Day 3 of treatment at the FND clinic.
My team is incredible.
Not every FNDer gets proper treatment, and I am incredibly grateful to be here. 🙏
#fndawareness #disability #disabilityawareness #physicaltherapy #neurophysiotherapy
My team is incredible.
Not every FNDer gets proper treatment, and I am incredibly grateful to be here. 🙏
#fndawareness #disability #disabilityawareness #physicaltherapy #neurophysiotherapy
February 14, 2025 at 9:59 PM
Day 3 of treatment at the FND clinic.
My team is incredible.
Not every FNDer gets proper treatment, and I am incredibly grateful to be here. 🙏
#fndawareness #disability #disabilityawareness #physicaltherapy #neurophysiotherapy
My team is incredible.
Not every FNDer gets proper treatment, and I am incredibly grateful to be here. 🙏
#fndawareness #disability #disabilityawareness #physicaltherapy #neurophysiotherapy
...are too often seen as a "liability." Carers, too, are often left to cope with enormous stress and time pressures of their own.
It's a condition that's too often dismissed, and that needs to change. Thank you to everyone at FND FrieNDs for such a productive conversation. (2/2)
#FND #FNDAwareness
It's a condition that's too often dismissed, and that needs to change. Thank you to everyone at FND FrieNDs for such a productive conversation. (2/2)
#FND #FNDAwareness
September 24, 2026 at 4:42 PM
...are too often seen as a "liability." Carers, too, are often left to cope with enormous stress and time pressures of their own.
It's a condition that's too often dismissed, and that needs to change. Thank you to everyone at FND FrieNDs for such a productive conversation. (2/2)
#FND #FNDAwareness
It's a condition that's too often dismissed, and that needs to change. Thank you to everyone at FND FrieNDs for such a productive conversation. (2/2)
#FND #FNDAwareness
The cost of ignoring FND patients is immeasurable—lives lost in silence, potential research halted, and trust in healthcare eroded. It's time for the medical community to step up, listen, and create real pathways to care. #FNDawareness #HealthEquity"
February 20, 2025 at 5:37 PM
The cost of ignoring FND patients is immeasurable—lives lost in silence, potential research halted, and trust in healthcare eroded. It's time for the medical community to step up, listen, and create real pathways to care. #FNDawareness #HealthEquity"
Only 4% of 580 people with Functional Neurological Disorder said that A&E staff understood their condition.
#FND #FunctionalNeurologicalDisorder #FNDAwareness
#FND #FunctionalNeurologicalDisorder #FNDAwareness
April 7, 2025 at 12:35 PM
Only 4% of 580 people with Functional Neurological Disorder said that A&E staff understood their condition.
#FND #FunctionalNeurologicalDisorder #FNDAwareness
#FND #FunctionalNeurologicalDisorder #FNDAwareness
Any form of support is greatly appreciated #fnd #functionalneurologicaldisorder #neurologicalcondition #fndawareness
March 24, 2025 at 4:28 AM
Any form of support is greatly appreciated #fnd #functionalneurologicaldisorder #neurologicalcondition #fndawareness
March 25th is FND awareness day! Please share, repost and most importantly, do some research on Functional Neurological Disorder <3 let's spread the word! #fnd #functionalneurologicaldisorder #fndawareness
March 25, 2025 at 1:45 PM
March 25th is FND awareness day! Please share, repost and most importantly, do some research on Functional Neurological Disorder <3 let's spread the word! #fnd #functionalneurologicaldisorder #fndawareness
🎥 Weekly Round Up
Join me outside the BBC studios to find out what I got up to last week as your MP for Tiverton and Minehead.
#Somerset #Devon #fndawareness #ArmedForcesDay #Farming #BBC
Join me outside the BBC studios to find out what I got up to last week as your MP for Tiverton and Minehead.
#Somerset #Devon #fndawareness #ArmedForcesDay #Farming #BBC
June 29, 2026 at 3:28 PM
🎥 Weekly Round Up
Join me outside the BBC studios to find out what I got up to last week as your MP for Tiverton and Minehead.
#Somerset #Devon #fndawareness #ArmedForcesDay #Farming #BBC
Join me outside the BBC studios to find out what I got up to last week as your MP for Tiverton and Minehead.
#Somerset #Devon #fndawareness #ArmedForcesDay #Farming #BBC
Why do people develop #FND? It’s complex and there isn't just one factor.
