Thanks to @achronicvoice.com for sharing my post on what scares me as someone living with #FND!
#FNDAware #Voices4FND
#FNDAware #Voices4FND
“Forced to navigate the world with the aid of a crutch, I am unable to hold onto an umbrella at the same time. I have no choice but to withstand [#rain], becoming drenched as a result.”: buff.ly/2Mxeuad
by @serenebutterfly.bsky.social
#ChronicIllness #FND #ChronicallyIll
by @serenebutterfly.bsky.social
#ChronicIllness #FND #ChronicallyIll
10 Things I'm Afraid Of Due to FND –
When living with a neurological condition like FND there are many fears that go along with it. This post is the 10 Things I'm afraid of because of FND
buff.ly
April 30, 2025 at 11:29 AM
Thanks to @achronicvoice.com for sharing my post on what scares me as someone living with #FND!
#FNDAware #Voices4FND
#FNDAware #Voices4FND
“You don’t observe the nights my body contorts from unrelenting and disabling pain that radiates throughout my legs. Pain that often keeps me awake hours into the fledgeling mornings.” www.brainlesionandme.com/what-you-don...
#FNDAware #FNDAwarenessDay #ChronicIllness #ChronicallyIll
#FNDAware #FNDAwarenessDay #ChronicIllness #ChronicallyIll
What You Don't See About Living with FND –
FND is an invisible illness. The effects of the condition remain unseen and the post lists the frustrations of what you don't see about living with FND
www.brainlesionandme.com
March 25, 2025 at 12:56 PM
“You don’t observe the nights my body contorts from unrelenting and disabling pain that radiates throughout my legs. Pain that often keeps me awake hours into the fledgeling mornings.” www.brainlesionandme.com/what-you-don...
#FNDAware #FNDAwarenessDay #ChronicIllness #ChronicallyIll
#FNDAware #FNDAwarenessDay #ChronicIllness #ChronicallyIll
Happy FND Awareness Month!
Salute to the many people w FND who raise awareness about this condition and make life better for all of us.
If you’d like to get involved, here’s a great place to get started
fndhope.org/fndaware/
Salute to the many people w FND who raise awareness about this condition and make life better for all of us.
If you’d like to get involved, here’s a great place to get started
fndhope.org/fndaware/
FND Awareness Month - FND Hope International
We invite not only those who battle chronic FND symptoms but their family, friends, co-workers, and communities to unite together to promote awareness, support affected individuals and advance researc...
fndhope.org
April 2, 2026 at 2:50 PM
Happy FND Awareness Month!
Salute to the many people w FND who raise awareness about this condition and make life better for all of us.
If you’d like to get involved, here’s a great place to get started
fndhope.org/fndaware/
Salute to the many people w FND who raise awareness about this condition and make life better for all of us.
If you’d like to get involved, here’s a great place to get started
fndhope.org/fndaware/
Summary (2/2):
-mocking FND patients could drive them to antivax
-FND is a rule-in diagnosis based on exam findings
-brief videos online are no substitute for a neuro exam
-being #FNDaware helps patients understand the diagnosis & connect to resources
-listen to FND patients
-mocking FND patients could drive them to antivax
-FND is a rule-in diagnosis based on exam findings
-brief videos online are no substitute for a neuro exam
-being #FNDaware helps patients understand the diagnosis & connect to resources
-listen to FND patients
December 18, 2024 at 1:28 PM
Summary (2/2):
-mocking FND patients could drive them to antivax
-FND is a rule-in diagnosis based on exam findings
-brief videos online are no substitute for a neuro exam
-being #FNDaware helps patients understand the diagnosis & connect to resources
-listen to FND patients
-mocking FND patients could drive them to antivax
-FND is a rule-in diagnosis based on exam findings
-brief videos online are no substitute for a neuro exam
-being #FNDaware helps patients understand the diagnosis & connect to resources
-listen to FND patients
The FND misinformation in this video is very concerning. They discuss a number of FND symptoms but wrongly believe FND means feigning. They admit they don’t know the cause of the symptoms but they are open to learning more to figure it out.
