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nonhdparentstudy.bsky.social
My research request for participants is also live on the Scottish Huntington's Association website 🙂

If you want to know more, click the link and scroll down or email me at l.furr@lancaster.ac.uk

hdscotland.org/about-us/res...

#HuntingtonsResearch #HuntingtonsDisease
Research | Scottish Huntington's Association
We are recognised at national and international levels for our expertise in the care of people who are impacted by Huntington’s disease.
hdscotland.org
July 11, 2025 at 12:26 PM
nonhdparentstudy.bsky.social
Hi everyone 🙂 My study is now open to participants outside of the UK.

Please get in touch if you would like more information. My email is l.furr@lancaster.ac.uk

#huntingtonsdisease #huntingtonsresearch #huntingtonsdiseaseawareness #LetsTalkAboutHD
August 19, 2025 at 12:38 PM
nonhdparentstudy.bsky.social
Hey all ☺️ I’m still looking for participants for my study, so if you’d like to know more or can help with recruitment, please email me: l.furr@lancaster.ac.uk

#Huntingtonsdisease #Huntingtonsresearch #dclinpsy
Research poster for “The Journeys of Non-Affected Parents Within Families with Huntington’s Disease” I am Elizabeth (Lizzie) Furr and l am a trainee clinical psychologist. I am looking for participants to tell their stories in a one-off hour-long interview and help answer the following question for my doctoral thesis: How do individuals navigate the changes in demands and roles of parenting children and caring for their partner with Huntington's disease over time? If you are a non-affected parent who: • Has at least one child over the age of 16 • And a partner with HD who has been living at home with your children (while your children were under the age of 21) and experiencing physical and/or other symptoms of HD impacting on daily life for 3 or more years This can be retrospective e.g., your children or partner no longer live at home but there was a period of 3 years when they both did then you would be eligible to take part. If you want to take part or would like to know more, please contact the main researcher, Lizzie Furr, on: I.furr@lancaster.ac.uk
June 27, 2025 at 1:47 PM
hdclaritystudy.bsky.social
This site have completed 22 Sampling Visits already this year, and we would like to thank everyone involved for their commitment to Huntington's disease research!

#HuntingtonsResearch #SantPau #HDClarity
August 19, 2025 at 12:06 PM
kstrategyand.bsky.social
www.linkedin.com/pulse/fda-ad...

FDA Advances uniQure’s Groundbreaking Gene Therapy for Huntington’s

kstrategyand.com

#uniQure #AMT130 #HuntingtonsDisease #GeneTherapy #HuntingtonsResearch #Humanteconomy #Humantec #KStrategyand
FDA Advances uniQure’s Groundbreaking Gene Therapy for Huntington’s
uniQure has achieved a critical milestone in the pursuit of an innovative therapy for Huntington’s disease, securing FDA alignment on key aspects of the Accelerated Approval pathway for AMT-130. This ...
www.linkedin.com
December 20, 2024 at 10:50 AM