@andyburnham.bsky.social
@yvettecooper-mp.bsky.social
@zackpolanski.bsky.social
@eddavey.libdems.org.uk
People with #SevereME are BEGGING you to act!
PLEASE read Savannah’s update & look at the picture at the end
This is a horrific violation of human rights
#GreatestMEdicalScandal
#JusticeForME
@yvettecooper-mp.bsky.social
@zackpolanski.bsky.social
@eddavey.libdems.org.uk
People with #SevereME are BEGGING you to act!
PLEASE read Savannah’s update & look at the picture at the end
This is a horrific violation of human rights
#GreatestMEdicalScandal
#JusticeForME
There is a worrying update on Savannah's situation in hospital here. I hope the ME orgs see the call to action and can help in some way.
@actionforme.bsky.social #MEcfs #SevereME
www.gofundme.com/f/severemerg...
@actionforme.bsky.social #MEcfs #SevereME
www.gofundme.com/f/severemerg...
Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce
Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital
www.gofundme.com
November 4, 2026 at 10:20 PM
@andyburnham.bsky.social
@yvettecooper-mp.bsky.social
@zackpolanski.bsky.social
@eddavey.libdems.org.uk
People with #SevereME are BEGGING you to act!
PLEASE read Savannah’s update & look at the picture at the end
This is a horrific violation of human rights
#GreatestMEdicalScandal
#JusticeForME
@yvettecooper-mp.bsky.social
@zackpolanski.bsky.social
@eddavey.libdems.org.uk
People with #SevereME are BEGGING you to act!
PLEASE read Savannah’s update & look at the picture at the end
This is a horrific violation of human rights
#GreatestMEdicalScandal
#JusticeForME
A government that can afford weapons but not health care has already told you exactly what it values.
October 17, 2026 at 7:44 PM
Please could you also speak the truth about ME?
Coroners’ Prevention of Future Death Notices are being ignored by the government – this is a human rights crisis.
Help stop us dying!!
#SevereME
#JusticeForME
#GreatestMEdicalScandal
www.crowdjustice.com/case/justice...
Coroners’ Prevention of Future Death Notices are being ignored by the government – this is a human rights crisis.
Help stop us dying!!
#SevereME
#JusticeForME
#GreatestMEdicalScandal
www.crowdjustice.com/case/justice...
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
www.crowdjustice.com
October 18, 2026 at 6:35 PM
Please could you also speak the truth about ME?
Coroners’ Prevention of Future Death Notices are being ignored by the government – this is a human rights crisis.
Help stop us dying!!
#SevereME
#JusticeForME
#GreatestMEdicalScandal
www.crowdjustice.com/case/justice...
Coroners’ Prevention of Future Death Notices are being ignored by the government – this is a human rights crisis.
Help stop us dying!!
#SevereME
#JusticeForME
#GreatestMEdicalScandal
www.crowdjustice.com/case/justice...
And the Biopsychosocial lobby who have harmed people with ME for nearly half a century…
… but then successive governments have known that we’re dying and being wrongly sectioned for decades and clearly aren’t bothered.
#SevereME
#JusticeForME
#GreatestMEdicalScandal
… but then successive governments have known that we’re dying and being wrongly sectioned for decades and clearly aren’t bothered.
#SevereME
#JusticeForME
#GreatestMEdicalScandal
Trailer for the ME/CFS Scandal Explainer Video
YouTube video by Broken Battery
m.youtube.com
October 17, 2026 at 8:52 PM
And the Biopsychosocial lobby who have harmed people with ME for nearly half a century…
… but then successive governments have known that we’re dying and being wrongly sectioned for decades and clearly aren’t bothered.
#SevereME
#JusticeForME
#GreatestMEdicalScandal
… but then successive governments have known that we’re dying and being wrongly sectioned for decades and clearly aren’t bothered.
#SevereME
#JusticeForME
#GreatestMEdicalScandal
🔥 Please Share - So, so close, but only 9 days to go 😮 for this stretch target window.
£24,210 donated of £25,000 👏stretch target from an amazing 746 pledges
Justice4ME.uk
#pwME #pwLC
£24,210 donated of £25,000 👏stretch target from an amazing 746 pledges
Justice4ME.uk
#pwME #pwLC
October 17, 2026 at 12:02 PM
🔥 Please Share - So, so close, but only 9 days to go 😮 for this stretch target window.
