#ThereForME
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actionforme.bsky.social
Former Team GB sprinter Beth Dobbin, who is mostly housebound with severe ME, is calling for greater government investment in research.

Together with ThereForME, we’ve produced a briefing supporting her campaign and setting out three priorities for government.

#ME research #MECFS #ThereForME
October 27, 2026 at 10:13 AM
tomkindlon.bsky.social
The UK groups ThereforME and Action for ME have produced a template letter and briefing for MPs

s4me.info/threads/uk-b...

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
UK advocacy The groups ThereforME and Action for ME have produced a template letter and briefing for MPs following up on the BBC article and interview with severe ME/CFS sufferer and former Olympian Beth Dobbin that we reported last week. Beth has written to the prime minister asking for more research funding for ME/CFS. Thread
October 28, 2026 at 1:37 AM
wamesmecfs.bsky.social
You can support ex Olympian Beth Dobbin in her campaign for increased ME research funding.
tinyurl.com/yc3sxss2
#ThereForME & AfME's MP briefing -Send this to your MP
Briefing: linktr.ee/ThereForME?l....
Letter template tr.ee/t7FLOe0LPV
“It feels like you are a few days from death.”
Response to Beth Dobbin’s BBC interview about her experience with severe ME; follow-up interviews with ME experts Dr Binita Kane and Dr Charles Shepherd.
tinyurl.com
October 26, 2026 at 1:42 PM
thereforme.bsky.social
Briefing 👇

tr.ee/Rj1SB62Ati
ThereForME Official: Instagram, X, Facebook | Linktree
Working towards a world where healthcare, wider public services, & society are truly there for people affected by ME.
tr.ee
October 23, 2026 at 7:02 PM
alicebarrett.bsky.social
If you have the spare energy/5 mins of time, here is a template to write to your local MP following Beth Dobbin’s letter to Andy Burnham.
Let’s try and keep this momentum going!💙
#thereforME #ME #chronicillness #advocacy
thereforme.bsky.social ThereForME @thereforme.bsky.social · 6d
Beth Dobbin has written to Andy Burnham to ask for increased funding for ME research.

We are working with her to amplify her message, and you can help (if capacity allows).

Write to your MP to back her call - to make things easier, we have a template for you.
docs.google.com/document/d/1...
Images of Beth Dobbin and Andy Burnham with a graphic of an email going from Beth to Andy. Under Beth is her quote "I believe you need to fund research into this spiralling illness and help us all get our lives back." and also there is a small chart showing UK Govt Reearch funding 2019-2024. ME - £6.6m, Parkinsons, £79.1m and Dementia £496.4m. The text says "Beth Dobbin has written to Andy Burnham asking for increasing funding for ME research. You can help! Support Beth's call for ME funding by writing to your MP. Template letter available!"
October 22, 2026 at 4:01 PM
jm3.trunk.lol.ap.brid.gy
“We base benefit estimates on current law, which Congress has revised before and may revise again to address needed changes. Learn
more about Social Security's future at ssa.gov/ThereForMe”

“THERE FOR ME”, the url SSA is currently including in your earnings report […]

[Original post on trunk.lol]
A gray banner with black text that reads, "On current law, which Congress has revised in the past, see future at ssa.gov/ThereForMe."
October 14, 2026 at 11:34 PM
thereforme.bsky.social
Inside ThereForME Update No. 36:

George Monbiot's Guardian piece about what has changed for people with ME since the 2021 NICE guideline, and our letter in response

Policy watch: Scotland's implementation gap, and Burnham’s national care service plans

PLUS...
ThereForME Update #36, 06.10.26. From the Guardian to Holyrood: ME in the spotlight. ME in the press. Policy watch: Scotland & social care. ME & Long Covid research. Subscribe to receive updates on our work & other developments.
October 6, 2026 at 10:12 AM
colleensteckel.bsky.social
View from the Trenches of #MyalgicEncephalomyelitis latest news:
-US rule affects ability to import medications
-National Survey on Health and Disability
-Olmstead Act news
-MEGC Fall edition
-Monbiot publishes another article
-ThereForME charity
colleensteckelmeiccinfo.substack.com/p/news-2026-...
News: 2026 Oct 5
US rule affects medication imports, Disability survey open, News about Olmstead Act, ME Global Chronicle Fall edition, George Monbiot publishes another article, ThereForME now a charity
colleensteckelmeiccinfo.substack.com
October 5, 2026 at 8:19 PM
thereforme.bsky.social
Planning a charity challenge, event or birthday fundraiser? It just got easier to support us! 🎉

