Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 29, 2026 at 11:20 AM
October 12, 2025 at 10:11 AM
November 21, 2024 at 6:42 PM
Montreal City News: 'Montreal researchers make key discovery in chronic fatigue syndrome'
'The research team utilized and investigated the role of a protein called SMPDL3B as a therapeutic target.'
montreal.citynews.ca/2025/07/25/m...
'The research team utilized and investigated the role of a protein called SMPDL3B as a therapeutic target.'
montreal.citynews.ca/2025/07/25/m...
Montreal researchers make key discovery in chronic fatigue syndrome
Montreal researchers say they’ve made a breakthrough discovery in understanding a poorly understood illness – chronic fatigue syndrome – which has significant ties to post-COVID symptoms. Université d...
montreal.citynews.ca
July 27, 2025 at 1:03 PM
June 3, 2026 at 4:18 PM
December 13, 2025 at 8:18 AM
Thirty-six years ago today. The Gazette, Montreal, Canada. 15th November 1988. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 15, 2024 at 12:04 PM
Thirty-six years ago today. The Gazette, Montreal, Canada. 15th November 1988. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
December 22, 2023 at 1:03 PM
The Times, Shreveport, US. 28th February 2024. #longcovid #cfsme #myalgicencephalomyelitis #myalgice
February 28, 2025 at 10:18 PM
The Times, Shreveport, US. 28th February 2024. #longcovid #cfsme #myalgicencephalomyelitis #myalgice
December 17, 2023 at 7:36 PM
1) We’ve just published our review of the most interesting ME/CFS studies of 2025.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
December 30, 2025 at 5:15 PM
@georgemonbiot.bsky.social was on top form tallking about ME on @natashadevon.bsky.social
Packed a lot of important info in: Pace Trial, GET harms, benefit cuts, insurance etc. It was like a potted history and didn't mince words about how awful it is.
Listen back! #MEcfs
#MyalgicEncephalomyelitis
Packed a lot of important info in: Pace Trial, GET harms, benefit cuts, insurance etc. It was like a potted history and didn't mince words about how awful it is.
Listen back! #MEcfs
#MyalgicEncephalomyelitis
September 26, 2026 at 6:52 PM
@georgemonbiot.bsky.social was on top form tallking about ME on @natashadevon.bsky.social
Packed a lot of important info in: Pace Trial, GET harms, benefit cuts, insurance etc. It was like a potted history and didn't mince words about how awful it is.
Listen back! #MEcfs
#MyalgicEncephalomyelitis
Packed a lot of important info in: Pace Trial, GET harms, benefit cuts, insurance etc. It was like a potted history and didn't mince words about how awful it is.
Listen back! #MEcfs
#MyalgicEncephalomyelitis
. @georgemonbiot.bsky.social & @natashadevon.bsky.social discussing #MECFS on LBC earlier.
This clip is from his closing comments, which I thought were very powerful.
Actually, I burst into tears 😭
Thank you both 💙 #MyalgicEncephalomyelitis
#GreatestMEdicalScandal #LongCovid
This clip is from his closing comments, which I thought were very powerful.
Actually, I burst into tears 😭
Thank you both 💙 #MyalgicEncephalomyelitis
#GreatestMEdicalScandal #LongCovid
September 26, 2026 at 7:23 PM
. @georgemonbiot.bsky.social & @natashadevon.bsky.social discussing #MECFS on LBC earlier.
This clip is from his closing comments, which I thought were very powerful.
Actually, I burst into tears 😭
Thank you both 💙 #MyalgicEncephalomyelitis
#GreatestMEdicalScandal #LongCovid
This clip is from his closing comments, which I thought were very powerful.
Actually, I burst into tears 😭
Thank you both 💙 #MyalgicEncephalomyelitis
#GreatestMEdicalScandal #LongCovid
@cgatist.bsky.social
@meassociation.org.uk
@actionforme.bsky.social
#prime26 #PRIMEsymposium #pwme #me/cfs #mecfs #MyalgicEncephalomyelitis #buildingcapacity
@meassociation.org.uk
@actionforme.bsky.social
#prime26 #PRIMEsymposium #pwme #me/cfs #mecfs #MyalgicEncephalomyelitis #buildingcapacity
September 28, 2026 at 8:49 AM
January 25, 2026 at 7:31 AM
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
July 31, 2025 at 9:42 PM
Scientific Director Jaime Seltzer @exceedhergrasp1.bsky.social reporting live (virtually) from the NIH From Mechanisms to Medicine conference.
