@andyburnham.bsky.social
@yvettecooper-mp.bsky.social
@zackpolanski.bsky.social
@eddavey.libdems.org.uk
People with #SevereME are BEGGING you to act!
PLEASE read Savannah’s update & look at the picture at the end
This is a horrific violation of human rights
#GreatestMEdicalScandal
#JusticeForME
@yvettecooper-mp.bsky.social
@zackpolanski.bsky.social
@eddavey.libdems.org.uk
People with #SevereME are BEGGING you to act!
PLEASE read Savannah’s update & look at the picture at the end
This is a horrific violation of human rights
#GreatestMEdicalScandal
#JusticeForME
There is a worrying update on Savannah's situation in hospital here. I hope the ME orgs see the call to action and can help in some way.
@actionforme.bsky.social #MEcfs #SevereME
www.gofundme.com/f/severemerg...
@actionforme.bsky.social #MEcfs #SevereME
www.gofundme.com/f/severemerg...
Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce
Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital
www.gofundme.com
November 4, 2026 at 10:20 PM
@andyburnham.bsky.social
@yvettecooper-mp.bsky.social
@zackpolanski.bsky.social
@eddavey.libdems.org.uk
People with #SevereME are BEGGING you to act!
PLEASE read Savannah’s update & look at the picture at the end
This is a horrific violation of human rights
#GreatestMEdicalScandal
#JusticeForME
@yvettecooper-mp.bsky.social
@zackpolanski.bsky.social
@eddavey.libdems.org.uk
People with #SevereME are BEGGING you to act!
PLEASE read Savannah’s update & look at the picture at the end
This is a horrific violation of human rights
#GreatestMEdicalScandal
#JusticeForME
Thank you as always. Great (very clear and to the point) letter. Understanding and denouncing the #GreatestMEdicalScandal doesn't need more than a couple of paragraphs when it is well done ✍️👏
November 6, 2026 at 10:50 AM
Thank you as always. Great (very clear and to the point) letter. Understanding and denouncing the #GreatestMEdicalScandal doesn't need more than a couple of paragraphs when it is well done ✍️👏
Shocking considering what % of ppl have it, especially given 50% go on to be diagnosed with ME.
Governments are ignoring us so they don’t have to deal with us.
#GreatestMEdicalScandal
Governments are ignoring us so they don’t have to deal with us.
#GreatestMEdicalScandal
CDC researchers analyzed 48 U.S. states and found Long COVID affected 6.7% of adults in 2023.
States with higher COVID-19 booster coverage had significantly lower Long COVID prevalence, even after adjusting for other factors.
journals.plos.org/plosone/arti...
States with higher COVID-19 booster coverage had significantly lower Long COVID prevalence, even after adjusting for other factors.
journals.plos.org/plosone/arti...
Long COVID prevalence among U.S. adults: A state-level ecological analysis of associations with SARS-CoV-2 incidence, COVID-19 hospitalization rates, COVID-19 vaccine coverage, and multimorbidity
Background Long COVID has emerged as a major public health concern in the United States, yet geographic variation in its prevalence remains poorly understood. This study examines how state-level diffe...
journals.plos.org
November 5, 2026 at 5:48 PM
Shocking considering what % of ppl have it, especially given 50% go on to be diagnosed with ME.
Governments are ignoring us so they don’t have to deal with us.
#GreatestMEdicalScandal
Governments are ignoring us so they don’t have to deal with us.
#GreatestMEdicalScandal
This ⤴️
At least show some decorum and be accountable James Frith. Bullied and abused... but on top on that you pretend #pwME are responsible in any way?
This is madness. Act now or make yourself useful. Show some decency and stop burying the gvt (in)action deeper?
#GreatestMEdicalScandal
At least show some decorum and be accountable James Frith. Bullied and abused... but on top on that you pretend #pwME are responsible in any way?
This is madness. Act now or make yourself useful. Show some decency and stop burying the gvt (in)action deeper?
#GreatestMEdicalScandal
November 4, 2026 at 10:06 AM
This ⤴️
At least show some decorum and be accountable James Frith. Bullied and abused... but on top on that you pretend #pwME are responsible in any way?
This is madness. Act now or make yourself useful. Show some decency and stop burying the gvt (in)action deeper?
#GreatestMEdicalScandal
At least show some decorum and be accountable James Frith. Bullied and abused... but on top on that you pretend #pwME are responsible in any way?
This is madness. Act now or make yourself useful. Show some decency and stop burying the gvt (in)action deeper?
