Seeing Long COVID in the Brain
At #ISLCPAIS, neuroscientist Dr. Daniele Beckman shares advanced microscopy research exploring SARS-CoV-2 remnants and neuroinflammation in the brain.
#LongCOVID #NeuroCOVID #PAIS
At #ISLCPAIS, neuroscientist Dr. Daniele Beckman shares advanced microscopy research exploring SARS-CoV-2 remnants and neuroinflammation in the brain.
#LongCOVID #NeuroCOVID #PAIS
August 29, 2026 at 7:32 PM
Seeing Long COVID in the Brain
At #ISLCPAIS, neuroscientist Dr. Daniele Beckman shares advanced microscopy research exploring SARS-CoV-2 remnants and neuroinflammation in the brain.
#LongCOVID #NeuroCOVID #PAIS
At #ISLCPAIS, neuroscientist Dr. Daniele Beckman shares advanced microscopy research exploring SARS-CoV-2 remnants and neuroinflammation in the brain.
#LongCOVID #NeuroCOVID #PAIS
ISLC-PAIS 2026 Young Investigator Award
Huge congratulations to Dr. @DaniBeckman on receiving the ISLC-PAIS 2026 Young Investigator Award, recognition of her outstanding research into Long COVID and post-acute infection syndromes.
#ISLCPAIS #LongCOVID #PAIS #MEcfs
Huge congratulations to Dr. @DaniBeckman on receiving the ISLC-PAIS 2026 Young Investigator Award, recognition of her outstanding research into Long COVID and post-acute infection syndromes.
#ISLCPAIS #LongCOVID #PAIS #MEcfs
August 30, 2026 at 3:05 AM
ISLC-PAIS 2026 Young Investigator Award
Huge congratulations to Dr. @DaniBeckman on receiving the ISLC-PAIS 2026 Young Investigator Award, recognition of her outstanding research into Long COVID and post-acute infection syndromes.
#ISLCPAIS #LongCOVID #PAIS #MEcfs
Huge congratulations to Dr. @DaniBeckman on receiving the ISLC-PAIS 2026 Young Investigator Award, recognition of her outstanding research into Long COVID and post-acute infection syndromes.
#ISLCPAIS #LongCOVID #PAIS #MEcfs
On the road to Amsterdam to present some of my team's latest research about #LongCOVID at @ISLCPAIS. Very excited to connect with colleagues and share ideas. I've been busy and not on here much, but I see that there has been controversy regarding the use of the phrase
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August 27, 2026 at 9:07 AM
On the road to Amsterdam to present some of my team's latest research about #LongCOVID at @ISLCPAIS. Very excited to connect with colleagues and share ideas. I've been busy and not on here much, but I see that there has been controversy regarding the use of the phrase
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Could Mitochondrial Transplantation Open New Research Avenues?
At #ISLCPAIS, Professor @putrinolab.bsky.social discusses pioneering research into mitochondrial transplantation, an experimental approach aimed at restoring cellular energy.
#LongCOVIDTheAnswers #longcovid
At #ISLCPAIS, Professor @putrinolab.bsky.social discusses pioneering research into mitochondrial transplantation, an experimental approach aimed at restoring cellular energy.
#LongCOVIDTheAnswers #longcovid
August 30, 2026 at 2:49 AM
Could Mitochondrial Transplantation Open New Research Avenues?
At #ISLCPAIS, Professor @putrinolab.bsky.social discusses pioneering research into mitochondrial transplantation, an experimental approach aimed at restoring cellular energy.
#LongCOVIDTheAnswers #longcovid
At #ISLCPAIS, Professor @putrinolab.bsky.social discusses pioneering research into mitochondrial transplantation, an experimental approach aimed at restoring cellular energy.
#LongCOVIDTheAnswers #longcovid
Could Autoantibodies Help Explain Long COVID?
At #ISLCPAIS, Dr. Jeroen den Dunnen shares early research suggesting autoantibodies from some people with Long COVID can affect muscle, nerve, heart and blood-vessel cells in laboratory models.
#LongCOVID #PAIS #Autoimmunity
At #ISLCPAIS, Dr. Jeroen den Dunnen shares early research suggesting autoantibodies from some people with Long COVID can affect muscle, nerve, heart and blood-vessel cells in laboratory models.
