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From all of the Haemnet team, to all our friends in the bleeding disorders community and beyond, Merry Christmas & Happy Holidays!

#Haemnet #HemeSky #MedSky

hello@haemnet.com
December 20, 2024 at 7:15 AM
haemnet.bsky.social
Are you going to #ISTH2025? Look out for our posters presenting results and insights from the #Haemnet VWD360 study, which explored the daily impact of #vonWillebrandDisease with over 600 participants

#ISTH #bleedingdisorders #research #livedexperience
#HemeSky #MedSky #BloodSky
June 19, 2025 at 6:26 AM
haemnet.bsky.social
Looking forward to the next few days at #ISTH2026!

#Haemnet #bleedingdisorders #research #ISTHCongress #HemeSky
July 13, 2026 at 8:23 AM
haemnet.bsky.social
We've arrived!

#EAHAD2026 #EAHADCongress #bleedingdisorders #Haemnet
February 3, 2026 at 12:50 PM
haemnet.bsky.social
Haemnet team is at the #EAHAD2026 Congress in Dublin this week, with posters on #FactorVII deficiency, #vonWillebrandDisease & #bleedingdisorders in women. Come & say hello!

#EAHADCongress #Haemnet #bleedingdisorders #vonWillebrandDisease #FactorVII #research #MedSky #HemeSky
February 2, 2026 at 6:30 AM
haemnet.bsky.social
🇫🇷 It's getting closer...! We're making final preparations for #ISTH2026. Our posters include an evidence-based framework for implementing #haemophilia #genetherapy, including psychosocial care, based on Exigency study findings.

#ISTHCongress #Haemnet #HemeSky #MedSky
July 8, 2026 at 8:01 AM
haemnet.bsky.social
AI touches our lives in many ways, but sometimes there's nothing like human insight to find the right words. In our end-of-year #blog, we share our experience of what happens when AI transcription misses the mark.

https://loom.ly/8hciI04

#Haemnet #research #bleedingdisorders #AI
#HemeSky #MedSky
December 18, 2025 at 6:30 AM
haemnet.bsky.social
A new paper on our GT360 study is now published in Haemophilia journal: loom.ly/WXSU0ZU

Our blog and animated video summarise the findings, based on in-depth interviews with people who live with Glanzmann's Thrombasthenia: loom.ly/KsAddKU

#HemeSky #GlanzmannThrombasthenia #BleedingDisorders
Haemnet Glanzmann's 360 study
November 21, 2024 at 10:07 AM
haemnet.bsky.social
If you're going to #ISTH2025, check out our poster reporting final results from VWD360, a natural history study with over 600 participants, exploring the real-life experience of adults living with #vonWillebrandDisease

#livedexperience #research #Haemnet
#HemeSky #MedSky #BloodSky
June 20, 2025 at 6:25 AM
haemnet.bsky.social
Empowered Nurses Save Lives! On #IND2026, who better to talk to about nurses & bleeding disorders care than Dr @katekhair.bsky.social, who this year received a WFH Volunteer Award. On the #Haemnet blog: https://loom.ly/K4dPAKs

#OurNursesOurFuture #HemeSky
May 12, 2026 at 5:40 AM
haemnet.bsky.social
🇲🇾 Going to #WFH2026? Bleeding Disorders: Care & Practice's Editor-in-Chief, Maria Santaella, will be there. You can connect with Maria to find out more about the journal via the conference app.

#BDCP #bleedingdisorders #Haemnet
#HemeSky @medsky.social
April 20, 2026 at 5:30 AM
haemnet.bsky.social
We're wishing goodbye & good luck to Mike Holland, who steps down as Haemnet CEO after 13 years. Thank you to Mike for his vision & dedication. We'll continue to work for the benefit of everyone in the #bleedingdisorders community, led by @katekhair.bsky.social
April 9, 2026 at 7:01 AM
haemnet.bsky.social
#GlanzmannThrombasthenia affects men and women, but findings in our Glanzmann’s 360 study indicate women experience more bleeds. Find out more about what women told us about living with Glanzmann’s in our blog: loom.ly/uJ7V4IU

#HemeSky #MedSky #BleedingDisorders #Haemnet
December 2, 2024 at 9:26 AM
haemnet.bsky.social
Attending #ISTH2025? One of our two VWD360 posters reports on bleed diaries completed by more than 50 adults with von Willebrand disease over 30 days. The results challenge assumptions about bleed frequency in less severe types

#livedexperience #research #Haemnet
#HemeSky #MedSky #BloodSky
June 23, 2025 at 6:54 AM
haemnet.bsky.social
The Haemnet team is taking a short break over Easter.