#GreatestMEdicalScandal
An absolute disgrace. I see from the comments decades of dehumanising propaganda has worked as intended
Blood on your hands #UKLabour
@andyburnham.bsky.social why not fully fund #SequenceME so millions have a chance to work instead of enduring a living death?
#GreatestMEdicalScandal
#TaxTheRich
Blood on your hands #UKLabour
@andyburnham.bsky.social why not fully fund #SequenceME so millions have a chance to work instead of enduring a living death?
#GreatestMEdicalScandal
#TaxTheRich
October 29, 2026 at 8:33 PM
An absolute disgrace. I see from the comments decades of dehumanising propaganda has worked as intended
Blood on your hands #UKLabour
@andyburnham.bsky.social why not fully fund #SequenceME so millions have a chance to work instead of enduring a living death?
#GreatestMEdicalScandal
#TaxTheRich
Blood on your hands #UKLabour
@andyburnham.bsky.social why not fully fund #SequenceME so millions have a chance to work instead of enduring a living death?
#GreatestMEdicalScandal
#TaxTheRich
@retractionwatch.com it’s 15 yrs since the fraudulent PACE trial & yet no retraction.
@davetuller1.bsky.social & @georgemonbiot.bsky.social acknowledge this as the #GreatestMEdicalScandal
It has contributed to the death & destruction of many lives.
Pls could you highlight the continued injustice?
@davetuller1.bsky.social & @georgemonbiot.bsky.social acknowledge this as the #GreatestMEdicalScandal
It has contributed to the death & destruction of many lives.
Pls could you highlight the continued injustice?
October 20, 2026 at 10:26 AM
@retractionwatch.com it’s 15 yrs since the fraudulent PACE trial & yet no retraction.
@davetuller1.bsky.social & @georgemonbiot.bsky.social acknowledge this as the #GreatestMEdicalScandal
It has contributed to the death & destruction of many lives.
Pls could you highlight the continued injustice?
@davetuller1.bsky.social & @georgemonbiot.bsky.social acknowledge this as the #GreatestMEdicalScandal
It has contributed to the death & destruction of many lives.
Pls could you highlight the continued injustice?
A government that can afford weapons but not health care has already told you exactly what it values.
October 17, 2026 at 7:44 PM
Please could you also speak the truth about ME?
Coroners’ Prevention of Future Death Notices are being ignored by the government – this is a human rights crisis.
Help stop us dying!!
#SevereME
#JusticeForME
#GreatestMEdicalScandal
www.crowdjustice.com/case/justice...
Coroners’ Prevention of Future Death Notices are being ignored by the government – this is a human rights crisis.
Help stop us dying!!
#SevereME
#JusticeForME
#GreatestMEdicalScandal
www.crowdjustice.com/case/justice...
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
www.crowdjustice.com
October 18, 2026 at 6:35 PM
Please could you also speak the truth about ME?
Coroners’ Prevention of Future Death Notices are being ignored by the government – this is a human rights crisis.
Help stop us dying!!
#SevereME
#JusticeForME
#GreatestMEdicalScandal
www.crowdjustice.com/case/justice...
Coroners’ Prevention of Future Death Notices are being ignored by the government – this is a human rights crisis.
Help stop us dying!!
#SevereME
#JusticeForME
#GreatestMEdicalScandal
www.crowdjustice.com/case/justice...
And the Biopsychosocial lobby who have harmed people with ME for nearly half a century…
… but then successive governments have known that we’re dying and being wrongly sectioned for decades and clearly aren’t bothered.
#SevereME
#JusticeForME
#GreatestMEdicalScandal
… but then successive governments have known that we’re dying and being wrongly sectioned for decades and clearly aren’t bothered.
#SevereME
#JusticeForME
#GreatestMEdicalScandal
Trailer for the ME/CFS Scandal Explainer Video
YouTube video by Broken Battery
m.youtube.com
October 17, 2026 at 8:52 PM
And the Biopsychosocial lobby who have harmed people with ME for nearly half a century…
… but then successive governments have known that we’re dying and being wrongly sectioned for decades and clearly aren’t bothered.
#SevereME
#JusticeForME
#GreatestMEdicalScandal
… but then successive governments have known that we’re dying and being wrongly sectioned for decades and clearly aren’t bothered.
#SevereME
#JusticeForME
#GreatestMEdicalScandal
@springernature.com how can this happen?
@retractionwatch.com tagging you so you’re aware… also…
It’s 15 yrs since the fraudulent PACE trial (Lancet)
@davetuller1.bsky.social & @georgemonbiot.bsky.social acknowledge this as the #GreatestMEdicalScandal
Pls could you highlight continued injustice?