£24,210 donated of £25,000 👏stretch target from an amazing 746 pledges
Justice4ME.uk
#pwME #pwLC
£24,210 donated of £25,000 👏stretch target from an amazing 746 pledges
Justice4ME.uk
#pwME #pwLC
Could someone please explain to me what justiceforME are asking for? I see this campaign come up over and over but never their specific asks. If we ask for more care without being very specific we will get more multidisciplinary BPS OT let nonsense.
We need specialist physician led services.
We need specialist physician led services.
September 24, 2026 at 12:39 PM
Could someone please explain to me what justiceforME are asking for? I see this campaign come up over and over but never their specific asks. If we ask for more care without being very specific we will get more multidisciplinary BPS OT let nonsense.
We need specialist physician led services.
We need specialist physician led services.
A persuasive statement from Sarah Boothby @swastrosarah.bsky.social about the apparent necessity of legal action such as #JusticeForME to help overcome the decades of inaction/stonewalling and to 'keep the bastards honest' (a phrase used in Australian politics). www.crowdjustice.com/case/justice...
!["Why we are no further on than before Maeve died makes me feel I have been lied to by everybody I thought I could respect. Unlike the many other families facing what we went through, I now have nothing left to lose. They do have everything to hope for but it is a matter of fact that legal action has been the only remedy for this extremely vulnerable group. Without it, the PACE trial would not have been exposed for the fraud it was [2] [3] [4]. Without their families insisting on the inquests into the deaths of Sophia Mirza [5] and Merryn Crofts[6], the fact that medical mismanagement of ME routinely kills young people would not be known. In the light of so much evidence, the time for crowdfunding legal action has come. Knowing how we tried everything else first, I fully endorse and support #JusticeForME."
[1] Care Act (2014); Mental Capacity Act (2005); Mental Health Act (1983); Equality Act (2010); Human Rights Act (1998)
[2] Wilshire, C., Kindlon, T., Matthees, A., & McGrath, S. (2016) https://doi.org/10.1080/21641846.2017.1259724
[3] Wilshire, C.E., Kindlon, T., Courtney, R., Matthees, A., Tuller, D., Geraghty, K., Levin, B. (2018). https://doi.org/10.1186/s40359-018-0218-3
[4] Valerie Eliot Smith (2015) https://valerieeliotsmith.com/2015/01/20/the-secret-files-unwrapped-part-i-the-importance-of-fair-and-accurate-records/
[5] Brighton Coroners Court, 13 June 2006
[6] Rochdale Coroners Court, 19 May 2018](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:z2al2flt26qu3kzv3pmzqt54/bafkreieyduxbcyyl34cddprcktgvwuh3brqfjd4rcycd4c6gvfon26lbsa)
September 19, 2026 at 1:43 AM
A persuasive statement from Sarah Boothby @swastrosarah.bsky.social about the apparent necessity of legal action such as #JusticeForME to help overcome the decades of inaction/stonewalling and to 'keep the bastards honest' (a phrase used in Australian politics). www.crowdjustice.com/case/justice...
Yeah & you shouldn’t have roped me in so we could suffer together 😩😩 #justiceforme !!
January 14, 2025 at 6:14 PM
Yeah & you shouldn’t have roped me in so we could suffer together 😩😩 #justiceforme !!
We noticed your reply swastrosarah.bsky.social, thank you so much 🙏 Would it be possible to contact us @ mecentraal@gmail.com ? bsky.app/profile/nele...
September 16, 2025 at 1:10 PM
We noticed your reply swastrosarah.bsky.social, thank you so much 🙏 Would it be possible to contact us @ mecentraal@gmail.com ? bsky.app/profile/nele...
Saturday Aug 8th is Severe ME Day.
People die of #SevereME.
It’s now 2pm Friday and the two biggest UK ME charities – ME Association & Action for ME – haven’t emailed anyone about it.
Thank you to @meactionuk.bsky.social for emailing earlier this week and for addressing the deaths.
#JusticeForME
People die of #SevereME.
It’s now 2pm Friday and the two biggest UK ME charities – ME Association & Action for ME – haven’t emailed anyone about it.
Thank you to @meactionuk.bsky.social for emailing earlier this week and for addressing the deaths.
#JusticeForME
It’s really bothering me that it’s 6.30pm on the last day of #MEawarenessMonth and two of the UK’s biggest ME charities haven’t bothered to post anything today.
ME Association posted 2 days ago.