Wishing our clients, colleagues and friends a happy springtime holiday.
April 3, 2026 at 6:00 AM
haemnet.bsky.social
With one week to go, the countdown to #ISTH2026 is on!

Who's going?

We look forward to seeing you there!

#ISTHCongress #Haemnet #bleedingdisorders #research #HemeSky @moderation.medsky.network
July 3, 2026 at 8:02 AM
haemnet.bsky.social
From unmet need to effective treatment, our research recognises the importance of individual stories in seeing the bigger picture for people who live with a bleeding disorder.

#BleedingDisorders #Research #Haemnet
#HemeSky #MedSky #BloodSky
March 5, 2025 at 8:00 AM
haemnet.bsky.social
🇫🇷 The countdown to #ISTH2026 continues! Posters include insights from our Learning to Live With Severe #Haemophilia study, identifying patterns of disease burden and quality of life impairment.

#livedexperience #research #ISTHCongress #Haemnet #HemeSky
July 7, 2026 at 6:36 AM
haemnet.bsky.social
New on the Haemnet blog, community advocate Rich Gorman comments on a report from a multidisciplinary expert discussion exploring virtual care in haemophilia, published in The Journal of Haemophilia Practice: loom.ly/k_d1RDk

#haemophilia #telehealth #haemjournal #blog #HemeSky #MedSky
July 14, 2025 at 8:27 AM
haemnet.bsky.social
Jo & Alex's message to #families who have children with #vonWillebrandDisease: "It isn't something to be frightened of. It's something you need to learn and understand and be prepared for." Part 2 of their story is on the #Haemnet blog now: loom.ly/tfNPF4Y

#VWD #HemeSky #BloodSky
Raising girls with Type 2A von Willebrand disease (part 2) - Haemnet
Alex and Jo discuss raising girls with Type 2A von Willebrand's, with positive messages for other families affected by von Willebrand disease
loom.ly
June 30, 2025 at 10:16 AM
haemnet.bsky.social
The top 10 #BDCP articles for January 2026 explore aspects of treatment experience, women & haemophilia, parent experiences, and nursing. Read more in Bleeding Disorders: Care & Practice: https://loom.ly/uIXcNF8

#bleedingdisorders #research #haemophilia #Haemnet #HemeSky #MedSky
February 17, 2026 at 7:01 AM
haemnet.bsky.social
What do recent changes to the WHO #EssentialMedicines List mean for #haemophilia on the ground? We asked the Haemophilia Foundation of Uganda's Agnes Kiskaye. Read her thoughts and hopes on the Haemnet blog: https://loom.ly/AB3rNJI

#HemeSky #MedSky #BloodSky
November 20, 2025 at 7:10 AM
haemnet.bsky.social
Day 2 of #EAHAD2026 congress! Join us this evening at the welcome reception & poster presentations. Our posters present results from our FVIID 360, VWD 360 and Cinderella studies.

#FactorVII #vonWillebrandDisease #women #bleedingdisorders #research #Haemnet
#HemeSky #MedSky
February 4, 2026 at 7:01 AM
haemnet.bsky.social
🇫🇷 Just two days to go until #ISTH2026! Our posters include insights from our ELEVATE study, exploring the expectations and experience of people with severe #haemophilia A before and after switching to Efanesoctocog alfa #prophylaxis.

#ISTHCongress #Haemnet #HemeSky #MedSky
July 9, 2026 at 7:01 AM
haemnet.bsky.social
We're winding down for the holidays and looking forward to the new year to come. Wishing a very Merry Christmas and Happy Holidays to all our clients, colleagues and friends in the bleeding disorders community. See you in 2026!

#bleedingdisorders #research #livedexperience #Haemnet #HemeSky #MedSky
December 22, 2025 at 6:30 AM