#LongCovidMoonshot
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diatoma.bsky.social
"I subsist on teaspoons of life”
#LongCovid essay by @jessielosch.bsky.social on @literaryhub.bsky.social with shout-outs to @patientled.bsky.social & #LongCovidMoonshot!
(also featuring one of my favorite public libraries in niu yor 💜)
April 6, 2025 at 1:01 AM
emilyesfraser.bsky.social
Just called & emailed my reps asking for their support of a #LongCovidMoonshot 🚀🌝

Have you made your calls yet today?

Call guide here: longcovidmoonshot.com
Colorful graphic of the moon that says “moonshot for Long Covid: Demand long Covid funding! 20 million Americans. Zero treatments. Call your reps November 14.”
November 14, 2023 at 9:08 PM
sueponcin.com
A year after the senate hearing on #LongCovid it is frustrating the #LongCovidMoonshot has been lost in the congressional shuffle.
Thankful these panelists will try again to inform decision makers and keep our hope alive!
ezra.zone Ezra S @ezra.zone · Feb 12
Excited to see this Long Covid Congressional Briefing on Feb 26 held by the American Association of Immunologists - with amazing panelists @virusesimmunity.bsky.social, @ejohnwherry.bsky.social, and @lisamccorkell.bsky.social! Just contacted all my congresspeople to suggest they send their staffers.
The American Association of Immunologists - AAI Congressional Briefing (February 2025)
www.aai.org
February 13, 2025 at 3:11 AM
ezd.bsky.social
Dr. Ziyad Al-Aly is extraordinary. What a stunning, clear, moving, and fact-packed testimony before the U.S. Senate today.
#LongCovidAwareness #LongCovidMoonshot

www.help.senate.gov/hearings/add...
January 18, 2024 at 5:05 PM
tessallator.bsky.social
Just called my reps—you should too. We need funding to find treatments.

#LongCovidMoonshot

longcovidmoonshot.con
Long Covid Moonshot
longcovidmoonshot.com
November 14, 2023 at 4:59 PM
ralfwittenbrink.bsky.social
Weitere Details zum Vorschlag von Bernie Sanders:

www.sanders.senate.gov/press-releas...

www.sanders.senate.gov/wp-content/u...

#LongCovidAwareness #MECFS #MECFSAwareness #COVID19 #SARSCoV2 #CovidIsNotOver #Coronavirus #LongCovidKids #LongCovidMoonshot
April 9, 2024 Dear Long COVID Stakeholder: As Chairman of the Senate Health, Education, Labor, and Pensions (HELP) Committee, it is my strong belief that the crisis of Long COVID is a public health emergency that we can no longer ignore. As you know all too well, Long COVID is an infection-associated chronic condition where individuals experience chronic or relapsing symptoms after an acute COVID-19 infection. These symptoms can impact anyone who has previously been exposed to COVID-19, regardless of age or severity of the initial infection. In America today, about 22 million adults have Long COVID, though this is likely an underestimate. People with Long COVID experience a variety of symptoms from cognitive impairment and extreme fatigue, to life-threatening cardiovascular and neurological challenges. In January 2024, the HELP Committee held a hearing on the topic of Long COVID where experts underscored the urgent need to aggressively find approved treatments for this terrible …
April 9, 2024 at 10:26 PM
longcovidadvoc.com
#longcovid is a womens matter

♀️The highest risk is for women in their mid 40's
♀️That's alot of mums
♀️Yet we are being ignored, dismissed and not getting the care and support we need

🌕🚀We deserve better
🌕🚀We need a #longcovidmoonshot
to all the mums with long covid/ME we see you we honour you we need a to get back our lives Hazy peach background with rainbow filaments Text in white left aligned
March 10, 2024 at 8:52 AM
drinfosec.bsky.social
Worth bookmarking, in addition to downloading the "Get the facts" #LongCovidMoonshot fact sheet:
longcovidmoonshot.com
Long Covid Moonshot
longcovidmoonshot.com
January 20, 2024 at 2:07 AM
realitycheckmarker.bsky.social
Yesterday #LongCOVIDMoonShot and all #LongCOVID research were wholly mothballed. We warned you in May of last year the re-election of Hitler would make matters worse. We despise being evidenced that our fearporn was right.
We seethe with anger, to have to say, we told you so.

x.com/RealCheckMar...
With America about to re-elect Hitler these Ethics Board statements of the “greater good” exemptions are going to get worse.
January 28, 2025 at 5:02 PM
grandeped.bsky.social
Long COVID research money is running out with no cure in sight. If you can spare a few minutes to contact your reps to ask them to push for more funding, those of us with Long COVID would appreciate it. #LongCovidMoonshot

You can find a guide here: longcovidmoonshot.com
Long Covid Moonshot
longcovidmoonshot.com
November 14, 2023 at 10:16 PM
sueponcin.com
Having proof of #LongCovid’s damage will hopefully lead to treatment.

The study used a 7T MRI.
NIH: Due to costs and high-level requirements for maintenance, 7T MRI is available in only a few specialized centers in the world.

@sanders.senate.gov Don’t forget about #LongCovidMoonshot
January 14, 2025 at 8:54 PM
sueponcin.com
The list of what I miss from my old life is longggggggg.
The list of what I’ve put into recovering just fraction of my life is longgggggggggg.

With a new senate and the #LongCovidMoonshot far from final, keep sharing the affects of #LongCovid.

My story: www.sueponcin.com

a.co/d/iIOhl6b
January 6, 2025 at 10:30 PM
emoyvonne.bsky.social
I made my call today for
#LongCOVIDMoonshot. The phenomenal call guide with script and instructions made it easy. People with Long Covid & allies—please take a few minutes to support this patient-led advocacy for funding, research & treatment 🚀 longcovidmoonshot.com
Long Covid Moonshot
longcovidmoonshot.com
November 14, 2023 at 7:55 PM
kateviolette.com
Hey Long COVID folks and allies! (And by allies I am addressing pretty much everybody! We need all hands on deck for this one!)