🔑 Underlying genetics, chronic illness, trauma
⚡ Triggering stress, illness, injury
🔄 Maintaining anxiety, stigma, lack of support
FND = biopsychosocial illness. Real symptoms. Real support is needed.
#FNDawareness #fnd
🔑 Underlying genetics, chronic illness, trauma
⚡ Triggering stress, illness, injury
🔄 Maintaining anxiety, stigma, lack of support
FND = biopsychosocial illness. Real symptoms. Real support is needed.
#FNDawareness #fnd
April 21, 2025 at 5:20 PM
Why do people develop #FND? It’s complex and there isn't just one factor.
🔑 Underlying genetics, chronic illness, trauma
⚡ Triggering stress, illness, injury
🔄 Maintaining anxiety, stigma, lack of support
FND = biopsychosocial illness. Real symptoms. Real support is needed.
#FNDawareness #fnd
🔑 Underlying genetics, chronic illness, trauma
⚡ Triggering stress, illness, injury
🔄 Maintaining anxiety, stigma, lack of support
FND = biopsychosocial illness. Real symptoms. Real support is needed.
#FNDawareness #fnd
Showing off my new “I don’t wear bows. I shoot them.” sticker… and also the fun distance I’ve gotten to shoot from recently!
.
.
#Archery #ParaArchery #IDontWearBowsIShootThem #TeamCAF
#AdaptiveAthlete #SpoonieFitness #ChronicBadass #HeartWarrior #FNDAwareness #DystoniaWarrior #PNESAwareness
.
.
#Archery #ParaArchery #IDontWearBowsIShootThem #TeamCAF
#AdaptiveAthlete #SpoonieFitness #ChronicBadass #HeartWarrior #FNDAwareness #DystoniaWarrior #PNESAwareness
March 19, 2025 at 3:20 AM
Showing off my new “I don’t wear bows. I shoot them.” sticker… and also the fun distance I’ve gotten to shoot from recently!
.
.
#Archery #ParaArchery #IDontWearBowsIShootThem #TeamCAF
#AdaptiveAthlete #SpoonieFitness #ChronicBadass #HeartWarrior #FNDAwareness #DystoniaWarrior #PNESAwareness
.
.
#Archery #ParaArchery #IDontWearBowsIShootThem #TeamCAF
#AdaptiveAthlete #SpoonieFitness #ChronicBadass #HeartWarrior #FNDAwareness #DystoniaWarrior #PNESAwareness
Many with FND experience sensory overload—lights too bright, sounds too loud, touch painful. The brain’s filtering system (the gating mechanism) may be dysregulated. Learn more under “What is FND?” on our website. www.fndcourage.org/what-is-fnd/ #FND #FNDawareness #SensoryProcessing
July 7, 2025 at 4:12 PM
Many with FND experience sensory overload—lights too bright, sounds too loud, touch painful. The brain’s filtering system (the gating mechanism) may be dysregulated. Learn more under “What is FND?” on our website. www.fndcourage.org/what-is-fnd/ #FND #FNDawareness #SensoryProcessing
I've been in treatment for only three weeks, and I was able to walk the dog with just us and the cane yesterday.
Regaining my (fierce) independence,
one day at a time.
💪💪💪
#fndawareness #neuro-health #bordercollie #winter2025
Regaining my (fierce) independence,
one day at a time.
💪💪💪
#fndawareness #neuro-health #bordercollie #winter2025
February 11, 2025 at 12:17 AM
I've been in treatment for only three weeks, and I was able to walk the dog with just us and the cane yesterday.
Regaining my (fierce) independence,
one day at a time.
💪💪💪
#fndawareness #neuro-health #bordercollie #winter2025
Regaining my (fierce) independence,
one day at a time.
💪💪💪
#fndawareness #neuro-health #bordercollie #winter2025
Hi all!
I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective.
Check it out!
#fnd #fndawareness #disabilityawareness #chronicillness
I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective.
Check it out!
#fnd #fndawareness #disabilityawareness #chronicillness
A Patients Guide to FND
On Overview of Functional Neurological Disorder from a Patient's Perspective
open.substack.com
March 19, 2025 at 1:54 PM
Hi all!
I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective.
Check it out!
#fnd #fndawareness #disabilityawareness #chronicillness
I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective.
Check it out!
#fnd #fndawareness #disabilityawareness #chronicillness
First 'official' day at the FND Clinic at UPMC.
