Thank you HDYO for the opportunity to talk about HD-YAS at #HDYO Congress 2025! Truly an inspiring community and family — and this absolutely drives all the work we do! @ucl-hd.bsky.social @uclqsion.bsky.social
March 15, 2025 at 5:45 PM
Thank you HDYO for the opportunity to talk about HD-YAS at #HDYO Congress 2025! Truly an inspiring community and family — and this absolutely drives all the work we do! @ucl-hd.bsky.social @uclqsion.bsky.social
Super fun first 5K #RUN4HDYO! 🏃 💨 🏃♀️
Over £2500 raised for the Olivia (Liv) Martinez Scholarship Fund for HDYO - honouring an amazing ambassador I met at #HDYO Congress in Glasgow in 2023. Liv's kindness and passion touched so many. @ucl-hd.bsky.social @uclqsion.bsky.social
Over £2500 raised for the Olivia (Liv) Martinez Scholarship Fund for HDYO - honouring an amazing ambassador I met at #HDYO Congress in Glasgow in 2023. Liv's kindness and passion touched so many. @ucl-hd.bsky.social @uclqsion.bsky.social
June 28, 2025 at 5:04 PM
Super fun first 5K #RUN4HDYO! 🏃 💨 🏃♀️
Over £2500 raised for the Olivia (Liv) Martinez Scholarship Fund for HDYO - honouring an amazing ambassador I met at #HDYO Congress in Glasgow in 2023. Liv's kindness and passion touched so many. @ucl-hd.bsky.social @uclqsion.bsky.social
Over £2500 raised for the Olivia (Liv) Martinez Scholarship Fund for HDYO - honouring an amazing ambassador I met at #HDYO Congress in Glasgow in 2023. Liv's kindness and passion touched so many. @ucl-hd.bsky.social @uclqsion.bsky.social
Second 'RUN 4 HDYO' in honour of the life and legacy of Liv, while raising funds for the Olivia (Liv) Martinez Scholarship Fund to help more young people attend the #HDYO Congress in 2027 @hdyofeed.bsky.social @ucl-hd.bsky.social
July 4, 2026 at 1:20 PM
Second 'RUN 4 HDYO' in honour of the life and legacy of Liv, while raising funds for the Olivia (Liv) Martinez Scholarship Fund to help more young people attend the #HDYO Congress in 2027 @hdyofeed.bsky.social @ucl-hd.bsky.social
Jokes aside- we had a BLAST with Executive Director of HDYO, Jenna Heilman, playing #golfwithyourfriends and chatting about HDYO Camp for those ages 16-25 impacted by #Huntingtonsdisease
We will be there...will you?
Apply at hdyo.org
#HDREACHGAMEOVERHD #fyp #streamer #twitch #hdyo #advocacy #funny
We will be there...will you?
Apply at hdyo.org
#HDREACHGAMEOVERHD #fyp #streamer #twitch #hdyo #advocacy #funny
March 20, 2026 at 6:23 PM
Jokes aside- we had a BLAST with Executive Director of HDYO, Jenna Heilman, playing #golfwithyourfriends and chatting about HDYO Camp for those ages 16-25 impacted by #Huntingtonsdisease
We will be there...will you?
Apply at hdyo.org
#HDREACHGAMEOVERHD #fyp #streamer #twitch #hdyo #advocacy #funny
We will be there...will you?
Apply at hdyo.org
#HDREACHGAMEOVERHD #fyp #streamer #twitch #hdyo #advocacy #funny
28 February is Rare Disease Day 💜
Young people and families affected by Huntington’s disease are part of this global community, and raising awareness helps ensure no one faces it alone.
Join us! 💙💚💗
#RareDiseaseDay #HDYO #HuntingtonsDisease #RareDiseaseCommunity
Young people and families affected by Huntington’s disease are part of this global community, and raising awareness helps ensure no one faces it alone.
Join us! 💙💚💗
#RareDiseaseDay #HDYO #HuntingtonsDisease #RareDiseaseCommunity
February 24, 2026 at 7:17 PM
28 February is Rare Disease Day 💜
Young people and families affected by Huntington’s disease are part of this global community, and raising awareness helps ensure no one faces it alone.
Join us! 💙💚💗
#RareDiseaseDay #HDYO #HuntingtonsDisease #RareDiseaseCommunity
Young people and families affected by Huntington’s disease are part of this global community, and raising awareness helps ensure no one faces it alone.
Join us! 💙💚💗
#RareDiseaseDay #HDYO #HuntingtonsDisease #RareDiseaseCommunity
#TONIGHT at 8pm ET, we are #livestreaming with ED of #HDYO, Jenna Heilman, to chat about HDYO's North American camp for ages 16-25 impacted by #huntingtonsdisease
Come Hang!
Facebook Live: www.facebook.com/share/1GErRH...