You can now select ThereForME as your chosen cause when setting up your fundraising page on JustGiving.
New! Planning a fundraiser? You can now select ThereForME as your chosen cause on JustGiving! Download an A3 poster to print at home/work. You can also edit & download our fundraising poster and social media templates in Canva.
September 30, 2026 at 5:44 PM
thereforme.bsky.social
However you choose to publicise your event, we’d love to hear about it!

As always, thank you for your support. 🙏🩵

ThereForME is a Charitable Incorporated Organisation registered in England & Wales. Registered charity No. 1218590.
September 30, 2026 at 5:45 PM
thereforme.bsky.social
You can download our A3 poster to write details of your event on. drive.google.com/file/d/1l64J...

Or, you can use our editable Canva templates to create your poster or social media post: canva.link/6w1jqdl7p9z2... and canva.link/mptm21idb6ig...
Fundraising for ThereForME A3 poster.pdf
drive.google.com
September 30, 2026 at 5:45 PM
meownersclub.bsky.social
Yup. But instead -

#ThereForME
#WomensHealth
@theguardian.com
@davetuller1.bsky.social
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
@meassociation.org.uk
@longcoviduk.bsky.social
@davidjoffe64.bsky.social
@nhsengland.bsky.social
@thelancet.com
@rcgpt.bsky.social
Out of Patients #ME and Long Covid The science has moved on Clinical practice has not #FanningTheFlames
September 25, 2026 at 9:18 AM
thereforme.bsky.social
We wanted to say a big thank you for all of your support since our charity announcement yesterday!

We've had so many kind messages, and we're so grateful for all of the donations we've received so far.

A big, big thank you from the team - this community is the best 🫶
A big thank you from us for all your support so far! ThereForME. ThereForME is a CIO registered in England and Wales. Registered Charity No. 1218590.
September 24, 2026 at 6:01 PM
thereforme.bsky.social
George Monbiot was nominated for last year’s ThereForME Advent Calendar for using journalism to shine a light on failings faced by pwME.

Today, he writes that too often people with ME are abandoned, while discredited treatments continue to be prescribed.

He’s right.
September 24, 2026 at 11:26 AM
thereforme.bsky.social
The sense of shock George conveys at how people with ME have been failed is exactly why we founded ThereForME.

And it’s why we’re so determined to bring the reality of ME directly to the people with the power to act.

Who’s with us?
September 24, 2026 at 11:27 AM
thereforme.bsky.social
Are you keen to share your experiences of adult social care?

If you’d be interested to write for us (500 words max), let us know 👇
We want to hear from you! Are you keen to share your experiences of adult social care? We’re looking for 1 or 2 contributors for an upcoming post. If you’d be interested to write for us (500 words max), let us know! ThereForME.
September 25, 2026 at 9:02 AM
thereforme.bsky.social
We're excited to share something we've been working on for a while.

ThereForME is now a registered charity! 🥳

1/4
We’ve got news! ThereForME is now a registered charity. ThereForME is a Charitable Incorporated Organisation registered in England and Wales. Registered Charity No. 1218590.
September 23, 2026 at 8:17 AM
thereforme.bsky.social
We'd love to ask for your support.

For those who are willing & able, it's now possible to donate to ThereForME via the link here 👇

3/4

cafdonate.cafonline.org/31147
ThereForME - Donate now
cafdonate.cafonline.org
September 23, 2026 at 8:18 AM
thereforme.bsky.social
We will never encourage anyone to give beyond their means, and there are ways to support our work other than donating.

You can follow our blog, where we'll share updates on how you can help 👇

4/4

www.thereforme.uk/p/thereforme...
ThereForME is now a registered charity
What it means for our work, and how you can get involved
www.thereforme.uk
September 23, 2026 at 8:18 AM
karenlhargrave.bsky.social
We are so pleased to share that @thereforme.bsky.social is now officially a registered charity!

It’s been a long road to get here - we have big ambitions and we’re excited to see where we can take ThereForME next.
thereforme.bsky.social ThereForME @thereforme.bsky.social · Sep 23
We're excited to share something we've been working on for a while.

