#Lupies
Reason why I stay vaxxed and masked up. Shoutout to my fellow Lupies. 🫶🏽💜
#FluSeason is here, and if you have #lupus, protecting yourself from infection is essential. With a higher risk due to lupus and treatments, proactive steps like flu shots and managing exposure can help.

Learn more tips: buff.ly/41jQ9eI
Protecting yourself from infections
When you have lupus, you are at increased risk for all kinds of infections. There are two main reasons for this higher risk: lupus disease and treatments.
buff.ly
December 10, 2024 at 4:02 PM
Lupies, when getting your vaccines make sure to check if any of them are live. Live vaccines aren’t recommended for those of us that are immunocompromised. #LupusChat
February 14, 2025 at 3:42 PM
Where are all the lupies at?! 👀
If you have #Lupus, follow us 💜✨
a purple ribbon with a butterfly and a flower on it for lupus awareness
Alt: a purple ribbon with a butterfly and a flower on it for lupus awareness
media.tenor.com
November 17, 2024 at 7:58 PM
it’s officially #LupusChat Sunday here on the skyline! Can’t wait to see all my favorite lupies this afternoon. If you have lupus or are a caregiver for someone who does please feel free to join us at 3 PM today for our first community chat on BlueSky! ☺️💜✨
a woman is smiling and saying eeeeooowww .
Alt: a woman is smiling and saying eeeeooowww!
media.tenor.com
January 26, 2025 at 4:34 PM
Monday lunch at Lupies. #breakingwyrd
January 12, 2026 at 5:36 PM
Ugh I saw and dropped you a follow. Us Lupies need to stick together. Yes, I would love more kitty and dog pics! For sure, you are right. <3 thank you for your support and kind words.
July 29, 2026 at 11:58 PM
"@doctorakerkar: Dedicated to all you Lupies. Sincere appreciation for your endurance & courage. " #spooniechat
April 29, 2025 at 9:09 PM
We won’t even be able to get insurance. They think they are weeding the weak out, but Lupies know how to fight every damn day.
November 15, 2024 at 4:43 AM
if you are heading up 7th st...we are across frm Lupies. the old CFD training site...volunteers setting up flags for 9/11 ceremony,
December 22, 2024 at 9:31 AM
I'm just a lady in my sweats taking five from writing her book, not a doctor. I have lupus (previously diagnosed UCTD), with pleurisy, peripheral neuropathy, and I'm sure other "-y"s I've yet to discover. Would love to chat about this with other lupies! #spoonie #disabledandcute
February 27, 2025 at 3:44 PM
Dancing for chronic pain
Our systematic review found dance has benefits for pain rating, coping and acceptance, particularly when performed for 60–150min/wk

Free full article here👇
doi.org/10.1093/pm/p...

#chronicpain #spoonies #chronicillness #fibromyalgia #Painspeaking #invisibleillness #Lupies
Dance for Chronic Pain Conditions: A Systematic Review
AbstractObjectives. Globally, 20–25% of people will experience chronic pain in their lifetimes. Dance is a physical activity with psychosocial benefits tha
doi.org
April 26, 2025 at 12:54 PM