#LongCOVID #PAIS #Autoimmunity
August 29, 2026 at 6:35 PM
Could Autoantibodies Help Explain Long COVID?
At #ISLCPAIS, Dr. Jeroen den Dunnen shares early research suggesting autoantibodies from some people with Long COVID can affect muscle, nerve, heart and blood-vessel cells in laboratory models.
#LongCOVID #PAIS #Autoimmunity
At #ISLCPAIS, Dr. Jeroen den Dunnen shares early research suggesting autoantibodies from some people with Long COVID can affect muscle, nerve, heart and blood-vessel cells in laboratory models.
#LongCOVID #PAIS #Autoimmunity
Long COVID isn’t new. We’ve just been failing to measure it.
Professor Ziyad Al-Aly highlights a critical blind spot in epidemiology: we measure infection, hospitalization and death, but not what happens after day 30.
#LongCOVID #PAIS #ISLCPAIS #longcovidtheanswers
Professor Ziyad Al-Aly highlights a critical blind spot in epidemiology: we measure infection, hospitalization and death, but not what happens after day 30.
#LongCOVID #PAIS #ISLCPAIS #longcovidtheanswers
August 26, 2026 at 7:01 PM
Long COVID isn’t new. We’ve just been failing to measure it.
Professor Ziyad Al-Aly highlights a critical blind spot in epidemiology: we measure infection, hospitalization and death, but not what happens after day 30.
#LongCOVID #PAIS #ISLCPAIS #longcovidtheanswers
Professor Ziyad Al-Aly highlights a critical blind spot in epidemiology: we measure infection, hospitalization and death, but not what happens after day 30.
#LongCOVID #PAIS #ISLCPAIS #longcovidtheanswers
Final Day at #ISLCPAIS in Amsterdam
After a packed week of science and discussion, the final sessions explore viral persistence vs. autoimmunity, treatment without guidelines, and disease mechanisms in PAIS.
So much still to learn.
#LongCOVID #MECFS #PAIS
After a packed week of science and discussion, the final sessions explore viral persistence vs. autoimmunity, treatment without guidelines, and disease mechanisms in PAIS.
So much still to learn.
#LongCOVID #MECFS #PAIS
August 29, 2026 at 4:12 PM
Final Day at #ISLCPAIS in Amsterdam
After a packed week of science and discussion, the final sessions explore viral persistence vs. autoimmunity, treatment without guidelines, and disease mechanisms in PAIS.
So much still to learn.
#LongCOVID #MECFS #PAIS
After a packed week of science and discussion, the final sessions explore viral persistence vs. autoimmunity, treatment without guidelines, and disease mechanisms in PAIS.
So much still to learn.
#LongCOVID #MECFS #PAIS
Could blood vessel damage help explain the many symptoms of #LongCOVID?
Prof Resia Pretorius and Prof Doug Kell discuss their research into abnormal clots, inflammation and vascular damage, and how these changes may affect the microcirculation and oxygen delivery.
#ISLCPAIS #LongCOVIDResearch
Prof Resia Pretorius and Prof Doug Kell discuss their research into abnormal clots, inflammation and vascular damage, and how these changes may affect the microcirculation and oxygen delivery.
#ISLCPAIS #LongCOVIDResearch
September 29, 2026 at 4:51 PM
Could blood vessel damage help explain the many symptoms of #LongCOVID?
Prof Resia Pretorius and Prof Doug Kell discuss their research into abnormal clots, inflammation and vascular damage, and how these changes may affect the microcirculation and oxygen delivery.
#ISLCPAIS #LongCOVIDResearch
Prof Resia Pretorius and Prof Doug Kell discuss their research into abnormal clots, inflammation and vascular damage, and how these changes may affect the microcirculation and oxygen delivery.
#ISLCPAIS #LongCOVIDResearch
Could the gut play a bigger role in #LongCOVID and #MEcfs?
Prof Eva Untersmayr explains how changes to the gut barrier and microbiome may contribute to low-grade inflammation.
Her team has found these changes in both Long COVID and ME/CFS patients.
