pain or discomfort is higher).”

#MECFS
December 9, 2025 at 11:24 AM
macala0902.bsky.social
#EMsfc
#MEcfs
#PEM
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · Jun 1
#MECFS & #LongCOVID are complex, but they share a unique feature called #PEM: a flare of symptoms after physical or even cognitive activity, like reading a complicated article or a thread imitating the style of one of your favorite news journalists.
#JohnVsJonVsME
@lastweektonight1.bsky.social
John Oliver has been white and male-presenting this whole time. He is yet again wearing spectacles and a (different) suit, sits to the right of a screen within which we, through the magic of Canva, have placed the PEM graphic from the Concise Clinical Review on ME/CFS in Mayo Clinic Proceedings.
October 24, 2025 at 5:53 AM
nantigone.bsky.social
#unjourunephoto
#photomarch

07/03 : Porte
(Grille/Barrière)

#Photography
#EMSFC
Porte orange de salle d'attente médicale en gris plan et mur bleu/vert
March 7, 2025 at 12:22 PM
macala0902.bsky.social
#pwME
#EMsfc
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Feb 19
“They are among the most underserved patient communities in the UK. The
sickest lie in darkened rooms, sometimes unable to move, speak or even
swallow. Those living with the most extreme forms of ME describe it as
not a life but a bare existence”
#MEcfs #PwME
roberthmcmullen.bsky.social Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social · Feb 18
Comment article in The Times by @helenmorganlibdem.bsky.social

“Plan to help ME sufferers has been delayed for too long
new. Ministers must show that care and research for these neglected patients is a priority.”

www.thetimes.com/comment/colu...

Archive: archive.ph/a3iYo

Thank you, Helen.
February 19, 2025 at 3:12 PM
nantigone.bsky.social
Challenge photo a Day
#fmspad
#UnJourUnePhoto
#photobruary

1er Février
Lettre A et Rouge

Comme Attente avec la petite chaise Rouge

#photography
#EMSFC
Attente dans une salle d'attente seule avec une petite chaise rouge dans une petite pièce au mur gris.
February 1, 2025 at 8:33 AM
macala0902.bsky.social
Documental
#pwME
#EMsfc
#LongCovid
medidier.bsky.social Didier @medidier.bsky.social · Feb 17
"Arte TV will broadcast Chronically Ill – Chronically Ignored on 25 February 2025 at 10.35pm CET. Dahrendorf has not been able to confirm with the broadcaster, but hopes Arte TV will add the documentary to its Youtube channel, with English subtitles in due course"

Thank you. Save the date.
thecanaryuk.bsky.social The Canary @thecanaryuk.bsky.social · Feb 17
'Chronically Ill - Chronically Ignored': a new documentary on ME/CFS

Investigative documentary Chronically Ill - Chronically Ignored is set to give voice to the ME/CFS community in a groundbreaking piece of work #ChronicIllness #MEcfs #Disability
www.thecanary.co/global/world...
February 18, 2025 at 9:48 AM
nantigone.bsky.social
Challenge photo a Day
#fmspad
1er Février

Lettre A
Comme Attente

#photography
#EMSFC
Porte orange de salle d'attente et mur vert. Sur la porte est écrit en blanc salle d'attente
February 1, 2025 at 8:25 AM
acafssc.bsky.social
💜 Reconnectem?
Comencem el curs 2026-27: més de 40 punts d’atenció i suport a 21 comarques, activitats presencials arreu del territori i un ampli programa online.
Trobar-nos, compartir i teixir vincles continua sent essencial.
Més info: fibromialgia.cat
📩 acaf@fibromialgia.cat
#fibromiàlgia #EMSFC
September 28, 2026 at 9:18 AM
voxem.bsky.social
Vaccination Covid possible du 20 avril au 30 juin.

Bien que cette campagne ne cible que les "personnes très à risque", tout le monde peut développer un #CovidLong, et parmi ses manifestations, une #EMSFC.

Ne pas hésiter à contacter différentes pharmacies pour accéder au vaccin "hors cible".
associationarra.bsky.social ARRA - Association pour la Réduction des Risques Aéroportés @associationarra.bsky.social · Apr 12
La campagne "de printemps" de vaccin Covid ouvre du 20 avril au 30 juin. Elle est ciblée en direction des personnes « très à risques ». Et en effet, elles doivent être protégées d’un virus qui tue toujours davantage que les accidents de la route.

1/10

#CovidIsNotOver
#VaccinCovid
April 12, 2026 at 12:05 PM