Twitch: www.twitch.tv/hdreachgameo...
YouTube: www.youtube.com/@hdreachgame...
Come Hang!
Facebook Live: www.facebook.com/share/1GErRH...
Twitch: www.twitch.tv/hdreachgameo...
YouTube: www.youtube.com/@hdreachgame...
February 17, 2026 at 7:10 PM
#TONIGHT at 8pm ET, we are #livestreaming with ED of #HDYO, Jenna Heilman, to chat about HDYO's North American camp for ages 16-25 impacted by #huntingtonsdisease
Come Hang!
Facebook Live: www.facebook.com/share/1GErRH...
Twitch: www.twitch.tv/hdreachgameo...
YouTube: www.youtube.com/@hdreachgame...
Come Hang!
Facebook Live: www.facebook.com/share/1GErRH...
Twitch: www.twitch.tv/hdreachgameo...
YouTube: www.youtube.com/@hdreachgame...
EHDN is hosting a Platform Meeting in collaboration with HDYO and EHA titled 𝑢𝑛𝑖𝑄𝑢𝑟𝑒 𝑡𝑜𝑝𝑙𝑖𝑛𝑒 𝑟𝑒𝑠𝑢𝑙𝑡𝑠: 𝑢𝑛𝑝𝑎𝑐𝑘𝑖𝑛𝑔 𝑡𝘩𝑒 𝑜𝑢𝑡𝑐𝑜𝑚𝑒 𝑠𝑜 𝑓𝑎𝑟 on 𝟏𝟖 𝐍𝐨𝐯𝐞𝐦𝐛𝐞𝐫 at 𝟏𝟕:𝟎𝟎-𝟏𝟖:𝟑𝟎 𝐂𝐄𝐓.
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Welcome! You are invited to join a webinar: EHDN Platform meeting in collaboration with HDYO and EHA - uniQure topline results: Unpacking the outcomes so far. After registering, you will receive a con...
We would like to invite you to our upcoming EHDN Platform Meeting in collaboration with HDYO and EHA. UniQure topline results: unpacking the outcome so far.
The Platform Meeting will take place on Tu...
lnkd.in
October 27, 2025 at 7:02 PM
EHDN is hosting a Platform Meeting in collaboration with HDYO and EHA titled 𝑢𝑛𝑖𝑄𝑢𝑟𝑒 𝑡𝑜𝑝𝑙𝑖𝑛𝑒 𝑟𝑒𝑠𝑢𝑙𝑡𝑠: 𝑢𝑛𝑝𝑎𝑐𝑘𝑖𝑛𝑔 𝑡𝘩𝑒 𝑜𝑢𝑡𝑐𝑜𝑚𝑒 𝑠𝑜 𝑓𝑎𝑟 on 𝟏𝟖 𝐍𝐨𝐯𝐞𝐦𝐛𝐞𝐫 at 𝟏𝟕:𝟎𝟎-𝟏𝟖:𝟑𝟎 𝐂𝐄𝐓.
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi.
Register here: lnkd.in/dNdPNwxJ
@hdreachgameoverhd.bsky.social went to Florida to help out with HDYO #HDCONNECT H talks about it!
#hdreachgameoverhd #fyp #stream #streamer #huntingtonsdisease #huntingtonsdiseaseawareness💙💜 #advocacy #twitch #hdyo #help4hd #hdreach #videogames #supportgroup #fhd
#hdreachgameoverhd #fyp #stream #streamer #huntingtonsdisease #huntingtonsdiseaseawareness💙💜 #advocacy #twitch #hdyo #help4hd #hdreach #videogames #supportgroup #fhd
September 9, 2025 at 8:24 PM
@hdreachgameoverhd.bsky.social went to Florida to help out with HDYO #HDCONNECT H talks about it!
#hdreachgameoverhd #fyp #stream #streamer #huntingtonsdisease #huntingtonsdiseaseawareness💙💜 #advocacy #twitch #hdyo #help4hd #hdreach #videogames #supportgroup #fhd
#hdreachgameoverhd #fyp #stream #streamer #huntingtonsdisease #huntingtonsdiseaseawareness💙💜 #advocacy #twitch #hdyo #help4hd #hdreach #videogames #supportgroup #fhd
Did you miss our livestream with #HDYO last night?
Check it out below!
Great info about HDYO (Huntingtons disease youth organization), their camp, and plenty of belly laughs!
#huntingtonsdisease #hdreachgameoverhd #golfwithyourfriends #fyp #gamer #streamer #advocacy
www.youtube.com/live/gLSVPRn...
Check it out below!
Great info about HDYO (Huntingtons disease youth organization), their camp, and plenty of belly laughs!
#huntingtonsdisease #hdreachgameoverhd #golfwithyourfriends #fyp #gamer #streamer #advocacy
www.youtube.com/live/gLSVPRn...