#pwME #MyalgicEncephalomyelitis #MECFS #LongCovid #ChronicIllness #NIH
#pwME #MyalgicEncephalomyelitis #MECFS #LongCovid #ChronicIllness #NIH
Starting talk reporting here!
Opening: Amy Adams of NINDS wonders if the same "butler did it" in each of the multi-system diseases covered by the conference.
Adams discusses her appreciation for people with lived experience,the "true experts", hopes to continue to learn from them. 🧪
Opening: Amy Adams of NINDS wonders if the same "butler did it" in each of the multi-system diseases covered by the conference.
Adams discusses her appreciation for people with lived experience,the "true experts", hopes to continue to learn from them. 🧪
I had planned being in-person to the NIH conference, From Mechanisms to Medicine: Rethinking the Discovery-to-Care Continuum in Multi-System Disorders; got be-suited and on the road before I decided I was still too wobby from my COVID vaccination.
In-person tomorrow; reporting from home, today! 🧪
In-person tomorrow; reporting from home, today! 🧪
September 23, 2026 at 1:46 PM
Scientific Director Jaime Seltzer @exceedhergrasp1.bsky.social reporting live (virtually) from the NIH From Mechanisms to Medicine conference.
#pwME #MyalgicEncephalomyelitis #MECFS #LongCovid #ChronicIllness #NIH
#pwME #MyalgicEncephalomyelitis #MECFS #LongCovid #ChronicIllness #NIH
From Bristol's Evening Post (England) on this day thirty-eight years ago - 7th January 1987. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
January 7, 2025 at 12:15 AM
From Bristol's Evening Post (England) on this day thirty-eight years ago - 7th January 1987. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
Friends with #LongCovid and #MyalgicEncephalomyelitis in the US:
December 9, 2024 at 10:19 PM
Friends with #LongCovid and #MyalgicEncephalomyelitis in the US:
"Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a shocking social crisis playing out behind closed doors...there has seldom been a stronger case for a public inquiry."
@georgemonbiot.bsky.social discusses #MyalgicEncephalomyelitis.
@georgemonbiot.bsky.social discusses #MyalgicEncephalomyelitis.
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 24, 2026 at 10:40 PM
"Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a shocking social crisis playing out behind closed doors...there has seldom been a stronger case for a public inquiry."
@georgemonbiot.bsky.social discusses #MyalgicEncephalomyelitis.
@georgemonbiot.bsky.social discusses #MyalgicEncephalomyelitis.
Credit to themsbloke. A high-energy video that might require pacing!
He has multiple sclerosis himself rather than ME/CFS.
Note that the F word is used.
#MEcfs #PwME #MyalgicEncephalomyelitis
He has multiple sclerosis himself rather than ME/CFS.
Note that the F word is used.
#MEcfs #PwME #MyalgicEncephalomyelitis
May 25, 2026 at 12:53 AM
Credit to themsbloke. A high-energy video that might require pacing!
He has multiple sclerosis himself rather than ME/CFS.
Note that the F word is used.
#MEcfs #PwME #MyalgicEncephalomyelitis
He has multiple sclerosis himself rather than ME/CFS.
Note that the F word is used.
#MEcfs #PwME #MyalgicEncephalomyelitis
February 4, 2025 at 9:15 PM
Absolutely this 👏 #mecfs #MyalgicEncephalomyelitis
When you’re chronically ill - your baseline is everything. You will protect it at all costs.
Non disabled people can’t understand how much independence and autonomy means to us. Whatever small amount we have left - is priceless.
That’s why we don’t take necessary risks. We know what’s at stake.
Non disabled people can’t understand how much independence and autonomy means to us. Whatever small amount we have left - is priceless.
That’s why we don’t take necessary risks. We know what’s at stake.
November 16, 2024 at 12:43 AM
Absolutely this 👏 #mecfs #MyalgicEncephalomyelitis
Three deaths in three days. How many more #MyalgicEncephalomyelitis patients must die before governments, health agencies and medical professionals do something? #MECFS
February 2, 2026 at 11:59 AM
Three deaths in three days. How many more #MyalgicEncephalomyelitis patients must die before governments, health agencies and medical professionals do something? #MECFS
December 13, 2024 at 8:53 PM