#ISLCPAIS #LongCOVIDResearch
Prof Eva Untersmayr explains how changes to the gut barrier and microbiome may contribute to low-grade inflammation.
Her team has found these changes in both Long COVID and ME/CFS patients.
#ISLCPAIS #LongCOVIDResearch
September 12, 2026 at 5:43 AM
Could the gut play a bigger role in #LongCOVID and #MEcfs?
Prof Eva Untersmayr explains how changes to the gut barrier and microbiome may contribute to low-grade inflammation.
Her team has found these changes in both Long COVID and ME/CFS patients.
#ISLCPAIS #LongCOVIDResearch
Prof Eva Untersmayr explains how changes to the gut barrier and microbiome may contribute to low-grade inflammation.
Her team has found these changes in both Long COVID and ME/CFS patients.
#ISLCPAIS #LongCOVIDResearch
Professor Ziyad Al-Aly explains why medicine has repeatedly psychologized illnesses it didn’t yet understand. From seizures and ulcers to Long COVID.
What we don’t understand isn’t necessarily “in your head.”
#LongCOVID #MedicalGaslighting #PAIS #ISLCPAIS #longcovidtheanswers
What we don’t understand isn’t necessarily “in your head.”
#LongCOVID #MedicalGaslighting #PAIS #ISLCPAIS #longcovidtheanswers
August 26, 2026 at 7:53 PM
Professor Ziyad Al-Aly explains why medicine has repeatedly psychologized illnesses it didn’t yet understand. From seizures and ulcers to Long COVID.
What we don’t understand isn’t necessarily “in your head.”
#LongCOVID #MedicalGaslighting #PAIS #ISLCPAIS #longcovidtheanswers
What we don’t understand isn’t necessarily “in your head.”
#LongCOVID #MedicalGaslighting #PAIS #ISLCPAIS #longcovidtheanswers
Long COVID Needs a Consensus Definition.
At #ISLCPAIS, Professor Michael Peluso highlights why clearer, consistent definitions for Long COVID in adults and children are essential for better research, and ultimately better answers.
#LongCOVID #PAIS #longcovidtheanswers
At #ISLCPAIS, Professor Michael Peluso highlights why clearer, consistent definitions for Long COVID in adults and children are essential for better research, and ultimately better answers.
#LongCOVID #PAIS #longcovidtheanswers
August 29, 2026 at 4:57 AM
Long COVID Needs a Consensus Definition.
At #ISLCPAIS, Professor Michael Peluso highlights why clearer, consistent definitions for Long COVID in adults and children are essential for better research, and ultimately better answers.
#LongCOVID #PAIS #longcovidtheanswers
At #ISLCPAIS, Professor Michael Peluso highlights why clearer, consistent definitions for Long COVID in adults and children are essential for better research, and ultimately better answers.
#LongCOVID #PAIS #longcovidtheanswers
The power of collaboration.
ISLC-PAIS Chair Professor @RobWüst reflects on bringing researchers from around the world together to tackle Long COVID, ME/CFS and other PAIS.
New ideas. New research. New trials.
The work continues.
#ISLCPAIS #LongCOVID #MEcfs #PAIS
ISLC-PAIS Chair Professor @RobWüst reflects on bringing researchers from around the world together to tackle Long COVID, ME/CFS and other PAIS.
New ideas. New research. New trials.
The work continues.
#ISLCPAIS #LongCOVID #MEcfs #PAIS
August 30, 2026 at 3:50 AM
The power of collaboration.
ISLC-PAIS Chair Professor @RobWüst reflects on bringing researchers from around the world together to tackle Long COVID, ME/CFS and other PAIS.
New ideas. New research. New trials.
The work continues.
#ISLCPAIS #LongCOVID #MEcfs #PAIS
ISLC-PAIS Chair Professor @RobWüst reflects on bringing researchers from around the world together to tackle Long COVID, ME/CFS and other PAIS.
New ideas. New research. New trials.
The work continues.
#ISLCPAIS #LongCOVID #MEcfs #PAIS
Heading into the ISLC-PAIS conference!