Golf w/ The President of the World
YouTube video by HD Reach Game Over HD
www.youtube.com
February 18, 2026 at 1:11 PM
Did you miss our livestream with #HDYO last night?
Check it out below!
Great info about HDYO (Huntingtons disease youth organization), their camp, and plenty of belly laughs!
#huntingtonsdisease #hdreachgameoverhd #golfwithyourfriends #fyp #gamer #streamer #advocacy
www.youtube.com/live/gLSVPRn...
Check it out below!
Great info about HDYO (Huntingtons disease youth organization), their camp, and plenty of belly laughs!
#huntingtonsdisease #hdreachgameoverhd #golfwithyourfriends #fyp #gamer #streamer #advocacy
www.youtube.com/live/gLSVPRn...
Meet Banaz, an inspiring ambassador for HDYO from the Kurdistan region in Iraq! She's bravely sharing her journey with Huntington's Disease and making a difference in the Middle East. #whatishappening #huntingtonsdisease #hope #impact
March 9, 2026 at 2:20 PM
Meet Banaz, an inspiring ambassador for HDYO from the Kurdistan region in Iraq! She's bravely sharing her journey with Huntington's Disease and making a difference in the Middle East. #whatishappening #huntingtonsdisease #hope #impact
#TONIGHT at 8pm ET, we are #livestreaming with ED of #HDYO, Jenna Heilman, to chat about HDYO's North American camp for ages 16-25 impacted by #huntingtonsdisease
Come Hang!
Facebook Live: www.facebook.com/share/1GErRH...
Twitch: www.twitch.tv/hdreachgameo...
YouTube: www.youtube.com/@hdreachgame...
Come Hang!
Facebook Live: www.facebook.com/share/1GErRH...
Twitch: www.twitch.tv/hdreachgameo...
YouTube: www.youtube.com/@hdreachgame...
February 17, 2026 at 7:52 PM
#TONIGHT at 8pm ET, we are #livestreaming with ED of #HDYO, Jenna Heilman, to chat about HDYO's North American camp for ages 16-25 impacted by #huntingtonsdisease
Come Hang!
Facebook Live: www.facebook.com/share/1GErRH...
Twitch: www.twitch.tv/hdreachgameo...
YouTube: www.youtube.com/@hdreachgame...
Come Hang!
Facebook Live: www.facebook.com/share/1GErRH...
Twitch: www.twitch.tv/hdreachgameo...
YouTube: www.youtube.com/@hdreachgame...
A big thank you to @drmichelaleocadi.bsky.social and @hdyofeed.bsky.social for organising such a meaningful event today! If you’re able, please consider donating to support this important cause. Every contribution makes a difference - hdyo.enthuse.com/pf/huntingto...
🏃♀️ Run 4 HDYO Olivia (Liv) Martinez Scholarship Fund– 5K Charity Run/Walk at Battersea Park, July 4th 2026
After the success of 2025, where we raised more than £3000 thanks to generous donations, come join us again for a 5K run or walk to raise awareness of Huntington’s Disease and support the amazing work
hdyo.enthuse.com
July 4, 2026 at 1:21 PM
A big thank you to @drmichelaleocadi.bsky.social and @hdyofeed.bsky.social for organising such a meaningful event today! If you’re able, please consider donating to support this important cause. Every contribution makes a difference - hdyo.enthuse.com/pf/huntingto...
There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS SUNDAY, 1/18 to ensure you are included, before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA.
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
January 15, 2026 at 4:00 PM
There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS SUNDAY, 1/18 to ensure you are included, before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA.
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
HDYO Camp is STILL accepting applications! Learn what the application process entails and contact HDYO with any questions.
Apply here: hdyo.org/a/881-hdyo-camp
#HDREACHGAMEOVERHD #huntingtonsdisease #fyp #golfwithyourfriends #hdyo
Apply here: hdyo.org/a/881-hdyo-camp
#HDREACHGAMEOVERHD #huntingtonsdisease #fyp #golfwithyourfriends #hdyo
March 24, 2026 at 8:57 PM
HDYO Camp is STILL accepting applications! Learn what the application process entails and contact HDYO with any questions.
Apply here: hdyo.org/a/881-hdyo-camp
#HDREACHGAMEOVERHD #huntingtonsdisease #fyp #golfwithyourfriends #hdyo
Apply here: hdyo.org/a/881-hdyo-camp
#HDREACHGAMEOVERHD #huntingtonsdisease #fyp #golfwithyourfriends #hdyo
RESCHEDULED! Catch our #hdyo Camp Chat #livestream next week Feb 17th!
Tune in to our hdreachgameoverhd youtube, twitch, or HD Reach facebook page to tune in!