Sen. Sanders is holding a committee hearing this Thursday on Long COVID, research funding thereof, etc. This is huge, unprecedented attention from Congress on this issue.
Photo of tweet: Next week, Thurs, Jan 18th at 10am, the Senate committee for Health, Education, Labor & Pensions, chaired by @SenSanders, is holding a hearing titled “Addressing #LongCOVID: Advancing Research and Improving Patient Care”. WHAT DO PATIENTS AND ALLIES NEED TO DO? Senator Sanders is holding a long Covid hearing for the US Senate committee on health, education, labor & pensions. We're calling on members of the HELP committee to attend the hearing, to participate and learn more about the urgent issues around Long Covid. longcovidmoonshot.com. Join #longCOVIDmoonshot organizers and members of the #LongCOVID community on Tuesday, January 16th for a call party to Senators on the HELP committee to get them to attend and learn more about LC. Call guide available in this thread
January 16, 2024 at 12:47 AM
pwginsburg.bsky.social
Very true. FYI, 2 yrs ago, LongCovidMoonShot people were actively pursing Congress for money which included LC & ME. At the same time @LongCovidAP people were aggressively pushing for mainly LC funding. Big clash between groups. Personally, I don't care what you call it. It's a commendable start.
September 3, 2026 at 4:48 AM
kelcsimpkins.bsky.social
Today is the day!!

Call and or email your reps in support of funding for Long Covid research and treatments!!

#LongCovid
#LongCovidMoonshot
#CovidIsNotOver

Calling guide and more info at the link.

longcovidmoonshot.com
Long Covid Moonshot
longcovidmoonshot.com
November 14, 2023 at 5:42 PM
romatowski.bsky.social
Long Covid research funding is about to run out and there are still zero FDA-approved treatments. Following an article in Nature that called for a #LongCovidMoonshot, patients and allies are asking for Congressional support. If you have a few extra mins to add this to yr call list, I’d be grateful 🙏🏻
emilyesfraser.bsky.social emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · Nov 14
Just called & emailed my reps asking for their support of a #LongCovidMoonshot 🚀🌝

Have you made your calls yet today?

Call guide here: longcovidmoonshot.com
Colorful graphic of the moon that says “moonshot for Long Covid: Demand long Covid funding! 20 million Americans. Zero treatments. Call your reps November 14.”
November 14, 2023 at 9:53 PM
c19lap.bsky.social
@allyann.bsky.social
C19LAP
COVID-19 Longhauler Advocacy Project
IACC
Infection-Associated Chronic Conditions
Long COVID Associated Conditions
Longhauler
LongCOVIDAdvocacy
LongCOVIDMoonshot
LongCOVIDWducation
LongCOVIDAwareness
COVIDConscious
November 13, 2024 at 6:24 AM
emilyesfraser.bsky.social
Please join in & tell Congress & the White House we need a #LongCovidMoonshot of at least $1 billion per year for the next ten years for biomedical research

Calling guides & holiday card templates available at LongCovidMoonshot.com
Long Covid Moonshot
LongCovidMoonshot.com
December 19, 2023 at 3:10 AM
mcycee.bsky.social
Happening now! #LongCovidMoonshot

More than 10 million Americans (and 1.4M Canadians) suffer from long covid, many of which are deeply debilitating.

Call your US representatives & demand NIH long covid research funding for the next 10 years!

longcovidmoonshot.com
A poster featuring a planet and a shooting star with the texts: "Moonshot for Long Covid" and "Calling Guide Nov 14th 3-5pm EST"
November 14, 2023 at 8:34 PM
yogafogie.bsky.social
From Sen. Sanders: "Let’s be clear. The impact of long COVID-19 is not just a health issue. It’s an economic one as well. It’s estimated that as many as 4 million Americans are out of work due to long COVID-19."
#LongCOVID #LongCOVIDMoonshot
#MECFS

tinyurl.com/36b2b8p3
Bernie Sanders: America Must Confront Its Long COVID Crisis
Long COVID is real. It is negatively impacting tens of millions of people throughout the United States and the world. We can no longer ignore it, or its sufferers’ treatment needs.
tinyurl.com
September 12, 2024 at 4:17 PM
wendykloiber.bsky.social
If only I could remember the thirst trap meme format for making calls for the #LongCovidMoonshot tomorrow
November 2, 2024 at 9:05 PM
albadocherty.bsky.social
'LCAP has proposed legislation that does much more [than #LongCovidMoonshot] to address Covid & Long Covid:

· Focus on antiviral Tx & biomarkers
• Focus on immediate clinical trials
· Focus on prevention & equity
· Focus on care'

Tell lawmakers here ↓
https://tinyurl.com/yuus3utk
February 4, 2025 at 5:39 AM
albadocherty.bsky.social
..the #LongCovidhashtag/LongCovidMoonshot" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#LongCovidMoonshot has none of this

Nothing in writing to define it

Nothing in writing for legislators to pass or fund

Nothing in writing to guarantee anything you're being told to call for

#LongCovid deserve ACTUAL LEGISLATION that will guarantee biomedical research
February 4, 2025 at 5:28 AM
albadocherty.bsky.social
#LongCovidMoonshot has NONE of this

it is 💯 ONLY a social media campaign

Cancer Moonshot's The Cures Act allocated $$$ to @NIH

& provided NIH w/critical tools

& implemented measures to fund to four highly innovative scientific initiatives.

It also implemented measures ↓
February 4, 2025 at 5:16 AM