Fundraising for Lupus UK, who can please join or start your own fundraiser, I live in SW Germany, am disabled, on social security and live alone, with no offline friends.
💖💖💖
#LupusSucks, even though I´m flare-free I´m 100 % unable to work.
lupusuk.org.uk/fundraising-...
@lupusuk.bsky.social
💖💖💖
#LupusSucks, even though I´m flare-free I´m 100 % unable to work.
lupusuk.org.uk/fundraising-...
@lupusuk.bsky.social
August 29, 2026 at 9:12 AM
Fundraising for Lupus UK, who can please join or start your own fundraiser, I live in SW Germany, am disabled, on social security and live alone, with no offline friends.
💖💖💖
#LupusSucks, even though I´m flare-free I´m 100 % unable to work.
lupusuk.org.uk/fundraising-...
@lupusuk.bsky.social
💖💖💖
#LupusSucks, even though I´m flare-free I´m 100 % unable to work.
lupusuk.org.uk/fundraising-...
@lupusuk.bsky.social
August 9, 2026 at 12:45 PM
Has it only been 1 week since I went out? Holy hell. Been in a virus fog stupor. After wreaking havoc in throat and sinuses, It’s moving into lungs. O2 holding at 95. If it drops, gonna need meds. So please send healing vibes cause I don’t have a ride. #lupussucks
June 6, 2026 at 1:38 PM
Has it only been 1 week since I went out? Holy hell. Been in a virus fog stupor. After wreaking havoc in throat and sinuses, It’s moving into lungs. O2 holding at 95. If it drops, gonna need meds. So please send healing vibes cause I don’t have a ride. #lupussucks
She Lost 60 Pounds on the Mayo Clinic Diet—Here’s How It Worked.
If chronic underweight me (BMI about 17) lost 60 lbs I´d be dead and gone...
#SLE #LupusSucks
www.thehealthy.com/nutrition/ma...
@lupus.org @lupusuk.bsky.social @mayoclinic.org
If chronic underweight me (BMI about 17) lost 60 lbs I´d be dead and gone...
#SLE #LupusSucks
www.thehealthy.com/nutrition/ma...
@lupus.org @lupusuk.bsky.social @mayoclinic.org
She Lost 60 Pounds on the Mayo Clinic Diet—Here’s How It Worked
"I wanted a plan created by the world's top specialists," says this 47-year-old mom. Dive into the science behind the system.
www.thehealthy.com
May 24, 2026 at 4:32 AM
She Lost 60 Pounds on the Mayo Clinic Diet—Here’s How It Worked.
If chronic underweight me (BMI about 17) lost 60 lbs I´d be dead and gone...
#SLE #LupusSucks
www.thehealthy.com/nutrition/ma...
@lupus.org @lupusuk.bsky.social @mayoclinic.org
If chronic underweight me (BMI about 17) lost 60 lbs I´d be dead and gone...
#SLE #LupusSucks
www.thehealthy.com/nutrition/ma...
@lupus.org @lupusuk.bsky.social @mayoclinic.org
February 5, 2026 at 12:49 PM
My stupid chronic underweight body is a mystery, not only is it still unclear what causes the "balloon belly", the air masses in my small intestine, also do I freeze after lunch every time now, although I have almost 20°C/68°F inside my apartment.
#SLEsucks #LupusSucks
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#SLEsucks #LupusSucks
🤬🤬🤬
February 4, 2026 at 12:00 PM
My stupid chronic underweight body is a mystery, not only is it still unclear what causes the "balloon belly", the air masses in my small intestine, also do I freeze after lunch every time now, although I have almost 20°C/68°F inside my apartment.
#SLEsucks #LupusSucks
🤬🤬🤬
#SLEsucks #LupusSucks
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BP 108/73, which is very good for me who´s hypotonic, temperature 36,1°C/97°F, wich is also very good for me who´s hypothermic too, recovery day # 3 after 2 weeks without any appetite, I´d been underweight before yet from #SLE.
#LupusSucks
😮😮😮
@lupusuk.bsky.social @lupus.org
#LupusSucks
😮😮😮
@lupusuk.bsky.social @lupus.org
December 21, 2025 at 6:25 AM
BP 108/73, which is very good for me who´s hypotonic, temperature 36,1°C/97°F, wich is also very good for me who´s hypothermic too, recovery day # 3 after 2 weeks without any appetite, I´d been underweight before yet from #SLE.
#LupusSucks
😮😮😮
@lupusuk.bsky.social @lupus.org
#LupusSucks
😮😮😮
@lupusuk.bsky.social @lupus.org
Mein Jahresrückblick:
- Knapp 10 Kilo abgenommen
- Fast alle Schränke ausgemistet
- Außenrum das Meiste auf der Reihe gehabt
- Neue Hausärztin und Dermatologin gesucht
- Mental größtenteils die Form gehalten
Klingt nach wenig, ist es auch, aber ich bin zufrieden.
