Sundelbolong or Queen of Black Magic are probably main pnes, both from '81 I think
November 7, 2026 at 1:09 AM
Sundelbolong or Queen of Black Magic are probably main pnes, both from '81 I think
My poor kid spent another few days in the hospital, only to be told we need to take her to another hospital with specialists that are more equipped to handle her neurologist disorders. I sooooo need to win the lottery....
#parenting #health #kidshealth #healthcare #weneedfreehealthcare #fnd #pnes
#parenting #health #kidshealth #healthcare #weneedfreehealthcare #fnd #pnes
November 7, 2026 at 8:01 PM
My poor kid spent another few days in the hospital, only to be told we need to take her to another hospital with specialists that are more equipped to handle her neurologist disorders. I sooooo need to win the lottery....
#parenting #health #kidshealth #healthcare #weneedfreehealthcare #fnd #pnes
#parenting #health #kidshealth #healthcare #weneedfreehealthcare #fnd #pnes
i think it's actually insane that staying concious during an epileptic tonic clonic seizure is a real possible thing not immediately meaning pnes and barely anyone recognizes that. i've been untreated and dismissed for a whole year just because of that
November 2, 2026 at 10:21 AM
i think it's actually insane that staying concious during an epileptic tonic clonic seizure is a real possible thing not immediately meaning pnes and barely anyone recognizes that. i've been untreated and dismissed for a whole year just because of that
pnes is awful what the actual fuck
October 30, 2026 at 2:50 PM
pnes is awful what the actual fuck
I WISH I WIIIISHSHHH I WIIIISHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!!! DOCTORS CONTROL MY PNES SO I CAN GO ACROSS DA BORDER PLEASSEEEEEEE
October 29, 2026 at 5:01 PM
I WISH I WIIIISHSHHH I WIIIISHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!!! DOCTORS CONTROL MY PNES SO I CAN GO ACROSS DA BORDER PLEASSEEEEEEE
my seizures dramatically worsened lately, which lead to me having 4 this friday. so i did an emergency eeg and was lucky enough for it to finally catch epileptic activity and to find a great specialist. it wasn't pnes, it was epilepsy that's been slowly getting worse since i was a child .bruh
October 27, 2026 at 5:20 PM
my seizures dramatically worsened lately, which lead to me having 4 this friday. so i did an emergency eeg and was lucky enough for it to finally catch epileptic activity and to find a great specialist. it wasn't pnes, it was epilepsy that's been slowly getting worse since i was a child .bruh
Real seizures, with a different cause. 💜 Functional seizures (PNES) are real seizure-like episodes, not epilepsy electrical misfiring. Often years to diagnose, deeply misunderstood — never fake, never imagined. Same compassion as anyone else. #UnveilingUnicorns (AI-assisted)
October 29, 2026 at 5:07 AM
Real seizures, with a different cause. 💜 Functional seizures (PNES) are real seizure-like episodes, not epilepsy electrical misfiring. Often years to diagnose, deeply misunderstood — never fake, never imagined. Same compassion as anyone else. #UnveilingUnicorns (AI-assisted)
Principal Leadership Series: https://loom.ly/dwBlCaE
think! conference: https://loom.ly/J-aK77A
FREE Data Series: https://loom.ly/S_-PNes
SSTAAR Trek: https://loom.ly/XOdga18
Texas Assessment Conference: https://tinyurl.com/47kzhwy2
#lead4ward #education #principalsupport
think! conference: https://loom.ly/J-aK77A
FREE Data Series: https://loom.ly/S_-PNes
SSTAAR Trek: https://loom.ly/XOdga18
Texas Assessment Conference: https://tinyurl.com/47kzhwy2
#lead4ward #education #principalsupport
October 24, 2026 at 7:11 PM
Principal Leadership Series: https://loom.ly/dwBlCaE
think! conference: https://loom.ly/J-aK77A
FREE Data Series: https://loom.ly/S_-PNes
SSTAAR Trek: https://loom.ly/XOdga18
Texas Assessment Conference: https://tinyurl.com/47kzhwy2
#lead4ward #education #principalsupport
think! conference: https://loom.ly/J-aK77A
FREE Data Series: https://loom.ly/S_-PNes
SSTAAR Trek: https://loom.ly/XOdga18
Texas Assessment Conference: https://tinyurl.com/47kzhwy2
#lead4ward #education #principalsupport
I don't have advice unfortunately but I am in a very similar boat 😭 it does suck when weeds your life line (in my case I literally can't stop due to PNES)
October 22, 2026 at 12:05 PM
I don't have advice unfortunately but I am in a very similar boat 😭 it does suck when weeds your life line (in my case I literally can't stop due to PNES)
Ok! Sure. Do you want furry ocs or normal pnes?