ThereForME is now a registered charity! 🥳

1/4
We’ve got news! ThereForME is now a registered charity. ThereForME is a Charitable Incorporated Organisation registered in England and Wales. Registered Charity No. 1218590.
September 23, 2026 at 8:32 AM
karenlhargrave.bsky.social
If you’d like to and have the means to support financially, as of today we are open to donations 👇

But it’s worth saying, we will never encourage anyone to give beyond their means and there will be plenty of other ways to be part of the journey 💙

cafdonate.cafonline.org/31147#!/Dona...
ThereForME - Donate now
cafdonate.cafonline.org
September 23, 2026 at 8:33 AM
meownersclub.bsky.social
Drs want people w #ME + #Long Covid to respect their skills and experience-but should we? Really?

#ThereForME
#WomensHealth
@theguardian.com
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
@meassociation.org.uk
@longcoviduk.bsky.social
@davidjoffe64.bsky.social
@nhsengland.bsky.social
The cartoon series is called - Out of Patients I'm afraid your illness is psychosomatic or FND -you need exercise and psychiatr.y... I can't believe it.._. ..you're really offering medicine with all the science taken out! Quackery with Credentials ..available free at your local GP #FanningTheFlames
September 18, 2026 at 9:39 AM
meownersclub.bsky.social
Drs want people with #ME and #Long Covid to respect their skills and experience seriously-but should we? Really?

#ThereForME
#WomensHealth
@theguardian.com
@davetuller1.bsky.social
@davidjoffe64.bsky.social
@nhsengland.bsky.social
@thelancet.com
@rcgpt.bsky.social
@irishmecfsassoc.bsky.social
The cartoon series is called - Out of Patients There are three boxes in which a male doctor is talking to a woman patient. In Box One the doctor is saying “I'm afraid your illness is psychosomatic or FND -you need exercise and psychiatr.y...” The woman is replying “I can't believe it..” In Box Two the doctor is looking cross as the woman says “...you're really offering medicine with all the science taken out!” In Box. Three the woman is saying “Quackery with Credentials ..available free at your local GP” The cartoon maker is #FanningTheFlames
September 17, 2026 at 10:43 AM
meownersclub.bsky.social
Pushing the BPS model of #ME to extremes to show how foolish it is

#ThereForME
#WomensHealth
@theguardian.com
@davetuller1.bsky.social
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
@meassociation.org.uk
@longcoviduk.bsky.social
@davidjoffe64.bsky.social
@nhsengland.bsky.social
The cartoon series is called - Out of Patients! There are three boxes In Box One a doctor is lecturing. He is saying - “Apparently some people with #ME died trying to prove my bio-psycho-social model wrong!” In the bottom right hand corner a couple of doctors are saying “mutter mutter MH issues etc” Box 2 X the doctor is leaning forward as if to bow while lecturing and saying “...so welcome to the... bio-mechanical psycho-social weather model of #ME...” In the bottom right hand corners the two doctors are saying “more categories=more wisdom etc etc” In Box 3 thr doctor is now playing a violin and saying - “Now doctors can blame kitchen equipment, cars, weather, biology, society AND the weather for chronic illness!” In the bottom right corner Simon Wessely is saying “Why do science when phantasy is so much more rewarding?” The cartoon maker is #FanningTheFlames
September 16, 2026 at 3:59 PM
meownersclub.bsky.social
I’m on a tour of my relative’s beds in Canada. Joyous days with my daughter
#ThereForME
@theguardian.com
@davetuller1.bsky.social
#ME #Chronicillness #LC
#PEM #POTS
#MissingMillions
@meassociation.org.uk
@longcovidsupport.bsky.social
@davidjoffe64.bsky.social
The cartoon series is called - This Week in Disbelief There are four boxes Box one - two women are talking. The one of the left is asking ‘How's the brain fog!’ The woman on the right replies ‘It's a whole new world’ Box two - the women are silent - the woman on the left right looks puzzled Box three - the woman on the right is asking ‘Are we waiting for any other thoughts....?’ Box four - both women are laughing and the one on the right is saying ‘I can't even remember what we were talking about!’ The cartoon maker is #FanningTheFlames
September 14, 2026 at 12:15 PM