#LupusSucks
- Knapp 10 Kilo abgenommen
- Fast alle Schränke ausgemistet
- Außenrum das Meiste auf der Reihe gehabt
- Neue Hausärztin und Dermatologin gesucht
- Mental größtenteils die Form gehalten
Klingt nach wenig, ist es auch, aber ich bin zufrieden.
#LupusSucks
December 9, 2025 at 5:19 PM
Mein Jahresrückblick:
- Knapp 10 Kilo abgenommen
- Fast alle Schränke ausgemistet
- Außenrum das Meiste auf der Reihe gehabt
- Neue Hausärztin und Dermatologin gesucht
- Mental größtenteils die Form gehalten
Klingt nach wenig, ist es auch, aber ich bin zufrieden.
#LupusSucks
- Knapp 10 Kilo abgenommen
- Fast alle Schränke ausgemistet
- Außenrum das Meiste auf der Reihe gehabt
- Neue Hausärztin und Dermatologin gesucht
- Mental größtenteils die Form gehalten
Klingt nach wenig, ist es auch, aber ich bin zufrieden.
#LupusSucks
It’s official, your girl is back in grad school come January. Wish me luck. #gradschool @enmugreyhounds.bsky.social
#4thTimesTheCharm 🤞 #LupusSucks
#4thTimesTheCharm 🤞 #LupusSucks
November 11, 2025 at 9:58 PM
It’s official, your girl is back in grad school come January. Wish me luck. #gradschool @enmugreyhounds.bsky.social
#4thTimesTheCharm 🤞 #LupusSucks
#4thTimesTheCharm 🤞 #LupusSucks
As a chronically ill person, I don't want to be told I can do anything if I put my mind to it.
I want to know that what I CAN do is enough.
Because believe it or not, my chronic illnesseses are not simply a mind over matter issue.
#LupusSucks
#FibroSucks
#SFSNSucks
I want to know that what I CAN do is enough.
Because believe it or not, my chronic illnesseses are not simply a mind over matter issue.
#LupusSucks
#FibroSucks
#SFSNSucks
September 17, 2025 at 1:10 PM
As a chronically ill person, I don't want to be told I can do anything if I put my mind to it.
I want to know that what I CAN do is enough.
Because believe it or not, my chronic illnesseses are not simply a mind over matter issue.
#LupusSucks
#FibroSucks
#SFSNSucks
I want to know that what I CAN do is enough.
Because believe it or not, my chronic illnesseses are not simply a mind over matter issue.
#LupusSucks
#FibroSucks
#SFSNSucks
#Hypothermia is only one of my countless #SLE #Lupus symptoms, today it´s extreme again, earlier I only measured 35°C/95°F, on other days it´s about 36°/96,8°F.
#LupusSucks #LongtimeLupusSurvivor since 1992 here.
my.clevelandclinic.org/health/disea...
@clevelandclinic.bsky.social
#LupusSucks #LongtimeLupusSurvivor since 1992 here.
my.clevelandclinic.org/health/disea...
@clevelandclinic.bsky.social
Hypothermia (Low Body Temperature)
Learn about hypothermia, a condition that occurs when your body’s temperature drops below 95 degrees Fahrenheit (35 degrees Celsius).
my.clevelandclinic.org
September 1, 2025 at 12:36 PM
#Hypothermia is only one of my countless #SLE #Lupus symptoms, today it´s extreme again, earlier I only measured 35°C/95°F, on other days it´s about 36°/96,8°F.
#LupusSucks #LongtimeLupusSurvivor since 1992 here.
my.clevelandclinic.org/health/disea...
@clevelandclinic.bsky.social
#LupusSucks #LongtimeLupusSurvivor since 1992 here.
my.clevelandclinic.org/health/disea...
@clevelandclinic.bsky.social
August 11, 2025 at 11:22 PM
7 Foods to Help You Lose Body Fat Percentage in a Month.
I´m chronic underweight from #SLE. I´d thought I had gained 2 kg of weight, but those were only 2 kg from the fluid of the edema, it seems. In the meantime I may have 5 liters of edema.
#LupusSucks
www.eatthis.com/foods-to-los...
I´m chronic underweight from #SLE. I´d thought I had gained 2 kg of weight, but those were only 2 kg from the fluid of the edema, it seems. In the meantime I may have 5 liters of edema.
#LupusSucks
www.eatthis.com/foods-to-los...
7 Foods to Help You Lose Body Fat Percentage in a Month
Discover 7 fat-burning foods to help reduce body fat percentage naturally in one month.
www.eatthis.com
July 30, 2025 at 2:54 PM
7 Foods to Help You Lose Body Fat Percentage in a Month.
I´m chronic underweight from #SLE. I´d thought I had gained 2 kg of weight, but those were only 2 kg from the fluid of the edema, it seems. In the meantime I may have 5 liters of edema.
#LupusSucks
www.eatthis.com/foods-to-los...