@retractionwatch.com tagging you so you’re aware… also…
It’s 15 yrs since the fraudulent PACE trial (Lancet)
@davetuller1.bsky.social & @georgemonbiot.bsky.social acknowledge this as the #GreatestMEdicalScandal
Pls could you highlight continued injustice?
WTF, Springer Nature? Removing offensive language about patients being "combative" and "reproachful" is not enough. You need to explain why the language was there in the first place. virology.ws/2026/10/10/t...
Trial By Error: Springer Nature Removes Description of "Fatigue" Patients as "Combative" and "Reproachful" | Virology Blog
By David Tuller, DrPH A month after publishing a German-language article about chronic fatigue syndrome as part of a larger project, Springer Nature has rem ...
virology.ws
October 13, 2026 at 11:51 AM
@springernature.com how can this happen?
@retractionwatch.com tagging you so you’re aware… also…
It’s 15 yrs since the fraudulent PACE trial (Lancet)
@davetuller1.bsky.social & @georgemonbiot.bsky.social acknowledge this as the #GreatestMEdicalScandal
Pls could you highlight continued injustice?
@retractionwatch.com tagging you so you’re aware… also…
It’s 15 yrs since the fraudulent PACE trial (Lancet)
@davetuller1.bsky.social & @georgemonbiot.bsky.social acknowledge this as the #GreatestMEdicalScandal
Pls could you highlight continued injustice?
Required reading for doctors, journalists, & anyone who cares about anyone w/ ME or Long Covid ⬇️
Includes excellent history of #GreatestMEdicalScandal & how the ignorance of doctors re #MECFS is continually renewed through informal (mis)training + biased media
www.sciencedirect.com/science/arti...
Includes excellent history of #GreatestMEdicalScandal & how the ignorance of doctors re #MECFS is continually renewed through informal (mis)training + biased media
www.sciencedirect.com/science/arti...
October 9, 2026 at 1:05 AM
Required reading for doctors, journalists, & anyone who cares about anyone w/ ME or Long Covid ⬇️
Includes excellent history of #GreatestMEdicalScandal & how the ignorance of doctors re #MECFS is continually renewed through informal (mis)training + biased media
www.sciencedirect.com/science/arti...
Includes excellent history of #GreatestMEdicalScandal & how the ignorance of doctors re #MECFS is continually renewed through informal (mis)training + biased media
www.sciencedirect.com/science/arti...
Run a fraudulent trial to promote harmful snake oil over valid treatments for a disabling disease. Accuse patients who question you of harassment to avoid handing over the raw data that will expose you. Get the media to cover the story as “patients are harassing scientists!”
#GreatestMEdicalScandal
#GreatestMEdicalScandal
The #PACEtrial recovery song by the late Graham McPhee uploaded to Youtube around 2014, which along with his more serious videos on the same channel, was used to argue that he was part of an organised campaign of harassment when he submitted a FOIA request for the fitness data from the PACE trial.
6: ME Recovery Song
YouTube video by MEAnalysis
www.youtube.com
October 8, 2026 at 11:25 AM
Run a fraudulent trial to promote harmful snake oil over valid treatments for a disabling disease. Accuse patients who question you of harassment to avoid handing over the raw data that will expose you. Get the media to cover the story as “patients are harassing scientists!”
#GreatestMEdicalScandal
#GreatestMEdicalScandal
Bei diesem unfassbar großen Medizinskandal wird wirklich KEIN Weg ausgelassen, Hilfe und wissensch. Fortschritt zu behindern.
Millionen Menschen leiden weltweit schwerst und unzählige werden aus Verzweiflung in den assistierten Suizid getrieben.
ES IST UNERTRÄGLICH!
#GreatestMedicalScandal
#MEcfs
Millionen Menschen leiden weltweit schwerst und unzählige werden aus Verzweiflung in den assistierten Suizid getrieben.
ES IST UNERTRÄGLICH!
#GreatestMedicalScandal
#MEcfs
Thread 🧵⬇️
In einem Verhaltenstherapie-Handbuch der Springer-Verlag GmbH wurden Aussagen über #MECFS veröffentlicht, die nun laut Verlag gar nicht von den beiden Kapitelautoren stammen. Ein offizielles Erratum legt sich fest: Die veröffentlichte Fassung war nicht autorisiert.
In einem Verhaltenstherapie-Handbuch der Springer-Verlag GmbH wurden Aussagen über #MECFS veröffentlicht, die nun laut Verlag gar nicht von den beiden Kapitelautoren stammen. Ein offizielles Erratum legt sich fest: Die veröffentlichte Fassung war nicht autorisiert.