In plain language, they recognize that we all want effective treatments, and ultimately a cure, for Long COVID and other complex chronic diseases like ME/CFS and fibromyalgia. Stay tuned! 💙
#longcovid #longcovidtheanswers #longhauler #ISLCPAIS
In plain language, they recognize that we all want effective treatments, and ultimately a cure, for Long COVID and other complex chronic diseases like ME/CFS and fibromyalgia. Stay tuned! 💙
#longcovid #longcovidtheanswers #longhauler #ISLCPAIS
August 26, 2026 at 5:41 PM
Heading into the ISLC-PAIS conference!
In plain language, they recognize that we all want effective treatments, and ultimately a cure, for Long COVID and other complex chronic diseases like ME/CFS and fibromyalgia. Stay tuned! 💙
#longcovid #longcovidtheanswers #longhauler #ISLCPAIS
In plain language, they recognize that we all want effective treatments, and ultimately a cure, for Long COVID and other complex chronic diseases like ME/CFS and fibromyalgia. Stay tuned! 💙
#longcovid #longcovidtheanswers #longhauler #ISLCPAIS
Behind every patient is a story.
At #ISLCPAIS, Dr. Funmi Okunola speaks with Shauna, whose partner Ro lives with very severe #MECFS and requires full-time care.
Their story reminds us why research, understanding and answers matter.
#LongCOVID #PAIS
At #ISLCPAIS, Dr. Funmi Okunola speaks with Shauna, whose partner Ro lives with very severe #MECFS and requires full-time care.
Their story reminds us why research, understanding and answers matter.
#LongCOVID #PAIS
August 29, 2026 at 4:36 PM
Behind every patient is a story.
At #ISLCPAIS, Dr. Funmi Okunola speaks with Shauna, whose partner Ro lives with very severe #MECFS and requires full-time care.
Their story reminds us why research, understanding and answers matter.
#LongCOVID #PAIS
At #ISLCPAIS, Dr. Funmi Okunola speaks with Shauna, whose partner Ro lives with very severe #MECFS and requires full-time care.
Their story reminds us why research, understanding and answers matter.
#LongCOVID #PAIS
A “Negative” Trial Can Still Teach Us Something.
At #ISLCPAIS, Professor @MichaelPeluso explains how clinical trials can reveal important clues about the biology of Long COVID—even when results are negative.
Every trial can bring us closer to understanding.
#LongCOVID #PAIS
At #ISLCPAIS, Professor @MichaelPeluso explains how clinical trials can reveal important clues about the biology of Long COVID—even when results are negative.
Every trial can bring us closer to understanding.
#LongCOVID #PAIS
August 28, 2026 at 8:47 PM
A “Negative” Trial Can Still Teach Us Something.
At #ISLCPAIS, Professor @MichaelPeluso explains how clinical trials can reveal important clues about the biology of Long COVID—even when results are negative.
Every trial can bring us closer to understanding.
#LongCOVID #PAIS
At #ISLCPAIS, Professor @MichaelPeluso explains how clinical trials can reveal important clues about the biology of Long COVID—even when results are negative.
Every trial can bring us closer to understanding.
#LongCOVID #PAIS
Long COVID Research Can’t Afford to Lose Momentum.
Meet Ellen Bark-Lindhout, the driving force behind this important work.
#LongCOVID #PAIS #LongCovidResearch #ISLCPAIS #LongCovidTheAnswers
Meet Ellen Bark-Lindhout, the driving force behind this important work.
#LongCOVID #PAIS #LongCovidResearch #ISLCPAIS #LongCovidTheAnswers
August 26, 2026 at 9:27 PM
Long COVID Research Can’t Afford to Lose Momentum.
Meet Ellen Bark-Lindhout, the driving force behind this important work.
#LongCOVID #PAIS #LongCovidResearch #ISLCPAIS #LongCovidTheAnswers
Meet Ellen Bark-Lindhout, the driving force behind this important work.
#LongCOVID #PAIS #LongCovidResearch #ISLCPAIS #LongCovidTheAnswers
Could abnormal blood clots help explain #LongCOVID?
Prof Doug Kell and Prof Resia Pretorius discuss research into amyloid, fibrin and abnormal clots, and how spike protein may contribute to changes in clot structure.