Dr. Ruhoy, please consider learning about FND ⬇️
#FNDaware
Dr. Ruhoy, please consider learning about FND ⬇️
#FNDaware
December 24, 2024 at 9:37 PM
The FND misinformation in this video is very concerning. They discuss a number of FND symptoms but wrongly believe FND means feigning. They admit they don’t know the cause of the symptoms but they are open to learning more to figure it out.
Dr. Ruhoy, please consider learning about FND ⬇️
#FNDaware
Dr. Ruhoy, please consider learning about FND ⬇️
#FNDaware
The Disabled Leads Bundle! I'm a #disabled writer & #disability representation is valuable. You can get Airphibious, a swashbuckling #fantasy, or The Wood, a coming-of-age fable, for 75% off.
#FNDaware #FND #writing #indiebooks #books #literature #novella #fable #adventure
itch.io/s/184970/dis...
#FNDaware #FND #writing #indiebooks #books #literature #novella #fable #adventure
itch.io/s/184970/dis...
April 24, 2026 at 5:54 PM
The Disabled Leads Bundle! I'm a #disabled writer & #disability representation is valuable. You can get Airphibious, a swashbuckling #fantasy, or The Wood, a coming-of-age fable, for 75% off.
#FNDaware #FND #writing #indiebooks #books #literature #novella #fable #adventure
itch.io/s/184970/dis...
#FNDaware #FND #writing #indiebooks #books #literature #novella #fable #adventure
itch.io/s/184970/dis...
My eyes roll back.
I’m losing control top down –
Trapped.
A passenger in a car
speeding down the highway
with no driver.
Concrete brick
on the gas pedal,
no hands on the wheel –
Trapped.
("Trapped" is a poem about my life with #FND #seizures - continued in comments)
#FNDAware #poetry #disabled
I’m losing control top down –
Trapped.
A passenger in a car
speeding down the highway
with no driver.
Concrete brick
on the gas pedal,
no hands on the wheel –
Trapped.
("Trapped" is a poem about my life with #FND #seizures - continued in comments)
#FNDAware #poetry #disabled
April 23, 2026 at 7:56 PM
April is FND Awareness Month! I acquired functional neurological disorder a few years ago as a result of COVID infection. I experience intermittent paralysis, muscle weakness, brain fog, tremors, and non-epileptic seizures as a result.
#FNDAware #FND #disability #covid
fndhope.org/fndaware/
#FNDAware #FND #disability #covid
fndhope.org/fndaware/
FND Awareness Month - FND Hope International
We invite not only those who battle chronic FND symptoms but their family, friends, co-workers, and communities to unite together to promote awareness, support affected individuals and advance researc...
fndhope.org
April 23, 2026 at 12:23 AM
April is FND Awareness Month! I acquired functional neurological disorder a few years ago as a result of COVID infection. I experience intermittent paralysis, muscle weakness, brain fog, tremors, and non-epileptic seizures as a result.
#FNDAware #FND #disability #covid
fndhope.org/fndaware/
#FNDAware #FND #disability #covid
fndhope.org/fndaware/
Hiding in Plain Sight: Functional Neurological Disorders in the News | The Journal of Neuropsychiatry and Clinical Neurosciences
@LaFaverMD @jonstoneneuro #FND #FNDaware https://neuro.psychiatryonline.org/doi/full/10.1176/appi.neuropsych.19010025
@LaFaverMD @jonstoneneuro #FND #FNDaware https://neuro.psychiatryonline.org/doi/full/10.1176/appi.neuropsych.19010025
Hiding in Plain Sight: Functional Neurological Disorders ...
Objective: Functional movement and seizure disorders are ...
neuro.psychiatryonline.org
November 29, 2024 at 2:43 PM
Hiding in Plain Sight: Functional Neurological Disorders in the News | The Journal of Neuropsychiatry and Clinical Neurosciences
@LaFaverMD @jonstoneneuro #FND #FNDaware https://neuro.psychiatryonline.org/doi/full/10.1176/appi.neuropsych.19010025
@LaFaverMD @jonstoneneuro #FND #FNDaware https://neuro.psychiatryonline.org/doi/full/10.1176/appi.neuropsych.19010025
Functional movement disorders: Is the crisis resolved? - Dr. Hallett - 2019 - Movement Disorders - Wiley Online Library #FNDaware https://onlinelibrary.wiley.com/doi/10.1002/mds.27713
November 29, 2024 at 4:54 AM
Functional movement disorders: Is the crisis resolved? - Dr. Hallett - 2019 - Movement Disorders - Wiley Online Library #FNDaware https://onlinelibrary.wiley.com/doi/10.1002/mds.27713
Tremor severity improved significantly after CBT; associated with changes in the anterior cingulate/paracingulate activity. May represent a marker of emotional dysregulation in FT and predictor of treatment response. #FNDaware in @GreenJournal ...
