#MEActionUK
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meactionuk.bsky.social
More than 360 sports people support Beth Dobbins call to Andy Burham to "level the playing field" for funding into ME research with that for other illnesses.
www.bbc.co.uk/sport/athlet...

#MEActionUK #MyalgicEncephalomyelitis #VerySevereME #MECFS #AndyBurnham #YvetteCooper
Beth Dobbin: Tom Daley and David Moyes among 360 sportspeople to sign letter to Andy Burnham
A total of 360 sportspeople sign a letter calling on the prime minister to meet Beth Dobbin and increase funding towards ME research.
www.bbc.co.uk
November 2, 2026 at 4:20 PM
meactionuk.bsky.social
As always, only take action if you can do so safely and without impacting your health.

#MEActionUK #MyalgicEncephalomyelitis #VerySevereME #MECFS #AndyBurnham

www.thetimes.com/uk/healthcar...
October 31, 2026 at 4:31 PM
meactionscotland.bsky.social
More than 360 sports people support Beth Dobbins call to Andy Burham to "level the playing field" for funding into ME research with that for other illnesses.
www.bbc.co.uk/sport/athlet...

#MEActionUK #MyalgicEncephalomyelitis #VerySevereME #MECFS #AndyBurnham #YvetteCooper
Beth Dobbin: Tom Daley and David Moyes among 360 sportspeople to sign letter to Andy Burnham
A total of 360 sportspeople sign a letter calling on the prime minister to meet Beth Dobbin and increase funding towards ME research.
www.bbc.co.uk
November 2, 2026 at 4:20 PM
meactionscotland.bsky.social
As always, only take action if you can do so safely and without impacting your health.

#MEActionUK #MyalgicEncephalomyelitis #VerySevereME #MECFS #AndyBurnham

www.thetimes.com/uk/healthcar...
October 31, 2026 at 4:31 PM
meownersclub.bsky.social
#ThereForME
#ME #MEcfs #LC #PEM #ChronicIllness #ChronicIllnessMemes @WesStreeting
@theguardian.com
@davetuller1.bsky.social
#ActionForME
#Icaireland.bsky.social
#MEActionUK
#Disability
There is a drawing of a woman collapsed on the floor. The title says “it (literally) took all the strength I had” The caption says - #ME/cfs - DEFINITELY NOT ALL IN THE MIND!
May 20, 2025 at 9:20 AM
meownersclub.bsky.social
#ActionForME
#ThereForME
@WesStreeting
@theguardian.com
@davetuller1.bsky.social
@lcaireland.bsky.social
#MEActionUK
#25%MEgroup
May 19, 2025 at 2:36 PM
louisekenward.bsky.social
...and the link!
www.youtube.com/@MEActionUK
MEActionUK
www.youtube.com
May 12, 2026 at 10:36 AM
louisekenward.bsky.social
All 7 readings can be listened back to on the link below:
featuring @alecfinlay.bsky.social @jaxxi.bsky.social @felinecharpentier.bsky.social Louisa Adjoa Parker and @nicwilson.bsky.social

www.youtube.com/@MEActionUK
MEActionUK
www.youtube.com
May 12, 2026 at 10:30 AM
louisekenward.bsky.social
Another year has passed and another ME Awareness Day/Week/Month is needed - revisiting a past series of events Moving Mountains ran with @meactionuk.bsky.social - short readings from some of the contributors will be linked below:
#BookSky #MillionsMissing
www.youtube.com/watch?v=LiBN...
Louise Kenward Introduces Moving Mountains - Writing Nature through Illness and Disability
YouTube video by MEActionUK
www.youtube.com
May 12, 2026 at 9:47 AM
lucibee.bsky.social
Update: DHSC wrote to #MEActionUK yesterday to say that they have paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at the earliest.

News article here:

meaction.org.uk/news/2026/03...

@tessamunt.bsky.social
News Article - MEAction UK
MEAction UK - Supporting people with ME
meaction.org.uk
March 25, 2026 at 4:12 PM
hopefullizzy.bsky.social
Please watch this short video & engage your MPs if able.
Tag them, write to them, this is urgent.

www.youtube.com/watch?v=YoCT...

@meactionuk.bsky.social “people with SevereME have no treatment, no hospital beds, no specialist, no NHS service.
Stop the deaths. Stop the harm. Start the service.”
#MEAction UK lights up London for Very Severe Myalgic Encephalomyelitis (ME)
YouTube video by MEActionUK
www.youtube.com
June 6, 2026 at 9:08 PM
meactionuk.bsky.social
Read more: shorturl.at/I7Rwk.
#MEActionUK #MyalgicEncephalomyelitis #VerySevereME #MECFS #Makerfield #AndyBurnham
June 20, 2026 at 12:58 PM
meactionuk.bsky.social
#MEActionUK emailed @NHSEngland about incorrect info on its ME/CFS webpage. Our request will be 'added to their backlog for a member of the website team to pick up when there is capacity'
bit.ly/3NoAFRF
#MyalgicEncephalomyelitis #HealthEquality
Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS)
Read about myalgic encephalomyelitis (chronic fatigue syndrome or ME/CFS). It’s a long-term condition with a wide range of symptoms including extreme tiredness.
bit.ly
January 15, 2026 at 1:04 PM
msmarquartpoetry.bsky.social
It’s #DisabilityPrideMonth, and I’m grateful to HAD for publishing my poem “Ode to My Cane" recently. @havehashad.com

www.havehashad.com/hadposts/ode...

#MillionsMissing #meaction #meactionuk #meactionscotland
#pwme #mecfs #crippoetry #crippower #disabledpoets #disabilitypoetry #poetry
Ode to My Cane by M.S. Marquart
It started with an “I voted” sticker. I stuck it on my cane, and soon came my first cane compliment, a jolt that echoed throughout my body. Could it be possible to be proud of my cane? ...
www.havehashad.com
July 18, 2025 at 10:00 PM
msmarquartpoetry.bsky.social
It’s #DisabilityPrideMonth, and I’m grateful to Free the Verse for including my poem “Protesting from Bed” in their latest issue.

It was inspired by the #MillionsMissing protest hosted annually by #meaction #meactionuk #meactionscotland

#pwme #mecfs #crippoetry #crippower #protectmedicaid #resist
Louder! | Issue 14 | Poetry Magazine | Free the Verse
What do you want to shout about? The poems in this issue talk about what it means to make noise, and what it means to stay quiet.
www.free-the-verse.com
July 16, 2025 at 6:33 AM
drfionac.bsky.social
Is MEActionUK here? @meactnet.bsky.social is Action for ME but I don’t see the uk one…
November 11, 2024 at 1:47 PM
meactionscotland.bsky.social
#MEActionUK emailed @NHSEngland about incorrect info on its ME/CFS webpage. Our request will be 'added to their backlog for a member of the website team to pick up when there is capacity'
bit.ly/3NoAFRF
#MyalgicEncephalomyelitis #HealthEquality
Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS)
Read about myalgic encephalomyelitis (chronic fatigue syndrome or ME/CFS). It’s a long-term condition with a wide range of symptoms including extreme tiredness.
bit.ly
January 15, 2026 at 1:04 PM
mecfssd.bsky.social
MEActionUK post: The UK Department of Health and Social Care (DHSC) has paused plans to commission specialist care for very severe ME/CFS until at least April 2027 due to changes in integrated care boards and NHS England responsibilities. www.facebook.com/MEActNetUK/p...
NHS placard on building
March 28, 2026 at 7:28 PM