October 8, 2026 at 12:16 PM
Bei diesem unfassbar großen Medizinskandal wird wirklich KEIN Weg ausgelassen, Hilfe und wissensch. Fortschritt zu behindern.
Millionen Menschen leiden weltweit schwerst und unzählige werden aus Verzweiflung in den assistierten Suizid getrieben.
ES IST UNERTRÄGLICH!
#GreatestMedicalScandal
#MEcfs
Millionen Menschen leiden weltweit schwerst und unzählige werden aus Verzweiflung in den assistierten Suizid getrieben.
ES IST UNERTRÄGLICH!
#GreatestMedicalScandal
#MEcfs
@davetuller1.bsky.social, a great champion of patients, interviewed me about the massive, ongoing scandal of the neglect, abuse and mistreatment of people with ME/CFS www.youtube.com/watch?v=Maae...
Interview with George Monbiot about Guardian column on ME/CFS
YouTube video by David M Tuller
www.youtube.com
October 6, 2026 at 6:16 PM
Many thanks Alem, I hadn't seen this.
#GreatestMEdicalScandal #MEcfs #LongCovid
Tags for greater reach. Related to the notorious and discredited PACE Trial suggesting CBT / Graded Exercise Therapy were a viable treatment. People are still dealing with this bullshit today.
#GreatestMEdicalScandal #MEcfs #LongCovid
Tags for greater reach. Related to the notorious and discredited PACE Trial suggesting CBT / Graded Exercise Therapy were a viable treatment. People are still dealing with this bullshit today.
October 7, 2026 at 1:39 PM
Many thanks Alem, I hadn't seen this.
#GreatestMEdicalScandal #MEcfs #LongCovid
Tags for greater reach. Related to the notorious and discredited PACE Trial suggesting CBT / Graded Exercise Therapy were a viable treatment. People are still dealing with this bullshit today.
#GreatestMEdicalScandal #MEcfs #LongCovid
Tags for greater reach. Related to the notorious and discredited PACE Trial suggesting CBT / Graded Exercise Therapy were a viable treatment. People are still dealing with this bullshit today.
Thank you for covering the #GreatestMEdicalScandal of the century!
September 28, 2026 at 11:44 PM
Thank you for covering the #GreatestMEdicalScandal of the century!
It doesn't get easier, being so completely dependent on others for one's survival after losing one's health & independence.
I'm endlessly grateful to family & friends but I so wish they were spared the impact of this terrible illness.
💙
#ME #pwME #GreatestMedicalScandal
I'm endlessly grateful to family & friends but I so wish they were spared the impact of this terrible illness.
💙
#ME #pwME #GreatestMedicalScandal
September 28, 2026 at 3:49 PM
It doesn't get easier, being so completely dependent on others for one's survival after losing one's health & independence.
I'm endlessly grateful to family & friends but I so wish they were spared the impact of this terrible illness.
💙
#ME #pwME #GreatestMedicalScandal
I'm endlessly grateful to family & friends but I so wish they were spared the impact of this terrible illness.
💙
#ME #pwME #GreatestMedicalScandal
Just listened to this full interview & it’s fantastic. @georgemonbiot.bsky.social doesn’t mince words, reminding us the #GreatestMEdicalScandal of the century is not just about neglect, it’s abuse by the medical system & complicity from all of society.
Full interview (9 mins):
youtu.be/H2rRf_f2hJs
Full interview (9 mins):
youtu.be/H2rRf_f2hJs
Symptoms are “horrible” and severe cases are a “living nightmare.”
@georgemonbiot.bsky.social speaks to @natashadevon.bsky.social on LBC about ME/CFS, its long history of being dismissed and psychologised, and the role of governments and insurers.
@georgemonbiot.bsky.social speaks to @natashadevon.bsky.social on LBC about ME/CFS, its long history of being dismissed and psychologised, and the role of governments and insurers.
September 27, 2026 at 9:40 PM
Just listened to this full interview & it’s fantastic. @georgemonbiot.bsky.social doesn’t mince words, reminding us the #GreatestMEdicalScandal of the century is not just about neglect, it’s abuse by the medical system & complicity from all of society.
Full interview (9 mins):
youtu.be/H2rRf_f2hJs
Full interview (9 mins):
youtu.be/H2rRf_f2hJs
. @georgemonbiot.bsky.social & @natashadevon.bsky.social discussing #MECFS on LBC earlier.
This clip is from his closing comments, which I thought were very powerful.