4 hour intake,
lots of water,
and lots of hope.
Recovery may be possible,
and I might believe it.
Let's see what happens...
#fndawareness #fnd #disabilityawareness #disabledwriter #recovery
4 hour intake,
lots of water,
and lots of hope.
Recovery may be possible,
and I might believe it.
Let's see what happens...
#fndawareness #fnd #disabilityawareness #disabledwriter #recovery
March 17, 2025 at 3:06 PM
First 'official' day at the FND Clinic at UPMC.
4 hour intake,
lots of water,
and lots of hope.
Recovery may be possible,
and I might believe it.
Let's see what happens...
#fndawareness #fnd #disabilityawareness #disabledwriter #recovery
4 hour intake,
lots of water,
and lots of hope.
Recovery may be possible,
and I might believe it.
Let's see what happens...
#fndawareness #fnd #disabilityawareness #disabledwriter #recovery
I asked the Leader of the House for a debate on establishing a critical pathway for FND. This condition is too often misunderstood, and that needs to change. If you need support with any issue, get in touch: rachel.gilmour.mp@parliament.uk
#Somerset #Devon #FNDawareness
#Somerset #Devon #FNDawareness
June 12, 2026 at 8:04 PM
I asked the Leader of the House for a debate on establishing a critical pathway for FND. This condition is too often misunderstood, and that needs to change. If you need support with any issue, get in touch: rachel.gilmour.mp@parliament.uk
#Somerset #Devon #FNDawareness
#Somerset #Devon #FNDawareness
I got my email while I was testing out my new arrows this afternoon!! Super excited to continue using my funds for strength training and now talking more about competing in archery!
#TeamCAF #Archery #ParaArchery #AdaptiveAthlete #ChronicBadass #FNDAwareness #DystoniaWarrior #PNESAwarenes
#TeamCAF #Archery #ParaArchery #AdaptiveAthlete #ChronicBadass #FNDAwareness #DystoniaWarrior #PNESAwarenes
March 25, 2025 at 11:59 PM
I got my email while I was testing out my new arrows this afternoon!! Super excited to continue using my funds for strength training and now talking more about competing in archery!
#TeamCAF #Archery #ParaArchery #AdaptiveAthlete #ChronicBadass #FNDAwareness #DystoniaWarrior #PNESAwarenes
#TeamCAF #Archery #ParaArchery #AdaptiveAthlete #ChronicBadass #FNDAwareness #DystoniaWarrior #PNESAwarenes
The girl on the left was not happy with her life. I had been going through constant seizures that affected my capacity to work and care for myself for nearly 13 years. On the right? This is today, a year seizure-free. I never would have believed I could be here. #seizureawareness #fndawareness
January 19, 2025 at 7:32 AM
The girl on the left was not happy with her life. I had been going through constant seizures that affected my capacity to work and care for myself for nearly 13 years. On the right? This is today, a year seizure-free. I never would have believed I could be here. #seizureawareness #fndawareness
Functional Neurological Disorder is diagnosed by positive clinical signs-not by ruling things out. It can mimic other neurological conditions, so misdiagnosis happens. But like Parkinson’s or epilepsy, #FND can be accurately diagnosed through a detailed history and exam. #FNDawareness #FNDcourage
April 7, 2025 at 2:23 PM
Functional Neurological Disorder is diagnosed by positive clinical signs-not by ruling things out. It can mimic other neurological conditions, so misdiagnosis happens. But like Parkinson’s or epilepsy, #FND can be accurately diagnosed through a detailed history and exam. #FNDawareness #FNDcourage
After #FNDAwareness, there are common questions among therapists and MDs:
What do I say?
What should we do during episodes?
How do we support school participation and recovery?
We created this pediatric FND diagnosis packet to help:
canva.link/0k20pyusne3o...
#Neurology #RehabMedicine #FND
What do I say?
What should we do during episodes?
How do we support school participation and recovery?
We created this pediatric FND diagnosis packet to help:
canva.link/0k20pyusne3o...
#Neurology #RehabMedicine #FND
New Diagnosis Patient Packet: April FND Awareness
canva.link
April 9, 2026 at 3:01 PM
After #FNDAwareness, there are common questions among therapists and MDs:
What do I say?
What should we do during episodes?
How do we support school participation and recovery?
We created this pediatric FND diagnosis packet to help:
canva.link/0k20pyusne3o...