Could this help explain persistent symptoms?
#ISLCPAIS
Prof Doug Kell and Prof Resia Pretorius discuss research into amyloid, fibrin and abnormal clots, and how spike protein may contribute to changes in clot structure.
Could this help explain persistent symptoms?
#ISLCPAIS
September 9, 2026 at 7:00 PM
Could abnormal blood clots help explain #LongCOVID?
Prof Doug Kell and Prof Resia Pretorius discuss research into amyloid, fibrin and abnormal clots, and how spike protein may contribute to changes in clot structure.
Could this help explain persistent symptoms?
#ISLCPAIS
Prof Doug Kell and Prof Resia Pretorius discuss research into amyloid, fibrin and abnormal clots, and how spike protein may contribute to changes in clot structure.
Could this help explain persistent symptoms?
#ISLCPAIS
At #ISLCPAIS, Steve Gardner of PrecisionLife discusses how genetics could help identify different patient groups and guide more personalized treatment approaches.
GLP-1 agonists are also an area of ongoing research.
#LongCOVID #MECFS #PrecisionMedicine #PAIS
GLP-1 agonists are also an area of ongoing research.
#LongCOVID #MECFS #PrecisionMedicine #PAIS
August 27, 2026 at 8:18 PM
At #ISLCPAIS, Steve Gardner of PrecisionLife discusses how genetics could help identify different patient groups and guide more personalized treatment approaches.
GLP-1 agonists are also an area of ongoing research.
#LongCOVID #MECFS #PrecisionMedicine #PAIS
GLP-1 agonists are also an area of ongoing research.
#LongCOVID #MECFS #PrecisionMedicine #PAIS
Of course there is a lot more to say on Postinfection #Ethics, but for the @ISLCPAIS conference organised by the amazing Rob Wüst and (the equally amazing!) Michael Chapman (who truly moves mountains... ), I wrote the following summary
www.viviennematthiesboon.com/post/what-is...
www.viviennematthiesboon.com/post/what-is...
What is a Postinfection Ethics?
From within the field of Ethics, there is so much to say about Postinfection Ethics - how it related to the fields of Public Health Ethics, Bioethics, Infectious Disease Ethics, but also to Care Ethic...
www.viviennematthiesboon.com
August 28, 2026 at 4:23 PM
Of course there is a lot more to say on Postinfection #Ethics, but for the @ISLCPAIS conference organised by the amazing Rob Wüst and (the equally amazing!) Michael Chapman (who truly moves mountains... ), I wrote the following summary
www.viviennematthiesboon.com/post/what-is...
www.viviennematthiesboon.com/post/what-is...
At the #ISLCPAIS on Aug 27, 2027 at the conference in Amsterdam, Dr. Rae Duncan speaks to the distinguished differences between #LC & other PAIS.
#LongCovidAwareness
#LongCovidAwareness
September 10, 2026 at 4:22 AM
At the #ISLCPAIS on Aug 27, 2027 at the conference in Amsterdam, Dr. Rae Duncan speaks to the distinguished differences between #LC & other PAIS.
#LongCovidAwareness
#LongCovidAwareness
Scientific conferences should do more than share what we already know. They should ask: Where are we now with Long COVID, what questions remain, and how can we answer them together?
Prof @RobWust @DrMark_Faghy
#LongCOVID #LongCovidResearch #PostViralIllness #PatientResearch #Amsterdam #ISLCPAIS
Prof @RobWust @DrMark_Faghy
#LongCOVID #LongCovidResearch #PostViralIllness #PatientResearch #Amsterdam #ISLCPAIS
August 18, 2026 at 4:45 PM
Scientific conferences should do more than share what we already know. They should ask: Where are we now with Long COVID, what questions remain, and how can we answer them together?
Prof @RobWust @DrMark_Faghy
#LongCOVID #LongCovidResearch #PostViralIllness #PatientResearch #Amsterdam #ISLCPAIS
Prof @RobWust @DrMark_Faghy
#LongCOVID #LongCovidResearch #PostViralIllness #PatientResearch #Amsterdam #ISLCPAIS
Professor Eva Untersmayr explores the complex relationship between the immune system, Long COVID and ME/CFS, including evidence of immune deficiencies in a subgroup of people.