Action for ME posed 9 days ago.
#SevereME
#JusticeForME
#DontLetMEdie
ME Association posted 2 days ago.
Action for ME posed 9 days ago.
#SevereME
#JusticeForME
#DontLetMEdie
August 7, 2026 at 1:02 PM
Saturday Aug 8th is Severe ME Day.
People die of #SevereME.
It’s now 2pm Friday and the two biggest UK ME charities – ME Association & Action for ME – haven’t emailed anyone about it.
Thank you to @meactionuk.bsky.social for emailing earlier this week and for addressing the deaths.
#JusticeForME
People die of #SevereME.
It’s now 2pm Friday and the two biggest UK ME charities – ME Association & Action for ME – haven’t emailed anyone about it.
Thank you to @meactionuk.bsky.social for emailing earlier this week and for addressing the deaths.
#JusticeForME
New update today from the life saving #JusticeForME campaign
Thank you to everyone involved and @ris-law.bsky.social
#Justice4ME #GreatestMEdicalScandal #MEcfs #SevereME #VerySevereME
Thank you to everyone involved and @ris-law.bsky.social
#Justice4ME #GreatestMEdicalScandal #MEcfs #SevereME #VerySevereME
July 13, 2026 at 11:16 AM
New update today from the life saving #JusticeForME campaign
Thank you to everyone involved and @ris-law.bsky.social
#Justice4ME #GreatestMEdicalScandal #MEcfs #SevereME #VerySevereME
Thank you to everyone involved and @ris-law.bsky.social
#Justice4ME #GreatestMEdicalScandal #MEcfs #SevereME #VerySevereME
Its only mysterious because of the lack of research.
My new GP told me he didn't believe it was real till one his friends got it.
My new GP told me he didn't believe it was real till one his friends got it.
July 8, 2026 at 6:26 PM
*Template in petition to send email to hospital*
#JusticeForME #MEcfs
“… instead of receiving the care she desperately needs, Caroline's condition has worsened due to inadequate care, and there is now a push from the hospital to discharge her prematurely while in a life threatening PENE/PEM crash.“
#JusticeForME #MEcfs
“… instead of receiving the care she desperately needs, Caroline's condition has worsened due to inadequate care, and there is now a push from the hospital to discharge her prematurely while in a life threatening PENE/PEM crash.“
**Trigger Warning: Upsetting Content** Petition: Caroline Roberts: Inpatient Leicester Royal Infirmary Hospital with very severe ME
Please consider signing & sharing: https://meassociation.org.uk/irts
#pwME #MECFS #MyalgicEncephalomyelitis #SevereME #NHS
Please consider signing & sharing: https://meassociation.org.uk/irts
#pwME #MECFS #MyalgicEncephalomyelitis #SevereME #NHS
Petition: Caroline Roberts: Inpatient Leicester Royal Infirmary Hospital with very severe ME - The ME Association
**Trigger Warning: Upsetting Content** Petition Introduction Caroline Roberts, once an […]
meassociation.org.uk
June 12, 2026 at 3:22 PM
*Template in petition to send email to hospital*
#JusticeForME #MEcfs
“… instead of receiving the care she desperately needs, Caroline's condition has worsened due to inadequate care, and there is now a push from the hospital to discharge her prematurely while in a life threatening PENE/PEM crash.“
#JusticeForME #MEcfs
“… instead of receiving the care she desperately needs, Caroline's condition has worsened due to inadequate care, and there is now a push from the hospital to discharge her prematurely while in a life threatening PENE/PEM crash.“
It’s really bothering me that it’s 6.30pm on the last day of #MEawarenessMonth and two of the UK’s biggest ME charities haven’t bothered to post anything today.
ME Association posted 2 days ago.
Action for ME posed 9 days ago.
#SevereME
#JusticeForME
#DontLetMEdie
ME Association posted 2 days ago.
Action for ME posed 9 days ago.
#SevereME
#JusticeForME
#DontLetMEdie
May 31, 2026 at 5:36 PM
It’s really bothering me that it’s 6.30pm on the last day of #MEawarenessMonth and two of the UK’s biggest ME charities haven’t bothered to post anything today.
ME Association posted 2 days ago.
Action for ME posed 9 days ago.
#SevereME
#JusticeForME
#DontLetMEdie
ME Association posted 2 days ago.
Action for ME posed 9 days ago.