November 28, 2024 at 8:56 PM
Tremor severity improved significantly after CBT; associated with changes in the anterior cingulate/paracingulate activity. May represent a marker of emotional dysregulation in FT and predictor of treatment response. #FNDaware in @GreenJournal ...
Compelling data from @stephanamayer @HenryFordNeuro. Not an uncommon consult during my residency. #FND care deserves better understanding, earlier diagnosis and more resources. #FNDaware https://www.sciencedirect.com/science/article/abs/pii/S1059131119307411
ScienceDirect
www.sciencedirect.com
November 28, 2024 at 10:11 AM
Compelling data from @stephanamayer @HenryFordNeuro. Not an uncommon consult during my residency. #FND care deserves better understanding, earlier diagnosis and more resources. #FNDaware https://www.sciencedirect.com/science/article/abs/pii/S1059131119307411
A detailed description (with videos) of 26 patients with Cranial Functional Movement Disorders and literature review by @SanjayP30043502 #FND #FNDaware #Neurology
http://tremorjournal.org/article/10.5334/tohm.352
http://tremorjournal.org/article/10.5334/tohm.352
Cranial Functional Movement Disorders: A Case Series with...
Tremor and Other Hyperkinetic Movements (TOHM) [ISSN: 216...
tremorjournal.org
November 27, 2024 at 12:04 PM
A detailed description (with videos) of 26 patients with Cranial Functional Movement Disorders and literature review by @SanjayP30043502 #FND #FNDaware #Neurology
http://tremorjournal.org/article/10.5334/tohm.352
http://tremorjournal.org/article/10.5334/tohm.352
A wonderfully comprehensive review on functional dystonia from @MGHNeurology @Harvard in @FrontNeurol #neurotwitter #neurology #fndaware
PS. Tables 1 and 3 for the busy clinician https://www.frontiersin.org/articles/10.3389/fneur.2020.605262/full
PS. Tables 1 and 3 for the busy clinician https://www.frontiersin.org/articles/10.3389/fneur.2020.605262/full
Frontiers | Functional Dystonia: Differentiation From Pri...
Dystonia is a common movement disorder, involving sustain...
www.frontiersin.org
November 26, 2024 at 9:13 PM
A wonderfully comprehensive review on functional dystonia from @MGHNeurology @Harvard in @FrontNeurol #neurotwitter #neurology #fndaware
PS. Tables 1 and 3 for the busy clinician https://www.frontiersin.org/articles/10.3389/fneur.2020.605262/full
PS. Tables 1 and 3 for the busy clinician https://www.frontiersin.org/articles/10.3389/fneur.2020.605262/full
Drs. @GGilmourMD and @SarahLidstone present a comprehensive review of FND. #FNDaware
Drs. @LucaMarsili1 @MatteoBologn and I present our approach to tremor and the diagnostic silos, overlap and gaps.
Drs. @LucaMarsili1 @MatteoBologn and I present our approach to tremor and the diagnostic silos, overlap and gaps.
November 25, 2024 at 8:17 AM
Drs. @GGilmourMD and @SarahLidstone present a comprehensive review of FND. #FNDaware
Drs. @LucaMarsili1 @MatteoBologn and I present our approach to tremor and the diagnostic silos, overlap and gaps.
Drs. @LucaMarsili1 @MatteoBologn and I present our approach to tremor and the diagnostic silos, overlap and gaps.
Had a great opportunity yesterday to appear on Notts TV with my colleague Helen Whittle to talk about #FND and our recent event 'Stage and Screen'. #FNDaware #NottinghamTrentUniversity
(Interview startes about 2 minutes in)
www.youtube.com/watch?v=zKnz...