#Neurology #RehabMedicine #FND
What do I say?
What should we do during episodes?
How do we support school participation and recovery?
We created this pediatric FND diagnosis packet to help:
canva.link/0k20pyusne3o...
#Neurology #RehabMedicine #FND
A few weeks ago I raised the case of a constituent’s daughter with Acute FND in the Commons. With no DLA or Carer’s Allowance support, I called for a debate on a dedicated FND pathway and wrote to the Leader of the House.
Here is the Leader of the House's response.⬇️
#Somerset #Devon #FNDawareness
Here is the Leader of the House's response.⬇️
#Somerset #Devon #FNDawareness
July 9, 2026 at 6:58 PM
A few weeks ago I raised the case of a constituent’s daughter with Acute FND in the Commons. With no DLA or Carer’s Allowance support, I called for a debate on a dedicated FND pathway and wrote to the Leader of the House.
Here is the Leader of the House's response.⬇️
#Somerset #Devon #FNDawareness
Here is the Leader of the House's response.⬇️
#Somerset #Devon #FNDawareness
As a part of my recovery from the cognitive deficit in FND, I'm reading poetry again.
Enjoy, Sunken Moons.
#poetry #poet #fndawareness #writer #disabledwriter
Enjoy, Sunken Moons.
#poetry #poet #fndawareness #writer #disabledwriter
Sunken Moons
The stars are burning,
open.substack.com
April 2, 2025 at 1:02 PM
As a part of my recovery from the cognitive deficit in FND, I'm reading poetry again.
Enjoy, Sunken Moons.
#poetry #poet #fndawareness #writer #disabledwriter
Enjoy, Sunken Moons.
#poetry #poet #fndawareness #writer #disabledwriter
Another update of how life is going as I navigate #FND treatment.
If you haven't already, go follow my substack, Wounded Healer--a column that intimately follows a life lived in the hard truth of stigma and in the blessings as an aenigma.
#fndawareness #writer #substack #disabilityawareness
If you haven't already, go follow my substack, Wounded Healer--a column that intimately follows a life lived in the hard truth of stigma and in the blessings as an aenigma.
#fndawareness #writer #substack #disabilityawareness
February 2025
The Medicine House Series
open.substack.com
February 28, 2025 at 2:16 PM
Another update of how life is going as I navigate #FND treatment.
If you haven't already, go follow my substack, Wounded Healer--a column that intimately follows a life lived in the hard truth of stigma and in the blessings as an aenigma.
#fndawareness #writer #substack #disabilityawareness
If you haven't already, go follow my substack, Wounded Healer--a column that intimately follows a life lived in the hard truth of stigma and in the blessings as an aenigma.
#fndawareness #writer #substack #disabilityawareness
Functional Neurological Disorder is a problem with the nervous system and how the brain and body send and receive signals. This April, FNDcourage is raising awareness. Join us in sharing more about #fnd, breaking down misconceptions, and bringing hope to those affected.
#fndawareness #fndcourage
#fndawareness #fndcourage
April 3, 2026 at 1:06 AM
Functional Neurological Disorder is a problem with the nervous system and how the brain and body send and receive signals. This April, FNDcourage is raising awareness. Join us in sharing more about #fnd, breaking down misconceptions, and bringing hope to those affected.
#fndawareness #fndcourage
#fndawareness #fndcourage
Hello, I decided to take a video of my daily life with FND both for my drs and to spread awareness of this disability. #FND #fndwarrior #fndawareness #mentalhealth #disability
May 9, 2026 at 7:12 PM
Hello, I decided to take a video of my daily life with FND both for my drs and to spread awareness of this disability. #FND #fndwarrior #fndawareness #mentalhealth #disability
I highly recommend doing your research still on FND. I know I haven't done many posts on it this month, but it is still FND awareness month! So spread the word and help bring awareness to the world!
#fndawareness #fndawarenessmonth #functionaltics #functionalneurologicaldisorder
#fndawareness #fndawarenessmonth #functionaltics #functionalneurologicaldisorder
April 23, 2025 at 1:46 PM
I highly recommend doing your research still on FND. I know I haven't done many posts on it this month, but it is still FND awareness month! So spread the word and help bring awareness to the world!
#fndawareness #fndawarenessmonth #functionaltics #functionalneurologicaldisorder
#fndawareness #fndawarenessmonth #functionaltics #functionalneurologicaldisorder