October 21, 2026 at 2:09 AM
Ok! Sure. Do you want furry ocs or normal pnes?
And you are correct - I am an experienced professional who has managed cases of PNES
October 17, 2026 at 2:52 PM
And you are correct - I am an experienced professional who has managed cases of PNES
PNES is a thing, even professionals can be hoodwinked.
Claiming I’ve linked it is the opposite to what I wrote previously.
Waste of time.
Claiming I’ve linked it is the opposite to what I wrote previously.
Waste of time.
October 17, 2026 at 2:34 PM
PNES is a thing, even professionals can be hoodwinked.
Claiming I’ve linked it is the opposite to what I wrote previously.
Waste of time.
Claiming I’ve linked it is the opposite to what I wrote previously.
Waste of time.
is there a word for when your panic/anxiety attacks get so bad, you just faint opossom-style?
I already have PNES but sometimes it doesnt stop at convulsions and I start to lose consciousness
I already have PNES but sometimes it doesnt stop at convulsions and I start to lose consciousness
October 16, 2026 at 1:49 PM
is there a word for when your panic/anxiety attacks get so bad, you just faint opossom-style?
I already have PNES but sometimes it doesnt stop at convulsions and I start to lose consciousness
I already have PNES but sometimes it doesnt stop at convulsions and I start to lose consciousness
I had two seizures yesterday right after a vasovagal syncope response so it was
Faint
Panic attack
Seizure
Moment of relief
Seizure
I'm okay and it's PNES and something that happened to me a lot as a kid. It's high stress from the fallen tree and ER visit for my love.
Faint
Panic attack
Seizure
Moment of relief
Seizure
I'm okay and it's PNES and something that happened to me a lot as a kid. It's high stress from the fallen tree and ER visit for my love.
October 11, 2026 at 9:05 PM
I had two seizures yesterday right after a vasovagal syncope response so it was
Faint
Panic attack
Seizure
Moment of relief
Seizure
I'm okay and it's PNES and something that happened to me a lot as a kid. It's high stress from the fallen tree and ER visit for my love.
Faint
Panic attack
Seizure
Moment of relief
Seizure
I'm okay and it's PNES and something that happened to me a lot as a kid. It's high stress from the fallen tree and ER visit for my love.
Yes but the AI folks are like, "dunno these PNEs might make i70 through the Rockies a shorter drive but also theyll probably accidentally get used by your lawn guy and kill your whole town, we'll just have to build millions of em and maybe it'll turn out ok"
October 10, 2026 at 4:07 PM
Yes but the AI folks are like, "dunno these PNEs might make i70 through the Rockies a shorter drive but also theyll probably accidentally get used by your lawn guy and kill your whole town, we'll just have to build millions of em and maybe it'll turn out ok"
Grow fresh, organic herbs will be a cakewalk with this beginner's guide to cultivating some easy-to-grow herbs. Watch the video here: www.youtube.com/watch?v=PNes...
#gardening #kitchenherbs #herbs #kitchengarden #homegrown #freshfood #gharpedia
#gardening #kitchenherbs #herbs #kitchengarden #homegrown #freshfood #gharpedia
Grow Your Own Fresh Herbs at Home: Kitchen Garden Guide for Beginners
YouTube video by Gharpedia | Home Solutions
www.youtube.com
October 8, 2026 at 4:47 AM
Grow fresh, organic herbs will be a cakewalk with this beginner's guide to cultivating some easy-to-grow herbs. Watch the video here: www.youtube.com/watch?v=PNes...