I´m chronic underweight from #SLE. I´d thought I had gained 2 kg of weight, but those were only 2 kg from the fluid of the edema, it seems. In the meantime I may have 5 liters of edema.
#LupusSucks
www.eatthis.com/foods-to-los...
Anybody want to trade bodies just for a week? You'll get a 5 mm kidney stone that might pass on its own and a fantastic Lupus flare with a touch of an SFSN flare #LupusSucks .... The bruising is a new thing 🧐
July 20, 2025 at 11:41 PM
Anybody want to trade bodies just for a week? You'll get a 5 mm kidney stone that might pass on its own and a fantastic Lupus flare with a touch of an SFSN flare #LupusSucks .... The bruising is a new thing 🧐
July 16, 2025 at 3:32 PM
Life can change in an instant. Right now, a brave warrior is facing tough times with lupus. They need our help to secure a safe home for their kids. If you can, please donate or share. Every bit counts. gofund.me/b41fcf67 @GoFundMeCharity #lupussucks
Donate to Secure a Safe Home for a Lupus Warrior, organized by jeff gallashaw
As of October 2023, I have been experiencing one of the toughest flare… jeff gallashaw needs your support for Donate to Secure a Safe Home for a Lupus Warrior
gofund.me
July 13, 2025 at 11:36 PM
Life can change in an instant. Right now, a brave warrior is facing tough times with lupus. They need our help to secure a safe home for their kids. If you can, please donate or share. Every bit counts. gofund.me/b41fcf67 @GoFundMeCharity #lupussucks
I came across this @gofundme.com for someone dealing with lupus nephritis and trying to provide for her kids during a really tough time. If you're able, consider donating or sharing the post to help out. www.gofundme.com/f/y384fn-don... #lupussucks
Donate to Secure a Safe Home for a Lupus Warrior, organized by jeff gallashaw
As of October 2023, I have been experiencing one of the toughest flare… jeff gallashaw needs your support for Donate to Secure a Safe Home for a Lupus Warrior
www.gofundme.com
July 7, 2025 at 5:55 PM
I came across this @gofundme.com for someone dealing with lupus nephritis and trying to provide for her kids during a really tough time. If you're able, consider donating or sharing the post to help out. www.gofundme.com/f/y384fn-don... #lupussucks
This One Exercise Can “Significantly” Reduce Waist Size and Weight, Says New Study, for those who have problems with overweight, I´m chronic underweight from #SLE. Which is also no fun and not healthy, I know.
#LupusSucks
www.thehealthy.com/news/waist-s...
@lupus.org @lupusuk.bsky.social
#LupusSucks
www.thehealthy.com/news/waist-s...
@lupus.org @lupusuk.bsky.social
This One Exercise Can “Significantly” Reduce Waist Size and Weight, Says New Study
Doing this for just 10 weeks could make a noticeable difference to your body—especially for one particular group of people.
www.thehealthy.com
June 9, 2025 at 12:37 PM
This One Exercise Can “Significantly” Reduce Waist Size and Weight, Says New Study, for those who have problems with overweight, I´m chronic underweight from #SLE. Which is also no fun and not healthy, I know.
#LupusSucks
www.thehealthy.com/news/waist-s...
@lupus.org @lupusuk.bsky.social
#LupusSucks
www.thehealthy.com/news/waist-s...
@lupus.org @lupusuk.bsky.social
Source: lupussucks on insta
March 29, 2025 at 9:23 PM
Source: lupussucks on insta
I lost count on which infusion this is. Here I am though. #lupus #lupuswarriors #menwithlupus #malelupuswarrior #benlysta #infusion #selfcare #lupussucks
March 18, 2025 at 2:42 PM
I lost count on which infusion this is. Here I am though. #lupus #lupuswarriors #menwithlupus #malelupuswarrior #benlysta #infusion #selfcare #lupussucks
#lupus #autoimmunedisease #theglamfam #chronicpain #gypsyglam #spoonie #gypsyglamlifewithchronicillness #invisibleillness #lupuswarrior
#butyoudontlooksick #chronicillness #lupusawareness #fatigue #lupussucks #lupusstrong #lupusflare #lupusfighter #lupuslife #steroids #lupusproblems #lupusdiease
#butyoudontlooksick #chronicillness #lupusawareness #fatigue #lupussucks #lupusstrong #lupusflare #lupusfighter #lupuslife #steroids #lupusproblems #lupusdiease
March 13, 2025 at 6:58 PM
Woke up, threw up my guts, and the day was all downhill from there. Some days, you just aren't going to beat your disease. Went through the motions all day, but it was a losing battle. Try again tomorrow. #Lupussucks
March 12, 2025 at 5:56 AM
Woke up, threw up my guts, and the day was all downhill from there. Some days, you just aren't going to beat your disease. Went through the motions all day, but it was a losing battle. Try again tomorrow. #Lupussucks