#SevereME
#JusticeForME
#DontLetMEdie
I will never understand how no one marches for eg. the abuse and death of people with #severeME yet thousands travel to London to proudly display ther racist hate.
#GreatestMEdicalScandal
#JusticeForME
#GreatestMEdicalScandal
#JusticeForME
May 7, 2026 at 9:39 AM
I will never understand how no one marches for eg. the abuse and death of people with #severeME yet thousands travel to London to proudly display ther racist hate.
#GreatestMEdicalScandal
#JusticeForME
#GreatestMEdicalScandal
#JusticeForME
@rthonwesstreeting.bsky.social
Coroners’ prevention of future death notices should not be ignored
#pwME should not starve to death or be wrongly institutionalised because no NHS specialist services exist for #severeME
Successive governments have known for decades
#JusticeForME
#HumanRightsAbuse
Coroners’ prevention of future death notices should not be ignored
#pwME should not starve to death or be wrongly institutionalised because no NHS specialist services exist for #severeME
Successive governments have known for decades
#JusticeForME
#HumanRightsAbuse
The DHSC paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at earliest. This isn’t acceptable @rthonwesstreeting.bsky.social!
Sign up for our mailing list meaction.org.uk/sign-up for more news.
#MyalgicEncephalomyelitis #VerySevereME
Sign up for our mailing list meaction.org.uk/sign-up for more news.
#MyalgicEncephalomyelitis #VerySevereME
March 25, 2026 at 10:29 PM
@rthonwesstreeting.bsky.social
Coroners’ prevention of future death notices should not be ignored
#pwME should not starve to death or be wrongly institutionalised because no NHS specialist services exist for #severeME
Successive governments have known for decades
#JusticeForME
#HumanRightsAbuse
Coroners’ prevention of future death notices should not be ignored
#pwME should not starve to death or be wrongly institutionalised because no NHS specialist services exist for #severeME
Successive governments have known for decades
#JusticeForME
#HumanRightsAbuse
TW:
More deaths of #pwME 💙
@ashleydaltonmp.bsky.social
@wesstreeting.bsky.social
What are you doing about the decades-long human rights crisis of #SevereME? Why are we expendable?
@tessamunt.bsky.social
@davetuller1.bsky.social
@georgemonbiot.bsky.social
#JusticeForME #GreatestMEdicalScandal
More deaths of #pwME 💙
@ashleydaltonmp.bsky.social
@wesstreeting.bsky.social
What are you doing about the decades-long human rights crisis of #SevereME? Why are we expendable?
@tessamunt.bsky.social
@davetuller1.bsky.social
@georgemonbiot.bsky.social
#JusticeForME #GreatestMEdicalScandal
Learned of another death of a friend with ME/CFS, this time someone I’d known for six years.
Very grateful to all of you who support work to relieve this terrible suffering.
Very grateful to all of you who support work to relieve this terrible suffering.
January 28, 2026 at 10:22 PM
TW:
More deaths of #pwME 💙
@ashleydaltonmp.bsky.social
@wesstreeting.bsky.social
What are you doing about the decades-long human rights crisis of #SevereME? Why are we expendable?
@tessamunt.bsky.social
@davetuller1.bsky.social
@georgemonbiot.bsky.social
#JusticeForME #GreatestMEdicalScandal
More deaths of #pwME 💙
@ashleydaltonmp.bsky.social
@wesstreeting.bsky.social
What are you doing about the decades-long human rights crisis of #SevereME? Why are we expendable?
@tessamunt.bsky.social
@davetuller1.bsky.social
@georgemonbiot.bsky.social
#JusticeForME #GreatestMEdicalScandal
… misunderstanding ME & seeing things like my unwashed hair etc as neglect rather than me preserving energy and ensuring I can still get to the toilet. We just can’t risk extra involvement unfortunately. Thank you for the #JusticeForME campaign, it gives me a lot of hope it won’t always be this way!
January 10, 2026 at 3:25 PM
… misunderstanding ME & seeing things like my unwashed hair etc as neglect rather than me preserving energy and ensuring I can still get to the toilet. We just can’t risk extra involvement unfortunately. Thank you for the #JusticeForME campaign, it gives me a lot of hope it won’t always be this way!
The government ignored UN warnings about the extreme harm to disabled people the ‘welfare’ bill would cause so I don’t hold out much hope they’ll show humanity here. Thank you for speaking out.