(Interview startes about 2 minutes in)
www.youtube.com/watch?v=zKnz...
Notts Today, Monday 7th April
YouTube video by Notts TV
www.youtube.com
April 8, 2025 at 9:01 AM
Had a great opportunity yesterday to appear on Notts TV with my colleague Helen Whittle to talk about #FND and our recent event 'Stage and Screen'. #FNDaware #NottinghamTrentUniversity
(Interview startes about 2 minutes in)
www.youtube.com/watch?v=zKnz...
(Interview startes about 2 minutes in)
www.youtube.com/watch?v=zKnz...
March 25, 2025 at 9:32 AM
Congrats to Molly on her brilliant winning entry on #FND in the Future Neuro #MyUniqueBrain Art Competition. Thank you Molly for raising awareness of FND through your art, especially for all the young people living with FND. 💚🧡
@fndportal.bsky.social @rcsi.bsky.social
#FNDIreland #FNDAware
@fndportal.bsky.social @rcsi.bsky.social
#FNDIreland #FNDAware
January 17, 2025 at 10:41 AM
Congrats to Molly on her brilliant winning entry on #FND in the Future Neuro #MyUniqueBrain Art Competition. Thank you Molly for raising awareness of FND through your art, especially for all the young people living with FND. 💚🧡
@fndportal.bsky.social @rcsi.bsky.social
#FNDIreland #FNDAware
@fndportal.bsky.social @rcsi.bsky.social
#FNDIreland #FNDAware
Go blue and orange this April for FND Awareness Month! FND affects the nervous system, causing a range of involuntary physical, cognitive, and sensory symptoms can greatly impact daily life. Join the campaign, and learn how to spread awareness and donate through #FNDaware and fndhope.org/fndaware/
April 17, 2026 at 10:51 PM
Go blue and orange this April for FND Awareness Month! FND affects the nervous system, causing a range of involuntary physical, cognitive, and sensory symptoms can greatly impact daily life. Join the campaign, and learn how to spread awareness and donate through #FNDaware and fndhope.org/fndaware/
Functional Neurological Disorder is more common than you may think!
#FND #FNDAware #FunctionalNeurologicalDisorder
#FND #FNDAware #FunctionalNeurologicalDisorder
April 18, 2025 at 8:28 AM
Functional Neurological Disorder is more common than you may think!
#FND #FNDAware #FunctionalNeurologicalDisorder
#FND #FNDAware #FunctionalNeurologicalDisorder
Drop attacks are common, disabling and poorly studied. Our new @JNNP_BMJ paper with 83 patients explores the possibility that, in some, they are a form of functional neurological disorder #fndaware @IngridHoeritza1 @AlanCarson15 https://goo.gl/2Qzta8 https://goo.gl/HVxxc7
“CRYPTOGENIC DROP ATTACKS” REVISITED
Background Drop attacks are idiopathic falls occurring pr...
goo.gl
November 24, 2024 at 2:07 PM
Drop attacks are common, disabling and poorly studied. Our new @JNNP_BMJ paper with 83 patients explores the possibility that, in some, they are a form of functional neurological disorder #fndaware @IngridHoeritza1 @AlanCarson15 https://goo.gl/2Qzta8 https://goo.gl/HVxxc7
FND + mobility aids = empowerment. For many living with Functional Neurological Disorder, these tools aren’t defeats, they’re freedom. Use what helps you move through the world. 💙
#FND #FunctionalNeurologicalDisorder #MobilityAids #FNDAware #ChronicIllnessSupport
#FND #FunctionalNeurologicalDisorder #MobilityAids #FNDAware #ChronicIllnessSupport
April 23, 2026 at 10:02 AM
FND + mobility aids = empowerment. For many living with Functional Neurological Disorder, these tools aren’t defeats, they’re freedom. Use what helps you move through the world. 💙
#FND #FunctionalNeurologicalDisorder #MobilityAids #FNDAware #ChronicIllnessSupport
#FND #FunctionalNeurologicalDisorder #MobilityAids #FNDAware #ChronicIllnessSupport