#LongCOVID #MECFS #ImmuneSystem #PAIS #ISLCPAIS #longcovidtheanswers
#LongCOVID #MECFS #ImmuneSystem #PAIS #ISLCPAIS #longcovidtheanswers
August 27, 2026 at 6:15 PM
Professor Eva Untersmayr explores the complex relationship between the immune system, Long COVID and ME/CFS, including evidence of immune deficiencies in a subgroup of people.
#LongCOVID #MECFS #ImmuneSystem #PAIS #ISLCPAIS #longcovidtheanswers
#LongCOVID #MECFS #ImmuneSystem #PAIS #ISLCPAIS #longcovidtheanswers
Could PGE2 Hold Clues to Long COVID?
At #ISLCPAIS, citizen scientist Vera Ramer presents her hypothesis exploring how prostaglandin E2 (PGE2) and its receptors may influence inflammation, pain and fatigue in Long COVID.
An intriguing hypothesis for researchers to explore.
#LongCOVID #PGE2 #PAIS
At #ISLCPAIS, citizen scientist Vera Ramer presents her hypothesis exploring how prostaglandin E2 (PGE2) and its receptors may influence inflammation, pain and fatigue in Long COVID.
An intriguing hypothesis for researchers to explore.
#LongCOVID #PGE2 #PAIS
August 29, 2026 at 8:38 PM
Could PGE2 Hold Clues to Long COVID?
At #ISLCPAIS, citizen scientist Vera Ramer presents her hypothesis exploring how prostaglandin E2 (PGE2) and its receptors may influence inflammation, pain and fatigue in Long COVID.
An intriguing hypothesis for researchers to explore.
#LongCOVID #PGE2 #PAIS
At #ISLCPAIS, citizen scientist Vera Ramer presents her hypothesis exploring how prostaglandin E2 (PGE2) and its receptors may influence inflammation, pain and fatigue in Long COVID.
An intriguing hypothesis for researchers to explore.
#LongCOVID #PGE2 #PAIS
Day 2 at ISLC-PAIS in Amsterdam 🇳🇱
Dr. Funmi Okunola MD is on the ground at the conference, bringing you the latest research, insights & conversations shaping the future of Long COVID and PAIS.
Follow along for the highlights from Day 2.
#LongCOVID #LongCovidTheAnswers #LongHaulers #PAIS #ISLCPAIS
Dr. Funmi Okunola MD is on the ground at the conference, bringing you the latest research, insights & conversations shaping the future of Long COVID and PAIS.
Follow along for the highlights from Day 2.
#LongCOVID #LongCovidTheAnswers #LongHaulers #PAIS #ISLCPAIS
August 27, 2026 at 4:27 PM
Day 2 at ISLC-PAIS in Amsterdam 🇳🇱
Dr. Funmi Okunola MD is on the ground at the conference, bringing you the latest research, insights & conversations shaping the future of Long COVID and PAIS.
Follow along for the highlights from Day 2.
#LongCOVID #LongCovidTheAnswers #LongHaulers #PAIS #ISLCPAIS
Dr. Funmi Okunola MD is on the ground at the conference, bringing you the latest research, insights & conversations shaping the future of Long COVID and PAIS.
Follow along for the highlights from Day 2.
#LongCOVID #LongCovidTheAnswers #LongHaulers #PAIS #ISLCPAIS
It described how well the EDQ can reliably and consistently assess disability in adults with Long Covid, and how well it measures what we intended it to measure.
Thank you to Margaret and all the other partners on this brilliant project for their work!
#LongCovid #ISLCPAIS #EDQ
Thank you to Margaret and all the other partners on this brilliant project for their work!
#LongCovid #ISLCPAIS #EDQ
August 28, 2026 at 10:00 AM
It described how well the EDQ can reliably and consistently assess disability in adults with Long Covid, and how well it measures what we intended it to measure.
Thank you to Margaret and all the other partners on this brilliant project for their work!
#LongCovid #ISLCPAIS #EDQ
Thank you to Margaret and all the other partners on this brilliant project for their work!
#LongCovid #ISLCPAIS #EDQ