On a separate note, I’d really appreciate it if you’d read the comments about the #JusticeForME campaign:
On a separate note, I’d really appreciate it if you’d read the comments about the #JusticeForME campaign:
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
www.crowdjustice.com
January 10, 2026 at 2:57 PM
The government ignored UN warnings about the extreme harm to disabled people the ‘welfare’ bill would cause so I don’t hold out much hope they’ll show humanity here. Thank you for speaking out.
On a separate note, I’d really appreciate it if you’d read the comments about the #JusticeForME campaign:
On a separate note, I’d really appreciate it if you’d read the comments about the #JusticeForME campaign:
8
We’re too ill to advocate for ourselves but often push beyond what’s safe (as I am) because if we don’t nothing changes.
@ashleydaltonmp.bsky.social you know all this. *You* have the power to change it and save lives. Why aren’t you?
#GreatestMEdicalScandal #JusticeForME #SevereME #HumanRights …
We’re too ill to advocate for ourselves but often push beyond what’s safe (as I am) because if we don’t nothing changes.
@ashleydaltonmp.bsky.social you know all this. *You* have the power to change it and save lives. Why aren’t you?
#GreatestMEdicalScandal #JusticeForME #SevereME #HumanRights …
December 25, 2025 at 1:51 PM
8
We’re too ill to advocate for ourselves but often push beyond what’s safe (as I am) because if we don’t nothing changes.
@ashleydaltonmp.bsky.social you know all this. *You* have the power to change it and save lives. Why aren’t you?
#GreatestMEdicalScandal #JusticeForME #SevereME #HumanRights …
We’re too ill to advocate for ourselves but often push beyond what’s safe (as I am) because if we don’t nothing changes.
@ashleydaltonmp.bsky.social you know all this. *You* have the power to change it and save lives. Why aren’t you?
#GreatestMEdicalScandal #JusticeForME #SevereME #HumanRights …
A horrid part of #SevereME is developing new worrying symptoms (eg. currently have breast rash & swelling) as you can’t get to a hospital. If you manage it, it’s dangerous due to prejudice & lack of understanding. Same issue with home-visits but you risk a ‘safeguarding’ report as well
#JusticeForME
#JusticeForME
December 23, 2025 at 11:24 PM
A horrid part of #SevereME is developing new worrying symptoms (eg. currently have breast rash & swelling) as you can’t get to a hospital. If you manage it, it’s dangerous due to prejudice & lack of understanding. Same issue with home-visits but you risk a ‘safeguarding’ report as well
#JusticeForME
#JusticeForME
Please, please read… this is so vitally important if you don’t know what #severeME *really* is.
Also Sue is brilliant and a wonderful writer!
#MEcfs #LongCovid #GreatestMEdicalScandal #JusticeForME #HumanRights
Also Sue is brilliant and a wonderful writer!
#MEcfs #LongCovid #GreatestMEdicalScandal #JusticeForME #HumanRights
Today's Post : "Maeve's Story"
We MUST talk about ME. And start treating it as the deadly illness it can be.
open.substack.com/pub/undercla...
Please read, RT and subscribe.
We MUST talk about ME. And start treating it as the deadly illness it can be.
open.substack.com/pub/undercla...
Please read, RT and subscribe.
Maeve's Story
"I was hungry and thirsty, were you there? Were you there?"
open.substack.com
December 19, 2025 at 4:28 PM
Please, please read… this is so vitally important if you don’t know what #severeME *really* is.
Also Sue is brilliant and a wonderful writer!
#MEcfs #LongCovid #GreatestMEdicalScandal #JusticeForME #HumanRights
Also Sue is brilliant and a wonderful writer!
#MEcfs #LongCovid #GreatestMEdicalScandal #JusticeForME #HumanRights
What I hate most is the squabbling & corruption. I’ve been bedbound by #SevereME for years & have to watch from the sidelines as people with ME die while so many in power waste precious energy on greed & self-interest. Where is the humanity? Why don’t they care?
#GreatestMEdicalScandal #JusticeForME
#GreatestMEdicalScandal #JusticeForME
December 8, 2025 at 6:13 PM
What I hate most is the squabbling & corruption. I’ve been bedbound by #SevereME for years & have to watch from the sidelines as people with ME die while so many in power waste precious energy on greed & self-interest. Where is the humanity? Why don’t they care?
#GreatestMEdicalScandal #JusticeForME
#GreatestMEdicalScandal #JusticeForME