#gardening #kitchenherbs #herbs #kitchengarden #homegrown #freshfood #gharpedia
#gardening #kitchenherbs #herbs #kitchengarden #homegrown #freshfood #gharpedia
Do not tell me i have “PNES” i will laugh and cry at the same time
October 4, 2026 at 2:22 PM
Do not tell me i have “PNES” i will laugh and cry at the same time
I have PNES (confirmed) just be patient wit me as I'm making my art it's still cooking...
Also still ass at uploading & managing my socials
Also still ass at uploading & managing my socials
October 3, 2026 at 7:25 PM
I have PNES (confirmed) just be patient wit me as I'm making my art it's still cooking...
Also still ass at uploading & managing my socials
Also still ass at uploading & managing my socials
going through my posts and deleting old/embarrassing/reactionary pnes but this one stays. this ones good
arranging metal in the shape of a "Hi :)" in my suitcase so that when they put it through TSA they tackle&kill me
October 1, 2026 at 10:00 PM
going through my posts and deleting old/embarrassing/reactionary pnes but this one stays. this ones good
“I’m still fighting been diagnosed since 2022 been denied 4x with lawyers final hearing with Federal Judge any time this month some time” —Patient Living with FND
Join the fight for change: c.org/k8s5scFqKL
#chronicillness #disability #fndawareness #disabilityrights #pnes #fndwarrior
Join the fight for change: c.org/k8s5scFqKL
#chronicillness #disability #fndawareness #disabilityrights #pnes #fndwarrior
Sign the Petition
Classify FND as a neurological disorder under SSA
c.org
September 30, 2026 at 9:22 PM
“I’m still fighting been diagnosed since 2022 been denied 4x with lawyers final hearing with Federal Judge any time this month some time” —Patient Living with FND
Join the fight for change: c.org/k8s5scFqKL
#chronicillness #disability #fndawareness #disabilityrights #pnes #fndwarrior
Join the fight for change: c.org/k8s5scFqKL
#chronicillness #disability #fndawareness #disabilityrights #pnes #fndwarrior
pNES v.7.2 by cpasjuste can now be downloaded from VitaDB or VitaDB Downloader! More info: https://www.rinnegatamante.eu/vitadb/#/info/799
September 26, 2026 at 7:36 PM
pNES v.7.2 by cpasjuste can now be downloaded from VitaDB or VitaDB Downloader! More info: https://www.rinnegatamante.eu/vitadb/#/info/799
Psychogenic non-epileptic Seizures are so weird. What do you mean one moment I can be laughing with my boss and the next moment she is freaking out because I was falling over unresponsive. I do wish it had a better acronym....unless it's women's, then na :P can make being a sub harder :( #PNES
September 25, 2026 at 6:33 PM
Psychogenic non-epileptic Seizures are so weird. What do you mean one moment I can be laughing with my boss and the next moment she is freaking out because I was falling over unresponsive. I do wish it had a better acronym....unless it's women's, then na :P can make being a sub harder :( #PNES
Autonomic Movement Disorders & Misdiagnosis: Seizure-like movements may be misdiagnosed with PNES/FND when OI isn't considered; PNES/FND can be comorbid too. www.frontiersin.org/journals/neu...
Frontiers | Improved outcomes for patients with autonomic movement disorders originally evaluated for psychogenic non-epileptiform spells
BackgroundPatients experiencing autonomic storms related to dysautonomia may present with abnormal movements, including convulsions, tremors, and myoclonus. ...
www.frontiersin.org
September 24, 2026 at 8:16 PM
Autonomic Movement Disorders & Misdiagnosis: Seizure-like movements may be misdiagnosed with PNES/FND when OI isn't considered; PNES/FND can be comorbid too. www.frontiersin.org/journals/neu...