#hdreachgameoverhd #fyp #streamer #huntingtonsdisease #golfwithyourfriends #twitch #youtube
Tune in to our hdreachgameoverhd youtube, twitch, or HD Reach facebook page to tune in!
#hdreachgameoverhd #fyp #streamer #huntingtonsdisease #golfwithyourfriends #twitch #youtube
February 10, 2026 at 4:53 PM
RESCHEDULED! Catch our #hdyo Camp Chat #livestream next week Feb 17th!
Tune in to our hdreachgameoverhd youtube, twitch, or HD Reach facebook page to tune in!
#hdreachgameoverhd #fyp #streamer #huntingtonsdisease #golfwithyourfriends #twitch #youtube
Tune in to our hdreachgameoverhd youtube, twitch, or HD Reach facebook page to tune in!
#hdreachgameoverhd #fyp #streamer #huntingtonsdisease #golfwithyourfriends #twitch #youtube
This Tuesday Feb 10th at 8pm ET, we will be LIVE on Twitch/Youtube/Facebook with HDYO playing #golfwithfriends . This is going to be hilarious....but informational for our #huntingtonsdisease community! Especially ages 16-25...
Apply for camp:
www.hdyo.org/a/881-hdyo-c...
Apply for camp:
www.hdyo.org/a/881-hdyo-c...
February 4, 2026 at 10:52 PM
This Tuesday Feb 10th at 8pm ET, we will be LIVE on Twitch/Youtube/Facebook with HDYO playing #golfwithfriends . This is going to be hilarious....but informational for our #huntingtonsdisease community! Especially ages 16-25...
Apply for camp:
www.hdyo.org/a/881-hdyo-c...
Apply for camp:
www.hdyo.org/a/881-hdyo-c...
H talks about his #HDCONNECT experience on stream! Take a watch!
#hdreachgameoverhd #huntingtonsdisease #hdreach #hdyo #advocacy #support #peak #stream
#hdreachgameoverhd #huntingtonsdisease #hdreach #hdyo #advocacy #support #peak #stream
September 18, 2025 at 7:36 PM
H talks about his #HDCONNECT experience on stream! Take a watch!
#hdreachgameoverhd #huntingtonsdisease #hdreach #hdyo #advocacy #support #peak #stream
#hdreachgameoverhd #huntingtonsdisease #hdreach #hdyo #advocacy #support #peak #stream
Impacted by Huntingtons disease and love gaming? Join our Gaming Group!
18+
www.hdreach.org/community/ev...
#hdreachgameoverhd #florida #hdyo #help4hd #huntingtonsdisease #huntingtonsdiseaseawareness #support #neurodegenerativediseases #videogames
18+
www.hdreach.org/community/ev...
#hdreachgameoverhd #florida #hdyo #help4hd #huntingtonsdisease #huntingtonsdiseaseawareness #support #neurodegenerativediseases #videogames
September 12, 2025 at 9:17 PM
Impacted by Huntingtons disease and love gaming? Join our Gaming Group!
18+
www.hdreach.org/community/ev...
#hdreachgameoverhd #florida #hdyo #help4hd #huntingtonsdisease #huntingtonsdiseaseawareness #support #neurodegenerativediseases #videogames
18+
www.hdreach.org/community/ev...
#hdreachgameoverhd #florida #hdyo #help4hd #huntingtonsdisease #huntingtonsdiseaseawareness #support #neurodegenerativediseases #videogames
If you can't donate but still want to show support, please consider sharing to get the word out about the campaign, as well as eyes on the awesome work that the HDYO does <3 Thank you so much!
August 17, 2025 at 10:30 AM
If you can't donate but still want to show support, please consider sharing to get the word out about the campaign, as well as eyes on the awesome work that the HDYO does <3 Thank you so much!
Skyhawk Therapeutics Showcases Breakthrough in Huntington's Disease Treatment at HDYO Congress 2025#Czech_Republic#Prague#Huntington's_Disease#Skyhawk_Therapeutics#SKY-0515
Skyhawk Therapeutics Showcases Breakthrough in Huntington's Disease Treatment at HDYO Congress 2025
Skyhawk Therapeutics presents its innovative treatment for Huntington's Disease at the 2025 HDYO International Congress, showcasing promising clinical trial results.
third-news.com
March 15, 2025 at 10:15 AM
Skyhawk Therapeutics Showcases Breakthrough in Huntington's Disease Treatment at HDYO Congress 2025#Czech_Republic#Prague#Huntington's_Disease#Skyhawk_Therapeutics#SKY-0515
Advocacy Matters! HD Reach, Help4HD, HDF, HDYO & HDSA together with the #huntingtonsdisease community!
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
November 21, 2025 at 4:07 PM
Advocacy Matters! HD Reach, Help4HD, HDF, HDYO & HDSA together with the #huntingtonsdisease community!
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
November 14, 2025 at 4:31 PM
The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.