Actually, I burst into tears 😭
Thank you both 💙 #MyalgicEncephalomyelitis
#GreatestMEdicalScandal #LongCovid
This clip is from his closing comments, which I thought were very powerful.
Actually, I burst into tears 😭
Thank you both 💙 #MyalgicEncephalomyelitis
#GreatestMEdicalScandal #LongCovid
September 26, 2026 at 7:23 PM
. @georgemonbiot.bsky.social & @natashadevon.bsky.social discussing #MECFS on LBC earlier.
This clip is from his closing comments, which I thought were very powerful.
Actually, I burst into tears 😭
Thank you both 💙 #MyalgicEncephalomyelitis
#GreatestMEdicalScandal #LongCovid
This clip is from his closing comments, which I thought were very powerful.
Actually, I burst into tears 😭
Thank you both 💙 #MyalgicEncephalomyelitis
#GreatestMEdicalScandal #LongCovid
Everyone with Myalgic Encephalomyelitis #MEcfs and #LongCovid should be paid compensation, no question.
Instead we get dangerous quackery, disbelief and abandonment, while trying to survive on benefits.
#GreatestMEdicalScandal
Instead we get dangerous quackery, disbelief and abandonment, while trying to survive on benefits.
#GreatestMEdicalScandal
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 25, 2026 at 2:55 PM
Everyone with Myalgic Encephalomyelitis #MEcfs and #LongCovid should be paid compensation, no question.
Instead we get dangerous quackery, disbelief and abandonment, while trying to survive on benefits.
#GreatestMEdicalScandal
Instead we get dangerous quackery, disbelief and abandonment, while trying to survive on benefits.
#GreatestMEdicalScandal
@zackpolanski.bsky.social @eddavey.libdems.org.uk
Highlighting the issues @georgemonbiot.bsky.social raised here is morally right AND politically useful to you
Wish I didn’t have to put it like that but there’s rarely political support for us on humanity alone
#Justice4ME
#GreatestMEdicalScandal
Highlighting the issues @georgemonbiot.bsky.social raised here is morally right AND politically useful to you
Wish I didn’t have to put it like that but there’s rarely political support for us on humanity alone
#Justice4ME
#GreatestMEdicalScandal
September 25, 2026 at 2:11 PM
@zackpolanski.bsky.social @eddavey.libdems.org.uk
Highlighting the issues @georgemonbiot.bsky.social raised here is morally right AND politically useful to you
Wish I didn’t have to put it like that but there’s rarely political support for us on humanity alone
#Justice4ME
#GreatestMEdicalScandal
Highlighting the issues @georgemonbiot.bsky.social raised here is morally right AND politically useful to you
Wish I didn’t have to put it like that but there’s rarely political support for us on humanity alone
#Justice4ME
#GreatestMEdicalScandal
From The Australian:
"600,000 patients risk losing care over $220k grant".
A bit on the current state of things for #pwME in Australia.
#MyalgicEncephalomyelitis
#MEcfs
#GreatestMEdicalScandal
"600,000 patients risk losing care over $220k grant".
A bit on the current state of things for #pwME in Australia.
#MyalgicEncephalomyelitis
#MEcfs
#GreatestMEdicalScandal
September 25, 2026 at 8:38 AM
From The Australian:
"600,000 patients risk losing care over $220k grant".
A bit on the current state of things for #pwME in Australia.
#MyalgicEncephalomyelitis
#MEcfs
#GreatestMEdicalScandal
"600,000 patients risk losing care over $220k grant".
A bit on the current state of things for #pwME in Australia.
#MyalgicEncephalomyelitis
#MEcfs
#GreatestMEdicalScandal
With great thanks to the hundreds of people who gave me their testimonies. If I hadn't said "stop" after a few hours, it might have been thousands. The sheer scale of this scandal is hard to get your head around. 2/2
September 24, 2026 at 11:10 AM
Please take the time to read this ⬇️ and learn about ME/CFS. The ME scandal is enormously relevant to the fight to collectively address COVID and other airborne pathogens.
#GreatestMEdicalScandal
#GreatestMEdicalScandal
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 24, 2026 at 11:32 AM
Please take the time to read this ⬇️ and learn about ME/CFS. The ME scandal is enormously relevant to the fight to collectively address COVID and other airborne pathogens.
#GreatestMEdicalScandal
#GreatestMEdicalScandal
Thank you George for using your platform to make people aware of the #GreatestMEdicalScandal
It means a lot to #pwME !
It means a lot to #pwME !
September 24, 2026 at 7:13 AM
Thank you George for using your platform to make people aware of the #GreatestMEdicalScandal
It means a lot to #pwME !
It means a lot to #pwME !